1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2016 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Children’s Palliative Care Now! Highlights From The Second Icpcn Conference On Children’s Palliative Care, 18–21 May 2016, Buenos Aires, Argentina
Publisher
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Ecancermedicalscience
Date
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2016
Subject
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Palliative Care; Children; International; Commitment; Integration; Education; Research; Argentina; Wha Resolution
Creator
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Downing J; R Kiman; S Boucher; B Nkosi; B Steel; C Marston; E Lascar; Marston J
Description
An account of the resource
The International Children’s Palliative Care Network held its second international conference on children’s palliative care in Buenos Aires, Argentina, from the 18th–21st May 2016. The theme of the conference was ‘Children’s Palliative Care…. Now!’ emphasising the need for palliative care for children now, as the future will be too late for many of them. Six pre-conference workshops were held, addressing issues connected to pain assessment and management, adolescent palliative care, ethics and decision-making, developing programmes, the basics of children’s palliative care, and hidden aspects of children’s palliative care. The conference brought together 410 participants from 40 countries. Plenary, concurrent, and poster presentations covered issues around the status of children’s palliative care, genetics, perinatal and neonatal palliative care, the impact of children’s palliative care and the experiences of parents and volunteers, palliative care as a human right, education in children’s palliative care, managing complex pain in children, spiritual care and when to initiate palliative care. The ‘Big Debate’ explored issues around decision-making and end of life care in children, and gave participants the opportunity to explore a sensitive and thought provoking topic. At the end of the conference, delegates were urged to sign the Commitment of Buenos Aires which called for governments to implement the WHA resolution and ensure access to palliative care for neonates, children and their families, and also commits us as palliative care providers to share all that we can and collaborate with each other to achieve the global vision of palliative care for all children who need it. The conference highlighted the ongoing issues in children’s palliative care and participants were continually challenged to ensure that children can access palliative care NOW.
Identifier
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doi: 10.3332/ecancer.2016.667
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Argentina
B Nkosi
B Steel
C Marston
Children
Commitment
Downing J
E Lascar
Ecancermedicalscience
Education
Integration
International
Marston J
October 2016 List
Palliative Care
R Kiman
Research
S Boucher
Wha Resolution
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12968/ijpn.2014.20.3.143" target="_blank" rel="noreferrer">http://doi.org/10.12968/ijpn.2014.20.3.143</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Perinatal palliative care: a developing specialty
Publisher
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International Journal Of Palliative Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2014
Subject
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Humans; infant; Palliative Care; decision making; Organizational Case Studies; Perinatology; Specialization; Argentina; Palliative Care; Newborn
Creator
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Kiman R; Doumic L
Description
An account of the resource
Neonates and babies have the highest death rate in the paediatric population. Perinatal palliative care aims to enhance the quality of life of babies with a life-limiting condition and their families. However, very little data is available on perinatal palliative care and its impact on babies and families along their journey. End-of-life decision-making for babies with an adverse prognosis also remains ethically challenging. This paper provides an overview of perinatal palliative care and its development, and then considers some of the issues affecting this field by looking at single national, institutional, and patient case studies.
2014-03
Identifier
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<a href="http://doi.org/10.12968/ijpn.2014.20.3.143" target="_blank" rel="noreferrer">10.12968/ijpn.2014.20.3.143</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2014
Argentina
Backlog
Decision Making
Doumic L
Humans
Infant
International Journal of Palliative Nursing
Journal Article
Kiman R
Newborn
Organizational Case Studies
Palliative Care
perinatology
Specialization
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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March 2018 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
March 2018 List
URL Address
<a href="http://doi.org/10.5546/aap.2016.298" target="_blank" rel="noreferrer">http://doi.org/10.5546/aap.2016.298</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Opinions of members of the National Civil (Family Proceedings) and Criminal Courts in withholding or withdrawing of life support situations in pediatrics
Publisher
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Archivos Argentinos De Pediatria
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
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Attitude to Death; Argentina; Child; Cross-Sectional Studies; decision-making; ethics; Health Care Surveys; Humans; legislation and jurisprudence; Life Support Care/ legislation & jurisprudence; Pediatric intensive care unit; Pediatrics/ legislation & jurisprudence; Withholding Treatment; Withholding Treatment/ legislation & jurisprudence
Creator
An entity primarily responsible for making the resource
Selandari JO; Ciruzzi MS; Roitman AJ; Ledesma F; Menendez C; Garcia HO
Description
An account of the resource
INTRODUCTION: The possibility of sustaining life functions makes it difficult to distinguish between a dying patient and a patient with chances of survival, raising a dilemma for everyone around them. On the one side, continuing with life support techniques that would only extend an irreversible process and result in physical and psychological damage and harm their dignity. On the other side, withholding or withdrawing life support without an adequate reflection and diagnostic-therapeutic effort which may lead to the death of a potentially recoverable child. In addition, making decisions in this context implies facing barriers that hinder the possibility of pursuing the patient's best interest. Among such barriers, the fear of litigation plays a major role. To what extent is this fear justified? OBJECTIVE: To explore the opinions of the members of the National Judiciary regarding the approach to withholding or withdrawing of life support from a legal stance. POPULATION AND METHODS: Professionals working in the criminal, civil and forensic medicine settings. Semistructured survey on three hypothetical case histories that implied making a decision to withhold or withdraw life support. RESULTS: One hundred and eighty-five surveys were distributed; 68 (36.76%) were partially completed and 51 (30.3%), in full. Twenty-eight (55%) survey respondents did not criminalize any of the three cases presented. Thirteen (25%) respondents considered that the decisions made in the three cases constituted a crime; 6 (12%), only in one case; and 4 (8%), in two out of the three. Crimes described by survey respondents included intentional homicide, wrongful death, and failure to render assistance. CONCLUSIONS: Forty-five percent of survey respondents considered that decisions made involved some form of crime.
2016-08
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.5546/aap.2016.298" target="_blank" rel="noreferrer">10.5546/aap.2016.298</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Archivos Argentinos De Pediatria
Argentina
Attitude To Death
Child
Ciruzzi MS
Cross-sectional Studies
Decision-making
Ethics
Garcia HO
Health Care Surveys
Humans
Ledesma F
Legislation And Jurisprudence
Life Support Care/ legislation & jurisprudence
March 2018 List
Menendez C
Pediatric Intensive Care Unit
Pediatrics/ legislation & jurisprudence
Roitman AJ
Selandari JO
Withholding Treatment
Withholding Treatment/ legislation & jurisprudence