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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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2018 Oncology List
Text
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Citation List Month
Oncology 2018 List
URL Address
<a href="http://doi.org/10.1097/01.ccm.0000528879.00148.5a" target="_blank" rel="noreferrer noopener">http://doi.o
rg/10.1097/01.ccm.0000528879.00148.5a</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Social worker and chaplain activities with parents of critically ill children with cancer
Publisher
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Critical Care Medicine
Date
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2018
Subject
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pediatric intensive care unit; content analysis; mortality; cancer patient; clergy; critically ill patient; social worker; human; child; female; male; interview; clinical article; palliative therapy; statistics; self care; audio recording; cancer stem cell; human cell
Creator
An entity primarily responsible for making the resource
Lentini N; Martinez E; Arenson M; Heap N; Michelson K
Description
An account of the resource
Learning Objectives: Social workers (SWs) and chaplains (Cs) support families of PICU cancer patients. Few data describe the activities and impact of SWs and Cs (SWs/Cs) in the PICU. This study examined the activities of SWs/Cs caring for PICU cancer or stem cell transplant (hereafter 'cancer') patients, and parents' report about their experiences with SWs/Cs. Methods: Parents of complicated PICU cancer patients (expected PICU stay > 72hours, palliative care involvement, a previous PICU admission, or a pediatric index of mortality score >=4) completed a survey at PICU admission and discharge. SWs/Cs caring for these families were invited to participate by audio recording information about their family encounters (who was present, the kinds of supports provided, and the discussion topics) and/or completing an audio recorded interview after the patient's PICU discharge. Descriptive statistics were used to analyze survey data. Recordings were analyzed using content analysis. Results: 24 parents of 18 patients provided complete survey data. Of the 67% (16/24) of parents who indicated they had met with a SW, 94% (15/16) described the SW as helpful and 81% (13/15) would ask to speak with a SW again. Of the 75% (18/24) of parents who indicated they had met with a C, 72% (13/18) described the C as helpful and 94% (17/18) would ask to speak with a C again. 3 SWs of 7 patients and 2 chaplains of 13 patients were interviewed. 3 SWs and 3 Cs submitted recordings about 34 encounters with families of 9 patients. Categories of activities included: assessing parent needs and wishes; providing emotional support; providing faith-based support; providing logistical support (e.g. obtaining meal tickets or parking passes); supporting parent self-care; and supporting parent communication with the healthcare team. Conclusions: Most parents reported positive experiences with SWs/Cs. Not all parents met with a SW or C during their child's PICU admission. SWs/Cs provided emotional, spiritual, practical, and communication support in the PICU. Future work will identify barriers and facilitators to efforts by SWs/Cs caring for PICU cancer patients and examine the impact of SW/C care on parent and patient outcomes.
Identifier
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<a href="http://doi.org/%2010.1097/01.ccm.0000528879.00148.5a" target="_blank" rel="noreferrer noopener">10.1097/01.ccm.0000528879.00148.5a</a>
2018
Arenson M
audio recording
Cancer Patient
cancer stem cell
Child
Clergy
Clinical Article
Content Analysis
Critical Care Medicine
Critically Ill Patient
Female
Heap N
Human
human cell
Interview
Lentini N
Male
Martinez E
Michelson K
Mortality
Oncology 2018 List
Palliative Therapy
Pediatric Intensive Care Unit
Self Care
Social Worker
Statistics