Palliative Care Is Critical to the Changing Face of Child Mortality and Morbidity in the United States
child mortality
NO ABSTRACT PARAGRAPH 1: In hospitals around the nation, children with medical complexity (CMC) receive life-prolonging interventions for debilitating diseases. These children are alive because of disease-focused interventions including multiple medications, innovative procedures, durable medical equipment, and continuous care. Their lives depend on an intricate dance of family caregivers—along with health care providers—who must manage long-term illnesses in their homes and communities in the context of a health care system that is only beginning to address the challenges of complex chronic disease care for children.
2014-05
Bogetz JF; Schroeder AR; Bergman DA; Cohen HJ; Sourkes B
Clinical Pediatrics
2014
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/0009922814534767" target="_blank" rel="noreferrer">10.1177/0009922814534767</a>
Continuing education needs of pediatricians across diverse specialties caring for children with medical complexity
OBJECTIVE: Care for children with medical complexity (CMC) relies on pediatricians who often are ill equipped, but striving to provide high quality care. We performed a needs assessment of pediatricians across diverse subspecialties at a tertiary academic US children's hospital about their continuing education needs regarding the care of CMC. METHODS: Eighteen pediatricians from diverse subspecialties were asked to complete an online anonymous open-ended survey. Data were analyzed using modified grounded theory. RESULTS: The response rate was 89% (n = 16). Of participants, 31.2% (n = 5) were general pediatricians, 18.7% (n = 3) were hospitalists, and 50% (n = 8) were pediatric subspecialists. Pediatricians recognized the need for skills in care coordination, giving bad news, working in interprofessional teams, and setting goals of care with patients. CONCLUSIONS: Practicing pediatricians need skills to improve care for CMC. Strategically incorporating basic palliative care education may fill an important training need across diverse pediatric specialties.
2015-03
Bogetz JF; Bogetz AL; Gabhart JM; Bergman DA; Blankenburg RL; Rassbach CE
Clinical Pediatrics
2015
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1177/0009922814564049" target="_blank" rel="noreferrer">10.1177/0009922814564049</a>