Browse Items (80 total)
- Tags: Attitude To Health
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Advance care planning in adolescents with cystic fibrosis: A quality improvement project
Tags: 2016, Adolescent, Advance Care Planning, Advance Directives, Attitude To Health, Cystic Fibrosis/pp [physiopathology], Cystic Fibrosis/th [therapy], December 2017 List, Female, Forced Expiratory Volume, Humans, Kazmerski TM, Lerch W, Male, Matisko J, Maurer SH, May C, Noninvasive Ventilation, Oxygen Inhalation Therapy, Patient Care Planning, Pediatric Pulmonology, Proxy, Quality Improvement, Schachner D, Severity Of Illness Index, Surveys And Questionnaires, Terminal Care, Weiner DJ, Young Adult
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Research priorities in pediatric palliative care: a delphi study
Tags: 2007, Attitude Of Health Personnel, Attitude To Health, Benchmarking, Bereavement, Bosma H, Cadell S, Canada, Child, Consensus, Davies B, Delphi Technique, Evidence-based Practice, Family/psychology, Fleming C, Fletcher JM, Humans, Journal Of Palliative Care, Needs Assessment/organization & administration, Pain/prevention & control, Palliative Care/organization & Administration, Pediatrics/organization & Administration, Practice Guidelines As Topic, Psychological/prevention & control, Questionnaires, Research Design, Research/organization & administration, Siden H, Steele R, Straatman L, Stress
Patient-reported outcomes in end-of-life research in pediatric oncology
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
Quality assurance in palliative care: some of the problems
Measuring the quality of dying
Tags: 2001, Attitude Of Health Personnel, Attitude To Death, Attitude To Health, Backlog, Chronic/psychology, Family/psychology, Health Services Research/methods/standards, Human, Journal Article, Journal of Palliative Medicine, Kidney Failure, Moss AH, Quality Of Health Care, Quality Of Life, Research Design/standards, Terminal Care/psychology/standards
Impact of a chronic illness in childhood: siblings' perceptions
Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations
The sorcerer's broom: medicine's rampant technology
Tags: 1993, Attitude Of Health Personnel, Attitude To Health, Backlog, Cassell EJ, Dehumanization, Diffusion of Innovation, Ethics, Health Care and Public Health, Humans, Journal Article, Medical, Physicians/psychology, Power (psychology), Reproducibility of Results, Risk Assessment, Science, Social Values, Technology, The Hastings Center Report, Uncertainty
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Assessing mothers' attitudes about the physician's role in child health promotion
Tags: 1996, Adolescent Transitions, Adult, American Journal Of Public Health, Attitude To Health, Backlog, Bigelow C, Charney E, Cheng TL, Child, Child welfare, DeWitt TG, Female, Health Promotion, Humans, Journal Article, Kumar S, Massachusetts, Mothers/psychology/statistics & numerical data, Physician's Role, Preschool, Questionnaires, Savageau JA
Gender differences in parenting a child with cancer
Tags: 1996, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Barbarin OA, Brown KA, Child, Female, Gender Identity, Humans, Journal Article, Male, Models, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parenting/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Social Work in Health Care, Socialization
The health-line--a method for collecting data on self-rated health over time: a pilot study
Tags: 2001, Adolescent Transitions, Adult, Alexanderson KA, Attitude To Health, Backlog, Borg KE, Chi-Square Distribution, Female, Health Status, Hensing GK, Humans, Journal Article, Male, Pilot Projects, Questionnaires, Ringsberg KC, Scandinavian Journal Of Public Health, Self-Assessment, Sick Leave/statistics & numerical data, Sweden/epidemiology
Using a treatment-tradeoff method to elicit preferences for the treatment of locally advanced non-small-cell lung cancer
Tags: 1998, Adjuvant, Aged, Antineoplastic Agents/adverse effects/therapeutic use, Attitude To Health, Backlog, Brundage MD, Carcinoma, Chemotherapy, Choice Behavior, Comparative Study, Davidson JR, Decision Support Techniques, Feasibility Studies, Feldman-Stewart D, Female, Groome P, Humans, Journal Article, Lung Neoplasms/psychology/radiotherapy, Mackillop WJ, Male, Medical Decision Making, Non-Small-Cell Lung/psychology/radiotherapy, Non-U.S. Gov't, Prostatic Neoplasms/psychology/radiotherapy, Questionnaires/standards, Radiotherapy/adverse effects/methods, Reproducibility of Results, Research Support, Survival Analysis, Treatment Outcome
Assessing preferences about the DNR order: does it depend on how you ask?
Tags: 1995, Attitude To Health, Backlog, Choice Behavior, Effect Modifiers (Epidemiology), Female, Humans, Journal Article, Llewellyn-Thomas HA, Male, Medical Decision Making, Non-U.S. Gov't, Nursing/psychology, Percy ME, Probability, Quality-Adjusted Life Years, Questionnaires/standards, Reproducibility of Results, Research Design, Research Support, Resuscitation Orders, Resuscitation/adverse effects, Students, Treatment Outcome
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC
Chronic musculoskeletal and other idiopathic pain syndromes
Tags: 2001, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Bennett SM, Child, Chronic Disease, Cognitive Therapy, Connell H, Eccleston C, Female, Humans, Journal Article, Male, Malleson PN, Musculoskeletal Diseases/complications/psychology/therapy, Pain/etiology/psychology/therapy, Parent-child Relations, Patient Care Team, Risk Factors, Syndrome
What is wrong with end-of-life care? Opinions of bereaved family members
Tags: 1997, Aged, Artificial/statistics & numerical data, Attitude To Death, Attitude To Health, Backlog, Bereavement, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Danis M, Death and Euthanasia, Empirical Approach, Family, Female, Garrett J, Hanson LC, Health Care Surveys, Home Nursing, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of The American Geriatrics Society, Male, Non-U.S. Gov't, North Carolina, Nursing Homes/standards, Pain/nursing/therapy, Physician-patient Relations, Quality Of Health Care, Quality Of Life, Research Support, Respiration, Terminal Care/standards/statistics & numerical data
Caregivers' perceptions following gastrostomy in severely disabled children with feeding problems
Tags: 1997, Adolescent, Adult, Attitude To Health, Backlog, Caregivers/psychology, Child, Clarke M, Cost Of Illness, Developmental Disabilities/complications, Developmental Medicine and Child Neurology, Dickson A, Eating Disorders/etiology/therapy, Female, Fundoplication, Gastrostomy, Humans, Infant, Journal Article, Male, Nutritional Failure, Parents/psychology, Preschool, Psychological/psychology, Q3 Scoping Review Results, Quality Of Life, Questionnaires, Stress, Tawfik R, Thomas AG, Time Factors, Treatment Outcome
The family, crisis and chronic illness: an evolutionary model
Tags: 1992, Adolescent, Attitude To Health, Backlog, Chronic Disease/nursing/psychology, Crisis Intervention, Emergencies/nursing/psychology, Family/psychology, Female, Halliday PH, Humans, Journal Article, Journal Of Advanced Nursing, Models, Nursing, Parent caregivers, Role, Shaw MC, Systems Theory
Siblings of a child with cancer
Health counseling in adolescent preventive visits: effectiveness, current practices, and quality measurement
Tags: 1998, Adolescent, Adolescent Behavior, Adolescent Health Services, Adolescent Transitions, Andresen E, Attitude To Health, Backlog, Counseling, Delivery of Health Care, Female, Hedberg VA, Humans, Journal Article, Klein JD, Male, Outcome Assessment (health Care), Preventive Medicine, Primary Health Care, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Health care information sources for adolescents: age and gender differences on use, concerns, and needs
Tags: 2001, Ackard DM, Adolescent, Adolescent Behavior/ethnology, Adolescent Health Services/utilization, Adolescent Psychology, Age Distribution, Attitude To Health, Backlog, Child, Confidentiality/psychology, Female, Health Services Accessibility/standards/trends, Humans, Journal Article, Male, Neumark-Sztainer D, Sex Distribution, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States
The multiple meanings of long-term gastrostomy in children with severe disability
Tags: 1997, Attitude Of Health Personnel, Attitude To Health, Backlog, Canada, Caregivers/psychology, Child, Gastrostomy/nursing/psychology, Humans, Interviews, Journal Article, Journal of Pediatric Nursing, McCormick J, Mothers/psychology, Nurses/psychology, Nutritional Failure, Radford MJ, Thorne SE, Time Factors, United States
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents
Tags: 1999, Adolescent, Adult, Aged, Annals Of Emergency Medicine, Attitude To Health, Backlog, Boie ET, Brummett C, Cardiopulmonary Resuscitation/psychology, Child, Choice Behavior, Emergency Treatment/psychology, Female, Hospitalized/psychology, Humans, ICU Decision Making, Intratracheal/psychology, Intubation, Journal Article, Middle Aged, Moore GP, Nelson DR, Parents/psychology, Patients' Rooms, Penetrating/therapy, Phlebotomy/psychology, Questionnaires, Spinal Puncture/psychology, Wounds
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
The determinants of health care seeking behaviour of adolescents attending STD clinics in South Africa
Tags: 2000, Adolescent, Adolescent Behavior/psychology, Adolescent Health Services/utilization, Adult, Ambulatory Care Facilities, Attitude To Health, Backlog, Female, Humans, Journal Article, Journal Of Adolescence, Kok G, Male, Meyer-Weitz A, Patient Acceptance of Health Care, Pietersen J, Reddy P, Sexually Transmitted Diseases/prevention & control/therapy, South Africa, Van Den Borne HW
Assessing the clinical importance of symptomatic improvements. An illustration in rheumatology
Tags: 1993, 80 And Over, Activities of Daily Living, Adult, Age Factors, Aged, Archives Of Internal Medicine, Arthritis, Arthritis/physiopathology, Attitude To Health, Backlog, Female, Health Status, Health Status Indicators, Humans, Journal Article, Lorig K, Male, Middle Aged, Osteoarthritis/physiopathology, Quality Of Life, Redelmeier DA, Rheumatoid/physiopathology, Self-Assessment, Severity Of Illness Index
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
Whose utilities for decision analysis?
Tags: 1990, Attitude Of Health Personnel, Attitude To Health, Backlog, Boyd NF, Choice Behavior, Colostomy/psychology, Cummings BJ, Decision Support Techniques, Game Theory, Heasman KZ, Humans, Journal Article, Life Expectancy, Medical Decision Making, Multivariate Analysis, Non-U.S. Gov't, Patient Participation/psychology, Patients/psychology, Physicians/psychology, Prognosis, Research Support, Sutherland HJ, Tritchler DL
Life threatening illness and hospice care.
Tags: 1989, Adolescent, Archives of Disease in Childhood, Attitude To Health, Backlog, Baum JD, Bereavement, Child, Consumer Satisfaction, Employment, Family Health, Forrest GC, Hospices, Humans, Journal Article, Longitudinal Studies, Marriage, Mental Disorders/psychology, Non-U.S. Gov't, Parents, Preschool, Professional-family Relations, Research Support, Respite Care, Retrospective Studies, Social Support, Stein A, Terminal Care/psychology, Woolley H
Psychiatric and physical morbidity effects of caregiving
Tags: 1990, Attitude To Health, Backlog, Depression/diagnosis/etiology, Female, Home Nursing/psychology, Humans, Immunity, Journal Article, Journal Of Gerontology, Male, Meta-Analysis, Middle Aged, Morbidity, P.H.S., Psychological/complications, Research Support, Schulz R, Stress, U.S. Gov't, Visintainer P, Williamson GM
Effects of framing and level of probability on patients' preferences for cancer chemotherapy
Tags: 1989, Adolescent, Adult, Aged, Attitude To Health, Backlog, Female, Health Status, Humans, Informed Consent, Journal Article, Journal Of Clinical Epidemiology, Male, Middle Aged, Neoplasms/drug therapy/mortality/psychology, Non-U.S. Gov't, O'Connor AM, Patient Participation, Probability, Prognosis, Random Allocation, Research Support
The assessment of values in laryngeal cancer: reliability of measurement methods
Tags: 1984, Adult, Aged, Attitude To Health, Backlog, Boyd NF, Ciampi A, Etezadi-Amoli J, Evaluation Studies, Female, Humans, Interview, Journal Article, Journal Of Chronic Diseases, Laryngeal Neoplasms/psychology/radiotherapy, Llewellyn-Thomas HA, Male, Middle Aged, Non-U.S. Gov't, Psychological, Research Support, Social Values, Sutherland HJ, Till JE, Time Factors, Voice, Voice Quality
Mapping the journey of cancer patients through health care system. Part 1: developing the research question
Tags: 2004, Adaptation, Attitude To Health, Backlog, Blood P, Canadian Oncology Nursing Journal, Clinch J, Data Collection, Delivery of Health Care/standards, El Sayed S, Humans, Journal Article, Khoo K, Longitudinal Studies, Manitoba, Motivation, Nemecek A, Neoplasms/diagnosis/psychology/therapy, Non-U.S. Gov't, Nursing, Nursing Methodology Research/methods, Philosophy, Psychological, Research Design, Research Support, Scott-Findlay S, Sloan JA, Trylinski C, Whittaker H
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Human research ethics committees: issues in palliative care research
Tags: 2003, Attitude Of Health Personnel, Attitude To Health, Backlog, Ethics, Ethics Committees, Human Experimentation, Humans, International Journal of Palliative Nursing, Journal Article, Kristjanson LJ, Lee S, Multi-site Ethics, Nurse's Role, Nursing, Nursing Research/ethics, Palliative Care/ethics/psychology, Patient Advocacy, Research Design, Research Personnel/psychology, Research/organization & administration, Terminally Ill/psychology
Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Psychology, Adolescent Transitions, Adult, Age Factors, Attitude To Health, Backlog, Chronic Disease/psychology/therapy, Continuity Of Patient Care, Female, Great Britain, Humans, Interviews As Topic, Journal Article, Journal Of Child Health Care, Male, Patient Transfer, Professional-patient Relations, Qualitative Research, Soanes C, Social Support, Timmons S