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40
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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October 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2022 List
URL Address
<a href="http://doi.org/10.1016/j.anpede.2021.10.004">http://doi.org/10.1016/j.anpede.2021.10.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Scale for the Identification of the Complex Chronic Pediatric Patient (PedCom Scale): A Pilot Study
Publisher
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Anales de Pediatría
Date
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2022
Subject
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Chronic disease; Disabled child; Multiple chronic conditions; Surveys and questionnaires
Creator
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Godoy-Molina E; Fernández-Ferrández T; Ruiz-Sánchez JM; Cordón-Martínez A; Pérez-Frías J; Navas-López VM; Nuñez-Cuadros E
Description
An account of the resource
INTRODUCTION AND OBJECTIVES: The complex chronic condition (CCC) is an increasingly prevalent reality in pediatrics. However, having a CCC does not necessarily mean being a complex chronic patient (CCP). From this perspective, we developed an instrument (PedCom Scale) that would facilitate the identification of the CCP. MATERIAL AND METHODS: Initially, general aspects for the classification of patients as CCP were defined. Subsequently, the items of the scale were developed, scoring them from 0.5 to 4 points. We performed a confirmatory factor analysis (CFA) and the internal consistency was studied using alpha-Cronbach. Concordance was evaluated by intra- and inter-observer study. The gold standard was the classification performed by two evaluators after assessing the patient's medical history. The cut-off point for considering the patient as a CCP was established using the ROC curve. RESULTS: The initial version included 43 items with a global content validity index (CVI) of 0.94. A total of 180 patients were included. After the CFA, one item was eliminated, so the final version consists of 42 items with an CVI of 0.95. The alpha-Cronbach value was 0.723. The intraclass correlation coefficient of the test-retest analysis was 0.998 and 0.996 for the inter-observer study. The cut-off point for considering a patient as a CCP was established at 6.5 points, with this results we obtained a sensitivity of 98% and specificity of 94%. CONCLUSIONS: The PedCom Scale is an easy-to-use tool focused on the identification of the CCP. In our sample, it presented satisfactory levels of internal consistency and adequate levels of intra- and inter-observer agreement, with good sensitivity and specificity for the identification of the CCP.
Identifier
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<a href="http://doi.org/10.1016/j.anpede.2021.10.004">10.1016/j.anpede.2021.10.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Anales de Pediatría
Chronic Disease
Cordón-Martínez A
Disabled child
Fernández-Ferrández T
Godoy-Molina E
Multiple Chronic Conditions
Navas-López VM
Nuñez-Cuadros E
October 2022 List
Pérez-Frías J
Ruiz-Sánchez JM
Surveys And Questionnaires
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
August 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2022 List
URL Address
<a href="http://doi.org/10.1016/j.anpede.2022.04.004" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.anpede.2022.04.004</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Descriptive analysis of palliative sedation in a pediatric palliative care unit
Publisher
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Anales de pediatria
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
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Pediatric palliative care; Palliative; Descriptive analysis; Sedation
Creator
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de Noriega I; Rigal Andres M; Martino Alba R
Description
An account of the resource
INTRODUCTION: Data surrounding palliative sedation in pediatric patients is scarce. Our objective is to assess the utility of creating a quality standard for pediatric palliative sedation. MATERIAL AND METHODS: A non-systematic review of the literature was used to find recommendations for pediatric palliative sedation, after which a definition was established based on three items: (1) indication, (2) consent, and (3) application. Afterwards, a retrospective analysis of palliative sedations applied by our unit over 5 years was performed. RESULTS: Out of 163 patients, palliative sedation was applied in 20, in 17 of them by our unit (14/20 males; median: 11.9 years). Twelve patients had oncological diseases, seven had neurological conditions, and one had a polymalformative syndrome. Nine patients had more than one symptom at the time of PS initiation with pain (11/17) and dyspnoea (10/17) being the most frequent. As for the definition, only three patients achieved a global completion, with the registration of the consent, specification of refractoriness and the establishment of an adequate initial sedative dose being the areas with more possible improvement. CONCLUSIONS: The application of the definition allowed us to analyze and find areas of improvement for our clinical practice of palliative sedation in pediatric patients.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.anpede.2022.04.004" target="_blank" rel="noreferrer noopener">10.1016/j.anpede.2022.04.004</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Anales de Pediatría
August 2022 List
de Noriega Í
descriptive analysis
Martino Alba R
Palliative
Pediatric Palliative Care
Rigal Andrés M
Sedation