1 40 10 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2021 Special Edition 2 - Oncology Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month 2021 Special Edition - Oncology URL Address <a href="http://doi.org/10.1111/papr.12965" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/papr.12965</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Barriers and Adherence to Pain Management in Advanced Cancer Patients Publisher An entity responsible for making the resource available Pain Practice Date A point or period of time associated with an event in the lifecycle of the resource 2020 Subject The topic of the resource palliative care; barriers; cancer pain; opioids; adherence to medication Creator An entity primarily responsible for making the resource Mercadante S; Adile C; Tirelli W; Ferrera P; Penco I; Casuccio A Description An account of the resource AIM: To assess patients' barriers to pain management and analgesic medication adherence in advanced cancer patients METHODS: Prospective cross-sectional study in advanced cancer patients receiving chronic opioid therapy. Age, gender, cancer diagnosis, Karnofsky level, and educational status were recorded. collected. These included age, gender, cancer diagnosis, Karnofsky level, and educational status. The Brief Pain Inventory (BPI), the Edmonton Symptom Assessment Scale (ESAS), the Memorial Delirium Assessment Scale (MDAS), the Barriers Questionnaire II (BQ-II), medication Adherence Rating Scale (MARS), and Hospital Anxiety and Depression Scale (HADS) were measured. RESULTS: One-hundred-thirteen patients were analyzed. The mean age was 68 (± 13) years and 59 (52%) were males. The mean Karnofsky status was 51.4 (SD 11.5). The mean value of BQ-II items was 1.77 (SD 0.7). BQ-II was independently related with HADS-D (p=0.033), and with total HADS (p=0.049). Negative side-effects and attitudes to psychotropic medication globally prevailed among MARS items. These items were independently associated with gender (P=0.030), pain (; p=0.003), and depression (p= 0.047). CONCLUSION: Barriers to pain management were mild. Psychological factors such as depression were the main factor associated with barriers. Poor adherence to analgesic medication was mostly manifested as negative side-effects and attitudes to psychotropic medication, was more frequent observed in females and was associated with ESAS items pain and depression. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1111/papr.12965" target="_blank" rel="noreferrer noopener">10.1111/papr.12965</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2020 2021 Special Edition - Oncology adherence to medication Adile C Barriers cancer pain Casuccio A Ferrera P Mercadante S Opioids Pain Practice Palliative Care Penco I Tirelli W Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2022 Special Edition 4 - Low Resource Setting List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month 2022 Special Edition Low Resource Setting Issue URL Address <a href="http://doi.org/10.1017/S1478951521001668" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1017/S1478951521001668</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Perception of Pediatric Oncology Family Care Providers toward Palliative Care and Its Perceived Barriers in Egypt Publisher An entity responsible for making the resource available Palliative and Supportive Care Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource Attitude; Barriers; Knowledge; Oncology; Palliative care; Practice Creator An entity primarily responsible for making the resource Mohamed MA; Ibrahim AM; Ibrahim HM; Abdella N; Elmowafy RI Description An account of the resource BACKGROUND: Palliative care is comprehensive supportive care addressing the suffering, pain, discomfort, symptoms, and stress of cancer and any serious life-threatening disease. It is a key part of care for our children living with cancer and is an important source of support for their families. The study aimed to assess the perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt. METHOD(S): Total number of 500 oncology children's family care providers was recruited. A descriptive research design was utilized. Researchers used three tools as Structured Interview Questionnaire to assess the participants' knowledge and perceived barriers, Attitude toward palliative care Likert Scale, and Reported Practices Observational Checklist. The study was conducted in outpatient cancer clinics affiliated with El-Nasr governmental hospital located at Port Said governorate. RESULT(S): 51.8% of the total oncology children's family care providers had sufficient knowledge, 78.6% had a positive attitude, while,76.8% of them had inappropriate Practice towards palliative care. SIGNIFICANCE OF RESULTS: The pediatric oncology family care providers had sufficient knowledge and a positive attitude toward palliative care, but their practices were inappropriate. Also, the majority of participants identified Lack of family care providers training in pediatric palliative care and improper communication between the health team and family care providers as the main barriers to providing palliative care to children. Providing a palliative care training program for family caregivers through continuing professional development is highly recommended besides further research studies using large probability samples at different settings. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1017/S1478951521001668" target="_blank" rel="noreferrer noopener">10.1017/S1478951521001668</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 2022 Special Edition Low Resource Setting Issue Abdella N Attitude Barriers Elmowafy RI Ibrahim AM Ibrahim HM Knowledge Mohamed MA Oncology Palliative & Supportive Care Palliative Care Practice Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource October 2022 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month October 2022 List URL Address <a href="http://doi.org/10.3389/fped.2022.887711">http://doi.org/10.3389/fped.2022.887711</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China Publisher An entity responsible for making the resource available Frontiers in Pediatrics Date A point or period of time associated with an event in the lifecycle of the resource 2022 Subject The topic of the resource death; neonatal; China; newborn; acceptance; emotional; social; analgesia; well-being; nurses; education; nurse; palliative; barriers; skill; human; article; female; male; adult; aged; therapy; scale; care; multicenter; attitude; Chinese; clinical; controlled; intensive; major; study; unit; decision; making; middle; facilitators; guidance; script; simplified; vocational Creator An entity primarily responsible for making the resource Zhong Y; Black BP; Kain VJ; Song Y Description An account of the resource Neonatal nurses in mainland China encounter various challenges when it comes to delivering palliative care to neonates. The aim of this study was to determine the barriers and facilitators of neonatal nurses' attitudes to palliative care for neonates in mainland China. A simplified Chinese version of the Neonatal Palliative Care Attitude Scale was piloted, administered, and analyzed using survey methods. Nurses in neonatal intensive care units in mainland China regardless of experience in the field were invited to take part in. Over a five-month period in 2019, we surveyed neonatal nurses from 40 hospitals in five provinces of China. The response rate was 92.5% (N = 550). This study identified eight facilitators and four barriers to neonatal palliative care implementation. In terms of nurses' attitudes on providing palliative care, younger and older nurses were more positive, whereas middle-aged nurses were less so. Nurses' emotional wellbeing was rarely impacted by neonatal death. They considered neonatal palliative care, particularly pain management, to be just as important as curative treatment. Parents were invited to participate in decision-making by nurses. Nurses reported having access to professional counseling and talking about their concerns with other healthcare professionals. The following barriers to neonatal palliative care were identified in this study that were not observed in the original English version scale research in 2009: a lack of clinicians, time, clinical skills, systematic education, neonatal palliative care experience, and social acceptance. Future research is required to investigate each barrier in order to improve the implementation of neonatal palliative care in mainland China. Copyright © 2022 Zhong, Black, Kain and Song. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.3389/fped.2022.887711">10.3389/fped.2022.887711</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2022 acceptance Adult Aged Analgesia Article Attitude Barriers Black BP CARE China Chinese Clinical controlled Death decision Education emotional Facilitators Female Frontiers in Pediatrics guidance Human intensive Kain VJ Major making Male middle Multicenter Neonatal Newborn Nurse Nurses October 2022 List Palliative Scale script simplified Skill Social Song Y study Therapy Unit vocational Well-being Zhong Y Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource September 2020 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month September 2020 List URL Address <a href="http://doi.org/10.1016/j.pedhc.2020.05.006" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1016/j.pedhc.2020.05.006</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Early Initiation of Pediatric Palliative Care Publisher An entity responsible for making the resource available Journal of Pediatric Health Care Date A point or period of time associated with an event in the lifecycle of the resource 2020 Subject The topic of the resource barriers; life-threatening disease; nurse practitioners; palliative care; pediatric Creator An entity primarily responsible for making the resource Neuburg L Description An account of the resource Pediatric palliative care (PPC) literature was utilized to identify barriers for early initiation of palliative care at diagnosis among children with life-threatening diseases. Early integration of PPC enhances quality of life and reduces suffering in these children, but many clinicians fail to initiate advanced care planning, establish goals of care, and refer to specialists. Barriers to early PPC initiation include clinician misperceptions, emotional toll on clinicians, and prognostic uncertainty about treatment options and care management strategies. Pediatric nurse practitioners can increase awareness, educate, and support other clinicians to promote early initiation of PPC in children with life-threatening diseases. Copyright © 2020 National Association of Pediatric Nurse Practitioners Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1016/j.pedhc.2020.05.006" target="_blank" rel="noreferrer noopener">10.1016/j.pedhc.2020.05.006</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2020 Barriers Journal Of Pediatric Health Care life-threatening disease Neuburg L Nurse Practitioners Palliative Care Pediatric September 2020 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource 2019 Developing World List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month Developing World 2019 List URL Address <a href="http://doi.org/10.1177/0825859719827021" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1177/0825859719827021</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Factors Associated With Knowledge and Comfort Providing Palliative Care: A Survey of Pediatricians in Mexico Publisher An entity responsible for making the resource available Journal of Palliative Care Date A point or period of time associated with an event in the lifecycle of the resource 2019 Subject The topic of the resource barriers; comfort; education; knowledge; Mexico; pediatric palliative care Creator An entity primarily responsible for making the resource Zuniga-Villanueva G; Ramirez-GarciaLuna J L; Weingarten K Description An account of the resource BACKGROUND:: Lack of education and training in palliative care has been described to be one of the most important barriers to pediatric palliative care implementation. OBJECTIVE:: To examine what factors determine the degree of knowledge and level of comfort Mexican pediatricians have providing pediatric palliative care. METHODS:: A questionnaire that assessed palliative care concepts was developed and applied online to Mexican pediatricians, both generalists and specialists. RESULTS:: A total of 242 pediatricians responded. The majority had not received palliative care education (92.6%) and felt uncomfortable discussing palliative needs with patients and families (92.1%). The mean score of the questionnaire was 6.8 (+/-1.4) of 10 correct answers. Knowledge in palliative care was associated with exposure to oncologic patients ( P = .01) and previous palliative care education ( P = .02) but inversely related to the pediatrician's age ( P = .01). Comfort addressing patient's palliative care needs was associated with knowledge in palliative care ( P < .01), exposure to oncologic patients ( P = .03), and previous education in palliative care ( P = .02). CONCLUSIONS:: Although Mexican pediatricians have basic knowledge of palliative care concepts, they do not feel comfortable addressing palliative care needs, suggesting that the main barrier for implementing palliative care is not the lack of knowledge but rather feeling uncomfortable when addressing these issues with patients and families. Educational programs should incorporate strategies that could help physicians develop comfort in approaching palliative care patients. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/0825859719827021" target="_blank" rel="noreferrer noopener">10.1177/0825859719827021</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2019 Barriers Comfort Developing World 2019 List Education Journal Of Palliative Care Knowledge Mexico Pediatric Palliative Care Ramirez-GarciaLuna J L Weingarten K Zuniga-Villanueva G Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource January 2019 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month January 2019 List URL Address <a href="http://doi.org/10.1089/jpm.2018.0367" target="_blank" rel="noreferrer noopener"> http://doi.org/ 10.1089/jpm.2018.0367</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Comparing Health Care Provider-Perceived Barriers to Pediatric Palliative Care Fifteen Years Ago and Today Publisher An entity responsible for making the resource available Journal of Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource pediatric palliative care; pediatric end-of-life care; barriers; uncertain prognosis Creator An entity primarily responsible for making the resource Bogetz JF; Root M C; Purser L; Torkildson C Description An account of the resource OBJECTIVE: This study examines health care provider perspectives about barriers to pediatric palliative care for seriously ill children 15 years after an initial study within the same academic health system. METHODS: Anonymous validated surveys were sent electronically to inpatient nursing unit distribution lists (n = 1315). Reminders were sent through e-mail twice over a two-month data collection period. RESULTS: Response rate was 20.9% (275/1315) with 45.2% of responses from critical care units and 21.6% from hematology/oncology units. Of the participants, 58.2% (n = 160) had >/=10 years nursing experience, 58.5% (n = 161) had one to five patients die in the past 12 months, and 50.2% (n = 138) had one to five patients receiving subspecialty pediatric palliative care in the past year. Approximately one-half of the participants reported 3 of 26 barriers listed on the study survey as frequently or almost always occurring, including (1) family preference for more life-sustaining treatment than staff (n = 177, 64.8%), (2) family not ready to acknowledge incurable condition (n = 175, 64.1%), and (3) parent discomfort with possibility of hastening death (n = 146, 53.7%). Study findings were similar between 2002 and 2017, particularly in the extremes of the most and least commonly cited barriers. CONCLUSIONS: Barriers to palliative care for hospitalized children persist and commonly include perceptions that families deny, prefer, or have discomfort with forgoing life-sustaining treatments. Increasingly, studies have shown that families can be simultaneously hopeful and aware of their child's worsening health. Further palliative care education and research about these barriers and their impacts are necessary to support seriously ill children and their families. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1089/jpm.2018.0367" target="_blank" rel="noreferrer noopener">10.1089/jpm.2018.0367</a> 2018 Barriers Bogetz JF January 2019 List Journal of Palliative Medicine Pediatric End-of-life Care Pediatric Palliative Care Purser L Root M C Torkildson C Uncertain Prognosis Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource August 2018 List Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2018 List URL Address <a href="http://doi.org/10.22038/ijp.2018.28630.2511" target="_blank" rel="noreferrer noopener">http://doi.org/10.22038/ijp.2018.28630.2511</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Spiritual Challenges Experienced by Nurses in Neonatal End of Life: A Qualitative Study Publisher An entity responsible for making the resource available International Journal of Pediatrics-Mashhad Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource Nurse; palliative care; Pediatrics; Qualitative Research; Death; NICU; barriers; infant; families; birth; intensive-care-unit; interventions; iran; of-life; Neonate Creator An entity primarily responsible for making the resource Ghaljaei F; Goli H; Rezaie N; Sadeghi N Description An account of the resource Background The literature reviews show that taking care of dying newborns for a nurse is associated with stress and anxiety, and nurses will be faced with many challenges, the present study aimed to explain the spiritual challenges experienced by nurses in neonatal end of life in the NICU. The present study was conducted with a qualitative method and "purposive" sampling. The study environment was NICU in the hospitals of Zahedan, Iran. Semi-structured interviews used for interview and data collection. A number of 24 participants with inclusion criteria were interviewed. Qualitative content analysis method was used with the conventional approach and inductive method with Graneheim and Lundman approach. Data analysis explored were categorized in three main themes: spiritual challenge of neonatal care with two-categories (palliative care, and care with love and affection); psychological / spiritual support challenges of family with two categories (spiritual support of family, psychological support of family), and nurses' spiritual distress with one category (nurse's trauma in neonatal care). In this study three themes were obtained: 1- Spiritual challenge of neonatal care with two-categories (palliative care, and care with love and affection); 2- Psychological / spiritual support challenges of family with two categories (spiritual support of family, psychological support of family), and 3- The nurses' spiritual distress with one category (nurse's trauma in neonatal care). Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.22038/ijp.2018.28630.2511" target="_blank" rel="noreferrer noopener">10.22038/ijp.2018.28630.2511</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2018 August 2018 List Barriers Birth Death Families Ghaljaei F Goli H Infant Intensive-care-unit International Journal of Pediatrics-Mashhad Interventions Iran Neonate Nicu Nurse Of-life Palliative Care Pediatrics Qualitative Research Rezaie N Sadeghi N Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month n/a URL Address <a href="http://doi.org/10.1177/1049909115616597" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909115616597</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Barriers of palliative care in neonatal intensive care units: Attitude of neonatal nurses in southeast Iran Publisher An entity responsible for making the resource available American Journal Of Hospice & Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource 2017; Attitude; Barriers; Neonatal Intensive Care; Neonatal Intensive Care Units; Neonatal Nurses; Neonatal Palliative Care; Nurses; Nursing; Palliative Care; Southeast Iran Creator An entity primarily responsible for making the resource Azzizadeh FM; Banazadeh M; Ahmadi JS; Razban F Description An account of the resource Objective: Neonatal nurses face numerous barriers in providing end-of-life (EOL) care for neonates and their families. Addressing neonatal nurses’ attitudes could provide insight into barriers that impede neonatal palliative care (NPC). This study thus conducted to examine neonatal nurses’ attitude toward barriers in providing NPC in Southeast Iran. Method: In this cross-sectional study, a translated modified version of Neonatal Palliative Care Attitude Scale was used to examine attitudes of 70 nurses toward barriers of palliative care in 3 neonatal intensive care units in Southeast Iran. Results: Findings indicated that overall 42.63% of nurses were strongly agreed or agreed with the proposed barriers in NPC. Among all categories, the highest and the lowest scores belonged to the categories of 'insufficient resources' (3.42 ± 0.65) and 'inappropriate personal and social attitudes' (2.33 ± 0.48), respectively. Neonatal nurses who had less education and study regarding NPC reported the presence of more barriers to NPC in the categories of 'inappropriate organizational culture' and/or 'inadequate nursing proficiency.' Also, younger nurses had more positive attitudes toward the category of inappropriate organizational culture as being a barrier to provision of NPC (4.62). Conclusion: The findings suggest that developing a context-based instrument is required to represent the barrier more precisely. Neonatal palliative care can be improved by establishing a special environment to focus on infants’ EOL care. This establishment requires standard palliative care guidelines and adequate NPC-trained nurses. (PsycINFO Database Record (c) 2017 APA, all rights reserved) Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1177/1049909115616597" target="_blank" rel="noreferrer">10.1177/1049909115616597</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Ahmadi JS American Journal of Hospice & Palliative Medicine Attitude Azzizadeh FM Banazadeh M Barriers neonatal intensive care Neonatal Intensive Care Units Neonatal Nurses Neonatal Palliative Care Nurses Nursing Palliative Care Razban F Southeast Iran Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month July 2017 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Palliative Care In The Neonatal Unit: Neonatal Nursing Staff Perceptions Of Facilitators And Barriers In A Regional Tertiary Nursery Publisher An entity responsible for making the resource available Bmc Palliative Care Date A point or period of time associated with an event in the lifecycle of the resource 2017 Subject The topic of the resource Palliative Care; Neonatal; Facilitators; Barriers; Regional Location; Qualitative Creator An entity primarily responsible for making the resource Kilcullen M; Ireland S Description An account of the resource Background Neonatology has made significant advances in the last 30 years. Despite the advances in treatments, not all neonates survive and a palliative care model is required within the neonatal context. Previous research has focused on the barriers of palliative care provision. A holistic approach to enhancing palliative care provision should include identifying both facilitators and barriers. A strengths-based approach would allow barriers to be addressed while also enhancing facilitators. The current study qualitatively explored perceptions of neonatal nurses about facilitators and barriers to delivery of palliative care and also the impact of the regional location of the unit. Methods The study was conducted at the Townsville Hospital, which is the only regional tertiary neonatal unit in Australia. Semi-structured interviews were conducted with a purposive sample of eight neonatal nurses. Thematic analysis of the data was conducted within a phenomenological framework. Results Six themes emerged regarding family support and staff factors that were perceived to support the provision of palliative care of a high quality. Staff factors included leadership, clinical knowledge, and morals, values, and beliefs. Family support factors included emotional support, communication, and practices within the unit. Five themes emerged from the data that were perceived to be barriers to providing quality palliative care. Staff perceived education, lack of privacy, isolation, staff characteristics and systemic (policy, and procedure) factors to impact upon palliative care provision. The regional location of the unit also presented unique facilitators and barriers to care. Conclusions This study identified and explored facilitators and barriers in the delivery of quality palliative care for neonates in a regional tertiary setting. Themes identified suggested that a strengths-approach, which engages and amplifies facilitating factors while identified barriers are addressed or minimized, would be successful in supporting quality palliative care provision in the neonatal care setting. Study findings will be used to inform clinical education and practice. Identifier An unambiguous reference to the resource within a given context 10.1186/s12904-017-0202-3 Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2017 Barriers BMC Palliative Care Facilitators Ireland S July 2017 List Kilcullen M Neonatal Palliative Care Qualitative Regional Location Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month October 2016 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Pocket Reference Card Improves Pediatric Resident Comfort In Caring For Children At End Of Life Publisher An entity responsible for making the resource available Journal Of Palliative Medicine Date A point or period of time associated with an event in the lifecycle of the resource 2016 Subject The topic of the resource Quality; Barriers; Perspectives; Palliative Care; Providers; Pain Management; Medicine; National-survey; Education; Health Care Sciences & Services Medical Education; Pediatric Palliative Care; Resident education Creator An entity primarily responsible for making the resource Emily M Balkin; Katherine Ort; Robert Goldsby; Jessica Duvall; Cynthia D Kim Description An account of the resource Background: Studies have shown that pediatricians in all stages of training are uncomfortable managing patients at end of life. Our goal was to create and test a portable reference card to improve pediatric resident education in comprehensive care for children nearing end of life. Methods: We evaluated the impact of the Pediatric End-of-Life Care Management Reference Card on residents' perceived comfort and knowledge through pre- and post-intervention surveys. The preintervention questionnaires and pocket cards were distributed to all first- and second-year residents, and then a follow-up survey was provided six months later. Based on Likert scales, questions focused on self-reported understanding of palliative care principles and knowledge regarding and comfort in performing end-of-life symptom management. Results: Twenty-six pediatric residents completed pre- and post-intervention surveys. Following receipt of the reference card, no significant changes were noted consistently across all groups of residents. The majority of improvements were noted when comparing second to third year residents, including knowledge and comfort related to pain management, comfort in managing secretions and nausea, and documentation following death. The first to second year residents demonstrated improvement in knowing what language to use to tell a family that their child has died. Conclusion: This study demonstrates that a portable reference card may be a convenient, simple, and useful component of education for pediatric residents in end-of-life care management. This reference card is a foundation from which to develop a standardized educational tool. Additional research is required to assess the impact of this type of intervention in pediatric palliative care education. Identifier An unambiguous reference to the resource within a given context doi:10.1089/jpm.2016.0247 Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2016 Barriers Cynthia D Kim Education Emily M Balkin Health Care Sciences & Services Jessica Duvall Journal of Palliative Medicine Katherine Ort Medical Education Medicine National-survey October 2016 List Pain Management Palliative Care Pediatric Palliative Care Perspectives Providers Quality resident education Robert Goldsby