Browse Items (80 total)
- Tags: Attitude To Health
Missing life stories. The narratives of palliative patients, parents and physicians in paediatric oncology
Tags: 2017, Adolescent, Adult, Attitude To Death, Attitude To Health, Bone Neoplasms/psychology, Child, De CE, Disease Progression, Dying, Elger BS, European Journal Of Cancer Care, Female, Humans, Leukemia/psychology, lived experience, Male, Medical Oncology, Middle Aged, Narration, Narrative, Neoplasms/psychology, oncologists, Oncology 2018 List, Paediatric oncology, Palliative Care, Parents, Pediatrics, Qualitative Research, Sarcoma/psychology, Soft Tissue Neoplasms/psychology, Stories, Switzerland, Wangmo T
Parent Perspectives During Hospital Readmissions for Children With Medical Complexity: A Qualitative Study
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Academic Medical Centers, Adolescent, Attitude To Health, Child, Chronic Disease, Continuity Of Patient Care, Freund KM, Health Knowledge, Attitudes, Practice, Health Services Accessibility, Hospital Pediatrics, Infant, Interviews As Topic, Krcmar R, Leary JC, LeClair AM, Male, Newborn Infant, Parents, patient readmission, Preschool Child, Qualitative Research, Yoon GH
Values clarification: Eliciting the values that inform and influence parents' treatment decisions for periviable birth
Tags: 2020, Attitude To Health, Bhamidipalli SS, Decision Making, Fadel W, fetal viability, Financial Stress, Hoffman SM, Jeffries E, Kavanaugh K, Laitano T, October 2021 List, Paediatric and Perinatal Epidemiology, Parents, periviable delivery, Pilot Projects, Pregnancy, premature birth, Qualitative Research, Quality Of Life, Religion, Resuscitation Orders, Second Trimester Pregnancy, shared decision making, Social Support, Tucker EB, values clarification
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
Health care information sources for adolescents: age and gender differences on use, concerns, and needs
Tags: 2001, Ackard DM, Adolescent, Adolescent Behavior/ethnology, Adolescent Health Services/utilization, Adolescent Psychology, Age Distribution, Attitude To Health, Backlog, Child, Confidentiality/psychology, Female, Health Services Accessibility/standards/trends, Humans, Journal Article, Male, Neumark-Sztainer D, Sex Distribution, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study
Tags: 2023, 2023 SE3 - Oncology, Abdal-Rahman M, Adolescent, Adult, advanced cancer/dm [Disease Management], Ahmed F, Al-Awady S, Alajarmeh S, Alarjeh G, Alnassan A, Alrjoub W, Article, Attitude To Health, Boufkhed S, Caregiver, Child, Cross-sectional Study, doctor patient relationship, Female, Frontiers in Oncology, Guo P, Harding R, Health Care Personnel, Health Care Policy, health care practice, Human, Human Experiment, implicit bias, Information Dissemination, Jordan, Jordanian, Kutluk T, Male, Medical Information, myelodysplastic syndrome, myeloproliferative disorder, Palliative Therapy, pediatric patient, Qualitative Research, refugee, reticuloendothelial tumor, Semi Structured Interview, Shamieh O, Yurdusen S
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Tags: 2004, Adrie C, Adult, Aged, Annane D, anxiety, Attitude Of Health Personnel, Attitude To Health, Azoulay E, Backlog, Bleichner G, Bornstain C, Bouffard Y, Chevret S, Cohen Y, Consumer Satisfaction, Critical Care Medicine, Decision Making, Depression, Family/psychology, FAMIREA Study Group, Feissel M, Female, France, Goldgran-Toledano D, Guitton C, Hayon J, Humans, ICU Decision Making, Iglesias E, Intensive Care Units, Joly LM, Jourdain M, Journal Article, Laplace C, Lebert C, LeGall JR, Logistic Models, Male, Middle Aged, Multivariate Analysis, Pingat J, Pochard F, Poisson C, Prospective Studies, Renault A, Sanchez O, Schlemmer B, Selcer D, Timsit JF
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents
Tags: 1999, Adolescent, Adult, Aged, Annals Of Emergency Medicine, Attitude To Health, Backlog, Boie ET, Brummett C, Cardiopulmonary Resuscitation/psychology, Child, Choice Behavior, Emergency Treatment/psychology, Female, Hospitalized/psychology, Humans, ICU Decision Making, Intratracheal/psychology, Intubation, Journal Article, Middle Aged, Moore GP, Nelson DR, Parents/psychology, Patients' Rooms, Penetrating/therapy, Phlebotomy/psychology, Questionnaires, Spinal Puncture/psychology, Wounds
Whose utilities for decision analysis?
Tags: 1990, Attitude Of Health Personnel, Attitude To Health, Backlog, Boyd NF, Choice Behavior, Colostomy/psychology, Cummings BJ, Decision Support Techniques, Game Theory, Heasman KZ, Humans, Journal Article, Life Expectancy, Medical Decision Making, Multivariate Analysis, Non-U.S. Gov't, Patient Participation/psychology, Patients/psychology, Physicians/psychology, Prognosis, Research Support, Sutherland HJ, Tritchler DL
The attitude of young adults with chronic disease or handicaps towards enforced treatment and euthanasia
Tags: 1999, Adolescent, Adolescent Psychology, Attitude To Death, Attitude To Health, Backlog, Brook U, Case-Control Studies, Chronic Disease/psychology, Decision Making, Disabled Persons/psychology, Euthanasia/psychology, Family/psychology, Female, Humans, Informed Consent, Israel, Journal Article, Male, Medical Futility, Patient Education and Counseling, Physician's Role, Prognosis, Quality Of Life, Questionnaires, Terminal Care/psychology, Treatment Refusal/psychology
Gender differences in parenting a child with cancer
Tags: 1996, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Barbarin OA, Brown KA, Child, Female, Gender Identity, Humans, Journal Article, Male, Models, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parenting/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Social Work in Health Care, Socialization
Using a treatment-tradeoff method to elicit preferences for the treatment of locally advanced non-small-cell lung cancer
Tags: 1998, Adjuvant, Aged, Antineoplastic Agents/adverse effects/therapeutic use, Attitude To Health, Backlog, Brundage MD, Carcinoma, Chemotherapy, Choice Behavior, Comparative Study, Davidson JR, Decision Support Techniques, Feasibility Studies, Feldman-Stewart D, Female, Groome P, Humans, Journal Article, Lung Neoplasms/psychology/radiotherapy, Mackillop WJ, Male, Medical Decision Making, Non-Small-Cell Lung/psychology/radiotherapy, Non-U.S. Gov't, Prostatic Neoplasms/psychology/radiotherapy, Questionnaires/standards, Radiotherapy/adverse effects/methods, Reproducibility of Results, Research Support, Survival Analysis, Treatment Outcome
Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Tags: 2012, Adaptation, Adult, Attitude To Health, Cadell S, Caregivers, Child, Female, Focus Groups, Hemsworth D, Humans, Journal of Social Work in End-of-Life & Palliative Care, Kennedy K, Male, Middle Aged, Palliative Care, Parent-child Relations, Parents, Professional-family Relations, Psychological, Social Support, Social Work, Stress, Terminal Care
Recruiting for research in hospice: feasibility of a research screening protocol
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Attitude To Health, Backlog, Casarett D, Community Health Services/utilization, Cross-sectional Studies, Eligibility Determination, Feasibility Studies, Female, Health Services Research/methods, Hospice Care/utilization, Humans, Journal Article, Journal of Palliative Medicine, Kassner CT, Kutner JS, Male, Middle Aged, Multi-site Ethics, Palliative Care, Patient Selection, Research Subjects/psychology
The sorcerer's broom: medicine's rampant technology
Tags: 1993, Attitude Of Health Personnel, Attitude To Health, Backlog, Cassell EJ, Dehumanization, Diffusion of Innovation, Ethics, Health Care and Public Health, Humans, Journal Article, Medical, Physicians/psychology, Power (psychology), Reproducibility of Results, Risk Assessment, Science, Social Values, Technology, The Hastings Center Report, Uncertainty
Assessing mothers' attitudes about the physician's role in child health promotion
Tags: 1996, Adolescent Transitions, Adult, American Journal Of Public Health, Attitude To Health, Backlog, Bigelow C, Charney E, Cheng TL, Child, Child welfare, DeWitt TG, Female, Health Promotion, Humans, Journal Article, Kumar S, Massachusetts, Mothers/psychology/statistics & numerical data, Physician's Role, Preschool, Questionnaires, Savageau JA
Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning
Tags: 2019, Adolescent, Adult, Advance Care Planning/*standards, Aldridge J, Archives of Disease in Childhood - Education and Practice, Attitude To Death, Attitude To Health, August 2020 List, Child, Clayton M, Family/*psychology, Female, Humans, Male, Middle Aged, Paediatric Practice, Palliative Care, Palliative Care/*psychology/*standards, Pediatrics/*standards, Practice Guidelines As Topic, Preschool, Spirituality, United Kingdom
Mothers' recollections of the Paediatric Intensive Care Unit: associations with psychopathology and views on follow up
Tags: 2006, Acute/diagnosis/prevention & control/psychology, Adult, Aftercare/organization & administration/psychology, Attitude To Health, Backlog, Child, Colville GA, Communication, Cross-sectional Studies, Female, Gracey D, Health Services Needs And Demand, Hospitalized, Humans, ICU Decision Making, Infant, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, Male, Mass Screening, Mothers/psychology, Nursing Methodology Research, Pediatric/organization & Administration, Preschool, Professional-family Relations, Psychiatric Status Rating Scales, Questionnaires, Retrospective Studies, Risk Factors, Severity Of Illness Index, Social Support, Stress Disorders, Traumatic
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Tags: 2004, Attitude Of Health Personnel, Attitude To Health, Backlog, Bereavement, Child, Cohen HJ, Communication, Contro N, Data Collection, Family/psychology, Hospital/psychology, Humans, Journal Article, Larson J, Longitudinal Studies, Non-U.S. Gov't, Pain/therapy, Palliative Care/standards, Pediatrics, Pediatrics/education/standards, Personnel, Professional-family Relations, Quality Of Health Care, Research Support, Scofield S, Sourkes B
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care
Tags: 2019, Adolescence, Adolescent, Adult, Article, Attitude To Health, August 2019 List, Brown D E, Caregiver, Carney S D, Clinical Article, Communication, Cystic Fibrosis, Dellon E P, Female, Hailey C E, Health Care Personnel, Health Education, Helms S W, Human, lung fibrosis, Male, Palliative Care, Palliative Therapy, Parent, Patient Education, Pediatric Pulmonology, Perception, Prieur M G, Priority Journal, Qualitative Analysis, Schmidt H J, Semi Structured Interview, Shay R
Impact of a chronic illness in childhood: siblings' perceptions
Tags: 1996, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Cystic Fibrosis, Derouin D, Female, Humans, Issues In Comprehensive Pediatric Nursing, Jessee PO, Journal Article, Male, Nursing Methodology Research, Pediatric Nursing, Questionnaires, sibling bereavement, Sibling Relations
Awareness of pediatric palliative care among health care workers
The art of healing and knowing in cancer and palliative care
Tags: 2006, Adaptation, Adult, Anger, Art Therapy/methods, Attitude To Death, Attitude To Health, Backlog, Child, Child Psychology, Color, Communication, Devlin B, Grief, Humans, International Journal of Palliative Nursing, Journal Article, Knowledge, Morale, Nurse-patient Relations, Nurse's Role/psychology, Oncologic Nursing, Palliative Care/methods/psychology, PedPal Lit, Psychological, Self Concept, Social Isolation, Social Support, Symbolism, Unconscious (Psychology)
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs
Tags: 2004, Adolescent, Attitude To Health, Backlog, Child, Chronic Disease, Clark MJ, Family, Farmer JE, Health Services Needs And Demand, Health Services/standards, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Marien WE, Newborn, Non-U.S. Gov't, Primary Health Care, Professional-family Relations, Questionnaires, Research Support, Selva TJ, Sherman A, Social Support
Stress, coping, and hope
Parent resuscitation preferences for young people with severe developmental disabilities.
Tags: 2006, Adolescent, Adult, Advance Care Planning/og [Organization & Administration], Advance Care Planning/organization & Administration, Analysis of Variance, Attitude To Health, Backlog, Child, Choice Behavior, Consent Forms, Developmental Disabilities/co [Complications], Developmental Disabilities/complications/therapy, Developmental Disabilities/th [Therapy], DNAR, Documentation, Female, Friedman SL, Health Education/og [Organization & Administration], Health Education/organization & administration, Humans, Journal Article, Journal Of The American Medical Directors Association, Male, Massachusetts, Organizational Policy, Parents, Parents/ed [education], Parents/education/psychology, Parents/px [psychology], Preschool, Program Evaluation, Resuscitation Orders/psychology, Resuscitation Orders/px [Psychology], Retrospective Studies, Skilled Nursing Facilities/og [Organization & Administration], Skilled Nursing Facilities/organization & administration, Treatment Refusal/psychology, Treatment Refusal/px [Psychology]
Grandma's hands: parental perceptions of the importance of grandparents as secondary caregivers in families of children with disabilities
Tags: 2001, Adult, Aged, Attitude To Health, Backlog, Caregivers/psychology, Child, Disabled Children/psychology, Family Relations, Florida, Green SE, Home Nursing/manpower/psychology, Humans, Intergenerational Relations, International Journal Of Aging & Human Development, Journal Article, Middle Aged, Parent caregivers, Parent-child Relations, Parents/psychology, Preschool, Questionnaires, Social Support, Socioeconomic Factors
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, Chronic Disease/*psychology, difficult situation, Disabled Persons/psychology, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, November 2020 List, paediatric patient, Parental Attitudes, Parents, Parents/*psychology, Poland, Preschool, Psychological
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, 2022 Special Edition 2 - Parent Perspectives, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, difficult situation, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, paediatric patient, Parental Attitudes, Parents, Parents/psychology, Poland, Preschool, Psychological
What is wrong with end-of-life care? Opinions of bereaved family members
Tags: 1997, Aged, Artificial/statistics & numerical data, Attitude To Death, Attitude To Health, Backlog, Bereavement, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Danis M, Death and Euthanasia, Empirical Approach, Family, Female, Garrett J, Hanson LC, Health Care Surveys, Home Nursing, Humans, Intensive Care/statistics & numerical data, Journal Article, Journal Of The American Geriatrics Society, Male, Non-U.S. Gov't, North Carolina, Nursing Homes/standards, Pain/nursing/therapy, Physician-patient Relations, Quality Of Health Care, Quality Of Life, Research Support, Respiration, Terminal Care/standards/statistics & numerical data
Siblings of a child with cancer
Health counseling in adolescent preventive visits: effectiveness, current practices, and quality measurement
Tags: 1998, Adolescent, Adolescent Behavior, Adolescent Health Services, Adolescent Transitions, Andresen E, Attitude To Health, Backlog, Counseling, Delivery of Health Care, Female, Hedberg VA, Humans, Journal Article, Klein JD, Male, Outcome Assessment (health Care), Preventive Medicine, Primary Health Care, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study
Tags: 2017, Adolescent, Adult, April 2018 List, Attitude To Death, Attitude To Health, Carroll KW, Child, Child Health/statistics & numerical data, Cohort Studies, Critical Illness/epidemiology/ psychology, Decision-making, Female, Fenderson RM, Feudtner C, Health Surveys, Hill DL, Hope, hopes, Humans, Infant, Journal of Pain and Symptom Management, Longitudinal Studies, Male, Middle Aged, Nathanson PG, Only Child, Parent-child Relations, parental concordance, Parents/ Psychology, Pediatrics, Philadelphia/epidemiology, Preschool, Prevalence, problems, Quality of Life/ psychology, Serious Illness, Terminal Care/ psychology, Young Adult
Patient-reported outcomes in end-of-life research in pediatric oncology
The reflections you get': an exploration of body image and cachexia.
Tags: 2007, 80 And Over, Adaptation, Aged, Attitude To Health, Backlog, Body Image, Cachexia/et [Etiology], Cachexia/px [Psychology], England, Female, Health Services Needs And Demand, Hinsley R, Holistic Health, Hughes R, Humans, International Journal of Palliative Nursing, Interpersonal Relations, Journal Article, Male, Middle Aged, N, Narration, Neoplasms/co [complications], Nursing Methodology Research, Palliative Care/mt [methods], Palliative Care/px [psychology], Prognosis, Psychological, Qualitative Research, Quality Of Life/px [psychology], Questionnaires, Social Behavior, Social Isolation, Social Support, Spirituality, Terminally Ill/px [Psychology]
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends