Browse Items (38 total)
- Tags: Awareness
Improving cancer care for children in the developing world: Challenges and strategies
Tags: 2017, Accreditation, Al Lamki Z, Antineoplastic Agent, Awareness, Cancer Diagnosis, Cancer Recurrence, Cancer Registry, Cancer Research, Cancer Survival, Cancer Therapy, Child Care, Childhood Cancer, Clinical Effectiveness, Clinical Trial (topic), Cost Effectiveness Analysis, Country Economic Status, Cultural Factor, Current Pediatric Reviews, Delayed Diagnosis, Diagnostic Error, Family Therapy, Health Care Availability, Health Care Cost, Health Care Personnel, Human, Job Change, Medical Education, Medical Technology, Palliative Therapy, Patient Abandonment, Patient Referral, Poverty, Priority Journal, Program Sustainability, Review, Sepsis, Stratification, Toxicity
Palliative care in an underserved community: Striving and thriving
Tags: 2018, Alladin A R, April 2020 List, Awareness, Bereavement Support, bone marrow, Cancer Patient, Cantwell G P, Caribbean, Child, Childhood Cancer, conference abstract, Congenital Malformation, coordination compound, Ethnic Group, Europe, Female, Heart, Hispanic, Hospice, Hospital Patient, Human, Japan, Juanico K, kidney, liver, Major Clinical Study, Male, Medicaid, Memory, Middle East, Music Therapy, Nares M, Neonatal Intensive Care Unit, Newborn, nursing education, Pain, Palliative Therapy, Pastoral Care, Pediatrics, Perception, Posthumous Care, Resident, Sibling, Social Work, Terminal Care, terminally Ill Patient, Webster-Carrion A
Cognitive abilities of patients with Lesch-Nyhan disease
Tags: 1992, achievement, Adolescent, Adult, alertness, Anderson L T, attempted suicide, Awareness, Behavior Therapy, behavioral, characteristics, Child, Child Preschool, Combined Modality Therapy, Davis S V, Ernst M, Female, Humans, Intellectual Disability/di [Diagnosis], Intellectual Disability/px [Psychology], Intellectual Disability/th [Therapy], Intelligence, Journal of Autism and Developmental Disorders, Language Development Disorders/di [Diagnosis], Language Development Disorders/px [Psychology], Language Development Disorders/th [Therapy], Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/di [Diagnosis], Lesch-Nyhan Syndrome/px [Psychology], Lesch-Nyhan Syndrome/th [Therapy], Male, Neuropsychological Tests, Self-Injurious Behavior/di [Diagnosis], Self-Injurious Behavior/px [Psychology], Self-Injurious Behavior/th [Therapy], Social Adjustment, Social Behavior, Social Environment, Suicide, thinking, Trajectory
The Alluring, Enduring, and Troubling Concept of a "Good Death" in Pediatric Palliative Care
Tags: 2024, Adult, Awareness, Bereavement, Broden EG, Child, Child Death, Clinician, conference abstract, Decision Making, Distress Syndrome, Ethical dilemma, Grief, Human, Journal of Pain and Symptom Management, June List 2024, McCarthy S, Palliative Therapy, Personal Experience, Pilot Study, Religion, Snaman JM, Terminal Care
Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines
Tags: 2019, Awareness, behavior change, Cajucom L A N, care behavior, Caregiver, Child, Childhood Cancer, conference abstract, Controlled Study, Counseling, Developing World 2019 List, financial management, Fuentes R K T, Garcia P G, Health Care Delivery, Health Care Personnel, health care planning, Human, Interview, JNCCN Journal of the National Comprehensive Cancer Network, long term survival, Manago R K B, Needs Assessment, Nutrition, Oruga M D P, Palliative Therapy, Philippines, psychosocial care, Ramos R C, Ridulme Q R, travel, Vinas M J G
Pediatric End-of-life Simulation: Preparing the Future Nurse to Care for the Needs of the Child and Family
Moral distress, trauma and burnout in staff in relation to changes in picu outcomes, challenging cases and media involvement in disagreements about end-of-life care
Tags: 2018, Adult, Archives of Disease in Childhood, Awareness, Berger Z, Brierley J, Burnout, Child, Colville G, conference abstract, Controlled Study, court, Death, depersonalization, Disability, Emotional Stress, Human, June 2018 List, Life Sustaining Treatment, Morality, Nurse, PostTraumatic Stress Disorder, Questionnaire, Rutt M, Staff, Terminal Care, Titman P, Wellbeing
Parents' experiences of requests for organ and tissue donation: The value of asking
Tags: 2019, Archives of Disease in Childhood., Article, Awareness, Brierley J, Child, Clinical Article, Coping Behavior, coronary care unit, Darlington A S, Fear, Female, Hospice, Human, July 2019 List, Long-Sutehall T, Male, Multicenter Study, Neonatal Intensive Care Unit, Organ Donation, organ donor, Palliative Care, Palliative Therapy, Parents, Pediatric Intensive Care Unit, Qualitative Research, Randall D, Retrospective Study, Robinson V, Terminal Care, Wakefield C
Primary palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members
Tags: 2018, Adult, Advance Care Planning, Awareness, Basile M, Caregiver, Chen E, Child, clinical assessment, conference abstract, Controlled Study, December 2018 List, Dellon EP, depression assessment, Education, Faro A, Female, Georgiopoulos A, Goggin JL, Goss CH, Hempstead SE, Hobler M R, Hospice, Human, Kavalieratos D, Kruskal Wallis test, lung, Major Clinical Study, Male, Pain Assessment, Palliative Therapy, Pediatric Pulmonology, Perception, Prognosis, Skill
Patient Involvement in RSV Research: Towards Patients Setting the Research Agenda
Tags: 2022, 2023 SE1 - Parent Perspectives, Adult Aged Child Europe Humans Immunocompromised Host Patient Participation, Awareness, Bont LJ, Derksen-Lazet ND, Human, Journal of Infectious Diseases, Parmentier CEJ, patient involvement, patient network, Patient Participation, Patient Perspective, Respiratory Syncytial Virus, Respiratory Syncytial Virus Infections/prevention & control, Wildenbeest JG
The Pediatric Serious Illness Conversation Program: Understanding challenges and experiences for clinicians after advance care planning training
Tags: 2023, Advance Care Planning, Article, August List 2030, Awareness, Child, Comfort, Conversation, Doherty M, Frenette M, Gujral P, Hospice Care, Human, Lusney N, Medical Education, Neonatology, Nurse, Palliative And Supportive Care, Palliative Therapy, Physician, Skill, Social Worker, tertiary care center, Thematic Analysis, van Breemen C
Family experiences and viewpoints of palliative and supportive care for children with cancer: Can we do better?
Tags: 2018, Awareness, Basic Needs, Child, Clinical Article, conference abstract, Du Plessis J, error, Exploratory Research, Female, financial management, Grounded Theory, Human, Interview, Male, Meiring M, Oncology, Oncology 2018 List, Palliative Therapy, Pediatric Blood and Cancer, psychosocial care, Qualitative Research, Sibling, South Africa, Staff, Stones D
Libyan cancer patients at King Hussein Cancer Center for more than a decade, the current situation, and a future vision
Story time with pediatric palliative care: A community self-care strategy
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study
Tags: 2020, Adolescent, Advance Care Planning, Article, Awareness, Borasio G D, Child, Content Analysis, Decision Making, Documentation, Emergency Health Service, Female, Fuhrer M, Health Care Personnel, Hein K, Heitkamp N, Human, Human Experiment, Knochel K, living will, Male, March 2020 List, Monz A, Palliative Medicine, Palliative Therapy, Pediatrics, Practice Guideline, Qualitative Research, Reimann D, Trust, Zaimovic V
Children And Young Person Advanced Care Plans In District General Hospitals-who Gets Them?
End of life care in children with neurodisability and concurrent palliative care needs: An audit of local Paediatric palliative services
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Awareness, Canavan disease, Cerebral Palsy, Child, Clinical Article, conference abstract, Decision Making, disorders of mitochondrial functions, Documentation, Female, Hqli F, Human, Male, Medical Specialist, Monitoring, Nutrition, Pain, Palliative Therapy, Rett syndrome, Santhanam G, School Child, secondary health care, Seizure, Social Care, Spinal Muscular Atrophy, Terminal Care
Development of paediatric palliative care in Uganda
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Collaboration: How does it work according to therapists and parents of young children? A systematic review
Pediatric Cancer and Palliative Care in Conflict Affected Area
Tags: 2023, 2023 SE5 - Low Resource Setting, Awareness, cancer control, Cancer Patient, Cancer Survival, Child, conference abstract, Controlled Study, Female, health Insurance, Hospital Bed Capacity, Human, investment, Kutluk T, Major Clinical Study, Male, Medical Society, Opiate, Pain, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, Survival Rate, Turk (people), Turkey (republic), University Hospital
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
Development Of Research Priorities In Paediatric Pain And Palliative Care
Tags: 2017, Anderson AK, April 2017 List, Awareness, British Journal of Pain, Child, Chronic Pain, Clinical Research, Clinical Study, Clinical Trial, Data Base, Exercise, Gabapentin, Howard R, Human, Liossi C, Nonsteroid Antiinflammatory Agent, Opiate, Palliative Therapy, Pharmacokinetics, Postoperative Pain, Research Priority, Safety, Symptom, Uncertainty, United Kingdom
Improving the frequency of symptom assessment in pediatric palliative care patients
Tags: 2018, April 2020 List, Awareness, Child, clinical evaluation, Comfort, conference abstract, E-mail, electronic medical record, Hospital Patient, Human, human cell, information technology, Mark M S, McKenna L, Outpatient, Palliative Therapy, Pediatrics, Quality Of Life, root cause analysis, stem cell, Symptom Assessment, Thienprayoon R, Total Quality Management
Challenges in Establishing Optimal Pediatric Palliative Care at the University Hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early…
Tags: 2023, Article, Awareness, Bertok S, Child, Clinical Practice, doctor nurse relation, Education, employee, European Journal of Pediatrics, Female, Human, Kreft HI, Lepej D, Lesnik MP, library, Lisec A, Loboda T, Major Clinical Study, Male, March List 2023, Meglic A, Meglic J, Nurse, Ostir M, Palliative Care, Palliative Therapy, Physician, Ponjevic T, Psychologist, Questionnaire, Self Evaluation, Slovenia, University Hospital
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Introduction of triggers for palliative care consultation improve utilization and satisfaction within a level IV NICU
Local Paediatric Death Data for Barnet 2015- 2021: Which Children are Potentially Eligible for Hospice Care?
Tags: 2022, Awareness, BMJ Supportive and Palliative Care, Child, Child Death, Clinical Article, conference abstract, Data Analysis, England, Female, Hospice, Hospice Care, Hospital Admission, Hospital Mortality, Human, information center, Male, March List 2023, Medical History, Only Child, Opstad H, Palliative Therapy, Patient Referral, Prevalence, Retrospective Study, Social Care, time of death
Regional perspectives on the coordination and delivery of paediatric end-of-life care in the UK: a qualitative study
Tags: 2023, Article, Awareness, Bedendo A, Beresford B, BMC Palliative Care, Child, Child Health Care, Clinical Article, Education, Feltbower RG, Female, Fraser LK, Funding, Hackett J, Hain R, Haynes A, Hinde S, Human, Human Experiment, Male, Murtagh F, Noyes J, October List 2040, Oddie S, Organization, Palliative Therapy, Papworth A, Phillips B, Qualitative Research, Semi Structured Interview, Specialization, Subramanian G, Terminal Care, Thematic Analysis, Vasudevan C, Walker G, Weatherly H
Use of electronic media in a pediatric palliative aquatics program: Legacy, teaching, research and caveats
Tags: 2018, Awareness, Brother, California, Child, conference abstract, Documentation, Face, February 2020 List, Female, Fisher J M, Grief, hearing, Heat, hot water, Human, literature, Male, Memory, motion, Palliative Therapy, Pediatrics, Photography, Physician, Pyatt S, Sound, Teacher, Teaching, touch, videorecording, Voice
Estimates of life expectancy by adolescents and young adults with congenital heart disease
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Attitudes, Awareness, Backlog, Barzel M, Congenital/epidemiology, Female, Health Behavior, Health Knowledge, Health Status, Heart Defects, Humans, Irvine MJ, Journal Article, Journal of the American College of Cardiology, Life Expectancy, Logistic Models, Male, McCrindle BW, Practice, Questionnaires, Reid GJ, Siu SC, Webb GD
Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study
Tags: 2019, Adult, Article, Awareness, Child, Childhood Cancer, Clinical Article, Controlled Study, De Clercq E, Education, Elger B, Female, Human, Journal Of Pediatric Oncology Nursing, Male, Nurse, Oncologist, Oncology 2019 List, outpatient care, Palliative Therapy, personnel shortage, Politics, Qualitative Research, Rakic M, Reimbursement, Rost M, Social Worker, Switzerland, Thematic Analysis, Wangmo T
The qualitative study on the experience and perception of healthcare professionals in pediatric palliative care
Tags: 2018, August 2018 List, Awareness, Child, conference abstract, constant comparative method, Death, Diagnosis, Grounded Theory, Home Care, Hospice, Human, Interview, Ireland, Major Clinical Study, Male, Palliative Medicine, Palliative Therapy, pediatric nurse, Pediatric Nursing, Perception, Qualitative Research, Quality Of Life, Salvaggio E
Evaluation Of Temporal Health System Factors Influencing Parallel Palliative Care Referral For Children With Complex Cardiorespiratory Diagnosis And Treatment
Tags: 2023, Adolescent, Aidoo E, apparent life threatening event, Archives of Disease in Childhood, Artificial Ventilation, Awareness, Chan-Dominy A, Child, Clinical Article, Clinical Nurse Specialist, community care, conference abstract, Consultation, Controlled Study, Decision Making, Demographics, Diagnosis, E-mail, Education, Female, Follow Up, Freitas D, heart graft, Hospice, hospital discharge, Human, Infant, Length Of Stay, Life Sustaining Treatment, Male, Nkulu G, Nurse, Nursing Staff, October List 2031, organizational restructuring, outcome assessment, Oxygenation, Palliative Care, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Practice Guideline, Quality Of Life, Retrospective Study, Subhash S, Surgery, Trust, writing
Changing times-PICU and palliative care
Barriers and facilitators to the implementation of a paediatric palliative care team
Tags: 2018, April 2018 List, Article, Awareness, BMC Palliative Care, Child, concrete, Expectation, Female, Grootenhuis MA, Health Care Personnel, Human, Human Experiment, Kars MC, Major Clinical Study, Male, Only Child, Palliative Care, Palliative Therapy, Patient Satisfaction, Pediatrics, Pilot Projects, Pilot Study, Schepers SA, Schouten-Van Meeteren AYN, tertiary health care, van Delden JJM, Verberne LM
Guidance on forgoing life-sustaining medical treatment
Tags: 2017, Apparent Life Threatening Event/th [therapy], Article, Awareness, Boss RD, Caregiver, Carter BS, Child Abuse, Child Care, Christian CW, Clinical Decision Making, Comatose Patient, Consensus, Consultation, Critical Illness/th [therapy], Davies D, Death, Death By Neurologic Criteria, Dell ML, Developmental Disorder/th [therapy], Diekema DS, Disease Burden, Disease Course, Elster N, Ethical Decision Making, Extremely Low Gestational Age, Family Decision Making, Family Stress, Feudtner C, Flaherty EG, Fortson BL, Foster Care, Gavril AR, Gestational Age, Goal Attainment, Guinn-Jones M, Hauer JM, Health Belief, High Risk Population, Human, Humphrey LM, Hurley TP, Hydration, Idzerda SM, Imaizumi S, Imminent Death, Informed Consent, Intensive Care, Interpersonal Communication, Katz AL, Klick J, Klipstein S, Laskey A, Laventhal N, Legal Aspect, Legano LA, Leventhal JM, Life-sustaining Medical Treatment, Linebarger JS, Lord B, MacAuley RC, MacMillan H, Medical Ethics, Medical Expert, Medical Information, Medical Procedures, Medical Specialist, Medically Administered Nutrition And Hydration, Moon MR, Neglect, Neurologic Disease/di [diagnosis], November 2017 List, Nutrition, Okun AL, Opel DJ, Oxygenation, Pain/th [therapy], Palliative Therapy, Parker S, Patient Care Planning, Pediatrician, Pediatrics, Practice Guideline, Priority Journal, Prognosis, Quality Of Life, Resuscitation, Rivera F, shared decision making, Social Support, Spiritual Care, Statter MB, Stedt E, Survival, Teamwork, Terminal Care, Tissue Perfusion, Uncertain Prognosis, Weise KL
Parental knowledge and opinions on palliative care for children
Tags: 2018, Ambulatory Care, Analysis of Variance, Awareness, Black C, Caucasian, Child, conference abstract, Controlled Study, Convenience Sample, Data Analysis Software, Ethnic Group, February 2020 List, Female, Granowetter L, high school, Human, Illinois, Institutional Review, legal guardian, Likert scale, Major Clinical Study, Male, New York, Palliative Therapy, Pediatrics, Physician, Randomized Controlled Trial, Spruill T M, Terminal Care, Zawistowski C A