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Text
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Citation List Month
March 2016 List
URL Address
<a href="https://doi.org/10.1016/j.jpainsymman.2016.10.359">https://doi.org/10.1016/j.jpainsymman.2016.10.359</a>
Dublin Core
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Title
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Empowering Bereaved Parents Through the Development of a Comprehensive Bereavement Program
Publisher
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Journal of Pain and Symptom Management
Date
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2016
Subject
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Grief; Palliative Care; Bereavement; Pediatrics; Hospice Care
Creator
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Snaman JM; Kaye EC; Levine DR; Cochran B; Wilcox R; Sparrow CK; Noyes N; Clark L; Avery W; Baker JN
Description
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Parents who experience the loss of a child have unique and valuable insights into the grief journey and can help health care providers identify key components intrinsic to the development, implementation, and maintenance of a comprehensive bereavement program. The bereavement program at St. Jude Children's Research Hospital was developed by pediatric palliative care experts in collaboration with bereaved parents to standardize and improve the institutional support provided to families around and after the death of a child. This article describes the components of a parent-derived bereavement program and presents early results on the effects of specific program components. The program, under the leadership of the bereavement coordinator, includes clinical and supportive interventions offered throughout the grief journey, parent-created bereavement support materials, and opportunities for parents and families to participate in research, quality improvement initiatives and educational interventions. Parents report that services and interventions provided through the bereavement program are beneficial to families after the death of their child. In addition, both health care providers and bereaved parents report that participation in educational interventions positively impacts their experiences as clinicians and parents, respectively. The innovative nature of this parent-driven, comprehensive bereavement program may serve as a paradigm for the development of bereavement programs in the fields of pediatrics, palliative oncology and hospice and palliative medicine.
Identifier
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<a href="https://doi.org/10.1016/j.jpainsymman.2016.10.359">10.1016/j.jpainsymman.2016.10.359</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Avery W
Baker JN
Bereavement
Clark L
Cochran B
Grief
Hospice Care
Journal of Pain and Symptom Management
Kaye EC
Levine DR
March 2016 List
Noyes N
Palliative Care
Pediatrics
Snaman JM
Sparrow CK
Wilcox R