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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1046/j.1365-2753.1998.t01-1-00006.x" target="_blank" rel="noreferrer">http://doi.org/10.1046/j.1365-2753.1998.t01-1-00006.x</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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In the queue for total joint replacement: patients' perspectives on waiting times
Publisher
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Journal Of Evaluation In Clinical Practice
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
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Arthroplasty; Hip; Hip Prosthesis; Joint Prosthesis; Knee; Replacement; Time Management; Waiting Lists
Creator
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Llewellyn-Thomas HA; Arshinoff R; Bell M; Williams JI; Naylor CD; the Ontario Hip; Knee Replacement Project Team
Description
An account of the resource
We assessed patients on the waiting lists of a purposive sample of orthopaedic surgeons in Ontario, Canada, to determine patients' attitudes towards time waiting for hip or knee replacement. We focused on 148 patients who did not have a definite operative date, obtaining complete information on 124 (84%). Symptom severity was assessed with the Western Ontario/McMaster Osteoarthritis Index and a disease-specific standard gamble was used to elicit patients' overall utility for their arthritic state. Next, in a trade-off task, patients considered a hypothetical choice between a 1-month wait for a surgeon who could provide a 2% risk of post-operative mortality, or a 6-month wait for joint replacement with a 1% risk of post-operative mortality. Waiting times were then shifted systematically until the patient abandoned his/her initial choice, generating a conditional maximal acceptable wait time. Patients were divided in their attitudes, with 57% initially choosing a 6-month wait with a 1% mortality risk. The overall distribution of conditional maximum acceptable wait time scores ranged from 1 to 26 months, with a median of 7 months. Utility values were independently but weakly associated with patients' tolerance of waiting times (adjusted R-square = 0.059, P=0.004). After splitting the sample along the median into subgroups with a relatively 'low' and 'high' tolerance for waiting, the subgroup with the apparently lower tolerance for waiting reported lower utility scores (z=2.951; P=0.004) and shorter times since their surgeon first advised them of the need for surgery (z=3.014; P=0.003). These results suggest that, in the establishment and monitoring of a queue management system for quality-of-life-enhancing surgery, patients' own perceptions of their overall symptomatic burden and ability to tolerate delayed relief should be considered along with information derived from clinical judgements and pre-weighted health status instruments.
1997
Identifier
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<a href="http://doi.org/10.1046/j.1365-2753.1998.t01-1-00006.x" target="_blank" rel="noreferrer">10.1046/j.1365-2753.1998.t01-1-00006.x</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1997
Arshinoff R
Arthroplasty
Backlog
Bell M
Hip
Hip Prosthesis
Joint Prosthesis
Journal Article
Journal Of Evaluation In Clinical Practice
Knee
Knee Replacement Project Team
Llewellyn-Thomas HA
Naylor CD
Replacement
the Ontario Hip
Time Management
Waiting Lists
Williams JI
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1016/j.parkreldis.2012.06.013" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.parkreldis.2012.06.013</a>
Dublin Core
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Title
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Palliative care for advanced Parkinson disease: An interdisciplinary clinic and new scale, the ESAS-PD
Publisher
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Parkinsonism & Related Disorders
Date
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2012
Creator
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Miyasaki JM; Long J; Mancini D; Moro E; Fox SH; Lang AE; Marras C; Chen R; Strafella A; Arshinoff R; Ghoche R; Hui J
Description
An account of the resource
Palliative care provides a holistic approach to symptom relief using a multidisciplinary team approach to enhance quality of life throughout the entire course of a particular illness. The care team consists of movement disorders neurologist, a palliative care physician, a wound care nurse, a spiritual counselor and a care coordinator. Palliative care concepts were applied to a group of advanced Parkinson disease (PD) patients in a dedicated Palliative Care Clinic. METHODS: A modified Edmonton Symptom Assessment System Scale for PD (ESAS-PD) was developed and applied to 65 PD patients at their initial consultation and following recommended interventions. Scores were compared to those of metastatic cancer patients reported in the palliative care literature. RESULTS: The ESAS-PD scores significantly improved after the interventions (56 and 40 respectively, p = 0.0001). The most improved items were constipation, dysphagia, anxiety, pain and drowsiness. ESAS-PD scores were not significantly different from metastatic cancer patients' ESAS scores. CONCLUSIONS: ESAS-PD is a quick, effective scale for assessment of late stage PD symptoms. Scores are sensitive to intervention, and therefore have potential clinical utility for physicians and other healthcare providers. Advanced PD patients have a similar degree of symptoms as metastatic cancer patients, respond to treatment in a similar way, and therefore should have access to palliative care services.
Identifier
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<a href="http://doi.org/10.1016/j.parkreldis.2012.06.013" target="_blank" rel="noreferrer">10.1016/j.parkreldis.2012.06.013</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Arshinoff R
Backlog
Chen R
Fox SH
Ghoche R
Hui J
Journal Article
Lang AE
Long J
Mancini D
Marras C
Miyasaki JM
Moro E
Parkinsonism & Related Disorders
Strafella A