Browse Items (134 total)
- Tags: Archives of Disease in Childhood
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
When paediatricians and families can't agree
What parents want from doctors in end-of-life decision-making for children
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Tags: 2023, Adolescent, Archives of Disease in Childhood, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Conversation, Coombes L, developmental stage, Female, Fraser L, genetic transcription, Harding R, Haroardottir D, Hospital Patient, Human, Male, Malignant Neoplasm, Nervous System, October List 2029, Only Child, Outpatient, Preschool Child, Scott HM, Semi Structured Interview, Social Care
Use of formal advance care planning documents: a national survey of UK Paediatric Intensive Care Units
Use Of Buccal Fentanyl As A Breakthrough Opioid For Symptom Management In Patients Receiving Palliative Care
Tags: 2023, absence of side effects, Adolescent, Archives of Disease in Childhood, Box D, buccal drug administration, Case Study, Child, Clinical Article, conference abstract, drug megadose, Drug Therapy, Dyspnea, Female, Fentanyl, Hain R, Hills M, Hospice, Human, Male, maximum permissible dose, mouth cavity, Neurologic Disease, October List 2032, Opiate, Pain, Palliative Care, Palliative Therapy, Retrospective Study, Taylor N, Woods S
Update on the management of Duchenne muscular dystrophy
Tags: 2008, Archives of Disease in Childhood, Backlog, Cardiomyopathy, Dilated/etiology/therapy, Duchenne/complications/diagnosis/genetics/therapy, Dystrophin/genetics, Gene Therapy/methods, Glucocorticoids/therapeutic use, Humans, Journal Article, Kinali M, Male, Manzur AY, Muntoni F, Muscular Dystrophy, Patient Care Team, Physical Therapy Modalities, Respiration Disorders/etiology/therapy, Scoliosis/etiology/therapy
Transition to adult services for children and young people with palliative care needs: a systematic review
Tags: 2011, Adi Y, Adolescent, Adolescent Health Services/organization & administration, Archives of Disease in Childhood, Backlog, Carter YH, Continuity Of Patient Care/organization & Administration, Delivery of Health Care/organization & administration, Doug M, Evidence-Based Medicine/methods, Health Services Research/methods/standards, Humans, Journal Article, Kelly D, Models, Organizational, Palliative Care/organization & Administration, Paul M, Petchey R, Williams J, Young Adult
Transition of care from paediatric to adult services: one part of improved health services for adolescents
Tags: 2008, Adolescent, Adolescent Health Services/standards, Adolescent Transitions, Archives of Disease in Childhood, Backlog, Continuity of Patient Care/standards, Delivery of Health Care/standards, Great Britain, Humans, Journal Article, Quality Of Health Care, State Medicine/standards, Viner RM
Transition of care from paediatric to adult services in cardiology
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Archives of Disease in Childhood, Backlog, Cardiology/organization & administration, Child, Congenital/psychology/therapy, Continuity of Patient Care/standards, Delivery of Health Care/ethics/standards, Female, Heart Defects, Hudsmith LE, Humans, Journal Article, Male, Pediatrics, Thorne SA
Trainee Experience And Understanding In Paediatric Palliative Care
The Spectrum Of Children’s Palliative Care Needs – A Useful Tool?
The Importance Of Early Involvement Of Paediatric Palliative Care For Patients With Severe Congenital Heart Disease.
The experiences, attitudes and practices of nurses working in a paediatric intensive care unit caring for babies and children at the end of life: A qualitative study
Tags: 2018, Archives of Disease in Childhood, Brierley J, Child, Clinical Article, conference abstract, Documentation, Du Pre P, Female, genetic transcription, Hospice, Human, Human Experiment, Infant, June 2018 List, Koffman J, Male, Nurse, Pediatric Intensive Care Unit, Personal Experience, Qualitative Research, Sampling, Scientist, Semi Structured Interview, Terminal Care, Uncertainty
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
The agony of the child with complexity: Exploring the psychological impact on parents caring for children with complex healthcare needs
Tags: 2019, Archives of Disease in Childhood, Bradbury M, Caregiver, Child, conference abstract, Crothers E, Depression, disease exacerbation, Female, health care need, Human, Ireland, Lewis S, Male, medical leave, Medline, Mental Stress, meta analysis, Murphy A M, North America, O'Gorman C, October 2019 List, Parental Stress, Prevention, Psychological Well-being, publication, Qualitative Research, Sample Size, Social Isolation, Social Support, Systematic Review
Talking to parents about their preferences for their child's place of death: A prospective study
Tags: 2018, achievement, Advanced Cancer, Al-Khabbaz E, Archives of Disease in Childhood, Bluebond-Langner M, Case Study, Child, Clinician, conference abstract, Craig F, Death, Dinsdale A, Female, government, Hematologic Malignancy, Henderson E, Hospice, Human, Langner R, Major Clinical Study, March 2019 List, Multidisciplinary team, outcome assessment, Palliative Therapy, Patient Care, Peake J, Prospective Study, social aspect, solid malignant neoplasm
Surgical Intervention In Trisomy 18-supporting Pallative Care
Tags: 2017, Archives of Disease in Childhood, Birth Weight, Clinical Article, Cragie R, Diagnosis, Edi-Osagie N, Female, Gastrointestinal Symptom, Heart, Hospital, Human, Infant, Intestine Obstruction, Male, Masood Y, Meningomyelocele, Palliative Therapy, Pathology, Pregnancy, Prognosis, September 2017 List, Spiers H, Surgery, Tracheoesophageal Fistula, Trisomy 18
Sublingual lorazepam at home for acute treatment of seizures
Specifying Eligibility Criteria In The Referral Process Reduces Delay In Decision Making And Access To Services In A Children's Hospice
Specialist Paediatric Palliative Care Services: What Are The Benefits?
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Behavior Therapy, Benzodiazepines, characteristics, Child, Child Preschool, Delatycki M B, Fraser J, Gason A A, Humans, Incidence, Infant, Infant Newborn, melatonin, Melatonin/therapeutic use, MPS III, Mucopolysaccharidosis III/psychology, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, sleep disturbance/disorders, Trajectory, Treatment Outcome, Wraith J E
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
Research priorities for childhood chronic conditions: a workshop report
Tags: 2018, Alexander SI, Archives of Disease in Childhood, Caldwell PHY, Campbell DE, childhood chronic conditions, Couper J, Craig JC, Crowe S, Davidson A, De S, Fitzgerald DA, Haddad S, Hill S, Howell M, Jaffe A, James LJ, Ju A, Lopez-Vargas P, Manera KE, McKenzie A, Morrow AM, November 2018 List, Odgers HL, Pinkerton R, priority setting partnerships, Qualitative Research, Ralph AF, Richmond P, Shaw PJ, Singh-Grewal D, Tong A, van Zwieten A, Wake M
Rapid response physiotherapy service in patients with life limiting conditions
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Child, Clinical Article, conference abstract, Controlled Study, Female, Griffin H, Hospital Admission, hospital bed, Hospitalization, Human, lower respiratory tract infection, Male, Michael A, Milner S, physiotherapist, Physiotherapy, Quality Of Life, Risk Assessment, Sample Size
Rapid painless diagnosis of viral respiratory infection
Tags: 2002, Adolescent, Archives of Disease in Childhood, Backlog, Carson S, Child, Fluorescence/methods/standards, Fluorescent Antibody Technique/methods/standards, Humans, Infant, Ipp M, Journal Article, Microscopy, Nasopharynx/virology, Newborn, Non-U.S. Gov't, Pain Measurement, Pain/prevention & control, Parkin PC, Petric M, Preschool, Research Support, Respiratory Tract Infections/diagnosis/virology, Sensitivity and Specificity, Virus Diseases/diagnosis/virology
Quality of life in chronic illness: perceptions of parents and paediatricians
Tags: 2005, Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/, Adolescent Arthritis, Archives of Disease in Childhood, at baseline and follow up, Backlog, but also after a period of follow up, differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease, especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED), Gemke RJ, Janse AJ, Journal Article, juvenile idiopathic arthritis, Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child, Kimpen JL, Lymphocytic, not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups, Pediatrics Perception Pneumonia/complications, PedPal Lit, Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia, Psychology, Quality Of Life, quality of life of paediatric patients may be misunderstood by healthcare professionals, Sinnema G, the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship, Uiterwaal CS
PS-229 Factors Influencing Uptake Of Neonatal Bereavement Support Services – A Comparison Of Two Tertiary Neonatal Centres In The Uk
PS-228 The Babies Who Unexpectedly Survive Long-term After Withdrawal Of Neonatal Intensive Care
Providing cost-effective and coordinated care for children with medical complexity
Tags: 2019, administrative personnel, Adolescent, Archives of Disease in Childhood, Artificial Ventilation, Caregiver, Cerebral Palsy, Child, Chow C, conference abstract, Congenital Heart Disease, Controlled Study, Diagnosis, Fatigue, Female, Gastrostomy, Home Care, Human, limited mobility, machine, Major Clinical Study, Male, Medical Technology, Multicenter Study, Multidisciplinary team, Neuromuscular Disease, Nurse, October 2019 List, Outpatient, Pediatrician, salary, Shahdadpuri R, Stress, Tracheostomy, ventilator, working time
Problematic Symptoms In Children Attending For Short Breaks At A Children's Hospice; Are We Missing An Opportunity For Symptom Assessment And Management?
Tags: 2017, Archives of Disease in Childhood, Balfe J M, Booth A, Child, Clinical Article, Clinical Nurse Specialist, Diagnosis, Family Study, Female, Health Care Delivery, Hospice, Human, Information Processing, Irritability, Male, Nursing, Pain Assessment, Pediatrician, Ritchie B, School Child, Seizure, September 2017 List, Sleep, Symptom Assessment