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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1177/0030222820959941" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0030222820959941</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Factors Associated With the Location of Expected Pediatric Deaths in the Palliative Care Context
Publisher
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Omega
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
child; death; end-of-life; location of death; planning
Creator
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Coombs S; Aouad P; Jaaniste T
Description
An account of the resource
Early planning and knowing which factors to consider when planning the location of death (LOD) of a palliative child, may help minimize the burden of hasty decision-making in the future, and may provide families with a sense of control. The current paper reviewed which factors were associated with pediatric LOD and further considered some emerging factors that should are important to better facilitate integrative planning. Three overarching areas of consideration related to pediatric LOD planning were identified including health service factors, familial factors and patient factors. Multiple sub-factor considerations are presented. Further, the paper presents a conceptual model of the factors found to be related to pediatric LOD planning. The limitations that exist with rigorously and empirically studying pediatric LOD preferences are apparent from the dearth of knowledge seen in the field. However, future studies should continue to examine such factors more closely to better understand the nuanced implications.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0030222820959941" target="_blank" rel="noreferrer noopener">10.1177/0030222820959941</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Aouad P
Child
Coombs S
Death
end-of-life
Jaaniste T
Location Of Death
November 2020 List
Omega
planning
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
November 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
November 2020 List
URL Address
<a href="http://doi.org/10.1111/jpc.15138" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/jpc.15138</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Communication between parents and well-siblings in the context of living with a child with a life-threatening or life-limiting condition
Publisher
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Journal of Paediatrics and Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2020
Subject
The topic of the resource
communication; life-limiting illness; Life-threatening condition; parent-child communication; parents; siblings
Creator
An entity primarily responsible for making the resource
Jaaniste T; Tan S C; Aouad P; Trethewie S
Description
An account of the resource
Effective parent-child communication may serve to buffer the potential negative impacts of stressful situations on a child. Children who have a brother or sister with a life-threatening or life-limiting medical condition may turn to their parents for help with comprehending the situation, to help maintain their own ability to function across various life areas or to receive emotional support. There is a need for more investigation into the nature and importance of parent-child communication in the context of living with a seriously ill brother or sister. The current paper presents a framework of parent-sibling communication in the context of living with a seriously unwell child, distinguishing the focus of communication (illness-related vs. non-illness-related) and the purpose of communication (information-provision vs. emotional support). Such a framework offers a holistic approach to exploring some of the challenges of communication between parents and well-siblings. The state of current knowledge regarding the focus and purpose of communication between parents and well-siblings is reviewed, and implications for research and possible clinical applications discussed. Copyright © 2020 Paediatrics and Child Health Division (The Royal Australasian College of Physicians)
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/jpc.15138" target="_blank" rel="noreferrer noopener">10.1111/jpc.15138</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2020
Aouad P
Communication
Jaaniste T
Journal of Paediatrics and Child Health
life-limiting illness
Life-threatening Condition
November 2020 List
parent-child communication
Parents
Siblings
Tan S C
Trethewie S