Browse Items · Pediatric Palliative Care Library

A qualitative study of advice from bereaved parents and siblings.

Despite a growing bereavement literature, relatively little is known about what families find helpful after a child's death and how best to assist them during the grieving process. In this qualitative study, the authors explored advice from 40…

Tags: 2011, Backlog, Barrera M, Davies B, Foster TL, Gerhardt CA, Gilmer MJ, Hogan N, IM, Journal Article, Journal of Social Work in End-of-Life & Palliative Care, Miller KS, sibling bereavement, Thompson AL, Vannatta K

Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors

BACKGROUND: The purpose of the current study was to investigate longitudinally children's behavioral and social competence outcomes up to 2 years after pediatric stem cell transplantation (SCT) and related factors. METHODS: Ninety-nine mothers and 24…

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Changes in parental self-identity following the death of a child to cancer

This study explored parental self-identity at 6, 12, and 18 months following the death of a child to cancer. Semi-structured interviews were analyzed using qualitative methodology. Two patterns of parental self-identity emerged: identity…

Tags: 2014, Backlog, Barrera M, Bereavement, Death, Death studies, Journal Article, O'Connor K, Parents

Changes In Parents After The Death Of A Child From Cancer

CONTEXT: Few studies have compared multiple perspectives of changes experienced by parents after a child's death. OBJECTIVES: This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the…

Changes in siblings after the death of a child from cancer.

IMPLICATIONS FOR PRACTICE: Our findings offer guidance to improve aftercare for bereaved siblings and their families. Additional research is needed to further delineate the needs of bereaved siblings and to develop strategies to promote adaptation to…

Complementary therapies for children undergoing stem cell transplantation: report of a multisite trial

BACKGROUND: Children undergoing stem cell transplant (SCT) experience high levels of somatic distress and mood disturbance. This trial evaluated the efficacy of complementary therapies (massage, humor therapy, relaxation/imagery) for reducing…

Engaging Fathers in Pediatric Palliative Care Research

Fathers are under-represented in pediatric palliative care research despite frequently playing a key role in the lives of their children. The purpose of this study was to identify factors that affected paternal study invitation and participation. A…

Examining The Experiences Of Fathers Of Children With A Life-limiting Illness.

Families who have a child diagnosed with a life-limiting illness (LLI) face substantial challenges resulting from the complexity and devastating impact of the condition and potential closeness of death. The experiences of fathers of a child with LLI…

Tags: 2016, Barrera M, Beaune L, Belletrutti M, Bereavement, Blumberg J, Caregivers/caregiving, Children/pediatrics, Health Care, Journal of Social Work in End-of-Life & Palliative Care, May 2016 List, Nicholas DB, Palliative Care

Factors associated with mental health service use among families bereaved by pediatric cancer

OBJECTIVES: We identified types of interventions used by bereaved family members and examined associations with demographic and medical factors. Furthermore, we examined associations between distress and intervention use among bereaved families.…

Grief reactions and impact of patient death on pediatric oncologists

Background To examine pediatric oncologists' grief reactions to patient death, and the impact patient death has on their personal and professional lives. Procedure The grounded theory method was used. Data was collected between March 2012 and July…

Tags: 2014, Backlog, Barrera M, Bartels U, emotional well-being, Granek L, Grief, Journal Article, Labrecque M, oncologists, patient death, Pediatric, Pediatric Blood & Cancer, Scheinemann K

Health-related quality of life among child and adolescent survivors of childhood cancer.

PURPOSE: The main objective was to compare parent-reported health-related quality of life (HRQL) of child and adolescent survivors of childhood cancer to that of controls who had no history of cancer. METHODS: We assessed HRQL of 800 child and…

Impact of End-of-Life Circumstances on the Adjustment of Bereaved Siblings of Children Who Died from Cancer

The aim of this study was to examine the impact of end-of-life (EoL) circumstances on grief and internalizing symptoms among bereaved siblings. Bereaved families (N = 88) were recruited from three sites 3-12 months (M = 11.57, SD = 3.48) after their…

Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input

The ultimate aim of our research program is to provide strategies that facilitate parental decision-making for parents of children with cancer receiving end-of-life care. As a first step to develop this program, we needed insight into parents'…

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