Browse Items · Pediatric Palliative Care Library

Comfort of general internists and general pediatricians in providing care for young adults with chronic illnesses of childhood

BACKGROUND: As an increasing number of patients with chronic conditions of childhood survive to adulthood, experts recommend that young adults with chronic conditions transfer from child-focused to adult-focused primary care. Little, however, is…

Filming the family: a documentary film to educate clinicians about family caregivers of patients with brain tumors

The objective of this paper is to evaluate the educational value of a documentary film about family caregiving for patients with brain tumors. The method used in this study is a pre-post survey among neurosurgeons, neuro-oncologist, and other…

Tags: 2010, Attitude Of Health Personnel, Backlog, Berger M, Brain Neoplasms/therapy, Caregivers, Chang S, Folkman S, Goodman S, Humans, Inservice Training/methods, Journal Article, Journal Of Cancer Education, Medical Oncology/education, Motion Pictures as Topic, Neurosurgery/education, Physician-patient Relations, Rabow MW

Trends in the use of opioids at the end of life and the expected effects on hastening death

The aim of our study was to describe trends in opioid use and perceptions of having hastened the end of life of a patient. In 2005, a questionnaire was sent to 6860 physicians in The Netherlands who had attended a death. The response rate was 78%. In…

Should we be reluctant to prescribe opioids for chronic non-malignant pain?

2007

Tags: 2007, Analgesics, Attitude Of Health Personnel, Backlog, Chronic Disease, Fields HL, Humans, Journal Article, Neoplasms/complications, Opioid-Related Disorders/etiology/prevention & control, Opioid/adverse effects/therapeutic use, Pain, Pain/drug therapy/etiology, Physician's Practice Patterns/trends

A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level

OBJECTIVE: A longitudinal pediatric palliative care curriculum was introduced into the pediatric residency program at the University of California, Los Angeles. The present study explores the possible effects of this curriculum on the interns'…

Are we training our fellows adequately in delivering bad news to patients? A survey of hematology/oncology program directors

BACKGROUND: Medical oncologists often must deliver bad news. The authors were interested in the extent of formal training in delivering bad news in hematology/oncology fellowships in the United States. METHODS: An e-mail survey was sent to all…

Challenges to participation in paediatric palliative care research: a review of the literature

It has been identified that there is a need for increased palliative care research within the paediatric setting. The assessment of parental views is necessary for this population. However, the conduct of research and recruitment of participants is…

Tags: 2007, Attitude Of Health Personnel, Backlog, Bartels U, Child, Constantin J, Hendershot E, Humans, Journal Article, Multi-site Ethics, Palliative Care/ethics, Palliative Medicine, Parents/psychology, Qualitative Research, Research Design/standards, Sung L, Terminally Ill/psychology, Tomlinson D, Wrathall G

Impact of euthanasia on primary care physicians in the Netherlands.

BACKGROUND: There is only limited knowledge about the emotional impact that performing euthanasia has on primary care physicians (PCPs) in the Netherlands., OBJECTIVE: To obtain more insight into the emotional impact on PCPs of performing euthanasia…

Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care

The main objective of this study is to generate a list of priority topics for children's hospice care research in Scotland from the perspective of its key stakeholders. The method consists of qualitative semi-structured interviews with families using…

Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study

The Delphi process, widely used in health research to seek consensus on key issues amongst large stakeholder groups, was adopted to allow families, hospice staff/volunteers and linked professionals to identify and prioritize future research…

Pediatric palliative care: feedback from the pediatric intensivist community

With the emergence of a more formalized field of pediatric palliative care (PPC), it is important for individuals and organizations involved in PPC to gather input from patients with life-threatening/life-limiting conditions, their families, and…

Comparing research priorities for pediatric oncology from two panels of experts

2005

Tags: 2005, Attitude Of Health Personnel, Backlog, Child, Congresses, Hare ML, Health Priorities, Health Services Needs And Demand, Humans, Journal Article, National Institutes of Health (U.S.)/organization & administration, Nursing Research/organization & administration, Oncologic Nursing, Pediatric Nursing, Professional Staff Committees/organization & administration, Research Support, Seminars In Oncology Nursing, United States

A paradigm of integrative care: healing with curing throughout life, "being with" and "doing to"

We are presenting an integrative paradigm of care. We will review the basis for its evolution from prior series and parallel models. In this paradigm, healing and palliation (when indicated) are introduced in parallel with curative measures as soon…

Tags: 2005, Attitude Of Health Personnel, Backlog, Bereavement, Child, Humans, Journal Article, Journal Of Perinatology, Medical, Milstein J, Models, Palliative Care, Pediatrics, Philosophy, Psychological

Parental presence during invasive procedures and resuscitation: attitudes of health care professionals in Turkey

OBJECTIVES: An agreement among physician, nurse, and family on the issue and a solution developed by all will improve the quality of work. The aims of this study were to determine health care professionals' (physicians and nurses) attitude toward…

School nurses' support for bereaved students: a pilot study

Children may have difficulty with schoolwork because of grief over the death of an important person in their lives. School nurses provide support to these children. This pilot study consisted of a Web-based survey completed by 6 school nurses in a…

Tags: 2006, Adult Aged, Attitude Of Health Personnel, Backlog, Bereavement Child Clinical Competence/standards Female Focus Groups Humans Middle Aged Needs Assessment, Journal Article, Journal of School Nursing, Lohan JA, Non-U.S. Gov't School Nursing/education/organization & administration Self EfficacySocial Support Students/psychology/statistics & numerical data Washington Workload, Nurse's Role/psychology Nursing Assessment Nursing Methodology Research Nursing Staff/education/organization & administration/psychology Pilot Projects Questionnaires Research Support, PedPal Lit

Symptoms suffered by life-limited children that cause anxiety to UK children's hospice staff

BACKGROUND: Very little is published about the symptom profile of children with life-limiting illnesses other than cancer. METHOD: A postal questionnaire was sent to children's hospice staff who were asked to identify symptoms experienced by…

New and lingering controversies in pediatric end-of-life care

OBJECTIVES: Professional societies, ethics institutes, and the courts have recommended principles to guide the care of children with life-threatening conditions; however, little is known about the degree to which pediatric care providers are aware of…

Health care transition: youth, family, and provider perspectives

OBJECTIVE: This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care…

Paediatric fever management: continuing education for clinical nurses

PURPOSE: This study examined the influence of level of practice, additional paediatric education and length of paediatric and current experience on nurses' knowledge of and beliefs about fever and fever management. METHOD: Fifty-one nurses from…

Consultation with children in hospital: children, parents' and nurses' perspectives

AIMS AND OBJECTIVES: To explore children's, parents' and nurses' views on participation in care in the healthcare setting. BACKGROUND: Children have a right to be consulted and involved in their care. DESIGN: The grounded theory method was used and…

Emotion work in the palliative nursing care of children and young people

The nurse's role in supporting and caring for children and young people with life-limiting illness/conditions and their families requires specialist expertise. This domain can be one of the most emotionally challenging areas of practice. The concept…

CAMHS liaison: supporting care in general paediatric settings

Increasing numbers of children and young people with mental health problems are being cared for in general paediatric settings, presenting a challenge to nurses who do not have mental health nursing qualification and experience. A survey of nurses in…

Hospital for the children

2006

Tags: 2006, Attitude Of Health Personnel, Backlog, Cancer Care Facilities/organization & administration, Child, England, Hospital Planning/organization & administration, Hospital/organization & administration/psychology, Hospitals, Houlston A, Humans, Journal Article, Nurse's Role, Nursing Staff, Nursing Standard, Oncologic Nursing/organization & administration, Pediatric Nursing/organization & administration, Pediatric/organization & Administration, PedPal Lit

Nurses' attitudes to pain management during routine venepuncture in young children

Venepuncture is one of the most commonly performed clinical procedures carried out on young children. Evidence indicates inconsistency in the use of pain management strategies during these procedures. A survey method was used to explore nurses' views…

Pain in pediatric oncology: do the experiences of children and parents differ from those of nurses and physicians?

Diagnosis and treatment of pain are central components in the care of children with cancer. The aim of the present study was to compare the viewpoints of children and parents with those of professionals, on different aspects of pain in children with…

Simple changes can improve conduct of end-of-life care in the intensive care unit.

PURPOSE: To describe changes to the conduct of withdrawal of life support (WOLS) in two teaching hospital tertiary care medical surgical intensive care units (ICUs) in a single centre over two distinct time periods., METHODS: We used a retrospective…

End-of-life care in the pediatric intensive care unit: research review and recommendations

Improving the quality of end-of-life care has become a national health care priority. A necessary step in this process in the pediatric intensive care unit (ICU) is examining the knowledge, attitudes,and behaviors of pediatric critical care…

The use of methadone for cancer pain

Methadone is not a new analgesic drug [69]. Several studies have demonstrated that methadone is a valid alternative to morphine, hydromorphone, and fentanyl for the treatment of cancer-related pain, and extensive reviews on the subject have been…

Home management of the dying NICU patient

Intensive aggressive medical therapy does not always result in cure. For some neonates it is a futile exercise that may prolong a short life of suffering. In this article, we will discuss the babies for whom aggressive therapy may not be appropriate,…

Issues in end-of-life care: patient, caregiver, and clinician perceptions

CONTEXT: Review of published research indicates the need to better incorporate patient and caregiver perceptions when providing end-of-life (EOL) care. Although considerable research regarding patient and caregiver experience of EOL has been done,…

Oregon physicians' responses to requests for assisted suicide: a qualitative study.

In 1997, the Oregon Death with Dignity Act was enacted, allowing physicians to prescribe lethal dosages of medication to competent, terminally ill patients who request them. To improve our understanding of physicians' reactions to requests for…

Opening the black box: physicians' inner responses to patients' requests for physician-assisted death

2004-06

Tags: 2004, Assisted, Attitude Of Health Personnel, Backlog, Death and Euthanasia, Humans, Journal Article, Journal of Palliative Medicine, Oregon, Physician Assisted Dying PAD, Physicians, Quill TE, Suicide

Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients

OBJECTIVE: The role of family interests in medical decision making is controversial. Physicians who routinely treat incompetent patients may have preferred strategies for addressing family interests as they are encountered in surrogate medical…

Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units

OBJECTIVE: To evaluate the opinions of intensive care unit staff and family members about family participation in decisions about patients in intensive care units in France, a country where the approach of physicians to patients and families has been…

Transition of care: health care professionals' view

There is much anxiety regarding the transfer of adolescents with chronic illness to adult services. Transfer of patients can be haphazard if the transition has not been planned. Problems and obstacles to transition have been identified and discussed…

Differences in understanding of specialist palliative care amongst service providers and commissioners in South London

This paper describes a study that sought to identify service providers' and commissioners' understanding of specialist palliative care within the context of changing service provision in one area of South London. Using a formative evaluation…

Palliative care research protocols: a special case for ethical review?

Between October 2001 and May 2002 the Chairperson and Vice-Chairperson of each Multicentre Research Ethics Committee (MREC) in England, Wales and Scotland took part in a semi-structured interview to ascertain the attitudes of MRECs to palliative care…

Tags: 2003, Ahmedzai SH, Attitude Of Health Personnel, Backlog, Biomedical Research/ethics, Ethics Committees, Humans, Journal Article, Multi-site Ethics, Multicenter Studies as Topic, Palliative Care/ethics, Palliative Medicine, Paz S, Rawson A, Research, Stevens T, Wilde D, Wragg D

Tags: 2002, Adolescent, Adult, Attitude Of Health Personnel, Backlog, Child, Child Health Services/organization & administration/trends, Great Britain, Hospices/organization & administration, Human, Journal Article, Organizational Culture, Palliative Care/organization & administration/trends, Palliative Medicine, Personal Satisfaction, Quality Of Health Care, Sheldon F, Speck P

Browse Items (128 total)