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Tags: Bösner S

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Specialised outpatient paediatric palliative care team–parent collaboration: narrative interviews with parents

Objective In Germany, children with life-limiting conditions and complex symptoms are eligible for specialised outpatient palliative care (SOPC). In the federal state of Hesse, SOPC for children (SOPPC) is delivered by teams with paediatric…

Tags: 2022, BMJ Supportive & Palliative Care, Bösner S, Care Team, Engler F, Engler J, Erler A, Gerlach Ferdinand M, Hach M, January List 2023, Kuss K, Outpatient, Parent Collaboration, Pediatric, Ploeger C, Schütze D, Seipp H, Ulrich Lisa-R, van den Akker M

Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations

BACKGROUND: Collaboration between parents and professional care providers is an essential part of pediatric palliative care. As children are embedded in family systems and many of the patients are not able to communicate verbally, their parents are…

Tags: 2021, Ambulatory Care, Bösner S, Communication, Engler J, Erler A, February 2022 List, Gerlach FM, Hach M, Kuss K, Palliative Care, Palliative Medicine, Parents, Pediatrics, Ploeger C, Qualitative Research, Schuetze D, Seipp H, van den Akker M

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