1
40
35
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.161.10.933" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.161.10.933</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Family-Centered, Community-Based System of Services for Children and Youth With Special Health Care Needs
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Miller 2009 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Perrin JM; Romm D; Bloom SR; Homer CJ; Kuhlthau KA; Cooley C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.161.10.933" target="_blank" rel="noreferrer">10.1001/archpedi.161.10.933</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bloom SR
Cooley C
Homer CJ
Journal Article
Kuhlthau KA
Miller 2009 BMC HSR Refs
Perrin JM
Romm D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.161.10.937" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.161.10.937</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Gordon JB; Colby HH; Bartelt T; Jablonski D; Krauthoefer ML; Havens P
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.161.10.937" target="_blank" rel="noreferrer">10.1001/archpedi.161.10.937</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bartelt T
Cohen 2006 BMC HSR Refs
Colby HH
Gordon JB
Havens P
Jablonski D
Journal Article
Krauthoefer ML
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.161.5.453" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.161.5.453</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Participation of next of kin in research following sudden, unexpected death of a child
Publisher
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Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Creator
An entity primarily responsible for making the resource
Taneja GS; Brenner RA; Klinger R; Trumble AC; Qian C; Klebanoff M
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.161.5.453" target="_blank" rel="noreferrer">10.1001/archpedi.161.5.453</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2007
2007
Archives Of Pediatrics & Adolescent Medicine
Backlog
Brenner RA
Journal Article
Klebanoff M
Klinger R
Qian C
Taneja GS
Trumble AC
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.161.6.597" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.161.6.597</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2007
Subject
The topic of the resource
Child; Cross-Sectional Studies; Humans; Canada; Preschool; infant; Congenital Abnormalities/mortality; Neoplasms/mortality; Nervous System Diseases/mortality; Palliative Care/utilization; retrospective studies
Creator
An entity primarily responsible for making the resource
Widger K; Davies D; Drouin DJ; Beaune L; Daoust L; Farran RP; Humbert N; Nalewajek F; Rattray M; Rugg M; Bishop M
Description
An account of the resource
OBJECTIVES: To describe the patients who received care from the 8 dedicated pediatric palliative care programs in Canada in 2002 and to estimate the number of children who may have benefited but did not receive services from these programs. DESIGN: Retrospective review of medical records combined with a survey of each program. SETTING: Seven pediatric palliative care programs based in tertiary care settings and 1 freestanding children's hospice. PARTICIPANTS: The programs cared for 317 children during 2002, of whom 123 died during that year. An additional 32 children died by the end of 2003. MAIN EXPOSURE: Pediatric palliative care program. RESULTS: Nearly half (48.6%) of the patients were younger than 5 years, and almost half of these were younger than 1 year. Primary diagnoses were disorders of the nervous system (39.1%), malignancies (22.1%), and conditions arising in the perinatal period or congenital anomalies (22.1%). Most of the children (43.9%) died at home, with those centers reporting more comprehensive home care services having the highest percentage of home deaths. From a national perspective, between 5% and 12% of the children who could benefit from palliative care received services from 1 of these programs. CONCLUSIONS: Pediatric palliative care programs in Canada care for a diverse population of patients with a wide range of age and disease conditions. Only a small percentage of children who die, however, receive services from these dedicated programs.
2007
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.161.6.597" target="_blank" rel="noreferrer">10.1001/archpedi.161.6.597</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2007
Archives Of Pediatrics & Adolescent Medicine
Backlog
Beaune L
Bishop M
Canada
Child
Congenital Abnormalities/mortality
Cross-sectional Studies
Daoust L
Davies D
Drouin DJ
Farran RP
Humans
Humbert N
Infant
Journal Article
Nalewajek F
Neoplasms/mortality
Nervous System Diseases/mortality
Palliative Care/utilization
Preschool
Rattray M
Retrospective Studies
Rugg M
Widger K
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.163.8.688" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.163.8.688</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Addressing ethical concerns regarding pediatric palliative care research
Publisher
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Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; United States; Research; Ethics; decision making; Palliative Care/ethics; Pediatrics/ethics
Creator
An entity primarily responsible for making the resource
Rapoport A
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.163.8.688" target="_blank" rel="noreferrer">10.1001/archpedi.163.8.688</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2009
2009
Archives Of Pediatrics & Adolescent Medicine
Backlog
Decision Making
Ethics
Humans
Journal Article
Palliative Care/ethics
Pediatrics/ethics
Rapoport A
Research
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.143" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.143</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Why don't we talk?
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; infant; Critical Illness; Emotions; Professional-Family Relations; Communication; Newborn; Neonatology/education
Creator
An entity primarily responsible for making the resource
Jones Jr MD
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.143" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.143</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2009
2009
Archives Of Pediatrics & Adolescent Medicine
Backlog
Communication
Critical Illness
Emotions
Humans
Infant
Jones Jr MD
Journal Article
Neonatology/education
Newborn
Professional-family Relations
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.155" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.155</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatologist training to guide family decision making for critically ill infants
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2009
Subject
The topic of the resource
Humans; infant; United States; Critical Illness; Attitude of Health Personnel; Education; Questionnaires; Professional-Family Relations; Communication; Clinical Competence; Linear Models; Fellowships and Scholarships; Internet; Medical; decision making; infant; Newborn; Premature; Neonatology/education; Graduate; Nonparametric; Statistics
Creator
An entity primarily responsible for making the resource
Boss RD; Hutton N; Donohue PK; Arnold RM
Description
An account of the resource
OBJECTIVES: To assess neonatology fellow training in guiding family decision making for high-risk newborns and in several critical communication skills for physicians in these scenarios. DESIGN: A Web-based national survey. SETTING: Neonatal-perinatal training programs in the United States. PARTICIPANTS: Graduating fellows in their final month of fellowship. MAIN OUTCOME MEASURES: Fellows' perceived training and preparedness to communicate with families about decision making. RESULTS: The response rate was 72%, representing 83% of accredited training programs. Fellows had a great deal of training in the medical management of extremely premature and dying infants. However, they reported much less training to communicate and make collaborative decisions with the families of these infants. More than 40% of fellows reported no communication training in the form of didactic sessions, role play, or simulated patient scenarios and no clinical communication skills training in the form of supervision and feedback of fellow-led family meetings. Fellows felt least trained to discuss palliative care, families' religious and spiritual needs, and managing conflicts of opinion between families and staff or among staff. Fellows perceived communication skills training to be of a higher priority to them than to faculty, and 93% of fellows feel that training in this area should be improved. CONCLUSIONS: Graduating neonatology fellows are highly trained in the technical skills necessary to care for critically ill and dying neonates but are inadequately trained in the communication skills that families identify as critically important when facing end-of-life decisions.
2009
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.155" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.155</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2009
Archives Of Pediatrics & Adolescent Medicine
Arnold RM
Attitude Of Health Personnel
Backlog
Boss RD
Clinical Competence
Communication
Critical Illness
Decision Making
Donohue PK
Education
Fellowships And Scholarships
Graduate
Humans
Hutton N
Infant
Internet
Journal Article
Linear Models
Medical
Neonatology/education
Newborn
Nonparametric
Premature
Professional-family Relations
Questionnaires
Statistics
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.284" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.284</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative care of children with brain tumors: a parental perspective
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Young Adult; Palliative Care; home care services; Adult; Parents; Middle Aged; Attitude to Death; Qualitative Research; Focus Groups; Activities of Daily Living; Spirituality; Practice; Preschool; Adaptation; Psychological; Attitudes; Brain neoplasms; Health Knowledge; PEDI Study
Creator
An entity primarily responsible for making the resource
Zelcer S; Cataudella D; Cairney A; Elizabeth L; Bannister SL
Description
An account of the resource
OBJECTIVE: To explore the end-of-life experience of children with brain tumors and their families. DESIGN: Qualitative analysis of focus group interviews. SETTING: Children's Hospital, London Health Sciences Center. PARTICIPANTS: Twenty-five parents of 17 children who had died of brain tumors. INTERVENTION: Parents participated in 3 semistructured focus group interviews. MAIN OUTCOME MEASURES: Themes identified through thematic analysis of interview transcripts. RESULTS: Qualitative analysis identified 3 primary themes. (1) Parents described the dying trajectory of their child as characterized by progressive neurologic deterioration, with the loss of the ability to communicate as a turning point. Parental coping mechanisms included striving to maintain normality and finding spiritual strength through maintaining hope and in the resilience of their child. (2) Parental struggles during this phase included balancing competing responsibilities and speaking with their child about death. (3) Barriers to achieving a home death included suboptimal symptom management, financial and practical hardships, and inadequate community support. A fourth, secondary theme concerned the therapeutic benefits of the interview. CONCLUSION: The neurologic deterioration that characterizes the dying trajectory of children with brain tumors may create significant challenges for health care professionals and the children's parents, supporting the need for increased awareness of the distinct issues in the palliative care of children with brain tumors and for early anticipatory guidance provided for families.
2010-03
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.284" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.284</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Activities of Daily Living
Adaptation
Adolescent
Adult
Archives Of Pediatrics & Adolescent Medicine
Attitude To Death
Attitudes
Backlog
Bannister SL
Brain Neoplasms
Cairney A
Cataudella D
Child
Elizabeth L
Female
Focus Groups
Health Knowledge
home care services
Humans
Infant
Journal Article
Male
Middle Aged
Palliative Care
Parents
PEDI Study
Practice
Preschool
Psychological
Qualitative Research
Spirituality
Young Adult
Zelcer S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2009.295" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2009.295</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Considerations about hastening death among parents of children who die of cancer
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
ICU Decision Making
Creator
An entity primarily responsible for making the resource
Dussel V; Joffe S; Hilden JM; Watterson-Schaeffer J; Weeks JC; Wolfe J
Description
An account of the resource
OBJECTIVES: To estimate the frequency of hastening death discussions, describe current parental endorsement of hastening death and intensive symptom management, and explore whether children's pain influences these views in a sample of parents whose child died of cancer. DESIGN: Cross-sectional survey. SETTING: Two tertiary-care US pediatric institutions. PARTICIPANTS: A total of 141 parents of children who died of cancer (response rate, 64%). OUTCOME MEASURES: Proportion of parents who (1) considered or (2) discussed hastening death during the child's end of life and who endorsed (3) hastening death or (4) intensive symptom management in vignettes portraying children with end-stage cancer. RESULTS: A total of 19 of 141 (13%; 95% confidence interval [CI], 8%-19%) parents considered requesting hastened death for their child and 9% (95% CI, 4%-14%) discussed hastening death; consideration of hastening death tended to increase with an increase in the child's suffering from pain. In retrospect, 34% (95% CI, 26%-42%) of parents reported that they would have considered hastening their child's death had the child been in uncontrollable pain, while 15% or less would consider hastening death for nonphysical suffering. In response to vignettes, 50% (95% CI, 42%-58%) of parents endorsed hastening death while 94% (95% CI, 90%-98%) endorsed intensive pain management. Parents were more likely to endorse hastening death if the vignette involved a child in pain compared with coma (odds ratio, 1.4; 95% CI, 1.1-1.8). CONCLUSIONS: More than 10% of parents considered hastening their child's death; this was more likely if the child was in pain. Attention to pain and suffering and education about intensive symptom management may mitigate consideration of hastening death among parents of children with cancer.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2009.295" target="_blank" rel="noreferrer">10.1001/archpediatrics.2009.295</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Archives Of Pediatrics & Adolescent Medicine
Backlog
Dussel V
Hilden JM
ICU Decision Making
Joffe S
Journal Article
Watterson-Schaeffer J
Weeks JC
Wolfe J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2010.12" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2010.12</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
Child; Humans; United States; Palliative Care; Canada; Education; Professional-Family Relations; Interdisciplinary Communication; Program Evaluation; Curriculum; Quality of Health Care; Patient Advocacy; Models; Continuing/methods; Educational; Pediatrics/education
Creator
An entity primarily responsible for making the resource
Solomon MZ; Browning DM; Dokken DL; Merriman MP; Rushton CH
Description
An account of the resource
OBJECTIVE: To determine the impact of an innovative professional educational approach on clinicians' confidence and ability to make institutional improvements in pediatric palliative care. DESIGN: Evaluation to assess impact of educational intervention on participants and participant institutions. SETTING: Retreats lasting 2.5 days. PARTICIPANTS: Physicians, nurses, psychosocial staff, and bereaved parents. INTERVENTION: "Relational learning across boundaries" pedagogy. MAIN OUTCOME MEASURES: Analysis of participant questionnaires (n = 782, response rate of 84%), team leader surveys (n = 72, response rate of 71%), and follow-up interview with subsample (n = 21, response rate of 81%). Outcomes included confidence to act and institutional improvements achieved. RESULTS: Seventy-four percent of team leaders reported significant or moderate improvement in pediatric palliative care after the retreat; only 1% reported no improvement. Ninety-one percent credited the retreat experience as being somewhat or very instrumental to the improvements, which included the establishment of pediatric palliative care and bereavement programs, improvements in interdisciplinary communication, care coordination, clinician-family interaction at the bedside, and educational programs. Participants attributed the impact of the 2.5-day retreat to its key pedagogical features, involvement of family members as equal participants and participation of colleagues from other disciplines and care settings, as well as the ground rules used for the small group seminars. CONCLUSIONS: The intervention was successful in improving clinicians' confidence and catalyzed improvements in pediatric palliative care within participating institutions. Relational learning holds promise for professional learning, especially when the educational goal is tied to enabling a shift in social and ethical norms.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2010.12" target="_blank" rel="noreferrer">10.1001/archpediatrics.2010.12</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Archives Of Pediatrics & Adolescent Medicine
Backlog
Browning DM
Canada
Child
Continuing/methods
Curriculum
Dokken DL
Education
Educational
Humans
Interdisciplinary Communication
Journal Article
Merriman MP
Models
Palliative Care
Patient Advocacy
Pediatrics/education
Professional-family Relations
Program Evaluation
Quality Of Health Care
Rushton CH
Solomon MZ
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2010.59" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2010.59</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Medical end-of-life decisions in children in Flanders, Belgium: a population-based postmortem survey
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2010
Subject
The topic of the resource
ICU Decision Making
Creator
An entity primarily responsible for making the resource
Pousset G; Bilsen J; Cohen J; Chambaere K; Deliens L; Mortier F
Description
An account of the resource
OBJECTIVES: To estimate the prevalence of end-of-life decisions and to describe their characteristics and the preceding decision-making process in minors in Belgium. DESIGN: Population-based postmortem anonymous physician survey. SETTING: Flanders, Belgium. PARTICIPANTS: All physicians signing the death certificates of all patients (N = 250) aged 1 to 17 years who died between June 2007 and November 2008 in Flanders, Belgium. OUTCOME MEASURES: Prevalence and characteristics of end-of-life decisions and the preceding decision-making process. RESULTS: For 165 of the 250 deaths, a physician questionnaire was returned (70.5%). In 36.4%, death was preceded by an end-of-life decision. Drugs were administered to alleviate pain and symptoms with a possible life-shortening effect in 18.2% of all deaths, nontreatment decisions were made in 10.3%, and lethal drugs without the patient's explicit request were used in 7.9%. No cases of euthanasia, ie, the use of drugs with the explicit intention to hasten death at the patient's explicit request, were reported. Poor clinical prospects (84.6%) and low quality of life expectations (61.5%) were important reasons for the physicians to engage in end-of-life decisions. Parents were involved in decision making in 85.2% of these decisions, patients in 15.4%. CONCLUSIONS: Medical end-of-life decisions are frequent in minors in Flanders, Belgium. Whereas parents were involved in most end-of-life decisions, the patients themselves were involved much less frequently, even when the ending of their lives was intended. At the time of decision making, patients were often comatose or the physicians deemed them incompetent or too young to be involved.
2010
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2010.59" target="_blank" rel="noreferrer">10.1001/archpediatrics.2010.59</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2010
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bilsen J
Chambaere K
Cohen J
Deliens L
ICU Decision Making
Journal Article
Mortier F
Pousset G
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.159.9.802" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.159.9.802</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Medical end-of-life decisions for children in the Netherlands
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; 21% by the alleviation of pain or symptoms with a possible life-shortening effect; Adolescent Child Child; Assisted/statistics & numerical data Terminal Care/; Decision Making Euthanasia/; Non-U.S. Gov't Retrospective Studies Suicide; Passive/statistics & numerical data Female Hospitals; Pediatric Humans Infant Interviews Male Netherlands/epidemiology Pediatrics/; Preschool Death Certificates; statistics & numerical data Euthanasia; statistics & numerical data Physician-Patient Relations Professional-Family Relations Questionnaires Research Support
Creator
An entity primarily responsible for making the resource
Vrakking AM; van der Heide A; Arts WF; Pieters R; van der Voort E; Rietjens JA; Onwuteaka-Philipsen BD; van der Maas PJ; van der Wal G
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.159.9.802" target="_blank" rel="noreferrer">10.1001/archpedi.159.9.802</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
21% by the alleviation of pain or symptoms with a possible life-shortening effect
Adolescent Child Child
Archives Of Pediatrics & Adolescent Medicine
Arts WF
Assisted/statistics & numerical data Terminal Care/
Backlog
Decision Making Euthanasia/
Journal Article
Non-U.S. Gov't Retrospective Studies Suicide
Onwuteaka-Philipsen BD
Passive/statistics & numerical data Female Hospitals
Pediatric Humans Infant Interviews Male Netherlands/epidemiology Pediatrics/
PedPal Lit
Pieters R
Preschool Death Certificates
Rietjens JA
statistics & numerical data Euthanasia
statistics & numerical data Physician-Patient Relations Professional-Family Relations Questionnaires Research Support
van der Heide A
van der Maas PJ
van der Voort E
van der Wal G
Vrakking AM
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.159.9.887" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.159.9.887</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The emerging issue of euthanasia
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
Child; Humans; infant; Terminal Care; Netherlands; Longitudinal Studies; adolescent; Preschool; decision making; infant; Pediatrics/statistics & numerical data; Newborn; Euthanasia
Creator
An entity primarily responsible for making the resource
Siden HB
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.159.9.887" target="_blank" rel="noreferrer">10.1001/archpedi.159.9.887</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent
Archives Of Pediatrics & Adolescent Medicine
Backlog
Child
Decision Making
Euthanasia
Humans
Infant
Journal Article
Longitudinal Studies
Netherlands
Newborn
Pediatrics/statistics & numerical data
Preschool
Siden HB
Terminal Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.159.9.889" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.159.9.889</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Is there any consensus about end-of-life care in pediatrics?
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Adolescent Analgesics Child Child; Newborn Morals Neuromuscular Blockade Pediatrics/ethics Terminal Care/ethics/legislation & jurisprudence United States; Preschool ConsensusDecision Making Euthanasia/ethics/legislation & jurisprudence Humans Infant Infant
Creator
An entity primarily responsible for making the resource
Burns JP; Mitchell C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.159.9.889" target="_blank" rel="noreferrer">10.1001/archpedi.159.9.889</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2005
2005
Adolescent Analgesics Child Child
Archives Of Pediatrics & Adolescent Medicine
Backlog
Burns JP
Journal Article
Mitchell C
Newborn Morals Neuromuscular Blockade Pediatrics/ethics Terminal Care/ethics/legislation & jurisprudence United States
PedPal Lit
Preschool ConsensusDecision Making Euthanasia/ethics/legislation & jurisprudence Humans Infant Infant
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.160.2.178" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.160.2.178</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Access to health care for young adults with disabling chronic conditions
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; United States; Adult; Disabled Persons; Needs Assessment; Adolescent Transitions; Chronic Disease/economics; Health; Health Services Accessibility/economics/statistics & numerical data; Insurance; Medically Uninsured/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Callahan ST; Cooper WO
Description
An account of the resource
OBJECTIVE: To assess health insurance status and health care access of young adults with disabilities attributable to a chronic condition. DESIGN AND SETTING: We analyzed data from the National Health Interview Survey from 1999 to 2002. We present bivariate analysis and multiple logistic regression of reported health care access barriers in the United States stratified by health insurance status. PARTICIPANTS: The study population included 1109 survey respondents with and 22 481 without disabling chronic conditions, aged 19 to 29 years. MAIN OUTCOME MEASURES: Delayed or unmet health needs owing to cost, no contact with a health professional in the prior year, and no usual source of care. RESULTS: Thirty-five percent of respondents with and 15% without disabling chronic conditions reported an unmet health care need owing to cost (P< .001). Uninsurance rates for young adults with and without disabling chronic conditions were similar (26% vs 28%, respectively), and uninsurance was significantly associated with unmet health care needs. More than two thirds of uninsured respondents with a disabling chronic condition reported an unmet health need and 45% reported no usual source of care. After adjusting for sociodemographic factors, uninsured young adults with disabling chronic conditions had 8 times greater odds of reporting unmet health care needs and 6 times greater odds of having no usual source of care relative to insured respondents with disabling chronic conditions. CONCLUSIONS: Despite increasing attention to issues of health care transition for young adults with disabling chronic conditions, this study suggests that uninsurance is as common among these young adults as nondisabled peers and is significantly associated with health care access barriers in this population.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.160.2.178" target="_blank" rel="noreferrer">10.1001/archpedi.160.2.178</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent Transitions
Adult
Archives Of Pediatrics & Adolescent Medicine
Backlog
Callahan ST
Chronic Disease/economics
Cooper WO
Disabled Persons
Female
Health
Health Services Accessibility/economics/statistics & numerical data
Humans
Insurance
Journal Article
Male
Medically Uninsured/statistics & numerical data
Needs Assessment
United States
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.160.6.603" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.160.6.603</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The clinical and demographic characteristics of nonneuronopathic Gaucher disease in 887 children at diagnosis
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Longitudinal Studies; adolescent; Preschool; infant; Q3 Literature Search; Newborn; AIM; Anemia/et [Etiology]; Bone Diseases/et [Etiology]; Gaucher Disease/co [Complications]; Gaucher Disease/di [Diagnosis]; Growth Disorders/et [Etiology]; Hepatomegaly/et [Etiology]; IM; Splenomegaly/et [Etiology]; Thrombocytopenia/et [Etiology]
Creator
An entity primarily responsible for making the resource
Kaplan P; Andersson HC; Kacena KA; Yee JD
Description
An account of the resource
OBJECTIVE: To describe the clinical and demographic characteristics of nonneuronopathic Gaucher disease (GD) in children at the time of diagnosis. DESIGN: Longitudinal observational database of the International Collaborative Gaucher Group Gaucher Registry. SETTING: Data reported to the Registry from January 1, 1989, to June 3, 2005, were included in this report.Patients/ PARTICIPANTS: All 887 patients were diagnosed as having nonneuronopathic GD from birth to younger than 18 years and did not receive enzyme replacement therapy. MAIN OUTCOME MEASURES: Eight measures of the clinical manifestations and demographics of nonneuronopathic GD. RESULTS: The most common signs and symptoms noted were splenomegaly (95%), hepatomegaly (87%), radiologic bone disease (81%), thrombocytopenia (50%), anemia (40%), growth retardation (34%), bone pain (27%), and bone crisis (9%). Anemia and more severe splenomegaly and hepatomegaly were observed more frequently in younger patients. Skeletal manifestations were found more often in older children. Only 23% were identified as Ashkenazi Jews. CONCLUSIONS: Nonneuronopathic GD commonly manifests in childhood and affects many ethnic groups. The high prevalence of rare mutations may be associated with earlier onset and/or more severe disease. Increased awareness of the clinical and demographic characteristics of nonneuronopathic GD in children may improve early recognition of this treatable lysosomal storage disorder, decrease morbidity, and prevent irreversible sequelae.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.160.6.603" target="_blank" rel="noreferrer">10.1001/archpedi.160.6.603</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adolescent
AIM
Andersson HC
Anemia/et [Etiology]
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bone Diseases/et [Etiology]
Child
Female
Gaucher Disease/co [Complications]
Gaucher Disease/di [Diagnosis]
Growth Disorders/et [Etiology]
Hepatomegaly/et [Etiology]
Humans
IM
Infant
Journal Article
Kacena KA
Kaplan P
Longitudinal Studies
Male
Newborn
Preschool
Q3 Scoping Review Results
Splenomegaly/et [Etiology]
Thrombocytopenia/et [Etiology]
Yee JD
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.156.1.14" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.156.1.14</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Family perspectives on the quality of pediatric palliative care.
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Longitudinal Studies
Creator
An entity primarily responsible for making the resource
Contro N; Larson J; Scofield S; Sourkes B; Cohen H
Description
An account of the resource
BACKGROUND: As a prelude to establishing a Pediatric Palliative Care Program, we solicited information from families about their experiences and their suggestions for improving the quality of end-of-life care. Participants were English- and Spanish-speaking family members of deceased pediatric patients who received care at Lucile Salter Packard Children's Hospital, Stanford University Medical Center, Palo Alto, Calif. METHODS: Sixty-eight family members of 44 deceased children were interviewed regarding treatment, transition to palliative care, and bereavement follow-up. Four clinical social workers and one clinical psychologist reviewed the participants' responses and identified frequently occurring themes. RESULTS: Several areas of unsatisfactory interactions with staff were identified: confusing, inadequate, or uncaring communications regarding treatment or prognosis; preventable oversights in procedures or policies; failure to include or meet the needs of siblings and Spanish-speaking family members; and inconsistent bereavement follow-up. A discrepancy emerged between the high degree of pain described by the families and parents' perceptions that pain had been managed well. Community hospice programs are frequently poorly prepared to serve pediatric patients. CONCLUSIONS: There is a need to improve pediatric palliative care. Recurring themes in the family interviews suggest useful issues to consider in the development of a palliative care program.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.156.1.14" target="_blank" rel="noreferrer">10.1001/archpedi.156.1.14</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Archives Of Pediatrics & Adolescent Medicine
Backlog
Cohen H
Contro N
Journal Article
Larson J
Longitudinal Studies
Scofield S
Sourkes B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.156.1.9" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.156.1.9</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Pediatric palliative care: the time has come.
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Humans; Attitude to Health; Professional-Family Relations; Communication; Child Psychology; Longitudinal Studies; Needs Assessment; quality of life; Family/psychology; Chronic disease; Palliative Care/methods/psychology/trends; Pediatrics/methods/trends; Terminal Care/methods/psychology/trends
Creator
An entity primarily responsible for making the resource
Hutton N
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.156.1.9" target="_blank" rel="noreferrer">10.1001/archpedi.156.1.9</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2002
2002
Archives Of Pediatrics & Adolescent Medicine
Attitude To Health
Backlog
Child
Child Psychology
Chronic Disease
Communication
Family/psychology
Humans
Hutton N
Journal Article
Longitudinal Studies
Needs Assessment
Palliative Care/methods/psychology/trends
Pediatrics/methods/trends
Professional-family Relations
Quality Of Life
Terminal Care/methods/psychology/trends
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.156.11.1138" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.156.11.1138</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2002
Subject
The topic of the resource
Child; Cross-Sectional Studies; Female; Humans; Adult; Aged; Middle Aged; Disabled Persons; Regression Analysis; Caregivers/psychology; Chronic disease; Back Pain/etiology; Depression/etiology; Mothers/psychology; Physical Fitness
Creator
An entity primarily responsible for making the resource
Tong HC; Kandala G; Haig AJ; Nelson VS; Yamakawa KS; Shin KY
Description
An account of the resource
OBJECTIVES: To evaluate if physical functioning is different in female caregivers of children with physical disabilities compared with female caregivers of children with nondisabling medical illnesses, and to investigate the factors associated with functioning level. DESIGN: Cross-sectional survey. SETTING: University-based clinics. PATIENTS: Ninety consecutive female caregivers of children presenting to a pediatric physical medicine and rehabilitation (PM&R) clinic, and 23 presenting to a pediatric endocrine clinic. INTERVENTION: Fifteen-minute self-administered survey. MAIN OUTCOME MEASURES: The dependent variable measured was physical functioning (physical functioning subscale of the Short Form-36). Independent variables measured were the average back pain severity over the last week (100-mm visual analog scale), mood (using the Center for Epidemiologic Studies-Depression Scale), work status, amount of lifting at work, caregiver demographics, child demographics, and the physical functioning ability of the child (measured using the WeeFIM scale). RESULTS: The mean (SD) physical functioning score of caregivers of children in the pediatric PM&R clinic was 80.6 (21.9), which was less than the score of 90.2 (17.6) for caregivers in the pediatric endocrine clinic (mean difference, 9.6; 95% confidence interval, -0.9 to -18.4). The physical functioning score of 77.7 (22.9) in caregivers of PM&R clinic children with a WeeFIM scale score of 1 to 4 was significantly worse than the 90.5 (14.8) in female caregivers of children with a WeeFIM score of 5 to 7 (mean difference, 12.8; 95% confidence interval, -2.0 to -23.6). This decrease is associated with the average pain severity, mood, and total length of time of back pain in the previous 12 months. Regression analysis shows that pain severity and caregiver mood are significantly related to the physical functioning status of the caregiver. CONCLUSIONS: Physical functioning is decreased in female caregivers of children with a physical disability. This decrease is associated with caregiver pain severity and mood.
2002
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.156.11.1138" target="_blank" rel="noreferrer">10.1001/archpedi.156.11.1138</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2002
Adult
Aged
Archives Of Pediatrics & Adolescent Medicine
Back Pain/etiology
Backlog
Caregivers/psychology
Child
Chronic Disease
Cross-sectional Studies
Depression/etiology
Disabled Persons
Female
Haig AJ
Humans
Journal Article
Kandala G
Middle Aged
Mothers/psychology
Nelson VS
Physical Fitness
Regression Analysis
Shin KY
Tong HC
Yamakawa KS
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.157.11.1071" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.157.11.1071</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Beta-endorphin concentration after administration of sucrose in preterm infants
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; infant; Male; Pain Measurement; Prospective Studies; Intensive Care; Administration; beta-Endorphin/blood; Biomarkers of Pain; Newborn; Oral; Pain/drug therapy/etiology; Premature; Sucrose/administration & dosage
Creator
An entity primarily responsible for making the resource
Taddio A; Shah V; Shah P; Katz J
Description
An account of the resource
BACKGROUND: Sucrose is an effective analgesic for procedural pain in preterm infants. It has been hypothesized that its analgesic effects are mediated by the release of endogenous opioid neurotransmitters such as beta-endorphin. OBJECTIVE: To determine whether intraoral administration of sucrose was associated with an increase in serum beta-endorphin concentrations in preterm infants with a gestation period less than 29 weeks who were not exposed to a painful stimulus. METHODS: We performed a prospective open-label study in preterm infants admitted to 2 tertiary neonatal intensive care units. Each infant received a single dose of 30% sucrose intraorally during a 1- to 2-minute period. A blood sample was obtained using an indwelling arterial catheter to determine beta-endorphin concentration immediately before and 2 to 5 minutes after the commencement of sucrose administration. RESULTS: We enrolled 11 preterm infants with a mean +/- SD gestational age of 27.2 +/- 0.9 weeks and a mean +/- SD birth weight of 1018 +/- 238 g (1.02 +/- 0.24 kg) at a mean +/- SD postnatal age of 3.0 +/- 2.5 days. The mean +/- SD beta-endorphin concentration before and after sucrose administration was 60.4 +/- 30.5 pg/mL and 57.4 +/- 22.4 pg/mL, respectively (P =.45). No adverse events were observed during the study procedures. CONCLUSION: Intraoral administration of sucrose in preterm infants did not lead to an increase in serum beta-endorphin concentrations at a point in time when the analgesic effects of sucrose were presumed to be present.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.157.11.1071" target="_blank" rel="noreferrer">10.1001/archpedi.157.11.1071</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Administration
Archives Of Pediatrics & Adolescent Medicine
Backlog
beta-Endorphin/blood
Biomarkers of Pain
Female
Humans
Infant
Intensive Care
Journal Article
Katz J
Male
Newborn
Oral
Pain Measurement
Pain/drug therapy/etiology
Premature
Prospective Studies
Shah P
Shah V
Sucrose/administration & dosage
Taddio A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.157.7.661" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.157.7.661</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Safety of polyethylene glycol 3350 for the treatment of chronic constipation in children
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Child; Female; Humans; Male; Questionnaires; Prospective Studies; Patient Compliance; adolescent; Preschool; Non-U.S. Gov't; Research Support; Chronic disease; Alanine Transaminase/blood; Cathartics/therapeutic use; Constipation/drug therapy; Encopresis/drug therapy; Polyethylene Glycols/therapeutic use
Creator
An entity primarily responsible for making the resource
Pashankar DS; Loening-Baucke V; Bishop WP
Description
An account of the resource
OBJECTIVES: To assess the clinical and biochemical safety profile of long-term polyethylene glycol 3350 (PEG) therapy in children with chronic constipation and to assess pediatric patient acceptance of PEG therapy. DESIGN: Prospective observational study. SETTING: Pediatric clinics at a referral center.Patients Eighty-three children (44 with chronic constipation, 39 with constipation and encopresis) receiving PEG therapy for more than 3 months. MAIN OUTCOME MEASURES: Clinical adverse effects related to PEG therapy and acceptance and compliance with PEG therapy. Serum electrolyte levels, osmolality, albumin levels, and liver and renal function test results were measured. RESULTS: At the time of evaluation, the mean duration of PEG therapy was 8.7 months, and the mean PEG dose was 0.75 g/kg daily. There were no major clinical adverse effects. All blood test results were normal, except for transient minimal alanine aminotransferase elevation unrelated to therapy in 9 patients. All children preferred PEG to previously used laxatives, and daily compliance was measured as good in 90% of children. CONCLUSIONS: Long-term PEG therapy is safe and is well accepted by children with chronic constipation with and without encopresis.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.157.7.661" target="_blank" rel="noreferrer">10.1001/archpedi.157.7.661</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Adolescent
Alanine Transaminase/blood
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bishop WP
Cathartics/therapeutic use
Child
Chronic Disease
Constipation/drug therapy
Encopresis/drug therapy
Female
Humans
Journal Article
Loening-Baucke V
Male
Non-U.S. Gov't
Pashankar DS
Patient Compliance
Polyethylene Glycols/therapeutic use
Preschool
Prospective Studies
Questionnaires
Research Support
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.158.6.515" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.158.6.515</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parents' assessment of quality of care and grief following a child's death.
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2004
Subject
The topic of the resource
Longitudinal Studies
Creator
An entity primarily responsible for making the resource
Seecharan GA; Andresen EM; Norris K; Toce S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.158.6.515" target="_blank" rel="noreferrer">10.1001/archpedi.158.6.515</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2004
2004
Andresen EM
Archives Of Pediatrics & Adolescent Medicine
Backlog
Journal Article
Longitudinal Studies
Norris K
Seecharan GA
Toce S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.157.12.1219" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.157.12.1219</a>
<a href="http://www.ncbi.nlm.nih.gov/pubmed/14662579" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/pubmed/14662579</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The incidence of pain in children with severe cognitive impairments
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Creator
An entity primarily responsible for making the resource
Breau Lynn; Camfield C; McGrath PJ; Finley A
Description
An account of the resource
BACKGROUND: Children with severe cognitive impairments are believed to suffer pain frequently. OBJECTIVE: To document the frequency, duration, and intensity of pain experienced by children with severe cognitive impairments. DESIGN: Cohort study using surveys during 1 year. SETTING: Tertiary-care pediatric center for 3 provinces in eastern Canada. PARTICIPANTS: Caregivers of 94 children and adolescents with moderate to profound mental retardation, aged 3 to 18 years (mean age, 10.1 years [SD, 4.3 years]). Forty-four children had cerebral palsy and 59 had a seizure disorder; 83 lived with family, and 11 in group homes. Main Outcome Measure Caregivers completed 4 semistructured telephone surveys, reporting the cause, duration (in minutes), and intensity (on a scale of 0-10) of children's pain during the previous week. RESULTS: A total of 406 episodes of pain occurred. During a 4-week period, 73 children (78%) experienced pain at least once, and 58 (62%) had nonaccidental pain. Accidental pain was most frequent (n = 28 [30%]), followed by gastrointestinal tract (n = 21 [22%]), infection (n = 19 [20%]), and musculoskeletal (n = 18 [19%]) pain. Each week, 33 to 49 children (35%-52%) had pain. Mean pain duration was longer than 9 hours per week (SD, 1.7-2.4 hours). Mean intensity was 6.1 (SD, 2.2) for nonaccidental pain and 3.8 (SD, 2.1) for accidental pain. Children with the fewest abilities had more nonaccidental pain (F4,89 = 3.7; P =.007), and children with greater motor abilities had more accidental pain (F4,89 = 2.8; P =.03). Pain did not vary with demographic characteristics. CONCLUSIONS: Children with severe cognitive impairments experience pain frequently, mostly not due to accidental injury. Children with the fewest abilities experience the most pain.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.157.12.1219" target="_blank" rel="noreferrer">10.1001/archpedi.157.12.1219</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Archives Of Pediatrics & Adolescent Medicine
Backlog
Breau Lynn
Camfield C
Finley A
Journal Article
McGrath PJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.152.5.440" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.152.5.440</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Families' recommendations for improving services for children with chronic conditions
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1998
Creator
An entity primarily responsible for making the resource
Garwick AW; Kohrman C; Wolman C; Blume RW
Description
An account of the resource
Background: Little research has been done on services and programs for children with chronic conditions and their families from the perspective of family caregivers from diverse cultural backgrounds. Objective: To identify recommendations that urban caregiving families from 3 major ethnocultural backgrounds have for improving the care of children with chronic conditions (i.e., chronic illnesses and disabilities involving physical health impairments). Design: Qualitative, community-based study. Settings: General community. Participants: The volunteer convenience sample included 21 African American, 20 Hispanic, and 22 European American families from 2 midwestern cities who care for school-aged children with chronic conditions. Methods: In-home semistructured interviews were conducted with each child's family caregivers. Content analytic techniques were used to identify and classify 275 recommendations from 63 families. Results: Families focused on the following 4 topics: (1) improving the quality of health care services; (2) decreasing barriers to services and programs; (3) improving the training that health care professionals, families, and the public receive about chronic conditions and their management; and (4) improving the quality and availability of community-based services. Families from all 3 ethnic groups had similar recommendations for improving services and programs; however, several African American and Hispanic families also suggested making information more culturally relevant and resources more accessible to families form diverse cultural backgrounds. Conclusions: The findings indicated that further work needs to be done to deliver care that is, indeed, family centered and culturally sensitive. Families' recommendations provide information that health care professionals and policymakers can use to transform rhetoric about family-centered care into action.
1998
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.152.5.440" target="_blank" rel="noreferrer">10.1001/archpedi.152.5.440</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1998
Archives Of Pediatrics & Adolescent Medicine
Backlog
Blume RW
Garwick AW
Journal Article
Kohrman C
Wolman C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.153.1.63" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.153.1.63</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Computer-assisted health counselor visits: a low-cost model for comprehensive adolescent preventive services
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Female; Humans; Male; Pilot Projects; Feasibility Studies; Patient Satisfaction; Medical History Taking; Time Factors; Counseling; adolescent; Adolescent Health Services/economics; Adolescent Transitions; Costs and Cost Analysis; Medical Informatics Applications; Preventive Health Services/economics/methods; Risk-Taking
Creator
An entity primarily responsible for making the resource
Paperny DM; Hedberg VA
Description
An account of the resource
OBJECTIVE: To evaluate a low-cost strategy for providing preventive health services to adolescents using computerized health assessments with individualized educational videos, trained health counselors, and nurses. DESIGN: Feasibility study, cost analysis, and comparative evaluation of health problems identified, guidance delivered, and patient satisfaction. SETTING: Eleven sessions at nontraditional sites including schools, universities, shopping malls, and after-hours clinics on Oahu, Hawaii. PARTICIPANTS AND INTERVENTION: Adolescents (N=258, mean age 17 years) completed confidential computerized health assessments, received individualized feedback, and viewed automatically selected educational videos on a laptop computer. The computer additionally printed a prioritized problems list for the graduate student-level health counselor to review with the adolescent. The counselor subsequently reviewed each encounter with a nurse-educator who performed further counseling and physical examinations when indicated. RESULTS: Visit length averaged 44 minutes. Subjects spent an average of 21 minutes completing the automated health assessment and viewing interactive multimedia and 15 minutes with the health counselor. One third of subjects required further evaluation and counseling by the nurse (average, 8 minutes). A team of 2 counselors and 1 nurse provided comprehensive screening, health counseling, and physical examinations to 1 patient every 10 minutes at a salary cost of $7.46 per visit. This model identified risk behaviors at levels consistent with local behavioral data, and addressed and documented them significantly more often than do physicians in traditional settings. Subjects (71%) preferred the computer-assisted visits to standard office visits, and 92% felt the amount of time spent was acceptable. CONCLUSIONS: Computer-assisted delivery of adolescent preventive services using nonphysician health counselors is a feasible, economical, and acceptable alternative to traditional clinical practice for screening young people for health-compromising behaviors and providing individualized health education and routine physical examinations. This model would likely increase adolescents' access to needed preventive services at a very modest cost.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.153.1.63" target="_blank" rel="noreferrer">10.1001/archpedi.153.1.63</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Adolescent
Adolescent Health Services/economics
Adolescent Transitions
Archives Of Pediatrics & Adolescent Medicine
Backlog
Costs And Cost Analysis
Counseling
Feasibility Studies
Female
Hedberg VA
Humans
Journal Article
Male
Medical History Taking
Medical Informatics Applications
Paperny DM
Patient Satisfaction
Pilot Projects
Preventive Health Services/economics/methods
Risk-Taking
Time Factors
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.153.1.68" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.153.1.68</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Operationalizing a conceptually based noncategorical definition: a first look at US children with chronic conditions
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Subject
The topic of the resource
Miller 2009 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Stein RE; Silver EJ
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.153.1.68" target="_blank" rel="noreferrer">10.1001/archpedi.153.1.68</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
1999
1999
Archives Of Pediatrics & Adolescent Medicine
Backlog
Journal Article
Miller 2009 BMC HSR Refs
Silver EJ
Stein RE
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.153.11.1123" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.153.11.1123</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of care at a children's hospital: the parents' perspective
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1999
Creator
An entity primarily responsible for making the resource
Homer CJ; Marino B; Cleary PD; Alpert HR; Smith B; Crowley Ganser CM; Brustowicz RM; Goldmann DA
Description
An account of the resource
OBJECTIVES: To develop a measure of parental perceptions of pediatric inpatient quality of care, to identify processes of care that influence these perceptions, and to describe these perceptions of care. DESIGN: An interdisciplinary team modified an existing measure of inpatient care for adults using focus groups and expert review. The resulting survey was administered by telephone. SETTING: Tertiary care pediatric hospital. PATIENTS: Trained telephone interviewers obtained reports from parents of children discharged from the hospital during specified months. This report is based on the answers to 122 questions provided by 3622 (77%) of 4724 parents who responded when surveyed from 1991 through 1995. MAIN OUTCOME MEASURES: Parents provided reports about specific clinical experiences, overall ratings of care, and patient demographic and illness characteristics 2 weeks after patient discharge from the hospital. The analysis classified reports about pediatric care as either problems or not problems. Problems in different areas of care were averaged to create scores for the dimensions. RESULTS: Parents most often noted problems related to hospital discharge planning (18%) and pain management (18%) and less often reported problems concerning communication about surgery (10%) or transmission of information to children (6%). Problems in communication between clinicians and parents correlated most strongly with overall quality ratings by parents (r=0.59). Parents' specific reports of problems with care accounted for 42% of the variation in their overall assessments of the inpatient care experience. CONCLUSIONS: Parental assessment of inpatient pediatric care rests heavily on the quality of communication between the clinician and parent. Specific processes of care strongly influence overall assessments. Such reports could be used to focus the quality-improvement activities of hospitals and increase the accountability of providers of care to children and families.
1999
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.153.11.1123" target="_blank" rel="noreferrer">10.1001/archpedi.153.11.1123</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1999
Alpert HR
Archives Of Pediatrics & Adolescent Medicine
Backlog
Brustowicz RM
Cleary PD
Crowley Ganser CM
Goldmann DA
Homer CJ
Journal Article
Marino B
Smith B
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.154.2.173" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.154.2.173</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Preventive services in a health maintenance organization: how well do pediatricians screen and educate adolescent patients?
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Subject
The topic of the resource
Humans; Data Collection; California; Adolescent Behavior; adolescent; Adolescent Transitions; Risk-Taking; Adolescent Health Services/statistics & numerical data; Health Maintenance Organizations; Patient Education as Topic/statistics & numerical data; Pediatrics/statistics & numerical data; Physician's Practice Patterns/statistics & numerical data; Preventive Health Services/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Halpern-Felsher BL; Ozer EM; Millstein SG; Wibbelsman CJ; Fuster CD; Elster AB; Irwin CE
Description
An account of the resource
OBJECTIVE: To determine whether pediatricians in managed care settings adhere to national guidelines concerning the provision of clinical preventive services. DESIGN: Surveys were mailed between September 1996 and April 1997 to all pediatricians practicing in a California group-model health maintenance organization. The survey asked pediatricians about their screening and education practices on 34 recommended services and the actions taken with adolescent patients who have engaged in risk behavior. RESULTS: The response rate was 66.2% (N = 366). Pediatricians, on average, screened 92% of their adolescent patients for immunization status and blood pressure; 85% for school performance; 60% to 80% for obesity, sexual intercourse, cigarette use, alcohol use, drug use, and seat belt and helmet use; 30% to 47% for access to handguns, suicide, eating disorders, depression, and driving after drinking alcohol; fewer than 20% for use of smokeless tobacco, sexual orientation, sexual and physical abuse, and riding a bike or swimming after drinking alcohol; and 26% to 41% for close friends' engagement in risk behavior. Pediatricians' assessment and education with adolescent patients who screened positive for risk behavior was particularly low. Female physicians, physicians who saw a greater proportion of older adolescents, and recent medical school graduates were more likely to provide preventive services. CONCLUSIONS: Pediatricians in this health maintenance organization provide preventive services to adolescent patients at rates below recommendations but at rates greater than physicians in other practice settings. Improvement is especially needed in the areas that contribute most to adolescent mortality and for patients who screen positive for a risk behavior.
2000
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.154.2.173" target="_blank" rel="noreferrer">10.1001/archpedi.154.2.173</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2000
Adolescent
Adolescent Behavior
Adolescent Health Services/statistics & numerical data
Adolescent Transitions
Archives Of Pediatrics & Adolescent Medicine
Backlog
California
Data Collection
Elster AB
Fuster CD
Halpern-Felsher BL
Health Maintenance Organizations
Humans
Irwin CE
Journal Article
Millstein SG
Ozer EM
Patient Education as Topic/statistics & numerical data
Pediatrics/statistics & numerical data
Physician's Practice Patterns/statistics & numerical data
Preventive Health Services/statistics & numerical data
Risk-Taking
Wibbelsman CJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.154.5.499" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.154.5.499</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Coordination of speciality referrals and physician satisfaction with referral care
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2000
Creator
An entity primarily responsible for making the resource
Forrest C; Glade G; Baker A; Bocian A; von Schrader S; Starfield B
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.154.5.499" target="_blank" rel="noreferrer">10.1001/archpedi.154.5.499</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2000
2000
Archives Of Pediatrics & Adolescent Medicine
Backlog
Baker A
Bocian A
Forrest C
Glade G
Journal Article
Starfield B
von Schrader S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpedi.1994.02170010089021" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpedi.1994.02170010089021</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Termination of nutrition and hydration in a child with vegetative state
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
1994
Subject
The topic of the resource
Female; Humans; Parents; Withholding Treatment; Euthanasia; Dissent and Disputes; Group Processes; Enteral Nutrition; Death and Euthanasia; decision making; infant; Brain Diseases; Child Abuse Amendments 1984; Clinical; Coma/etiology/therapy; Connecticut; Ethics Committees; Federal Government; Government Agencies; Government Regulation; Hartford Hospital (CT); Passive/legislation & jurisprudence; Right to Die/legislation & jurisprudence; Status Epilepticus/complications
Creator
An entity primarily responsible for making the resource
Leicher CR; DiMario FJ
Description
An account of the resource
A child in a vegetative state may present difficult decisions for physicians and families regarding the course of treatment. We report a case of a child who entered a prolonged vegetative state following status epilepticus. The child's parents requested termination of artificial means of nutrition and hydration. That request culminated in a complex legal intervention by multiple state agencies and attracted local media attention. This article presents the details of the case and discusses the medical and legal complexities encountered. The diagnosis and prognosis of the persistent vegetative state in children have recently been defined. Decision making in these circumstances should be based on adequate, careful clinical evaluation of the medical facts. Hospital ethics committees can provide an independent forum in which the diverse viewpoints in a case may be examined. Decision making should optimally be accomplished between families and caretakers.
1994
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpedi.1994.02170010089021" target="_blank" rel="noreferrer">10.1001/archpedi.1994.02170010089021</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1994
Archives Of Pediatrics & Adolescent Medicine
Backlog
Brain Diseases
Child Abuse Amendments 1984
Clinical
Coma/etiology/therapy
Connecticut
Death and Euthanasia
Decision Making
DiMario FJ
Dissent And Disputes
Enteral Nutrition
Ethics Committees
Euthanasia
Federal Government
Female
Government Agencies
Government Regulation
Group Processes
Hartford Hospital (CT)
Humans
Infant
Journal Article
Leicher CR
Parents
Passive/legislation & jurisprudence
Right to Die/legislation & jurisprudence
Status Epilepticus/complications
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2011.5" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2011.5</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Effect of Hospital-Based Comprehensive Care Clinic on Health Costs for Medicaid-Insured Medically Complex Children
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Casey PH; Lyle RE; Bird TM; Robbins JM; Kuo DZ; Brown C; Lal A; Tanios A; Burns K
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2011.5" target="_blank" rel="noreferrer">10.1001/archpediatrics.2011.5</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bird TM
Brown C
Burns K
Casey PH
Cohen 2006 BMC HSR Refs
Journal Article
Kuo DZ
Lal A
Lyle RE
Robbins JM
Tanios A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2011.74" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2011.74</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital-based comprehensive care programs for children with special health care needs: a systematic review
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Cohen E; Jovcevska V; Kuo DZ; Mahant S
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/archpediatrics.2011.74" target="_blank" rel="noreferrer">10.1001/archpediatrics.2011.74</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Archives Of Pediatrics & Adolescent Medicine
Backlog
Cohen 2006 BMC HSR Refs
Cohen E
Journal Article
Jovcevska V
Kuo DZ
Mahant S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/2013.jamapediatrics.126" target="_blank" rel="noreferrer">http://doi.org/10.1001/2013.jamapediatrics.126</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Implications of the Growing Use of Freestanding Children's Hospitals
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Creator
An entity primarily responsible for making the resource
Fieldston ES; Altschuler SM
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/2013.jamapediatrics.126" target="_blank" rel="noreferrer">10.1001/2013.jamapediatrics.126</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Altschuler SM
Archives Of Pediatrics & Adolescent Medicine
Backlog
Fieldston ES
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/2013.jamapediatrics.406" target="_blank" rel="noreferrer">http://doi.org/10.1001/2013.jamapediatrics.406</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
What Can Be Learned by Residents Caring for Children With Lifelong, Chronic, Complex Conditions?
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Creator
An entity primarily responsible for making the resource
McMillan JA
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/2013.jamapediatrics.406" target="_blank" rel="noreferrer">10.1001/2013.jamapediatrics.406</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Archives Of Pediatrics & Adolescent Medicine
Backlog
Journal Article
McMillan JA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/jamapediatrics.2013.432" target="_blank" rel="noreferrer">http://doi.org/10.1001/jamapediatrics.2013.432</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Inpatient Growth and Resource Use in 28 Children's Hospitals: A Longitudinal, Multi-institutional Study
Publisher
An entity responsible for making the resource available
Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2012
Creator
An entity primarily responsible for making the resource
Berry JG; Hall M; Hall DE; Kuo DZ; Cohen E; Agrawal R; Mandl KD; Clifton H; Neff J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1001/jamapediatrics.2013.432" target="_blank" rel="noreferrer">10.1001/jamapediatrics.2013.432</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2012
Agrawal R
Archives Of Pediatrics & Adolescent Medicine
Backlog
Berry JG
Clifton H
Cohen E
Hall DE
Hall M
Journal Article
Kuo DZ
Mandl KD
Neff J