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40
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1089/jpm.2014.0121" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2014.0121</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Components and Principles of a Pediatric Palliative Care Consultation: Results of a Delphi Study
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
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guideline
Creator
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Bradford NK; Herbert A; Mott C; Armfield N; Young J; Smith A
Description
An account of the resource
Abstract Background: Pediatric palliative care is a distinct specialty that requires input from pediatric and palliative medicine specialists to provide comprehensive high-quality care. Consultations undertaken early in a child's illness trajectory, when end-of-life care is not anticipated to be required, enables relationships to be established and may enhance the quality of care provided. Objective: To define optimal components of an early pediatric palliative care consultation. Design: Consensus of an expert group was sought in a five-round Delphi study. Setting/Participants: Based on the literature and existing standards for specialist palliative care, components of an early pediatric palliative care consultation were derived. In rounds 2 and 3, experts from around Australia participated in online surveys to review and prioritize the components and principles. Consensus of survey items was determined by defined criteria. A flowchart was developed in the fourth round and the final round involved review and refinement of the flowchart by the expert group. Results: Nineteen experts participated and prioritized 34 components and principles in the first survey round, and 36 statements in the second survey round. There was consensus from all participants that the first priority of a consultation was to establish rapport with the family, and examples of how to achieve this were defined. Other components of a consultation included: establishing the family's understanding of palliative care; symptom management; an emergency plan; discussion of choices for location of care, and a management plan. Components considered suitable to defer to later consultations, or appropriate to address if initiated by family members, included: spiritual or religious issues; discussion around resuscitation and life-sustaining therapies; end-of-life care; and the dying process. Conclusion: We have provided the first published framework from expert consensus that defines the components and principles of an early pediatric palliative care consultation. This framework will provide guidance for clinical practice as well as being useful for education and research in this area.
2014-07
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2014.0121" target="_blank" rel="noreferrer">10.1089/jpm.2014.0121</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Armfield N
Backlog
Bradford NK
guideline
Herbert A
Journal Article
Journal of Palliative Medicine
Mott C
Smith A
Young J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1357633X14552370" target="_blank" rel="noreferrer">http://doi.org/10.1177/1357633X14552370</a>
<a href="http://jtt.sagepub.com/content/20/7/360" target="_blank" rel="noreferrer">http://jtt.sagepub.com/content/20/7/360</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Principles of a paediatric palliative care consultation can be achieved with home telemedicine
Publisher
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Journal Of Telemedicine And Telecare
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Creator
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Bradford NK; Armfield N; Young J; Herbert A; Mott C; Smith AC
Description
An account of the resource
We compared the records of paediatric palliative consultations undertaken face-to-face, with telemedicine consultations undertaken in patients’ homes. A convenience sample of consecutive paediatric palliative care patients was identified from the hospital's palliative care database. A total of 100 consultations was reviewed (50 telemedicine consultations during home visits and 50 face-to-face consultations) according to 14 established principles and components of a paediatric palliative care consultation. In the telemedicine group there was a higher proportion of patients in a stable condition (58% vs 7%), and a lower proportion of patients in terminal phase (2% vs 17%). Discussion about pain and anorexia were significantly more common in the telemedicine group. Discussion about follow up was significantly more common in the telemedicine group (86% vs 56%), whilst resuscitation planning was more common in deteriorating patients receiving inpatient care. All other components and principles of a palliative care consultation were documented equally regardless of method of consultation. The findings confirm that palliative consultations via telemedicine are just as effective as face-to-face consultations in terms of the documented components of the consultation.
2014-10
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/1357633X14552370" target="_blank" rel="noreferrer">10.1177/1357633X14552370</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Armfield N
Backlog
Bradford NK
Herbert A
Journal Article
Journal Of Telemedicine And Telecare
Mott C
Smith AC
Young J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1258/1357633042614465" target="_blank" rel="noreferrer">http://doi.org/10.1258/1357633042614465</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Paediatric palliative home care with Internet-based video-phones: lessons learnt
Publisher
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Journal Of Telemedicine And Telecare
Date
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2004
Subject
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Child; Humans; home care services; Internet; Queensland; PPC Book Chapter 2011 (Kim Widger); Palliative Care/organization & administration; Child Health Services/organization & administration; Hospital-Based/organization & administration; Remote Consultation/organization & administration
Creator
An entity primarily responsible for making the resource
Bensink M; Armfield N; Russell TG; Irving H; Wootton R
Description
An account of the resource
We have designed and tested an Internet-based video-phone suitable for use in the homes of families in need of paediatric palliative care services. The equipment uses an ordinary telephone line and includes a PC, Web camera and modem housed in a custom-made box. In initial field testing, six clinical consultations were conducted in a one-month trial of the videophone with a family in receipt of palliative care services who were living in the outer suburbs of Brisbane. Problems with variability in call quality--namely audio and video freezing, and audio break-up--prompted further laboratory testing. We completed a programme of over 250 test calls. Fixing modem connection parameters to use the V.34 modulation protocol at a set bandwidth of 24 kbit/s improved connection stability and the reliability of the video-phone. In subsequent field testing 47 of 50 calls (94%) connected without problems. The freezes that did occur were brief (with greatly reduced packet loss) and had little effect on the ability to communicate, unlike the problems arising in the home testing. The low-bandwidth Internet-based video-phone we have developed provides a feasible means of doing telemedicine in the home.
2004
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1258/1357633042614465" target="_blank" rel="noreferrer">10.1258/1357633042614465</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2004
Armfield N
Backlog
Bensink M
Child
Child Health Services/organization & administration
home care services
Hospital-Based/organization & administration
Humans
Internet
Irving H
Journal Article
Journal Of Telemedicine And Telecare
Palliative Care/organization & Administration
PPC Book Chapter 2011 (Kim Widger)
Queensland
Remote Consultation/organization & administration
Russell TG
Wootton R