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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1016/j.anpedi.2019.07.001" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.anpedi.2019.07.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Efficacy of the Paediatrics Palliative Care Team of Murcia according to the experience of the parents
Publisher
An entity responsible for making the resource available
Anales de Pediatria.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
death; article; child; female; human; male; palliative therapy; retrospective study; controlled study; human experiment; pediatrics; terminal care; shared decision making; satisfaction; Palliative care; newborn; questionnaire; pediatrician; bereavement support; End-of-life care; Improvements; observational study; Paediatric; Parental perspectives; Questionnaire; Survey
Creator
An entity primarily responsible for making the resource
Plaza Fornieles M; Garcia-Marcos B P; Galera Minarro A M; Barbieri G; Bellavia N; Bermudez Cortes M D M; Navarro M A
Description
An account of the resource
Introduction: The care at the end of children's lives must be sensitive to the needs of the child and their family. An understanding of the illness is required from the perspective of parents faced with the death of their child, in order to improve quality and guide the development of end-of-life care in Paediatrics. Method(s): A retrospective observational study was conducted between June 2014 and June 2017 using a questionnaire, to assess the needs, experiences, and satisfaction with the care received, from a sample of parents who lost a child due to a foreseeable cause. Three different study groups were formed based on the team responsible for end-of-life care, and an analysis was carried out on the differences between the group treated by the paediatric palliative care team, the group attended by non-palliative paediatricians, and the neonatal group. Result(s): Of the 80 eligible families, 64 could be contacted, and 28 (43.8%) finally completed the questionnaire. Our study shows positive experiences and high satisfaction of parents with the care received at the end of their child's life. The highest scores in experiences and satisfaction were given by the parents of the children served by the paediatric palliative care team, with statistically significant differences in family support, communication, shared decision making, and bereavement support (P < .05). Conclusion(s): Parents are satisfied with the care received at the end of their children's lives, but the intervention of a specific paediatric palliative care team improves the quality of care at the end of life in paediatrics. Copyright © 2019
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.anpedi.2019.07.001" target="_blank" rel="noreferrer noopener">10.1016/j.anpedi.2019.07.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Anales de Pediatria.
Article
Barbieri G
Bellavia N
Bereavement Support
Bermudez Cortes M D M
Child
Controlled Study
Death
End-of-life Care
Female
Galera Minarro A M
Garcia-Marcos B P
Human
Human Experiment
Improvements
Male
Navarro M A
Newborn
Observational Study
October 2019 List
Paediatric
Palliative Care
Palliative Therapy
Parental Perspectives
Pediatrician
Pediatrics
Plaza Fornieles M
Questionnaire
Retrospective Study
Satisfaction
shared decision making
Survey
Terminal Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
May 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
May 2019 List
URL Address
<a href="http://doi.org/10.1016/j.anpedi.2019.02.001" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.anpedi.2019.02.001</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital admissions into paediatric palliative care: A retrospective study
Publisher
An entity responsible for making the resource available
Anales de Pediatria.
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
child; human; female; male; palliative therapy; major clinical study; Palliative care; article; death; hospitalization; retrospective study; patient care; pediatric hospital; hospice care; hospital admission; gastrostomy; Hospice care; Hospitalisation; Paediatric hospitals; respiratory system
Creator
An entity primarily responsible for making the resource
de Noriega I; Barcelo M; Perez M A; Puertas V; Garcia-Salido A; Martino R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.anpedi.2019.02.001" target="_blank" rel="noreferrer noopener">10.1016/j.anpedi.2019.02.001</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Description
An account of the resource
Introduction: Patients may be admitted to hospital by paediatric palliative care units (PPCU) for different reasons, due to their different needs and clinical problems. The objective of this study is to present the data of patients admitted to the PPCU of the Autonomous Community of Madrid. Method(s): Descriptive retrospective study was conducted by reviewing the clinical records of the PPCU between January 2011 and December 2016. Result(s): Of 499 patients attended in this period, 166 (33%) were admitted to hospital at some point, generating a total of 314 episodes. Respiratory problems (34%) were the main cause of admission. Gastrostomy intervention (23 patients) was the commonest reason for a surgical admission. In this period, 46 patients died during hospitalisation. The highest frequencies of death, according to the admission cause, were respiratory problems (18 out 46) and end-of-life care (11 out 46). More than half (59%) of admissions lasted less than 7 days and 88% were 15 days or less. Conclusion(s): The causes and characteristics of the hospital admissions at a PPCU are heterogeneous, with respiratory problems being the most common cause of admission. The duration of the hospitalisation appears to be similar to that described for acute palliative care units. The creation of a specific PPCU that can refer their patients for hospital admission might help to improve continuity of care.
2019
Anales de Pediatria.
Article
Barcelo M
Child
de Noriega Í
Death
Female
García-Salido A
Gastrostomy
Hospice Care
Hospital Admission
Hospitalisation
Hospitalization
Human
Major Clinical Study
Male
Martino R
May 2019 List
Paediatric hospitals
Palliative Care
Palliative Therapy
Patient Care
Pediatric Hospital
Perez M A
Puertas V
Respiratory System
Retrospective Study