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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1542/peds.2012-0068" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-0068</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Subject
The topic of the resource
Female; Humans; Male; Adolescent Psychology; Adult; Attitude to Health; Questionnaires; Motivation; Altruism; adolescent; Risk-Taking; Parents/psychology; Nontherapeutic Human Experimentation; Research Subjects/psychology; Benefits of PPC
Creator
An entity primarily responsible for making the resource
Wendler D; Abdoler E; Wiener L; Grady C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2012-0068" target="_blank" rel="noreferrer">10.1542/peds.2012-0068</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Abdoler E
Adolescent
Adolescent Psychology
Adult
Altruism
Attitude To Health
Backlog
Benefits of PPC
Female
Grady C
Humans
Journal Article
Male
Motivation
Nontherapeutic Human Experimentation
Parents/psychology
Pediatrics
Questionnaires
Research Subjects/psychology
Risk-Taking
Wendler D
Wiener L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="www.eiu.com/sponsor/lienfoundation/qualityofdeath" target="_blank" rel="noreferrer">www.eiu.com/sponsor/lienfoundation/qualityofdeath</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The quality of death: ranking end-of-life care across the world.
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Health Services; Benefits of PPC
Creator
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Economist Intelligence Unit
Description
An account of the resource
Quality of life is a common phrase. The majority of human endeavours are ostensibly aimed at improving quality of life, whether for the individual or the community, and the concept ultimately informs most aspects of public policy and private enterprise. Advancements in healthcare have been responsible for the most significant quality-of-life gains in the recent past: that humans are (on average) living longer, and more healthily than ever, is well established. But “quality of death†is another matter.Death, although inevitable, is distressing to contemplate and in many cultures is taboo. Even where the issue can be openly discussed, the obligations implied by the Hippocratic oath—rightly the starting point for all curative medicine—do not fit easily with the demands of end-of-life palliative care, where the patient’s recovery is unlikely and instead the task falls to the physician (or, more often, caregiver) to minimise suffering as death approaches. Too often such care is simply not available: according to the Worldwide Palliative Care Alliance, while more than 100m people would benefit from hospice and palliative care annually (including family and carers who need help and assistance in caring), less than 8% of those in need access it.
2010
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Backlog
Benefits of PPC
Economist Intelligence Unit
Health Services
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2009.0339" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2009.0339</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Care of the dying in Australia's busiest hospital: benefits of palliative care consultation and methods to enhance access
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Benefits of PPC
Creator
An entity primarily responsible for making the resource
Le BH; Watt JN
Description
An account of the resource
BACKGROUND: Hospital-based palliative care consultative teams assist with decision-making, symptom management, patient and family support, and discharge planning for those with advanced illness. However, there is evidence to suggest that many patients dying within acute hospitals receive no specialist palliative care input. This project aimed to assess care provided to patients dying within a large Australian hospital and to understand senior clinician decision-making around referral to palliative care. METHODS: A multi-methods approach was taken that incorporated a literature review, a retrospective chart-audit using the Liverpool Care Pathway to assess quality of end-of-life care, and semistructured interviews with clinicians. RESULTS: The audit demonstrated wide variation in referral practices from clinical units, with overall only 42% of dying patients referred. A number of deficiencies in the care of dying patients within the hospital were evident; however, referral for palliative care consultation was associated with improvements in availability of appropriate end-of-life medication orders, communication with patients and families, and cessation of futile treatment and interventions. Eight themes emerged from the interviews with clinicians, including uncertainty as to the role of palliative care and a discrepancy between medical and nursing views of the utility and timing for palliative care. CONCLUSIONS: The findings demonstrate both the need for more frequent and/or earlier referral of dying patients and the need for generalist staff to become more skilled in the delivery of palliative care. It also highlights the need for palliative care clinicians to be educators and advocates within services to enhance care at end-of-life.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2009.0339" target="_blank" rel="noreferrer">10.1089/jpm.2009.0339</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Backlog
Benefits of PPC
Journal Article
Journal of Palliative Medicine
Le BH
Watt JN
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2013.9518" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2013.9518</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative care research comes of age: what we stand to learn from children with life-threatening illness
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Benefits of PPC
Creator
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Ullrich C; Morrison RS
Identifier
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<a href="http://doi.org/10.1089/jpm.2013.9518" target="_blank" rel="noreferrer">10.1089/jpm.2013.9518</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Backlog
Benefits of PPC
Journal Article
Journal of Palliative Medicine
Morrison RS
Ullrich C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1056/NEJMp1215620" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJMp1215620</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Generalist plus Specialist Palliative Care - Creating a More Sustainable Model
Publisher
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The New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Benefits of PPC
Creator
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Quill TE; Abernethy AP
Description
An account of the resource
Palliative care, a medical field that has been practiced informally for centuries, was recently granted formal specialty status by the American Board of Medical Specialties. The demand for palliative care specialists is growing rapidly, since timely palliative care consultations have been shown to improve the quality of care, reduce overall costs, and sometimes even increase longevity.1,2 The field grew out of a hospice tradition in which palliative treatment was delivered only at the end of life, but its role has expanded so that palliative care specialists now also provide palliative treatment in the earlier stages of disease alongside disease-directed . . .
2013
Identifier
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<a href="http://doi.org/10.1056/NEJMp1215620" target="_blank" rel="noreferrer">10.1056/NEJMp1215620</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Abernethy AP
Backlog
Benefits of PPC
Journal Article
Quill TE
The New England Journal Of Medicine