2
40
128
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1007/s11606-008-0716-8" target="_blank" rel="noreferrer">http://doi.org/10.1007/s11606-008-0716-8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood
Publisher
An entity responsible for making the resource available
Journal Of General Internal Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Young Adult; Adult; Attitude of Health Personnel; Aged; Middle Aged; adolescent; Adolescent Transitions; Pediatrics/methods/trends; Chronic Disease/psychology/therapy; Family Practice/methods/trends; Physician's Role/psychology
Creator
An entity primarily responsible for making the resource
Okumura MJ; Heisler M; Davis MM; Cabana MD; Demonner S; Kerr EA
Description
An account of the resource
BACKGROUND: As an increasing number of patients with chronic conditions of childhood survive to adulthood, experts recommend that young adults with chronic conditions transfer from child-focused to adult-focused primary care. Little, however, is known about how comfortable physicians are caring for this population. OBJECTIVES: To assess the comfort of general internists and general pediatricians in treating young adult patients with chronic illnesses originating in childhood as well as the factors associated with comfort. PARTICIPANTS: In a random sample, 1288 of 2434 eligible US general internists and pediatricians completed a mailed survey (response rate = 53%). METHODS: We measured respondents' comfort level in providing primary care for a patient with sickle cell disease (SCD) or cystic fibrosis (CF). We also measured levels of disease familiarity, training and subspecialty support, as well as individual physician characteristics. RESULTS: Fifteen percent of general internists reported being comfortable as the primary care provider for adults with CF and 32% reported being comfortable providing primary care for adults with SCD, compared with 38% of pediatricians for CF (p 0.05). Less than half of general internists felt that their specialty should take primary care responsibility for adult patients with CF and SCD. CONCLUSIONS: A majority of general internists and pediatricians are not comfortable providing primary care for young adults with chronic illnesses of childhood origin, such as CF and SCD. Efforts to increase treatment comfort among providers may help with the transition to adult-focused care for the growing numbers of young adults with complex chronic conditions.
2008
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s11606-008-0716-8" target="_blank" rel="noreferrer">10.1007/s11606-008-0716-8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2008
Adolescent
Adolescent Transitions
Adult
Aged
Attitude Of Health Personnel
Backlog
Cabana MD
Chronic Disease/psychology/therapy
Cross-sectional Studies
Davis MM
Demonner S
Family Practice/methods/trends
Female
Heisler M
Humans
Journal Article
Journal Of General Internal Medicine
Kerr EA
Male
Middle Aged
Okumura MJ
Pediatrics/methods/trends
Physician's Role/psychology
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/s13187-010-0105-y" target="_blank" rel="noreferrer">http://doi.org/10.1007/s13187-010-0105-y</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Filming the family: a documentary film to educate clinicians about family caregivers of patients with brain tumors
Publisher
An entity responsible for making the resource available
Journal Of Cancer Education
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Humans; Physician-Patient Relations; Attitude of Health Personnel; caregivers; Brain Neoplasms/therapy; Inservice Training/methods; Medical Oncology/education; Motion Pictures as Topic; Neurosurgery/education
Creator
An entity primarily responsible for making the resource
Rabow MW; Goodman S; Chang S; Berger M; Folkman S
Description
An account of the resource
The objective of this paper is to evaluate the educational value of a documentary film about family caregiving for patients with brain tumors. The method used in this study is a pre-post survey among neurosurgeons, neuro-oncologist, and other clinician viewers. Viewers evaluated the film highly and reported an intention to change their practice as a result of watching the film. Following viewing, participants felt more strongly that "all families of patients with brain cancers should meet with a social worker" (P = 0.01) and that "family caregivers greatly impact the health of patients" (P = 0.002), and they were less likely to believe that "supporting family caregivers is primarily someone else's job" (P = 0.009). A documentary film about family caregiving is an effective educational tool to increase awareness among neurosurgery/neuro-oncology clinicians about the importance and needs of family caregivers of patients with brain tumors.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/s13187-010-0105-y" target="_blank" rel="noreferrer">10.1007/s13187-010-0105-y</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Attitude Of Health Personnel
Backlog
Berger M
Brain Neoplasms/therapy
Caregivers
Chang S
Folkman S
Goodman S
Humans
Inservice Training/methods
Journal Article
Journal Of Cancer Education
Medical Oncology/education
Motion Pictures as Topic
Neurosurgery/education
Physician-patient Relations
Rabow MW
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2008.02.010" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2008.02.010</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Trends in the use of opioids at the end of life and the expected effects on hastening death
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; Survival Rate; Analgesics; Attitude of Health Personnel; Questionnaires; Euthanasia; Survival Analysis; Risk Assessment; Risk Factors; decision making; Administration; Oral; Opioid/administration & dosage; Terminal Care/statistics & numerical data; Active/statistics & numerical data/trends; Netherlands/epidemiology; Pain/mortality/prevention & control; Physician's Practice Patterns/statistics & numerical data/trends; Physicians/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Rurup ML; Borgsteede SD; van der Heide A; van der Maas PJ; Onwuteaka-Philipsen BD
Description
An account of the resource
The aim of our study was to describe trends in opioid use and perceptions of having hastened the end of life of a patient. In 2005, a questionnaire was sent to 6860 physicians in The Netherlands who had attended a death. The response rate was 78%. In 1995 and 2001 similar studies were done. Physicians less often administered opioids with the intention to hasten death in 2005 (3.1% of the non-sudden deaths) than in 2001 and in 1995 (7% and 10%, respectively). Physicians gave similar dosages of opioids in 2005, 2001, and 1995, but physicians in 2005 less often thought that life was actually shortened than in 2001 and 1995 (37% in 2005, 50% in 2001, and 53% in 1995). Of the physicians in 2005 who did think that the life of the patient was shortened by opioids, 94% did not give higher dosages than were, in their own opinion, required for pain and symptom management. Physicians in 2005 more often took hastening death into account when they gave higher dosages of opioids when the patient experienced more severe symptoms and with female patients. In older patients (>or=80 years), physicians took the hastening of death into account more often, but the actual dosages of opioids were lower. These data indicate that physicians in The Netherlands less often thought that death was hastened by opioids and less often gave opioids, with the intention to hasten death in 2005 than in 2001 and 1995.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2008.02.010" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2008.02.010</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Active/statistics & numerical data/trends
Administration
Analgesics
Attitude Of Health Personnel
Backlog
Borgsteede SD
Decision Making
Euthanasia
Humans
Journal Article
Journal of Pain and Symptom Management
Netherlands/epidemiology
Onwuteaka-Philipsen BD
Opioid/administration & dosage
Oral
Pain/mortality/prevention & control
Physician's Practice Patterns/statistics & numerical data/trends
Physicians/statistics & numerical data
Questionnaires
Risk Assessment
Risk Factors
Rurup ML
Survival Analysis
Survival Rate
Terminal Care/statistics & Numerical Data
van der Heide A
van der Maas PJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.pain.2007.02.016" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.pain.2007.02.016</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Should we be reluctant to prescribe opioids for chronic non-malignant pain?
Publisher
An entity responsible for making the resource available
Pain
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Humans; Analgesics; Attitude of Health Personnel; Chronic disease; Pain/drug therapy/etiology; Neoplasms/complications; Opioid/adverse effects/therapeutic use; Opioid-Related Disorders/etiology/prevention & control; Physician's Practice Patterns/trends
Creator
An entity primarily responsible for making the resource
Fields HL
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.pain.2007.02.016" target="_blank" rel="noreferrer">10.1016/j.pain.2007.02.016</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Analgesics
Attitude Of Health Personnel
Backlog
Chronic Disease
Fields HL
Humans
Journal Article
Neoplasms/complications
Opioid-Related Disorders/etiology/prevention & control
Opioid/adverse effects/therapeutic use
Pain
Pain/drug therapy/etiology
Physician's Practice Patterns/trends
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1017/S147895150999068X" target="_blank" rel="noreferrer">http://doi.org/10.1017/S147895150999068X</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level
Publisher
An entity responsible for making the resource available
Palliative & Supportive Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Adult; Attitude of Health Personnel; Questionnaires; Attitude to Death; Professional-Family Relations; Longitudinal Studies; Internship and Residency; Professional-Patient Relations; Professional Competence; Pediatrics/education; Palliative Care/methods; Curriculum/standards; Documentation/standards; Teaching/methods
Creator
An entity primarily responsible for making the resource
Yazdani S; Evan E; Roubinov D; Chung PJ; Zeltzer L
Description
An account of the resource
OBJECTIVE: A longitudinal pediatric palliative care curriculum was introduced into the pediatric residency program at the University of California, Los Angeles. The present study explores the possible effects of this curriculum on the interns' self-assessed comfort levels regarding caring for children with life-threatening conditions. METHODS: A newly created assessment tool was administered to interns in order to rate their comfort regarding pediatric palliative care at the beginning and conclusion of their intern year. RESULTS: Twenty-two of the 29 interns completed this survey. Baseline data indicated 55% of the interns had some experience with taking care of a dying pediatric patient during their medical school training, and 79% indicated that they had taken care of a dying adult. Only 7% of the interns felt adequately prepared to deal with death and dying, but all interns indicated interest in further learning about pediatric palliative care. Comparison of the overall comfort levels of the 22 responding residents before and after the first year of training in 20 different related tasks demonstrated a significant self-assessed improvement of comfort in seven areas. There was no increase in self-reported comfort in communication related to palliative care. SIGNIFICANCE OF RESULTS: Residents indicated increased comfort in some areas of pediatric palliative care after the first year of their training. The underlying cause of this increased comfort is unclear at this time. The overall effect of longitudinal palliative care curricula on residents' level of comfort in caring for this population deserves further assessment.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1017/S147895150999068X" target="_blank" rel="noreferrer">10.1017/S147895150999068X</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Adult
Attitude Of Health Personnel
Attitude To Death
Backlog
Chung PJ
Curriculum/standards
Documentation/standards
Evan E
Female
Humans
Internship And Residency
Journal Article
Longitudinal Studies
Male
Palliative & Supportive Care
Palliative Care/methods
Pediatrics/education
Professional Competence
Professional-family Relations
Professional-patient Relations
Questionnaires
Roubinov D
Teaching/methods
Yazdani S
Young Adult
Zeltzer L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2009.0074" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2009.0074</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Are we training our fellows adequately in delivering bad news to patients? A survey of hematology/oncology program directors
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; United States; Physician-Patient Relations; Data Collection; Attitude of Health Personnel; Education; Communication; Truth Disclosure; Fellowships and Scholarships; Medical; Medical Oncology/education; Graduate/economics/standards; Hematology/education
Creator
An entity primarily responsible for making the resource
Hebert HD; Butera JN; Castillo J; Mega AE
Description
An account of the resource
BACKGROUND: Medical oncologists often must deliver bad news. The authors were interested in the extent of formal training in delivering bad news in hematology/oncology fellowships in the United States. METHODS: An e-mail survey was sent to all hematology/oncology fellowship program directors in the United States. Surveys were e-mailed to 124 program directors and responses were received either via e-mail or regular mail. Program directors were asked the adequacy, the perceived necessity, the quality of this training, and the institutional support provided. It was also intended to elicit responses about the degree of formal training fellows receive in delivering bad news. chi(2) Statistics were used to perform comparisons between items; p values of less than 0.05 were considered statistically significant. RESULTS: Sixty-five surveys were completed and returned (52% response rate). The majority of programs, 82%, are in urban areas and 97% of the primary teaching hospitals are considered tertiary care centers and 46% of programs carry a National Cancer Institute (NCI) designation. Median number of fellows in a training program is 6 with the range being 3 to 46. Eighty-nine percent of program directors reported that they themselves received little to no formal training in delivering bad news, but they report 37% of current fellows receive little to no formal training with 40% receiving some training and additional 23% receiving moderate to extensive training (p
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2009.0074" target="_blank" rel="noreferrer">10.1089/jpm.2009.0074</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Attitude Of Health Personnel
Backlog
Butera JN
Castillo J
Communication
Data Collection
Education
Fellowships And Scholarships
Graduate/economics/standards
Hebert HD
Hematology/education
Humans
Journal Article
Journal of Palliative Medicine
Medical
Medical Oncology/education
Mega AE
Physician-patient Relations
Truth Disclosure
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216307077173" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216307077173</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenges to participation in paediatric palliative care research: a review of the literature
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Humans; Attitude of Health Personnel; Qualitative Research; Terminally Ill/psychology; Palliative Care/ethics; Parents/psychology; Multi-site Ethics; Research Design/standards
Creator
An entity primarily responsible for making the resource
Tomlinson D; Bartels U; Hendershot E; Constantin J; Wrathall G; Sung L
Description
An account of the resource
It has been identified that there is a need for increased palliative care research within the paediatric setting. The assessment of parental views is necessary for this population. However, the conduct of research and recruitment of participants is often challenging. While conducting a study that involved parents of children receiving palliative or end-of-life care, the authors found that there were particular challenges to recruiting these parents. This comprehensive review of the literature aims to address the ethical and recruitment issues of involving parents of children that are receiving palliative or end-of-life care. Key elements, that may maximize completion of research and a more representative sample, are also discussed. These elements include obtaining the opinions on study design and interview script from experienced families and maximizing the partnership between health care professionals and the research team.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216307077173" target="_blank" rel="noreferrer">10.1177/0269216307077173</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Attitude Of Health Personnel
Backlog
Bartels U
Child
Constantin J
Hendershot E
Humans
Journal Article
Multi-site Ethics
Palliative Care/ethics
Palliative Medicine
Parents/psychology
Qualitative Research
Research Design/standards
Sung L
Terminally Ill/psychology
Tomlinson D
Wrathall G
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216307082475" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216307082475</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Impact of euthanasia on primary care physicians in the Netherlands.
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Female; Humans; Male; decision making; Attitude of Health Personnel; Emotions; Euthanasia; Netherlands; Qualitative Research; Physician's Role; Professional-Patient Relations; Primary Health Care; Adaptation; Psychological; decision making; Active; Euthanasia; Physician Assisted Dying PAD; Attitude of Health Personnel; Emotions; Physician's Role/px [Psychology]; Primary Health Care; Active/px [Psychology]
Creator
An entity primarily responsible for making the resource
van Marwijk H; Haverkate I; van Royen P; The Anne-Mei
Description
An account of the resource
BACKGROUND: There is only limited knowledge about the emotional impact that performing euthanasia has on primary care physicians (PCPs) in the Netherlands., OBJECTIVE: To obtain more insight into the emotional impact on PCPs of performing euthanasia or assisted suicide, and to tailor the educational needs of vocational PCP trainees accordingly., METHODS: Qualitative research, consisting of four focus group studies. The setting was primary care in the Netherlands; 22 PCPs participated, in four groups (older males, older females, younger males and a group with interest with regard to euthanasia)., RESULTS: Various phases with different emotions were distinguished: before (tension), during (loss) and after (relief) the event. Although it is a very rare occurrence, euthanasia has a major impact on PCPs. Their relationship with the patient, their loneliness, the role of the family, and pressure from society are the main issues that emerged. Making sufficient emotional space and time available to take leave adequately from a patient is important for PCPs., CONCLUSIONS: Many PCPs stressed that young physicians should form their own opinions about euthanasia and other end-of-life decisions early on in their career. We recommend that these issues are officially included in the vocational training programme for general practice.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216307082475" target="_blank" rel="noreferrer">10.1177/0269216307082475</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Active
Active/px [Psychology]
Adaptation
Attitude Of Health Personnel
Backlog
Decision Making
Emotions
Euthanasia
Female
Haverkate I
Humans
Journal Article
Male
Netherlands
Palliative Medicine
Physician Assisted Dying PAD
Physician's Role
Physician's Role/px [Psychology]
Primary Health Care
Professional-patient Relations
Psychological
Qualitative Research
The Anne-Mei
van Marwijk H
van Royen P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216308098214" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216308098214</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2008
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Health Services Accessibility; Health Services Needs and Demand; Qualitative Research; Focus Groups; Needs Assessment; Respite Care; Scotland; Charting the Territory; Family/psychology; Research/organization & administration; Palliative Care/organization & administration/standards; Hospice Care/organization & administration/standards; Terminal Care/organization & administration/psychology/standards
Creator
An entity primarily responsible for making the resource
Malcolm C; Forbat L; Knighting K; Kearney N
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216308098214" target="_blank" rel="noreferrer">10.1177/0269216308098214</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
The main objective of this study is to generate a list of priority topics for children's hospice care research in Scotland from the perspective of its key stakeholders. The method consists of qualitative semi-structured interviews with families using hospice services (n = 5), four focus groups with hospice staff and volunteers (n = 44) and telephone interviews with professionals associated with the hospice (n = 18). Fourteen broad themes emerged following thematic content and interpretive analysis of the interview data. Some of the research themes were specific to certain stakeholder groups, whereas other themes were identified unanimously across all the stakeholder groups as being priority areas for future research. Increasing awareness of and improving access to children's hospice care, hospice and respite care needs of young people, community/home care and issues related to supporting the wider family arose, independently, in all three stakeholder groups as being priority topics for future research. In conclusion, a greater evidence base is required in the field of children's palliative care and the topics researched should be identified and led by those most closely involved in the hospices. Engaging families and care providers in the process of identifying research priorities resulted in the development of an extensive research agenda, which will contribute to quality hospice care for children and families.
2008
Attitude Of Health Personnel
Backlog
Family/psychology
Focus Groups
Forbat L
Health Services Accessibility
Health Services Needs And Demand
Hospice Care/organization & administration/standards
Humans
Journal Article
Kearney N
Knighting K
Malcolm C
Needs Assessment
Palliative Care/organization & administration/standards
Palliative Medicine
Qualitative Research
Research/organization & administration
Respite Care
Scotland
Terminal Care/organization & administration/psychology/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216309104061" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216309104061</a>
Dublin Core
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Title
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Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Child; Humans; Terminally Ill; Family; Attitude of Health Personnel; Focus Groups; Needs Assessment; Delphi Technique; Scotland; adolescent; Palliative Care/organization & administration; Charting the Territory; Research/organization & administration; Hospice Care/organization & administration
Creator
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Malcolm C; Knighting K; Forbat L; Kearney N
Identifier
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<a href="http://doi.org/10.1177/0269216309104061" target="_blank" rel="noreferrer">10.1177/0269216309104061</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
The Delphi process, widely used in health research to seek consensus on key issues amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers and linked professionals to identify and prioritize future research priorities for children's hospice care. In the qualitative Round 1, interviews with families (n = 5), linked professionals (n = 18) and focus groups with hospice staff and volunteers (n = 44) led to the generation of 56 research topics categorised within 14 broad themes. To give a larger number of stakeholders (n = 621) (including families n = 293; hospice staff/volunteers n = 216 and professionals n = 112) the opportunity to rate the importance of each research topic and seek group consensus on the future research priorities for children's hospice care, subsequent Rounds 2 and 3 involved the use of postal questionnaires. Response rates to questionnaires were 44% in Round 2 (274/621) and 83% in Round 3 (204/247). Participants prioritized research topics relating to 1) hospice and respite care needs of young people (aged 16 +), 2) pain and symptom management and 3) bereavement and end-of-life care. There was wide acknowledgement by those took part in the process of the difficulty in rating the topics, and emphasis on the fact that all of the topics raised during the project are of high importance and merit further research. The current salient issues perceived by key stakeholders as being the research priorities for children's hospice care were identified. Addressing these priority topics for research would further contribute to the development of a much needed evidence base in children's hospice and palliative care research and optimise the delivery of children's hospice services that are underpinned by valid and robust research.
2009
Adolescent
Attitude Of Health Personnel
Backlog
Child
Delphi Technique
Family
Focus Groups
Forbat L
Hospice Care/organization & administration
Humans
Journal Article
Kearney N
Knighting K
Malcolm C
Needs Assessment
Palliative Care/organization & Administration
Palliative Medicine
Research/organization & administration
Scotland
Terminally Ill
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909109360410" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909109360410</a>
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Title
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Pediatric palliative care: feedback from the pediatric intensivist community
Publisher
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The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; United States; Intensive Care Units; Attitude of Health Personnel; Questionnaires; Attitude to Death; Professional-Family Relations; Professional Competence; Palliative Care/organization & administration; Continuity of Patient Care/organization & administration; Pediatrics/organization & administration; Pediatric/organization & administration; Terminal Care/organization & administration
Creator
An entity primarily responsible for making the resource
Jones PM; Carter BS
Description
An account of the resource
With the emergence of a more formalized field of pediatric palliative care (PPC), it is important for individuals and organizations involved in PPC to gather input from patients with life-threatening/life-limiting conditions, their families, and their health care providers. We report the results of a survey completed in late 2007 of the Section on Critical Care of the American Academy of Pediatrics (AAP). The 102 respondents provided information regarding their clinical and educational experiences, perceived barriers to the provision of palliative care in the intensive care environment, currently available PPC resources, and the usefulness of palliative care specialization in the pediatric intensive care unit.
2010
Identifier
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<a href="http://doi.org/10.1177/1049909109360410" target="_blank" rel="noreferrer">10.1177/1049909109360410</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Attitude Of Health Personnel
Attitude To Death
Backlog
Carter BS
Child
Continuity Of Patient Care/organization & Administration
Humans
Intensive Care Units
Jones PM
Journal Article
Palliative Care/organization & Administration
Pediatric/organization & Administration
Pediatrics/organization & Administration
Professional Competence
Professional-family Relations
Questionnaires
Terminal Care/organization & Administration
The American Journal of Hospice & Palliative Care
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.soncn.2004.12.015" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.soncn.2004.12.015</a>
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Title
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Comparing research priorities for pediatric oncology from two panels of experts
Publisher
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Seminars In Oncology Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; United States; Attitude of Health Personnel; Health Services Needs and Demand; Pediatric Nursing; Research Support; Oncologic Nursing; Congresses; Health Priorities; National Institutes of Health (U.S.)/organization & administration; Nursing Research/organization & administration; Professional Staff Committees/organization & administration
Creator
An entity primarily responsible for making the resource
Hare ML
Identifier
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<a href="http://doi.org/10.1016/j.soncn.2004.12.015" target="_blank" rel="noreferrer">10.1016/j.soncn.2004.12.015</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Attitude Of Health Personnel
Backlog
Child
Congresses
Hare ML
Health Priorities
Health Services Needs And Demand
Humans
Journal Article
National Institutes of Health (U.S.)/organization & administration
Nursing Research/organization & administration
Oncologic Nursing
Pediatric Nursing
Professional Staff Committees/organization & administration
Research Support
Seminars In Oncology Nursing
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1038/sj.jp.7211358" target="_blank" rel="noreferrer">http://doi.org/10.1038/sj.jp.7211358</a>
Dublin Core
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Title
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A paradigm of integrative care: healing with curing throughout life, "being with" and "doing to"
Publisher
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Journal Of Perinatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; Palliative Care; Pediatrics; Attitude of Health Personnel; Philosophy; Medical; Psychological; bereavement; Models
Creator
An entity primarily responsible for making the resource
Milstein J
Description
An account of the resource
We are presenting an integrative paradigm of care. We will review the basis for its evolution from prior series and parallel models. In this paradigm, healing and palliation (when indicated) are introduced in parallel with curative measures as soon as any diagnosis, especially a critical one, is made. Frequently palliative measures address patient symptoms, such as pain, anxiety, delirium, or depression, and are geared towards comfort care at the end of life. Our view of healing care is that it actively addresses the cognitive, emotional and spiritual needs of the patient and family, and includes the elements of palliative care as a complement. Because a loss is often experienced in many conditions, even in the absence of death, bereavement is represented in our model as an ongoing, continual process throughout a disease process. While we will be drawing mainly from experiences with children, the proposed model is applicable to all ages. In order to implement this model most effectively, it will be important to shift from our mindset of "doing to" to one that includes "being with" our patients and their families. The uniqueness of this paradigm, in contrast to other models, is its comprehensiveness and universality. It is appropriate for patients of any age, at any stage of their disease or illness, regardless of the severity or duration of their condition.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1038/sj.jp.7211358" target="_blank" rel="noreferrer">10.1038/sj.jp.7211358</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Attitude Of Health Personnel
Backlog
Bereavement
Child
Humans
Journal Article
Journal Of Perinatology
Medical
Milstein J
Models
Palliative Care
Pediatrics
Philosophy
Psychological
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.pec.0000210178.86504.80" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.pec.0000210178.86504.80</a>
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Title
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Parental presence during invasive procedures and resuscitation: attitudes of health care professionals in Turkey
Publisher
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Pediatric Emergency Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; Male; Adult; Health Care Surveys; Parents; Attitude of Health Personnel; Logistic Models; Professional-Family Relations; Age Factors; Socioeconomic Factors; Turkey; decision making; Pediatrics/statistics & numerical data; ICU Decision Making; Analgesia/nursing; Conscious Sedation/nursing; Emergency Medicine/methods/statistics & numerical data; Emergency Nursing/methods/statistics & numerical data; Resuscitation/nursing
Creator
An entity primarily responsible for making the resource
Egemen A; Ikizoglu T; Karapnar B; Cosar H; Karapnar D
Description
An account of the resource
OBJECTIVES: An agreement among physician, nurse, and family on the issue and a solution developed by all will improve the quality of work. The aims of this study were to determine health care professionals' (physicians and nurses) attitude toward parental presence during invasive procedures and toward parental participation in this decision and to investigate the difference between the approach of physicians and nurses. METHODS: This study was performed on the physicians and nurses of the Medical Faculty of the Department of Pediatrics of Ege University between December 2003 and March 2004. The questionnaire delivered was completed by 49 (94%) of 52 nurses and 51 (89%) of 57 physicians. RESULTS: Parental presence during blood sampling, simple wound repair/suture, lumbar puncture, and bone marrow aspiration/biopsy was approved by 72.5%, 27.5%, 66.7%, and 82.4% of the physicians and 53.1%, 57.1%, 81.6%, and 85.7% of the nurses, respectively. None of the health care professionals preferred parents to attend during any kind of resuscitation. Attitudes of the nurses and physicians were found to be similar between the 2 groups except for simple wound repair. Major determinants of the decision about the agreement for parental presence were procedural invasiveness for physicians (reported by 82.5%) and level of sedation for nurses (reported by 75.5%). The mean ages of both groups of health care professionals who did not approve parental presence during invasive procedures were lower than that of the ones who approved for all procedures. CONCLUSION: The physicians and nurses in the study population tended to prefer parents not to be present during procedures as the level of invasiveness increased. An agreement between the attitudes of physicians and nurses toward parental presence during invasive procedures is essential for improving quality of service, especially in the dynamic environment of the emergency department.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.pec.0000210178.86504.80" target="_blank" rel="noreferrer">10.1097/01.pec.0000210178.86504.80</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adult
Age Factors
Analgesia/nursing
Attitude Of Health Personnel
Backlog
Child
Conscious Sedation/nursing
Cosar H
Decision Making
Egemen A
Emergency Medicine/methods/statistics & numerical data
Emergency Nursing/methods/statistics & numerical data
Female
Health Care Surveys
Humans
ICU Decision Making
Ikizoglu T
Journal Article
Karapnar B
Karapnar D
Logistic Models
Male
Parents
Pediatric Emergency Care
Pediatrics/statistics & numerical data
Professional-family Relations
Resuscitation/nursing
Socioeconomic Factors
Turkey
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/10598405060220010801" target="_blank" rel="noreferrer">http://doi.org/10.1177/10598405060220010801</a>
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Title
A name given to the resource
School nurses' support for bereaved students: a pilot study
Publisher
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Journal of School Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Attitude of Health Personnel; PedPal Lit; Adult Aged; Bereavement Child Clinical Competence/standards Female Focus Groups Humans Middle Aged Needs Assessment; Non-U.S. Gov't School Nursing/education/organization & administration Self EfficacySocial Support Students/psychology/statistics & numerical data Washington Workload; Nurse's Role/psychology Nursing Assessment Nursing Methodology Research Nursing Staff/education/organization & administration/psychology Pilot Projects Questionnaires Research Support
Creator
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Lohan JA
Identifier
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<a href="http://doi.org/10.1177/10598405060220010801" target="_blank" rel="noreferrer">10.1177/10598405060220010801</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
Children may have difficulty with schoolwork because of grief over the death of an important person in their lives. School nurses provide support to these children. This pilot study consisted of a Web-based survey completed by 6 school nurses in a 3-county area in Washington state. The purpose of this pilot study was to assess the need for additional support for bereaved children and the extent to which school nurses meet the needs of these students. Results indicated that many school nurses have large caseloads that preclude spending as much time with bereaved students as the nurses feel is necessary. Bereaved students exhibit a wide variety of grief symptoms that may interfere with learning. In addition, rural areas do not have adequate community bereavement resources that nurses can use to refer students who need help beyond that offered at school. Nurses must be more active in supporting students within the school setting despite limited resources.
2006
Adult Aged
Attitude Of Health Personnel
Backlog
Bereavement Child Clinical Competence/standards Female Focus Groups Humans Middle Aged Needs Assessment
Journal Article
Journal of School Nursing
Lohan JA
Non-U.S. Gov't School Nursing/education/organization & administration Self EfficacySocial Support Students/psychology/statistics & numerical data Washington Workload
Nurse's Role/psychology Nursing Assessment Nursing Methodology Research Nursing Staff/education/organization & administration/psychology Pilot Projects Questionnaires Research Support
PedPal Lit
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2006.12.6.21450" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2006.12.6.21450</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Pain Measurement; Great Britain; Attitude to Health; Attitude of Health Personnel; Questionnaires; Pediatric Nursing; Child Psychology; Fear; Nursing Methodology Research; Nonverbal Communication; Crying; Child Behavior; Stress; Adaptation; Psychological; Charting the Territory; Causality; Vomiting/etiology/prevention & control; Hospice Care/psychology; Anxiety/etiology; Medical Staff/psychology; Nursing Staff/psychology; Occupational Diseases/etiology; Psychological/diagnosis/etiology/prevention & control; Seizures/etiology/prevention & control; Spasm/etiology/prevention & control
Creator
An entity primarily responsible for making the resource
McCluggage HL
Description
An account of the resource
BACKGROUND: Very little is published about the symptom profile of children with life-limiting illnesses other than cancer. METHOD: A postal questionnaire was sent to children's hospice staff who were asked to identify symptoms experienced by life-limited children which caused them anxiety. RESULTS: Staff in 23 hospices were sent questionnaires. Twenty-eight questionnaires were returned from 10 doctors and 18 nurses. Just under half of the hospices contacted were represented. The staff were very experienced but had significant anxieties about treating some of their patients. AIMS: This study aimed to identify the symptoms which cause anxiety to staff working in children's hospices. More than 70% of all staff groups felt that identifying the symptom correctly caused more anxiety than treating identified symptoms. For doctors the top five symptom problems were, seizure control, spasms, pain assessment, unidentified distress and vomiting. For nurses the main concerns were the non-verbal child in distress, psychiatric or psychological problems, assessing pain, seizures, pain management, vomiting. CONCLUSIONS: Doctors and nurses perceive seizures, pain management, and vomiting as the most troublesome symptoms for children with life-limiting conditions. Further research is needed into symptom management in this area.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2006.12.6.21450" target="_blank" rel="noreferrer">10.12968/ijpn.2006.12.6.21450</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Anxiety/etiology
Attitude Of Health Personnel
Attitude To Health
Backlog
Causality
Child
Child Behavior
Child Psychology
Crying
Fear
Great Britain
Hospice Care/psychology
Humans
International Journal of Palliative Nursing
Journal Article
McCluggage HL
Medical Staff/psychology
Nonverbal Communication
Nursing Methodology Research
Nursing Staff/psychology
Occupational Diseases/etiology
Pain Measurement
Pediatric Nursing
Psychological
Psychological/diagnosis/etiology/prevention & control
Questionnaires
Seizures/etiology/prevention & control
Spasm/etiology/prevention & control
Stress
Vomiting/etiology/prevention & control
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2004-0905" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2004-0905</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
New and lingering controversies in pediatric end-of-life care
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; Analgesics; Data Collection; Attitude of Health Personnel; Medical Futility; Medical Staff; Withholding Treatment; Life Support Care; Medical; Practice Guidelines; ICU Decision Making; Pain/drug therapy; Opioid/therapeutic use; Specialties; Terminal Care/psychology; Nurses/psychology; Hospital/psychology
Creator
An entity primarily responsible for making the resource
Solomon MZ; Sellers DE; Heller KS; Dokken DL; Levetown M; Rushton C; Truog RD; Fleischman AR
Description
An account of the resource
OBJECTIVES: Professional societies, ethics institutes, and the courts have recommended principles to guide the care of children with life-threatening conditions; however, little is known about the degree to which pediatric care providers are aware of or in agreement with these guidelines. The study's objectives were to determine the extent to which physicians and nurses in critical care, hematology/oncology, and other subspecialties are in agreement with one another and with widely published ethical recommendations regarding the withholding and withdrawing of life support, the provision of adequate analgesia, and the role of parents in end-of-life decision-making. METHODS: Three children's hospitals and 4 general hospitals with PICUs in eastern, southwestern, and southern parts of the United States were surveyed. This population-based sample was composed of attending physicians, house officers, and nurses who cared for children (age: 1 month to 18 years) with life-threatening conditions in PICUs or in medical, surgical, or hematology/oncology units, floors, or departments. Main outcome measures included concerns of conscience, knowledge and beliefs, awareness of published guidelines, and agreement or disagreement with guidelines. RESULTS: A total of 781 clinicians were sampled, including 209 attending physicians, 116 house officers, and 456 nurses. The overall response rate was 64%. Fifty-four percent of house officers and substantial proportions of attending physicians and nurses reported, "At times, I have acted against my conscience in providing treatment to children in my care." For example, 38% of critical care attending physicians and 25% of hematology/oncology attending physicians expressed these concerns, whereas 48% of critical care nurses and 38% of hematology/oncology nurses did so. Across specialties, approximately 20 times as many nurses, 15 times as many house officers, and 10 times as many attending physicians agreed with the statement, "Sometimes I feel we are saving children who should not be saved," as agreed with the statement, "Sometimes I feel we give up on children too soon." However, hematology/oncology attending physicians (31%) were less likely than critical care (56%) and other subspecialty (66%) attending physicians to report, "Sometimes I feel the treatments I offer children are overly burdensome." Many respondents held views that diverged widely from published recommendations. Despite a lack of awareness of key guidelines, across subspecialties the vast majority of attending physicians (range: 92-98%, depending on specialty) and nurses (range: 83-85%) rated themselves as somewhat to very knowledgeable regarding ethical issues. CONCLUSIONS: There is a need for more hospital-based ethics education and more interdisciplinary and cross-subspecialty discussion of inherently complex and stressful pediatric end-of-life cases. Education should focus on establishing appropriate goals of care, as well as on pain management, medically supplied nutrition and hydration, and the appropriate use of paralytic agents. More research is needed on clinicians' regard for the dead-donor rule.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2004-0905" target="_blank" rel="noreferrer">10.1542/peds.2004-0905</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Analgesics
Attitude Of Health Personnel
Backlog
Child
Data Collection
Dokken DL
Fleischman AR
Heller KS
Hospital/psychology
Humans
ICU Decision Making
Journal Article
Levetown M
Life Support Care
Medical
Medical Futility
Medical Staff
Nurses/psychology
Opioid/therapeutic use
Pain/drug Therapy
Pediatrics
Practice Guidelines
Rushton C
Sellers DE
Solomon MZ
Specialties
Terminal Care/psychology
Truog RD
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2004-1321" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2004-1321</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Health care transition: youth, family, and provider perspectives
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Family; Adult; Attitude to Health; Attitude of Health Personnel; Interdisciplinary Communication; Disabled Persons; Health Services Research; Focus Groups; Continuity of Patient Care; Patient Care Planning; Family Practice; adolescent; Adolescent Transitions; Health; Insurance; Chronic Disease/therapy; Adolescent Health Services/organization & administration; Delivery of Health Care/organization & administration; Pediatrics/organization & administration; Adolescent Medicine/organization & administration; CHIR Best Practices; Insurance Coverage
Creator
An entity primarily responsible for making the resource
Reiss JG; Gibson RW; Walker LR
Description
An account of the resource
OBJECTIVE: This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care providers? What are promising practices that facilitate successful HCT? What are obstacles that inhibit HCT? METHODS: A qualitative approach was used to investigate these questions. Focus group interviews were conducted. Content and narrative analyses of interview transcripts were completed using ATLAS.ti. RESULTS: Thirty-four focus groups and interviews were conducted with 143 young adults with disabilities and special health care needs, family members, and health care providers. Content analysis yielded 3 content domains: transition services, which presents a chronological understanding of the transition process; health care systems, which presents differences between pediatric and adult-oriented medicine and how these differences inhibit transition; and transition narratives, which discusses transition experience in the broader context of relationships between patients and health care providers. CONCLUSION: This study demonstrated the presence of important reciprocal relationships that are based on mutual trust between providers and families and are developed as part of the care of chronically ill children. Evidence supports the need for appropriate termination of pediatric relationships as part of the transition process. Evidence further supports the idea that pediatric and adult-oriented medicines represent 2 different medical subcultures. Young adults' and family members' lack of preparation for successful participation in the adult health care system contributes to problems with HCT.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2004-1321" target="_blank" rel="noreferrer">10.1542/peds.2004-1321</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
Adolescent
Adolescent Health Services/organization & administration
Adolescent Medicine/organization & administration
Adolescent Transitions
Adult
Attitude Of Health Personnel
Attitude To Health
Backlog
CHIR Best Practices
Chronic Disease/therapy
Continuity Of Patient Care
Delivery of Health Care/organization & administration
Disabled Persons
Family
Family Practice
Female
Focus Groups
Gibson RW
Health
Health Services Research
Humans
Insurance
Insurance Coverage
Interdisciplinary Communication
Journal Article
Male
Patient Care Planning
Pediatrics
Pediatrics/organization & Administration
Physician-patient Relations
Reiss JG
Walker LR
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16182412" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16182412</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Paediatric fever management: continuing education for clinical nurses
Publisher
An entity responsible for making the resource available
Nurse Education Today
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Male; Analgesics; Attitude of Health Personnel; Education; Questionnaires; Health Services Needs and Demand; Nurse's Role; Time Factors; Hospitals; Nursing Staff; Practice; Pediatric; Attitudes; PedPal Lit; Health Knowledge; Non-Narcotic/therapeutic use; Nursing; Educational Status; Certification; Urban; Nursing Process; Clinical Competence/standards; Continuing/organization & administration; Evidence-Based Medicine/education; Fever/nursing/prevention & control; Hospital/education/psychology; Negativism; Pediatric Nursing/education
Creator
An entity primarily responsible for making the resource
Walsh AM; Edwards HE; Courtney MD; Wilson JE; Monaghan SJ
Description
An account of the resource
PURPOSE: This study examined the influence of level of practice, additional paediatric education and length of paediatric and current experience on nurses' knowledge of and beliefs about fever and fever management. METHOD: Fifty-one nurses from medical wards in an Australian metropolitan paediatric hospital completed a self-report descriptive survey. RESULTS: Knowledge of fever management was mediocre (Mean 12.4, SD 2.18 on 20 items). Nurses practicing at a higher level and those with between one and four years paediatric or current experience were more knowledgeable than novices or more experienced nurses. Negative beliefs that would impact nursing practice were identified. Interestingly, beliefs about fever, antipyretic use in fever management and febrile seizures were similar; they were not influenced by nurses' knowledge, experience, education or level of practice. CONCLUSIONS: Paediatric nurses are not expert fever managers. Knowledge deficits and negative attitudes influence their practice irrespective of additional paediatric education, paediatric or current experience or level of practice. Continuing education is therefore needed for all paediatric nurses to ensure the latest clear evidence available in the literature for best practice in fever management is applied.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Analgesics
Attitude Of Health Personnel
Attitudes
Backlog
Certification
Child
Clinical Competence/standards
Continuing/organization & administration
Courtney MD
Cross-sectional Studies
Education
Educational Status
Edwards HE
Evidence-Based Medicine/education
Female
Fever/nursing/prevention & control
Health Knowledge
Health Services Needs And Demand
Hospital/education/psychology
Hospitals
Humans
Journal Article
Male
Monaghan SJ
Negativism
Non-Narcotic/therapeutic use
Nurse Education Today
Nurse's Role
Nursing
Nursing Process
Nursing Staff
Pediatric
Pediatric Nursing/education
PedPal Lit
Practice
Questionnaires
Time Factors
Urban
Walsh AM
Wilson JE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16390525" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16390525</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Consultation with children in hospital: children, parents' and nurses' perspectives
Publisher
An entity responsible for making the resource available
Journal Of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Parent-Child Relations; Questionnaires; Communication; Hospitals; Comprehension; Nursing Staff; Pediatric; Interviews; PedPal Lit; Parents/psychology; decision making; Attitude of Health Personnel; Patient Participation; Nurse-Patient Relations; Nurse's Role; Hospital/psychology; Hospitalized/psychology
Creator
An entity primarily responsible for making the resource
Coyne I
Description
An account of the resource
AIMS AND OBJECTIVES: To explore children's, parents' and nurses' views on participation in care in the healthcare setting. BACKGROUND: Children have a right to be consulted and involved in their care. DESIGN: The grounded theory method was used and data were collected through in-depth interviews, questionnaires and observation. Sample consisted of 11 children, 10 parents and 12 nurses from four paediatric wards in two hospitals in England. RESULTS: Parents felt that children should be involved in the decision-making process thereby enhancing and promoting children's self-esteem and positive self-regard, which would consequently enhance their overall welfare. Likewise, children expressed the need for consultation and information so that they could understand their illness; be involved in their care, and prepare themselves for procedures. However, children's own opinions and views were underused and they had varying experiences of being consulted about their care and treatment. Nurses appeared to hold varying and discrepant views on the involvement of children in decisions and for some nurses, the child's involvement seemed to be dependent on the child's cognitive maturity and being defined as a rational subject. CONCLUSION: Health professionals' communication behaviour may reflect recognition of children's cognitive abilities rather than their competence to understand. The fact that children's nurses appeared to make decisions about involving children in decision making in the absence of a reliable framework was a significant finding and highlights a real problem in the current climate. RELEVANCE TO CLINICAL PRACTICE: Nurses faced with workforce pressures may encounter considerable challenges to facilitating children's involvement in decisions about their care. Hence it is imperative that nurses' examine the basis of their decisions and use more explicit criteria for determining children's involvement.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Attitude Of Health Personnel
Backlog
Child
Communication
Comprehension
Coyne I
Decision Making
England
Hospital/psychology
Hospitalized/psychology
Hospitals
Humans
Interviews
Journal Article
Journal of Clinical Nursing
Nurse-patient Relations
Nurse's Role
Nursing Staff
Parent-child Relations
Parents/psychology
Patient Participation
Pediatric
PedPal Lit
Questionnaires
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16493302" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16493302</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Emotion work in the palliative nursing care of children and young people
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Adolescent Psychology; Adult; Self Concept; Attitude to Death; Health Services Needs and Demand; Child Psychology; Holistic Health; Job Satisfaction; Organizational Culture; quality of life; adolescent; Psychological; PedPal Lit; Family/psychology; empathy; social support; Adaptation; Attitude of Health Personnel; Emotions; Burnout; Nurse-Patient Relations; Nurse's Role/psychology; Palliative Care/organization & administration/psychology; Professional/prevention & control/psychology; Work/psychology
Creator
An entity primarily responsible for making the resource
Maunder EZ
Description
An account of the resource
The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept of time, and how long practitioners are involved with individual children and their families may sometimes be underestimated. Emotion work is defined as the work involved in managing feelings in both self and others (Hochschild, 1983). The sense of community within the clinical setting can facilitate the nurse to care and maintain professional boundaries.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adolescent Psychology
Adult
Attitude Of Health Personnel
Attitude To Death
Backlog
Burnout
Child
Child Psychology
Emotions
Empathy
Family/psychology
Health Services Needs And Demand
Holistic Health
Humans
International Journal of Palliative Nursing
Job Satisfaction
Journal Article
Maunder EZ
Nurse-patient Relations
Nurse's Role/psychology
Organizational Culture
Palliative Care/organization & administration/psychology
PedPal Lit
Professional/prevention & control/psychology
Psychological
Quality Of Life
Self Concept
Social Support
Work/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518951" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16518951</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
CAMHS liaison: supporting care in general paediatric settings
Publisher
An entity responsible for making the resource available
Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Education; Questionnaires; Nurse's Role; Interprofessional Relations; Organizational Objectives; Hospitals; Nursing Methodology Research; Nursing Evaluation Research; Pediatric; adolescent; PedPal Lit; Models; social support; Nursing; Adolescent Psychiatry; Child Psychiatry; Attitude of Health Personnel; Total Quality Management/organization & administration; Consultants/psychology; Continuing/organization & administration; Continuity of Patient Care/organization & administration; Nurse Clinicians/organization & administration/psychology; Nursing Staff/education/psychology; Pediatric Nursing/education/organization & administration; Psychiatric Nursing/education/organization & administration
Creator
An entity primarily responsible for making the resource
Watson E
Description
An account of the resource
Increasing numbers of children and young people with mental health problems are being cared for in general paediatric settings, presenting a challenge to nurses who do not have mental health nursing qualification and experience. A survey of nurses in a children's hospital identified their concerns and attitudes to caring for this client group. On-call nursing support was felt by almost all nurses (87 per cent, n=90) to be the most beneficial aspect of a liaison service, followed by teaching (84 per cent) and individual support with the young person/family (84 per cent). Based on the findings, a project was initiated to improve nursing liaison with CAMHS nurses providing support and advice to general children's nurses. Effective liaison between general paediatric wards and child and adolescent mental health services (CAMHS) can improve care for children and young people with diagnosed mental health problems. However, there is still a gap in addressing the need of the significant numbers of children with physical illness who also have mental health needs.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
Adolescent Psychiatry
Attitude Of Health Personnel
Backlog
Child
Child Psychiatry
Consultants/psychology
Continuing/organization & administration
Continuity Of Patient Care/organization & Administration
Education
England
Hospitals
Humans
Interprofessional Relations
Journal Article
Models
Nurse Clinicians/organization & administration/psychology
Nurse's Role
Nursing
Nursing Evaluation Research
Nursing Methodology Research
Nursing Staff/education/psychology
Organizational Objectives
Paediatric Nursing
Pediatric
Pediatric Nursing/education/organization & administration
PedPal Lit
Psychiatric Nursing/education/organization & administration
Questionnaires
Social Support
Total Quality Management/organization & administration
Watson E
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16536402" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16536402</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital for the children
Publisher
An entity responsible for making the resource available
Nursing Standard
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; England; Attitude of Health Personnel; Nurse's Role; Hospitals; Nursing Staff; PedPal Lit; Oncologic Nursing/organization & administration; Pediatric Nursing/organization & administration; Pediatric/organization & administration; Cancer Care Facilities/organization & administration; Hospital Planning/organization & administration; Hospital/organization & administration/psychology
Creator
An entity primarily responsible for making the resource
Houlston A
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
Attitude Of Health Personnel
Backlog
Cancer Care Facilities/organization & administration
Child
England
Hospital Planning/organization & administration
Hospital/organization & administration/psychology
Hospitals
Houlston A
Humans
Journal Article
Nurse's Role
Nursing Staff
Nursing Standard
Oncologic Nursing/organization & administration
Pediatric Nursing/organization & administration
Pediatric/organization & Administration
PedPal Lit
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16544799" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16544799</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Nurses' attitudes to pain management during routine venepuncture in young children
Publisher
An entity responsible for making the resource available
Paediatric Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Pain Measurement; Questionnaires; Age Factors; Severity of Illness Index; Nursing Assessment; Nursing Methodology Research; Child Advocacy; Nursing Staff; Patient Rights; Practice; Preschool; Attitudes; PedPal Lit; infant; Health Knowledge; Hospitalized/psychology; Child; Nurse's Role/psychology; Attitude of Health Personnel; administration/psychology; Hospital/education/organization &; Pain/diagnosis/etiology/prevention & control/psychology; Pediatric Nursing/education/organization & administration; Phlebotomy/adverse effects
Creator
An entity primarily responsible for making the resource
Melhuish S; Payne H
Description
An account of the resource
Venepuncture is one of the most commonly performed clinical procedures carried out on young children. Evidence indicates inconsistency in the use of pain management strategies during these procedures. A survey method was used to explore nurses' views on the experience of pain by infants and toddlers and the pain management techniques they use. All children's nurses on the general medical and surgical wards at one hospital site were invited to participate (n=55)
45 responses were receive (81 per cent). These children's nurses believe that infants and toddlers feel more pain and display more distress than older children. Respondents reported that pharmacological preparations were not generally used on infants prior to venous cannulation
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
administration/psychology
Age Factors
Attitude Of Health Personnel
Attitudes
Backlog
Child
Child Advocacy
Health Knowledge
Hospital/education/organization &
Hospitalized/psychology
Humans
Infant
Journal Article
Melhuish S
Nurse's Role/psychology
Nursing Assessment
Nursing Methodology Research
Nursing Staff
Paediatric Nursing
Pain Measurement
Pain/diagnosis/etiology/prevention & control/psychology
Patient Rights
Payne H
Pediatric Nursing/education/organization & administration
PedPal Lit
Phlebotomy/adverse effects
Practice
Preschool
Questionnaires
Severity Of Illness Index
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16553248" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16553248</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pain in pediatric oncology: do the experiences of children and parents differ from those of nurses and physicians?
Publisher
An entity responsible for making the resource available
Upsala Journal of Medical Sciences
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Humans; Pain Measurement; Adult; Attitude to Health; Non-U.S. Gov't; Research Support; PedPal Lit; Comparative Study; Parents/psychology; Physicians/psychology; Nurses/psychology; Attitude of Health Personnel; Neoplasms/complications/psychology; Pain/etiology/prevention & control/psychology
Creator
An entity primarily responsible for making the resource
Ljungman G; Kreuger A; Gordh T; Sorensen S
Description
An account of the resource
Diagnosis and treatment of pain are central components in the care of children with cancer. The aim of the present study was to compare the viewpoints of children and parents with those of professionals, on different aspects of pain in children with cancer. Information was collected through questionnaires and interviews. In particular, we focused on the extent and causes of pain, strategies to reduce procedural pain, pain evaluation, and attitudes to pain treatment. We found that both families and professionals shared the opinion that pain was a common symptom during different phases of cancer treatment but, surprisingly, professionals regarded it as more frequent than families. The groups agreed that treatment related pain is the most critical problem, followed by procedure and cancer related pain. Concerning strategies to decrease procedural pain, there was a high concordance in views between groups. Nurses and physicians more often claimed that failing pain treatment was associated with psychological factors such as high levels of anxiety in parents and children, loneliness, and lack of preparation. The self-report, according to both parents and professionals, is a feasible procedure even in young children from 4 years of age. Both groups asserted that parents were better in ascertaining the extent of their child's pain. In conclusion, although the families and professionals in this study have many comparable views concerning pain in children with cancer, divergences also exist. To acquire a more accurate picture of the situation we must focus on the views of the children first, and then those of parents and professionals. A tendency to overestimate the problems was observed in professionals. Hopefully this reflects a keen awareness of the current situation.
2006
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adult
Attitude Of Health Personnel
Attitude To Health
Backlog
Child
Comparative Study
Gordh T
Humans
Journal Article
Kreuger A
Ljungman G
Neoplasms/complications/psychology
Non-U.S. Gov't
Nurses/psychology
Pain Measurement
Pain/etiology/prevention & control/psychology
Parents/psychology
PedPal Lit
Physicians/psychology
Research Support
Sorensen S
Upsala Journal of Medical Sciences
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1007/bf03018408" target="_blank" rel="noreferrer">http://doi.org/10.1007/bf03018408</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Simple changes can improve conduct of end-of-life care in the intensive care unit.
Publisher
An entity responsible for making the resource available
Canadian Journal Of Anaesthesia
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Attitude of Health Personnel; Aged; Middle Aged; Resuscitation Orders; Intervention Studies; Patient Admission; Pastoral Care; retrospective studies; cause of death; DNAR; cardiopulmonary resuscitation; Intensive Care Units; Life Support Care; Palliative Care; Withholding Treatment; Analgesics/tu [Therapeutic Use]; Diazepam/tu [Therapeutic Use]; DNAR Outcomes; Hypnotics and Sedatives/tu [Therapeutic Use]; Nurses/px [Psychology]; Physicians/px [Psychology]
Creator
An entity primarily responsible for making the resource
Hall RI; Rocker GM; Murray D
Description
An account of the resource
PURPOSE: To describe changes to the conduct of withdrawal of life support (WOLS) in two teaching hospital tertiary care medical surgical intensive care units (ICUs) in a single centre over two distinct time periods., METHODS: We used a retrospective chart review with a before and after comparison. We assessed aspects of end-of-life care for ICU patients dying after a WOLS before and after we introduced instruments to clarify do not resuscitate (DNR) orders and to standardize the WOLS process, sought family input into the conduct of end-of-life care, and modified physicians' orders regarding use of analgesia and sedation., RESULTS: One hundred thirty-eight patients died following life support withdrawal in the ICUs between July 1996 and June 1997 (PRE) and 168 patients died after a WOLS between May 1998 and April 1999 (POST). Time from ICU admission to WOLS (mean +/- SD) was shorter in the POST period (191 +/- 260 hr PRE vs 135 +/- 205 hr POST, P = 0.05). Fewer patients in the POST group received cardiopulmonary resuscitation in the 12-hr interval prior to death (PRE = 7; POST = 0: P < 0.05). Fewer comfort medications were used (PRE: 1.7 +/- 1.0 vs POST: 1.4 +/- 1.0; P < 0.05). Median cumulative dose of diazepam (PRE: 20.0 vs POST: 10.0 mg; P < 0.05) decreased. Documented involvement of physicians in WOLS discussions was unchanged but increased for pastoral care (PRE: 10/138 vs POST: 120/168 cases; P < 0.05). The majority of nurses (80%) felt that the DNR and WOLS checklists led to improved process around WOLS., CONCLUSION: Simple changes to the process of WOLS can improve conduct of end-of-life care in the ICU.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1007/bf03018408" target="_blank" rel="noreferrer">10.1007/bf03018408</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Aged
Analgesics/tu [Therapeutic Use]
Attitude Of Health Personnel
Backlog
Canadian Journal Of Anaesthesia
Cardiopulmonary Resuscitation
Cause Of Death
Diazepam/tu [Therapeutic Use]
DNAR
DNAR Outcomes
Female
Hall RI
Humans
Hypnotics and Sedatives/tu [Therapeutic Use]
Intensive Care Units
Intervention Studies
Journal Article
Life Support Care
Male
Middle Aged
Murray D
Nurses/px [Psychology]
Palliative Care
Pastoral Care
Patient Admission
Physicians/px [Psychology]
Resuscitation Orders
Retrospective Studies
Rocker GM
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.ccc.2004.03.004" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.ccc.2004.03.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
End-of-life care in the pediatric intensive care unit: research review and recommendations
Publisher
An entity responsible for making the resource available
Critical Care Clinics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Intensive Care Units; Adult; Attitude of Health Personnel; Attitude to Death; Infant Mortality; Evidence-Based Medicine; Forecasting; Practice; bereavement; Attitudes; decision making; infant; Practice Guidelines; Health Knowledge; ICU Decision Making; Parents/psychology; United States/epidemiology; Quality Assurance; Analgesia/ethics/standards; Conscious Sedation/ethics/standards; Health Care/organization & administration; Intensive Care/ethics/organization & administration/psychology; Pediatric/ethics/organization & administration; Resuscitation/ethics/standards; Terminal Care/ethics/organization & administration/psychology; Withholding Treatment/ethics/standards
Creator
An entity primarily responsible for making the resource
Burns JP; Rushton CH
Description
An account of the resource
Improving the quality of end-of-life care has become a national health care priority. A necessary step in this process in the pediatric intensive care unit (ICU) is examining the knowledge, attitudes,and behaviors of pediatric critical care practitioners in this area. In addition, the perspectives of bereaved parents must be uncovered as well. In this article, the empirical data in the literature on end-of-life care in the pediatric ICU are reviewed, common ethical controversies in this environment are discussed, and promising interventions for the future are presented.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ccc.2004.03.004" target="_blank" rel="noreferrer">10.1016/j.ccc.2004.03.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adult
Analgesia/ethics/standards
Attitude Of Health Personnel
Attitude To Death
Attitudes
Backlog
Bereavement
Burns JP
Child
Conscious Sedation/ethics/standards
Critical Care Clinics
Decision Making
Evidence-based Medicine
Forecasting
Health Care/organization & administration
Health Knowledge
Humans
ICU Decision Making
Infant
Infant Mortality
Intensive Care Units
Intensive Care/ethics/organization & administration/psychology
Journal Article
Parents/psychology
Pediatric/ethics/organization & administration
Practice
Practice Guidelines
Quality Assurance
Resuscitation/ethics/standards
Rushton CH
Terminal Care/ethics/organization & administration/psychology
United States/epidemiology
Withholding Treatment/ethics/standards
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s0889-8588(02)00017-5" target="_blank" rel="noreferrer">http://doi.org/10.1016/s0889-8588(02)00017-5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The use of methadone for cancer pain
Publisher
An entity responsible for making the resource available
Hematology/oncology Clinics Of North America
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Humans; Analgesics; Attitude of Health Personnel; Treatment Outcome; Information Dissemination; Patient Selection; Drug Interactions; Clinical Protocols; Drug Administration Schedule; Practice; Attitudes; Health Knowledge; Palliative Care/methods; Dose-Response Relationship; Drug; Neoplasms/complications; Pain/diagnosis/drug therapy/etiology; Biological Availability; Drug Costs; Drug Industry/economics; Drug Information Services; Metabolic Clearance Rate; Methadone/chemistry/economics/pharmacology/therapeutic use; Morphine/pharmacology/therapeutic use; Opioid/chemistry/economics/pharmacology/therapeutic use
Creator
An entity primarily responsible for making the resource
Ripamonti C; Bianchi M
Description
An account of the resource
Methadone is not a new analgesic drug [69]. Several studies have demonstrated that methadone is a valid alternative to morphine, hydromorphone, and fentanyl for the treatment of cancer-related pain, and extensive reviews on the subject have been published in recent years [10,23,25,64,70,71]. Most people involved in pain therapy, however, are not well informed about the properties of methadone. The authors believe that the low cost of methadone paradoxically contributes to the limited knowledge of its characteristics and to the restricted therapeutic use of this drug. The low cost of methadone means there is little financial incentive for pharmaceutical companies to invest in research or to disseminate scientific information. Unfortunately, the lack of scientific information from pharmaceutical companies frequently results in a lack of knowledge on the part of physicians. Unless the existing approach changes, both culturally and politically, ignorance about methadone will persist among medical experts. The low cost of methadone, rather than being an advantage, will result in the limited exploitation of an effective drug.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/s0889-8588(02)00017-5" target="_blank" rel="noreferrer">10.1016/s0889-8588(02)00017-5</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Analgesics
Attitude Of Health Personnel
Attitudes
Backlog
Bianchi M
Biological Availability
Child
Clinical Protocols
Dose-Response Relationship
Drug
Drug Administration Schedule
Drug Costs
Drug Industry/economics
Drug Information Services
Drug Interactions
Health Knowledge
Hematology/oncology Clinics Of North America
Humans
Information Dissemination
Journal Article
Metabolic Clearance Rate
Methadone/chemistry/economics/pharmacology/therapeutic use
Morphine/pharmacology/therapeutic use
Neoplasms/complications
Opioid/chemistry/economics/pharmacology/therapeutic use
Pain/diagnosis/drug therapy/etiology
Palliative Care/methods
Patient Selection
Practice
Ripamonti C
Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/S1084-2756(02)00223-3" target="_blank" rel="noreferrer">http://doi.org/10.1016/S1084-2756(02)00223-3</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Home management of the dying NICU patient
Publisher
An entity responsible for making the resource available
Seminars In Neonatology
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; infant; Male; Home Nursing; Attitude of Health Personnel; Professional-Family Relations; Holistic Health; Intensive Care; Palliative Care/organization & administration; Newborn; Parents/psychology; Caregivers/standards; Neonatal/standards; Patient Care Team/standards
Creator
An entity primarily responsible for making the resource
Craig F; Goldman A
Description
An account of the resource
Intensive aggressive medical therapy does not always result in cure. For some neonates it is a futile exercise that may prolong a short life of suffering. In this article, we will discuss the babies for whom aggressive therapy may not be appropriate, and how home centered palliative care can be effectively managed. We will outline the holistic multidisciplinary approach to care, with the parents as primary carers, empowered to make informed choices in the medical care of their dying baby. Symptom management will be discussed, based on the experience of an established palliative care team. We will also look at the practical and emotional preparation for death and bereavement support for the family. We hope that more families will be given the opportunity to spend time at home with their dying baby and that, through appropriate care and support, the memory of this time will be treasured.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/S1084-2756(02)00223-3" target="_blank" rel="noreferrer">10.1016/S1084-2756(02)00223-3</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Attitude Of Health Personnel
Backlog
Caregivers/standards
Craig F
Female
Goldman A
Holistic Health
Home Nursing
Humans
Infant
Intensive Care
Journal Article
Male
Neonatal/standards
Newborn
Palliative Care/organization & Administration
Parents/psychology
Patient Care Team/standards
Professional-family Relations
Seminars In Neonatology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/10966210360510082" target="_blank" rel="noreferrer">http://doi.org/10.1089/10966210360510082</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Issues in end-of-life care: patient, caregiver, and clinician perceptions
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; Male; Cohort Studies; Adult; Attitude of Health Personnel; Interpersonal Relations; Aged; Middle Aged; Attitude to Death; Physicians; Qualitative Research; Quality of Health Care; Cost of Illness; Washington; 80 and over; Non-U.S. Gov't; Research Support; Caregivers/psychology; Interviews; Family/psychology; Palliative Care/psychology; Terminal Care/psychology; Patients/psychology
Creator
An entity primarily responsible for making the resource
Farber SJ; Egnew TR; Herman-Bertsch JL; Taylor TR; Guldin GE
Description
An account of the resource
CONTEXT: Review of published research indicates the need to better incorporate patient and caregiver perceptions when providing end-of-life (EOL) care. Although considerable research regarding patient and caregiver experience of EOL has been done, little research has studied patients, caregivers, and clinicians as a connected system. OBJECTIVE: To study the perceptions of patients, caregivers, and physicians who are already connected with one another in an EOL care experience. DESIGN: Qualitative study consisting of in-depth, open-ended, face-to-face interviews and content analysis. SETTING: Community family practice residency programs in rural and urban settings in the Affiliated Family Practice Residency Network of the Department of Family Medicine, University of Washington School of Medicine. PARTICIPANTS: Forty-two patients and 39 caregivers facing EOL were interviewed either alone or together after referral by their physicians. Additionally, results of previously published findings from interviews with 39 family practice faculty were included. OUTCOME MEASURES: Perceptions of participants on EOL issues. RESULTS: Participants identified four primary issues related to their experience of EOL care: awareness of impending death, management/coping with daily living while attempting to maintain the management regimen, relationship fluctuations, and the personal experiences associated with facing EOL. Participants expected their physicians to be competent and to provide a caring relationship. CONCLUSIONS: Awareness of these crucial patient and caregiver EOL issues and expectations and how they differ from clinician perspectives can assist clinicians to appropriately explore and address patient/caregiver concerns and thereby provide better quality EOL care.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/10966210360510082" target="_blank" rel="noreferrer">10.1089/10966210360510082</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
80 And Over
Adult
Aged
Attitude Of Health Personnel
Attitude To Death
Backlog
Caregivers/psychology
Cohort Studies
Cost Of Illness
Egnew TR
Family/psychology
Farber SJ
Female
Guldin GE
Herman-Bertsch JL
Humans
Interpersonal Relations
Interviews
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Non-U.S. Gov't
Palliative Care/psychology
Patients/psychology
Physicians
Qualitative Research
Quality Of Health Care
Research Support
Taylor TR
Terminal Care/psychology
Washington
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/1096621041349374" target="_blank" rel="noreferrer">http://doi.org/10.1089/1096621041349374</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Oregon physicians' responses to requests for assisted suicide: a qualitative study.
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Physician-Patient Relations; Attitude of Health Personnel; Interviews as Topic; Qualitative Research; Oregon; Suicide; Physicians/px [Psychology]; Suicide; Assisted/es [Ethics]; Assisted/lj [Legislation & Jurisprudence]; Assisted/px [Psychology]; Physician Assisted Dying PAD; Right to Die/lj [Legislation & Jurisprudence]
Creator
An entity primarily responsible for making the resource
Dobscha SK; Heintz RT; Press Nancy; Ganzini L
Description
An account of the resource
In 1997, the Oregon Death with Dignity Act was enacted, allowing physicians to prescribe lethal dosages of medication to competent, terminally ill patients who request them. To improve our understanding of physicians' reactions to requests for assisted suicide, we performed semistructured interviews of 35 Oregon physicians who had received requests from patients. Interviews were completed in 2000, and audiotaped, transcribed, and analyzed using qualitative techniques. Requests for assisted suicide had a powerful impact on physicians and their practices. Physicians often felt unprepared, and experienced apprehension and discomfort before and after receiving requests. Prominent sources of discomfort included concerns about adequately managing symptoms and suffering, not wanting to abandon patients, and incomplete understanding of patients' preferences, especially when physicians did not know patients well. Participation in assisted suicide required a large investment of time and was emotionally intense. Regardless of whether they prescribed or not, physicians did not express major regrets about their decisions. Requests often facilitated discussion of important issues, and many physicians felt that the process increased their confidence and assertiveness in discussing end-of-life issues with other patients. Physicians rarely sought support from colleagues; instead, they tended to discuss emotional aspects of their experiences with their spouses.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/1096621041349374" target="_blank" rel="noreferrer">10.1089/1096621041349374</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Assisted/es [Ethics]
Assisted/lj [Legislation & Jurisprudence]
Assisted/px [Psychology]
Attitude Of Health Personnel
Backlog
Dobscha SK
Female
Ganzini L
Heintz RT
Humans
Interviews As Topic
Journal Article
Journal of Palliative Medicine
Male
Oregon
Physician Assisted Dying PAD
Physician-patient Relations
Physicians/px [Psychology]
Press Nancy
Qualitative Research
Right to Die/lj [Legislation & Jurisprudence]
Suicide
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/1096621041349554" target="_blank" rel="noreferrer">http://doi.org/10.1089/1096621041349554</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Opening the black box: physicians' inner responses to patients' requests for physician-assisted death
Publisher
An entity responsible for making the resource available
Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Physicians; Oregon; Suicide; Death and Euthanasia; Physician Assisted Dying PAD; Assisted
Creator
An entity primarily responsible for making the resource
Quill TE
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/1096621041349554" target="_blank" rel="noreferrer">10.1089/1096621041349554</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004-06
2004
Assisted
Attitude Of Health Personnel
Backlog
Death and Euthanasia
Humans
Journal Article
Journal of Palliative Medicine
Oregon
Physician Assisted Dying PAD
Physicians
Quill TE
Suicide
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.ccm.0000084805.15352.01" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.ccm.0000084805.15352.01</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; infant; Male; United States; Mental Competency; Adult; Data Collection; Attitude of Health Personnel; Middle Aged; Professional-Family Relations; Euthanasia; Religion and Medicine; Legal Guardians; Morals; Intensive Care; Hospitals; Ethics; Teaching; Medical; decision making; Newborn; ICU Decision Making; Passive
Creator
An entity primarily responsible for making the resource
Hardart GE; Truog RD
Description
An account of the resource
OBJECTIVE: The role of family interests in medical decision making is controversial. Physicians who routinely treat incompetent patients may have preferred strategies for addressing family interests as they are encountered in surrogate medical decision making. We sought to determine how physicians view the role of family interests in surrogate medical decision making. DESIGN: Cross-sectional mail survey. SETTING: Remote study.PATIENTS: Surveyed were neonatologists, pediatric intensivists, and medical intensivists affiliated with American medical schools. MEASUREMENTS AND MAIN RESULTS: A total of 327 (55%) of 596 surveys were returned; 35% of respondents were pediatric intensivists, 39% were neonatologists, and 26% were medical intensivists. The majority of respondents believed that family interests should be considered in decisions for incompetent patients, even if those interests are not necessarily important interests of the patient. Less than 10% preferred the traditional model in which the physician-patient relationship is exclusive and family interests are excluded. Medical intensivists, and those who described themselves as more religious, more opposed to healthcare rationing, and more protective of patients, tended to prefer patient-centered surrogate decision-making models. Physicians who treat children, especially neonatologists, were more accepting of family-centered surrogate decision-making models than were physicians who exclusively treat adults. CONCLUSIONS: A majority of the academic intensivists in our study believed that family interests should play an important role in medical decision making for incompetent patients. Our findings suggest that the traditional view of the physician-patient relationship may represent an overly simplistic model for medical decision making.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.ccm.0000084805.15352.01" target="_blank" rel="noreferrer">10.1097/01.ccm.0000084805.15352.01</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adult
Attitude Of Health Personnel
Backlog
Child
Critical Care Medicine
Cross-sectional Studies
Data Collection
Decision Making
Ethics
Euthanasia
Female
Hardart GE
Hospitals
Humans
ICU Decision Making
Infant
Intensive Care
Journal Article
Legal Guardians
Male
Medical
Mental Competency
Middle Aged
Morals
Newborn
Passive
Professional-family Relations
Religion and Medicine
Teaching
Truog RD
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/01.ccm.0000139693.88931.59" target="_blank" rel="noreferrer">http://doi.org/10.1097/01.ccm.0000139693.88931.59</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units
Publisher
An entity responsible for making the resource available
Critical Care Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Female; Humans; Male; Intensive Care Units; Adult; Attitude to Health; Attitude of Health Personnel; Logistic Models; Prospective Studies; Aged; Middle Aged; Multivariate Analysis; Consumer Satisfaction; Depression; Anxiety; decision making; Family/psychology; ICU Decision Making; France
Creator
An entity primarily responsible for making the resource
Azoulay E; Pochard F; Chevret S; Adrie C; Annane D; Bleichner G; Bornstain C; Bouffard Y; Cohen Y; Feissel M; Goldgran-Toledano D; Guitton C; Hayon J; Iglesias E; Joly LM; Jourdain M; Laplace C; Lebert C; Pingat J; Poisson C; Renault A; Sanchez O; Selcer D; Timsit JF; LeGall JR; Schlemmer B; FAMIREA Study Group
Description
An account of the resource
OBJECTIVE: To evaluate the opinions of intensive care unit staff and family members about family participation in decisions about patients in intensive care units in France, a country where the approach of physicians to patients and families has been described as paternalistic. DESIGN: Prospective multiple-center survey of intensive care unit staff and family members. SETTING: Seventy-eight intensive care units in university-affiliated hospitals in France. PATIENTS: We studied 357 consecutive patients hospitalized in the 78 intensive care units and included in the study starting on May 1, 2001, with five patients included per intensive care unit. INTERVENTIONS: We recorded opinions and experience about family participation in medical decision making. Comprehension, satisfaction, and Hospital Anxiety and Depression Scale scores were determined in family members. MEASUREMENTS AND MAIN RESULTS: Poor comprehension was noted in 35% of family members. Satisfaction was good but anxiety was noted in 73% and depression in 35% of family members. Among intensive care unit staff members, 91% of physicians and 83% of nonphysicians believed that participation in decision making should be offered to families; however, only 39% had actually involved family members in decisions. A desire to share in decision making was expressed by only 47% of family members. Only 15% of family members actually shared in decision making. Effectiveness of information influenced this desire. CONCLUSION: Intensive care unit staff should seek to determine how much autonomy families want. Staff members must strive to identify practical and psychological obstacles that may limit their ability to promote autonomy. Finally, they must develop interventions and attitudes capable of empowering families.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/01.ccm.0000139693.88931.59" target="_blank" rel="noreferrer">10.1097/01.ccm.0000139693.88931.59</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adrie C
Adult
Aged
Annane D
anxiety
Attitude Of Health Personnel
Attitude To Health
Azoulay E
Backlog
Bleichner G
Bornstain C
Bouffard Y
Chevret S
Cohen Y
Consumer Satisfaction
Critical Care Medicine
Decision Making
Depression
Family/psychology
FAMIREA Study Group
Feissel M
Female
France
Goldgran-Toledano D
Guitton C
Hayon J
Humans
ICU Decision Making
Iglesias E
Intensive Care Units
Joly LM
Jourdain M
Journal Article
Laplace C
Lebert C
LeGall JR
Logistic Models
Male
Middle Aged
Multivariate Analysis
Pingat J
Pochard F
Poisson C
Prospective Studies
Renault A
Sanchez O
Schlemmer B
Selcer D
Timsit JF
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2834.2004.00428.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2834.2004.00428.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition of care: health care professionals' view
Publisher
An entity responsible for making the resource available
Journal Of Nursing Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Adult; Attitude of Health Personnel; Questionnaires; Focus Groups; Needs Assessment; Hospitals; Nursing Methodology Research; Teaching; adolescent; Adolescent Transitions; Continuity of Patient Care/standards; Patient Transfer/standards; Chronic Disease/psychology/therapy; Adolescent Health Services/standards; London; Personnel; Pediatrics/standards; Hospital/psychology; Child Health Services/standards; Adolescent Medicine/standards
Creator
An entity primarily responsible for making the resource
Por J; Golberg B; Lennox V; Burr P; Barrow J; Dennard L
Description
An account of the resource
There is much anxiety regarding the transfer of adolescents with chronic illness to adult services. Transfer of patients can be haphazard if the transition has not been planned. Problems and obstacles to transition have been identified and discussed by various authors. The purpose of this small study was to explore the views and needs of health care professionals from one National Health Service trust regarding the transition of care for adolescents with a chronic condition from children's to adult services and to identify possible ways to improve the current services for this particular group of young adults. The sample comprised 40 health care professionals, nurses from the children's department and adult ward, doctors, psychologists, physiotherapists and pharmacists currently working in the same hospital trust. A postal survey was conducted. The data were analysed using descriptive statistics and content analysis. The main findings suggest that there is a need for a planned transition programme, supported by a clinical protocols and a specialist unit for adolescents. Health care professionals' views of patients and family/carers' needs and how such needs may be met were identified.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2834.2004.00428.x" target="_blank" rel="noreferrer">10.1111/j.1365-2834.2004.00428.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Adolescent
Adolescent Health Services/standards
Adolescent Medicine/standards
Adolescent Transitions
Adult
Attitude Of Health Personnel
Backlog
Barrow J
Burr P
Child
Child Health Services/standards
Chronic Disease/psychology/therapy
Continuity of Patient Care/standards
Dennard L
Focus Groups
Golberg B
Hospital/psychology
Hospitals
Humans
Journal Article
Journal Of Nursing Management
Lennox V
London
Needs Assessment
Nursing Methodology Research
Patient Transfer/standards
Pediatrics/standards
Personnel
Por J
Questionnaires
Teaching
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1191/0269216302pm572oa" target="_blank" rel="noreferrer">http://doi.org/10.1191/0269216302pm572oa</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Differences in understanding of specialist palliative care amongst service providers and commissioners in South London
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Non-U.S. Gov't; Research Support; Palliative Care/organization & administration; referral and consultation; Neoplasms/therapy; Delivery of Health Care/organization & administration; London; Terminology
Creator
An entity primarily responsible for making the resource
Payne S; Sheldon F; Jarrett N; Large S; Smith P; Davis CL; Turner P; George S
Description
An account of the resource
This paper describes a study that sought to identify service providers' and commissioners' understanding of specialist palliative care within the context of changing service provision in one area of South London. Using a formative evaluation framework, we examined the views of 44 providers and commissioners from statutory and voluntary health and social care services about their understanding of specialist palliative care services and, in particular, the remit of current service provision delivered by a Marie Curie Centre. Face-to-face audiotaped semi-structured interviews were conducted. A qualitative thematic analysis highlighted a number of issues including a lack of consensus about definitions of palliative care, ambivalence about referral procedures, and a lack of role clarity between specialist and generalist palliative care providers. The study took place within the real world context of changing services and economic pressures. This raises methodological issues about how services are evaluated and what terminology is used to describe end-of-life care. The study findings confirm that confusion about terminology and referral criteria remain major issues for clinical workers and organizations seeking to access services.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1191/0269216302pm572oa" target="_blank" rel="noreferrer">10.1191/0269216302pm572oa</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Attitude Of Health Personnel
Backlog
Davis CL
Delivery of Health Care/organization & administration
George S
Humans
Jarrett N
Journal Article
Large S
London
Neoplasms/therapy
Non-U.S. Gov't
Palliative Care/organization & Administration
Palliative Medicine
Payne S
Referral And Consultation
Research Support
Sheldon F
Smith P
Terminology
Turner P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1191/0269216303pm786oa" target="_blank" rel="noreferrer">http://doi.org/10.1191/0269216303pm786oa</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care research protocols: a special case for ethical review?
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; Attitude of Health Personnel; Research; Palliative Care/ethics; Ethics Committees; Multi-site Ethics; Biomedical Research/ethics; Multicenter Studies as Topic
Creator
An entity primarily responsible for making the resource
Stevens T; Wilde D; Paz S; Ahmedzai SH; Rawson A; Wragg D
Description
An account of the resource
Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care research. Interviews were transcribed and analysed using a grounded theory approach. Most respondents said each protocol was reviewed on its own merits, according to broad ethical principles, but were equivocal as to whether palliative care protocols posed particular or different challenges compared to those from other specialties. Respondents said they reviewed only a small number of palliative care protocols, and that they were less experienced with some of the study methods utilized, particularly qualitative designs. Four main themes emerged from the analysis. Respondents expressed concerns about the protocol itself--in regard to safeguarding the principles of autonomy and justice. There were concerns about how the research would be carried out, especially the protection of patients and the influence and input of the researcher in the process. The third theme concerned the impact of the research on the participant, particularly intrusion, potential distress and the existence of support mechanisms. Fourthly, respondents identified patient groups receiving palliative care (children, the elderly, bereaved families, patients in intensive therapy units, and those from ethnic groupings), who they considered might be particularly vulnerable.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1191/0269216303pm786oa" target="_blank" rel="noreferrer">10.1191/0269216303pm786oa</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Ahmedzai SH
Attitude Of Health Personnel
Backlog
Biomedical Research/ethics
Ethics Committees
Humans
Journal Article
Multi-site Ethics
Multicenter Studies as Topic
Palliative Care/ethics
Palliative Medicine
Paz S
Rawson A
Research
Stevens T
Wilde D
Wragg D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2003.9.1.11040" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2003.9.1.11040</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Human research ethics committees: issues in palliative care research
Publisher
An entity responsible for making the resource available
International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Humans; Attitude to Health; Attitude of Health Personnel; Nurse's Role; Research Design; Patient Advocacy; Ethics; Terminally Ill/psychology; Ethics Committees; Multi-site Ethics; Nursing; Research/organization & administration; Research Personnel/psychology; Human Experimentation; Nursing Research/ethics; Palliative Care/ethics/psychology
Creator
An entity primarily responsible for making the resource
Lee S; Kristjanson LJ
Description
An account of the resource
Palliative care research is fraught with many difficulties. There are challenges associated with conducting research with vulnerable patients and families, difficulties with obtaining informed consent, and methodological complexities. Thoughtful construction of research protocols may overcome many of these problems. However, researchers may be powerless to overcome the discomfort of members of human research ethics committees (HRECs) who disallow access to palliative care patients and families. The notion of conducting research with this group is often perceived as abhorrent by those who do not practise in palliative care. This is because of a persistent idea that dying people and their families are so burdened by the dying process and so vulnerable to exploitation that they should not be approached to be involved in research. This over-protectiveness regarding palliative care research often distorts the proper gate-keeping role of HRECs and health-care professionals. This article draws on the authors' experiences of presenting applications to HRECs over the last 20 years. It explores the responsibilities of HRECs, the responsibilities of palliative care researchers and the rights of patients and families. HRECs and health professionals who endeavour to undertake palliative care research are encouraged to reflect and re-examine the role of ethics committees.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.12968/ijpn.2003.9.1.11040" target="_blank" rel="noreferrer">10.12968/ijpn.2003.9.1.11040</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Attitude Of Health Personnel
Attitude To Health
Backlog
Ethics
Ethics Committees
Human Experimentation
Humans
International Journal of Palliative Nursing
Journal Article
Kristjanson LJ
Lee S
Multi-site Ethics
Nurse's Role
Nursing
Nursing Research/ethics
Palliative Care/ethics/psychology
Patient Advocacy
Research Design
Research Personnel/psychology
Research/organization & administration
Terminally Ill/psychology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2003-0857-l" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2003-0857-l</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital staff and family perspectives regarding quality of pediatric palliative care.
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Child; Humans; Attitude to Health; Data Collection; Attitude of Health Personnel; Professional-Family Relations; Communication; Longitudinal Studies; Quality of Health Care; Non-U.S. Gov't; Research Support; bereavement; Family/psychology; Palliative Care/standards; Pain/therapy; Personnel; Hospital/psychology; Pediatrics/education/standards
Creator
An entity primarily responsible for making the resource
Contro N; Larson J; Scofield S; Sourkes B; Cohen HJ
Description
An account of the resource
BACKGROUND: Development of a pediatric palliative care program was preceded by a needs assessment that included a staff survey and family interviews regarding improving pediatric palliative care. METHODS: Four hundred forty-six staff members and community physicians responded to a written survey regarding comfort and expertise in delivering end of life care. Sixty-eight family members of 44 deceased children were interviewed regarding treatment, transition to palliative care, and bereavement follow-up contact. Frequencies were generated for responses to the staff survey. Five interviewers reviewed the families' narratives and identified frequently occurring themes. RESULTS: Staff members reported feeling inexperienced in communicating with patients and families about end of life issues, transition to palliative care, and do not resuscitate status. Families reported distress caused by uncaring delivery of bad news and careless remarks made by staff members. Staff members reported feeling inexperienced in symptom and pain management and described occasions when pain could have been better managed. Families believed pain had been managed as well as possible despite observing their children suffer. Fifty-four percent of staff members reported that adequate support was not provided for those who treat dying children. Staff members and family members stated their desire for more support. Staff members who described their most difficult experiences caring for a dying child referenced personal pain and inadequate support most frequently. CONCLUSIONS: Albeit from different perspectives, staff members and family members shared common concerns and experiences regarding pediatric palliative care. These experiences emphasize the need for additional systematic study, improved education and support for staff members, and continued development of more effective and compassionate delivery of pediatric palliative care.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2003-0857-l" target="_blank" rel="noreferrer">10.1542/peds.2003-0857-l</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Attitude Of Health Personnel
Attitude To Health
Backlog
Bereavement
Child
Cohen HJ
Communication
Contro N
Data Collection
Family/psychology
Hospital/psychology
Humans
Journal Article
Larson J
Longitudinal Studies
Non-U.S. Gov't
Pain/therapy
Palliative Care/standards
Pediatrics
Pediatrics/education/standards
Personnel
Professional-family Relations
Quality Of Health Care
Research Support
Scofield S
Sourkes B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969151" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11969151</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children's hospices: organizational and staff issues
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Great Britain; Adult; Attitude of Health Personnel; Quality of Health Care; Organizational Culture; Personal Satisfaction; adolescent; Human; Hospices/organization & administration; Child Health Services/organization & administration/trends; Palliative Care/organization & administration/trends
Creator
An entity primarily responsible for making the resource
Sheldon F; Speck P
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2002
2002
Adolescent
Adult
Attitude Of Health Personnel
Backlog
Child
Child Health Services/organization & administration/trends
Great Britain
Hospices/organization & administration
Human
Journal Article
Organizational Culture
Palliative Care/organization & administration/trends
Palliative Medicine
Personal Satisfaction
Quality Of Health Care
Sheldon F
Speck P