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Text
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<a href="http://doi.org/10.1111/j.1440-1754.2007.01052.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1440-1754.2007.01052.x</a>
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Title
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Spinal muscular atrophy type 1: is long-term mechanical ventilation ethical?
Publisher
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Journal Of Paediatrics And Child Health
Date
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2007
Subject
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Humans; Intensive Care Units; New South Wales; Respiration; Spinal Muscular Atrophies of Childhood; quality of life; Pediatric; ICU Decision Making; Artificial/ethics
Creator
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Ryan MM; Kilham H; Jacobe S; Tobin B; Isaacs D
Description
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We present a baby with spinal muscular atrophy type 1, an inherited disorder causing progressive weakness, leading to complete paralysis of respiratory, facial and limb muscles. Without intervention, death occurs in infancy due to respiratory failure. Mechanical ventilatory support can prolong life, but the child's quality of life is highly debatable. We discuss the appropriateness of initiating and continuing intensive care for this child and others in a similar position.
2007
Identifier
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<a href="http://doi.org/10.1111/j.1440-1754.2007.01052.x" target="_blank" rel="noreferrer">10.1111/j.1440-1754.2007.01052.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2007
Artificial/ethics
Backlog
Humans
ICU Decision Making
Intensive Care Units
Isaacs D
Jacobe S
Journal Article
Journal of Paediatrics and Child Health
Kilham H
New South Wales
Pediatric
Quality Of Life
Respiration
Ryan MM
Spinal Muscular Atrophies of Childhood
Tobin B