Browse Items (134 total)
- Tags: Archives of Disease in Childhood
Sleep disturbance in Sanfilippo syndrome: a parental questionnaire study
Tags: 2005, Adolescent, Adult, Age of Onset, Archives of Disease in Childhood, Backlog, Behavior Therapy, Child, Delatycki MB, Fraser J, Gason AA, Humans, Incidence, Infant, Journal Article, Melatonin/therapeutic use, Mucopolysaccharidosis III/psychology, Newborn, Preschool, Q3 Scoping Review Results, Questionnaires, Sleep Disorders/epidemiology/etiology/therapy, Treatment Outcome, Wraith JE
External second opinions: building trust between health professionals and families
Advanced care planning in children with life-limiting conditions – the Wishes Document
Tags: 2010, Adolescent, Advance Directives, Archives of Disease in Childhood, Backlog, Berringer AJ, Child, DNAR, Finlay F, Fraser J, Great Britain, Harris N, Health Policy, Humans, Infant, Journal Article, Patient Care Planning/og [Organization & Administration], Preschool, Prescott H, Prognosis, Terminal Care/og [organization & Administration], Young Adult
Place of death and palliative care following discharge from paediatric intensive care units
Tags: 2011, Adolescent, Archives of Disease in Childhood, Backlog, Child, Child Mortality, Cohort Studies, Draper ES, Female, Fraser LK, Great Britain/epidemiology, Home Care Services/statistics & Numerical Data, Hospice Care/statistics & Numerical Data, Hospitalization/statistics & numerical data, Humans, Infant, Intensive Care Units, Journal Article, Location Of Death, Male, McKinney PA, Miller M, Newborn, Paediatric Intensive Care Audit Network, Palliative Care/statistics & Numerical Data, Parslow RC, Patient Discharge/statistics & Numerical Data, Pediatric/statistics & Numerical Data, Preschool, Referral And Consultation/statistics & Numerical Data
Health of mothers of children with a life-limiting condition: A comparative cohort study
Children With Life-limiting Conditions In Paediatric Intensive Care Units: A National Cohort, Data Linkage Study
G485 Emergency Care Planning – Are We Discussing It, Are We Recording It, And Are We Acting On It? An Audit Of Ecp Implementation In Children With Life Limiting Conditions
The aim was to assess compliance…
"We want everything done"
Identifying futility in a paediatric critical care setting: a prospective observational study
Tags: 2001, Archives of Disease in Childhood, Backlog, Child, Cost Control, Critical Illness/classification, Death and Euthanasia, Empirical Approach, Euthanasia, Female, Goh AY, Health Care and Public Health, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, London, Male, Medical Futility, Mok Q, Passive/statistics & numerical data, Patient Admission/statistics & numerical data, Pediatric/organization & Administration, Preschool, Prognosis, Prospective Studies, Quality Of Life, Severity Of Illness Index, Teaching
O-040 End-of-life Decision Making – Paediatric Intensivists’ And Nonintensivist Paediatricians’ Attitudes
The Spectrum Of Children’s Palliative Care Needs – A Useful Tool?
Paediatric palliative medicine in the UK: past, present, future
Euthanasia: 10 myths
Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020
Tags: 2023, Archives of Disease in Childhood, Article, Battersby C, England, Female, Harnden F, Human, Infant, Infant Newborn, Lanoue J, long term survival, Major Clinical Study, Male, May List 2023, Modi N, Morbidity, Neonatology, Newborn, Newborn Care, Palliative Care, Palliative Therapy, Perinatal Care, Uthaya SN, Wales
Families' Priorities In Life-limiting Illness: Improving Quality With Online Empowerment
Improving quality of life (QOL) is the central focus of palliative care support for children with life-limiting illness (LLI), but achieving this can be challenging.
INTERVENTION:
MyQuality is an online tool that enables families to choose…
Tags: 2016, Adolescent, Archives of Disease in Childhood, Beringer A, Child, Child Preschool, Disabled Children/psychology, Family, Female, Fletcher M, Harris N, Hospice, Humans, Infant, Internet, July 2016 List, Longitudinal Studies, Male, Outcome, Palliative Care, Parents, Parents/psychology, Power (psychology), Quality Of Life, Quality Of Life/psychology, Social Support, Surveys And Questionnaires, United Kingdom, Young Adult
Where children die: A retrospective analysis of child death overview panel (CDOP) data
Tags: 2019, anonymised data, Archives of Disease in Childhood, Asian, August 2019 List, British citizen, Cancer Diagnosis, Cause Of Death, Child, Child Death, Chromosome Aberration, Clarkson L, conference abstract, Congenital Malformation, Controlled Study, Data Analysis Software, Ethnic Group, Ethnicity, Female, Gender, Hartley D, Hospice, Human, Lyles L, Major Clinical Study, Male, Mayer A, McKeating C, Mortality Rate, Newborn, Palliative Therapy, Renton K, Retrospective Study, strategic planning, Terminal Care
The chameleon project: A children's end of life care quality improvement project: Preliminary results
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Bereavement, Brown J, Child, Child Death, conference abstract, Connolly A, Controlled Study, Cost Control, Documentation, Dorsett C, England, Griffin H, Haynes S, Hospital Admission, Human, Kelly N, Newborn, Palliative Therapy, Pediatric Intensive Care Unit, preliminary data, Questionnaire, Teaching, Terminal Care, Total Quality Management, Turnbull J, Wolff A
Neonatal Deaths: Prospective Exploration Of The Causes And Process Of End-of- Life Decisions.
To determine the causes and process of death in neonates in Canada.
DESIGN:
Prospective observational study.
SETTING:
Nineteen tertiary level neonatal units in Canada.
PARTICIPANTS:
942 neonatal deaths (215 full-term and 727…
Tags: 2016, Andrews W, Archives of Disease in Childhood, Asphyxia Neonatorum/mortality, Canada/epidemiology, Cause Of Death, Chromosome Aberrations, Clinical Decision-making, Congenital Abnormalities/mortality, Ethics, Hellmann J, Humans, Hypoxia-ischemia Brain/mortality, Infant Extremely Premature, Infant Newborn, Infant Premature, Intensive Care Units Neonatal, Intracranial Hemorrhages/mortality, Knighton R, Lee SK, Lung Diseases/mortality, March 2016 List, Mortality, Neonatology, Palliative Care, Patient Care Team, Payot A, Practice Patterns Physicians'/statistics & Numerical Data, Prospective Studies, Shah P, Term Birth, Withholding Treatment/statistics & Numerical Data
Talking to parents about their preferences for their child's place of death: A prospective study
Tags: 2018, achievement, Advanced Cancer, Al-Khabbaz E, Archives of Disease in Childhood, Bluebond-Langner M, Case Study, Child, Clinician, conference abstract, Craig F, Death, Dinsdale A, Female, government, Hematologic Malignancy, Henderson E, Hospice, Human, Langner R, Major Clinical Study, March 2019 List, Multidisciplinary team, outcome assessment, Palliative Therapy, Patient Care, Peake J, Prospective Study, social aspect, solid malignant neoplasm
How Do Neonatal Units Support Siblings Following Loss?-a National Survey
Tags: 2017, Archives of Disease in Childhood, Bereavement Support, Counselor, Doctor Patient Relation, England, Henderson R, Hospice, Human, Human Experiment, Minchella S, Model, Neonatal Intensive Care Unit, Newborn, Newborn Death, Nurse, Psychologist, September 2017 List, Sibling, Social Welfare, Terminal Care, Vasudevan C
Cystic fibrosis and the transition to adult health services
Tags: 2008, Adolescent, Adolescent Transitions, Adult, Archives of Disease in Childhood, Backlog, Child, Child Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Cystic Fibrosis/complications/economics/mortality/therapy, Delivery of Health Care/organization & administration, Female, Great Britain/epidemiology, Health Care Costs/statistics & numerical data, Hewer SC, Humans, Journal Article, Male, State Medicine/economics, Tyrrell J
An Evaluation Of Non-medical Prescribing In A Children’s Hospice Service
Background Extensive changes to legislation in the last 15 years have led to a rapid expansion of the role of non-medical prescribers (NMPs). There appears to be a paucity of information evaluating the role that NMPs can play in paediatric…
Paediatric Palliative Care: Is It All About Communication? – Quality Improvement Project To Assess And Address Background Knowledge And Training Needs Of A Department
Problem Across the general paediatric team,…
Children And Young Person Advanced Care Plans In District General Hospitals-who Gets Them?
Impact of child death on paediatric trainees
Tags: 2018, Acute/ epidemiology, Adult, Archives of Disease in Childhood, Attitude To Death, Child, Death, February 2018 List, Female, Finn GM, Griksaitis MJ, Hollingsworth CE, Huckridge J, Humans, Intensive Care, Internship And Residency, Male, Middle Aged, Occupational Health, Only Child, Palliative Care, Pediatrics, Physicians/ psychology, Post-traumatic, Post-Traumatic/ epidemiology, Prevalence, Psychology, Stress Disorders, Surveys And Questionnaires, Traumatic, United Kingdom, Wesley C
Advance Care Planning: practicalities, legalities, complexities and controversies
End of life care in children with neurodisability and concurrent palliative care needs: An audit of local Paediatric palliative services
Tags: 2019, Archives of Disease in Childhood, August 2019 List, Awareness, Canavan disease, Cerebral Palsy, Child, Clinical Article, conference abstract, Decision Making, disorders of mitochondrial functions, Documentation, Female, Hqli F, Human, Male, Medical Specialist, Monitoring, Nutrition, Pain, Palliative Therapy, Rett syndrome, Santhanam G, School Child, secondary health care, Seizure, Social Care, Spinal Muscular Atrophy, Terminal Care
Transition of care from paediatric to adult services in cardiology
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Archives of Disease in Childhood, Backlog, Cardiology/organization & administration, Child, Congenital/psychology/therapy, Continuity of Patient Care/standards, Delivery of Health Care/ethics/standards, Female, Heart Defects, Hudsmith LE, Humans, Journal Article, Male, Pediatrics, Thorne SA
Specifying Eligibility Criteria In The Referral Process Reduces Delay In Decision Making And Access To Services In A Children's Hospice
Effect of severity of disability on survival in north east England cerebral palsy cohort
Tags: 2000, Archives of Disease in Childhood, Backlog, Birth Weight, Cause Of Death, Cerebral Palsy/mortality, Cohort Studies, Colver AF, Disability Evaluation, England/epidemiology, Female, Human, Hutton JL, Infant, Journal Article, Life Expectancy, Life Style, Mackie PC, Male, Newborn, Non-U.S. Gov't, Prognosis, Risk Factors, Sex Distribution, Support, Survival Rate
Rapid painless diagnosis of viral respiratory infection
Tags: 2002, Adolescent, Archives of Disease in Childhood, Backlog, Carson S, Child, Fluorescence/methods/standards, Fluorescent Antibody Technique/methods/standards, Humans, Infant, Ipp M, Journal Article, Microscopy, Nasopharynx/virology, Newborn, Non-U.S. Gov't, Pain Measurement, Pain/prevention & control, Parkin PC, Petric M, Preschool, Research Support, Respiratory Tract Infections/diagnosis/virology, Sensitivity and Specificity, Virus Diseases/diagnosis/virology
Quality of life in chronic illness: perceptions of parents and paediatricians
Tags: 2005, Acute/psychology/rehabilitation Longitudinal Studies Pain Measurement Parents/, Adolescent Arthritis, Archives of Disease in Childhood, at baseline and follow up, Backlog, but also after a period of follow up, differences at follow up did not decrease compared to baseline. CONCLUSION: At the onset of a chronic disease, especially in the subjective attributes. Systematic assessment of quality of life may contribute to better understanding between(TRUNCATED), Gemke RJ, Janse AJ, Journal Article, juvenile idiopathic arthritis, Juvenile Rheumatoid/psychology/rehabilitation Asthma/psychology/rehabilitationAttitude of Health Personnel Child Child, Kimpen JL, Lymphocytic, not only at diagnosis but also after a period of follow up. Differences were particularly clear in the subjective attributes emotion (range of agreement 28-68%) and pain/discomfort (range of agreement 11-33%). In all patient groups, Pediatrics Perception Pneumonia/complications, PedPal Lit, Preschool Chronic Disease/psychology/rehabilitation Cystic Fibrosis/complications/psychology/rehabilitation Emotions Health Status Humans Infant Leukemia, Psychology, Quality Of Life, quality of life of paediatric patients may be misunderstood by healthcare professionals, Sinnema G, the paediatrician asse ssed the patient to have less pain/discomfort in comparison to the parents. Despite a prolonged patient- paediatrician relationship, Uiterwaal CS
PS-228 The Babies Who Unexpectedly Survive Long-term After Withdrawal Of Neonatal Intensive Care
Characterisation of breathing and associated central autonomic dysfunction in the Rett disorder
Tags: 2001, abnormal respiratory rhythm, Al-Rawas S, angiotensin-ii, Apartopoulos F, Archives of Disease in Childhood, autonomic system, brain stem, breathing difficulties, characteristics, component, Dysautonomia, Engerstrom I W, Engerstrom L, Hansen S, hyperventilation, immaturity, Jamal G A, Julu P O O, Kerr A M, Neurons, nucleus-tractus-solitarii, Pediatrics, protein-2, real-time, reflexes, Rett disorder, Rett syndrome, Trajectory, vagal tone
Congenital disorder of glycosylation type Ia (CDG-Ia): phenotypic spectrum of the R141H/F119L genotype
Tags: 2001, Adolescent, Adult, Archives of Disease in Childhood, Ataxia/genetics/metabolism, Atrophy/genetics/metabolism, Backlog, Carbohydrate-Deficient Glycoprotein Syndrome/genetics/metabolism, Cephalometry, Cerebellum/pathology, Child, Developmental Disabilities/genetics/metabolism, Facies, Failure to Thrive/genetics/metabolism, Female, Genotype, Glycosylation, Growth Disorders/genetics/metabolism, Humans, Infant, Journal Article, Kjaergaard S, Liver Function Tests, Male, Newborn, Phenotype, Preschool, Prognosis, Q3 Scoping Review Results, Schwartz M, Seizures/genetics/metabolism, Skovby F
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Individualised advance care planning in children with life-limiting conditions
Tags: 2018, Advance Care Planning/og [Organization & Administration], Advance Care Planning/st [Standards], April 2019 List, Archives of Disease in Childhood, Attitude To Health, Child, Child Health Services/og [organization & Administration], Child Health Services/st [Standards], de Kruiff CC, Evidence-Based Medicine/mt [Methods], Female, Humans, Kremer L C M, Loeffen EAH, Male, Netherlands, Palliative Care/og [Organization & Administration], Palliative Care/px [psychology], Palliative Care/st [standards], Parents/px [psychology], Patient Satisfaction/sn [Statistics & Numerical Data], Pediatric Palliative Care-Individualized Care Plan Working Group, Pilot Projects, Practice Guidelines As Topic, Quality Of Health Care, Schuiling-Otten MA, Tissing WJE, Verhagen AA
Research priorities for childhood chronic conditions: a workshop report
Tags: 2018, Alexander SI, Archives of Disease in Childhood, Caldwell PHY, Campbell DE, childhood chronic conditions, Couper J, Craig JC, Crowe S, Davidson A, De S, Fitzgerald DA, Haddad S, Hill S, Howell M, Jaffe A, James LJ, Ju A, Lopez-Vargas P, Manera KE, McKenzie A, Morrow AM, November 2018 List, Odgers HL, Pinkerton R, priority setting partnerships, Qualitative Research, Ralph AF, Richmond P, Shaw PJ, Singh-Grewal D, Tong A, van Zwieten A, Wake M