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40
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Text
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URL Address
<a href="http://doi.org/10.1089/jpm.2012.0494" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2012.0494</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Promoting resilience among parents and caregivers of children with cancer
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2013
Subject
The topic of the resource
Child; Female; Humans; Male; Young Adult; bereavement; Neoplasms; Terminal Care; Adult; Parents; Aged; Middle Aged; caregivers; Qualitative Research; Hospitals; Washington; Preschool; Psychological; Parent caregivers; Resilience; Urban
Creator
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Rosenberg AR; Baker KS; Syrjala KL; Back AL; Wolfe J
Description
An account of the resource
BACKGROUND: Promoting resilience is an aspect of psychosocial care that affects patient and whole-family well-being. There is little consensus about how to define or promote resilience during and after pediatric cancer. OBJECTIVES: The aims of this study were (1) to review the resilience literature in pediatric cancer settings; (2) to qualitatively ascertain caregiver-reported perceptions of resilience; and (3) to develop an integrative model of fixed and mutable factors of resilience among family members of children with cancer, with the goal of enabling better study and promotion of resilience among pediatric cancer families. METHODS: The study entailed qualitative analysis of small group interviews with eighteen bereaved parents and family members of children with cancer treated at Seattle Children's Hospital. Small-group interviews were conducted with members of each bereaved family. Participant statements were coded for thematic analysis. An integrative, comprehensive framework was then developed. RESULTS: Caregivers' personal appraisals of the cancer experience and their child's legacy shape their definitions of resilience. Described factors of resilience include baseline characteristics (i.e., inherent traits, prior expectations of cancer), processes that evolve over time (i.e., coping strategies, social support, provider interactions), and psychosocial outcomes (i.e., post-traumatic growth and lack of psychological distress). These elements were used to develop a testable model of resilience among family members of children with cancer. CONCLUSIONS: Resilience is a complex construct that may be modifiable. Once validated, the proposed framework will not only serve as a model for clinicians, but may also facilitate the development of interventions aimed at promoting resilience in family members of children with cancer.
2013-06
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2012.0494" target="_blank" rel="noreferrer">10.1089/jpm.2012.0494</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2013
Adult
Aged
Back AL
Backlog
Baker KS
Bereavement
Caregivers
Child
Female
Hospitals
Humans
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Neoplasms
Parent caregivers
Parents
Preschool
Psychological
Qualitative Research
Resilience
Rosenberg AR
Syrjala KL
Terminal Care
Urban
Washington
Wolfe J
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1093/jpepsy/jsv004" target="_blank" rel="noreferrer">http://doi.org/10.1093/jpepsy/jsv004</a>
<a href="http://jpepsy.oxfordjournals.org/content/early/2015/02/11/jpepsy.jsv004" target="_blank" rel="noreferrer">http://jpepsy.oxfordjournals.org/content/early/2015/02/11/jpepsy.jsv004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Promoting Resilience in Stress Management: A Pilot Study of a Novel Resilience-Promoting Intervention for Adolescents and Young Adults With Serious Illness
Publisher
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Journal of Pediatric Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
cancer; coping; psychosocial outcomes; health outcomes; adolescent young adult; AYA; Diabetes; Intervention; Resilience
Creator
An entity primarily responsible for making the resource
Rosenberg AR; Yi-Frazier JP; Eaton L; Wharton C; Cochrane K; Pihoker C; Baker KS; McCauley E
Description
An account of the resource
Objective To examine the feasibility and format of the Promoting Resilience in Stress Management (PRISM) intervention among two groups of adolescents and young adults (AYAs) at-risk for poor outcomes: those with Type 1 diabetes (T1D) or cancer. Methods PRISM consists of two long or four short skills-based modules. English-speaking patients 12–25 years old were eligible if they had T1D for >6 months or cancer for >2 weeks. Feasibility was defined as an 80% completion rate and high satisfaction. Ongoing monitoring shaped iterative refinement of disease-specific approach. Results 12 of 15 patients with T1D (80%) completed the two-session intervention. 3 of 15 patients with cancer declined to complete the two-session version, citing prohibitive length of individual sessions. 12 (80%) completed the four-session version. Patient-reported satisfaction was high across groups. Conclusions The PRISM intervention is feasible and well-accepted by AYAs with cancer or T1D. Differences in patient populations warrant differences in approach.
2015-02
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1093/jpepsy/jsv004" target="_blank" rel="noreferrer">10.1093/jpepsy/jsv004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2015
adolescent young adult
AYA
Backlog
Baker KS
Cancer
Cochrane K
Coping
Diabetes
Eaton L
health outcomes
Intervention
Journal Article
Journal of Pediatric Psychology
McCauley E
Pihoker C
psychosocial outcomes
Resilience
Rosenberg AR
Wharton C
Yi-Frazier JP