1 40 5 Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource March 2023 List Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month March List 2023 URL Address <a href="http://doi.org/10.1080/15265161.2022.2160516" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1080/15265161.2022.2160516</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource An Overview of Ethical Issues Raised by Medicolegal Challenges to Death by Neurologic Criteria in the United Kingdom and a Comparison to Management of These Challenges in the USA Publisher An entity responsible for making the resource available American Journal of Bioethics Date A point or period of time associated with an event in the lifecycle of the resource 2023 Subject The topic of the resource Brain injury; end-of-life issues; Great Britain; law; neurology; Pediatric; religion Creator An entity primarily responsible for making the resource Lewis A Description An account of the resource Although medicolegal challenges to the use of neurologic criteria to declare death in the USA have been well-described, the management of court cases in the United Kingdom about objections to the use of neurologic criteria to declare death has not been explored in the bioethics or medical literature. This article (1) reviews conceptual, medical and legal differences between death by neurologic criteria (DNC) in the United Kingdom and the rest of the world to contextualize medicolegal challenges to DNC; (2) summarizes highly publicized legal cases related to DNC in the United Kingdom, including the nuanced 2022 case of Archie Battersbee, who was transiently considered dead by neurologic criteria, but ultimately determined to be in a vegetative state/unresponsive-wakeful state; and (3) provides an overview of ethical issues raised by medicolegal challenges to DNC in the United Kingdom and a comparison to the management of these challenges in the USA. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1080/15265161.2022.2160516" target="_blank" rel="noreferrer noopener">10.1080/15265161.2022.2160516</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2023 American Journal of Bioethics Brain Injury End-Of-Life Issues Great Britain Law Lewis A March List 2023 Neurology Pediatric Religion Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource July 2021 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month July 2021 List URL Address <a href="http://doi.org/10.1080/15265161.2021.1925777" target="_blank" rel="noreferrer noopener">http://doi.org/​10.1080/15265161.2021.1925777</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Postponed Withholding: Balanced Decision-Making at the Margins of Viability Publisher An entity responsible for making the resource available American Journal of Bioethics Date A point or period of time associated with an event in the lifecycle of the resource 2021 Subject The topic of the resource decision-making; end-of-life issues; Children and families; professional-patient relationship; pediatrics: neonatology Creator An entity primarily responsible for making the resource Syltern J; Ursin L; Solberg B; Støen R Description An account of the resource Advances in neonatology have led to improved survival for periviable infants. Immaturity still carries a high risk of short- and long-term harms, and uncertainty turns provision of life support into an ethical dilemma. Shared decision-making with parents has gained ground. However, the need to start immediate life support and the ensuing difficulty of withdrawing treatment stands in tension with the possibility of a fair decision-making process. Both the parental "instinct of saving" and "withdrawal resistance" involved can preclude shared decision-making. To help health care personnel and empower parents, we propose a novel approach labeled "postponed withholding." In the absence of a prenatal advance directive, life support is started at birth, followed by planned redirection to palliative care after one week, unless parents, after a thorough counseling process, actively ask for continued life support. Despite the emotional challenges, this approach can facilitate ethically balanced decision-making processes in the gray zone. Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1080/15265161.2021.1925777" target="_blank" rel="noreferrer noopener">10.1080/15265161.2021.1925777</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2021 American Journal of Bioethics Children And Families Decision-making End-Of-Life Issues July 2021 List pediatrics: neonatology Professional-patient Relationship Solberg B Støen R Syltern J Ursin L Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource March 2018 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month March 2018 List URL Address <a href="http://doi.org/10.1080/15265161.2017.1401157" target="_blank" rel="noreferrer">http://doi.org/10.1080/15265161.2017.1401157</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource From "Longshot" to "Fantasy": Obligations to Pediatric Patients and Families When Last-Ditch Medical Efforts Fail Publisher An entity responsible for making the resource available American Journal Of Bioethics Date A point or period of time associated with an event in the lifecycle of the resource 2018 Subject The topic of the resource futility; hope; Intensive Care; Pediatrics Creator An entity primarily responsible for making the resource Weiss EM; Fiester A Description An account of the resource Clinicians at quaternary centers see part of their mission as providing hope when others cannot. They tend to see sicker patients with more complex disease processes. Part of this mission is offering longshot treatment modalities that are unlikely to achieve their stated goal, but conceivably could. When patients embark on such a treatment plan, it may fail. Often treatment toward an initial goal continues beyond the point at which such a goal is feasible. We explore the progression of care from longshot to fantasy using two pediatric cases. This progression may be differentiated into four distinct stages of care related to the potential of achieving the initial goals of care. Physicians are often ill prepared for the progression of treatments from a longshot hope to an unfeasible and, therefore, typically unjustified intervention. We present a structured approach to guide clinicians at referral institutions where these situations may be common. The transition of care from "longshot" to "fantasy" is an inherent part of quaternary care for the sickest of patients that has been underexplored. Physicians are often poorly equipped to approach that transition. We advocate this approach to the shift from longshot to fantasy with the belief that such a structured method will have multiple benefits, including: reduced suffering for the patient; decreased emotional burden on patient and family; decreased provider moral distress; increased likelihood of seeking high quality palliative care earlier; and provision of honest and straightforward information to patients and their families. 2018-01 Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1080/15265161.2017.1401157" target="_blank" rel="noreferrer">10.1080/15265161.2017.1401157</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2018 American Journal of Bioethics Fiester A Futility Hope Intensive Care March 2018 List Pediatrics Weiss EM Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource March 2018 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month March 2018 List URL Address <a href="http://doi.org/10.1080/15265161.2017.1401169" target="_blank" rel="noreferrer">http://doi.org/10.1080/15265161.2017.1401169</a> Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Reframing Fantasy: Toward a Common Language of Hope, Dying, and Death in Long-Shot Pediatrics Publisher An entity responsible for making the resource available American Journal Of Bioethics Date A point or period of time associated with an event in the lifecycle of the resource 2018 Creator An entity primarily responsible for making the resource Addison C; Hempton C Identifier An unambiguous reference to the resource within a given context <a href="http://doi.org/10.1080/15265161.2017.1401169" target="_blank" rel="noreferrer">10.1080/15265161.2017.1401169</a> Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). Description An account of the resource 2018-01 2018 Addison C American Journal of Bioethics Hempton C March 2018 List Text A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text. Citation List Month August 2016 List Dublin Core The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/. Title A name given to the resource Thoughtfulness And Grace: End-of-life Decision Making For Children With Severe Developmental Disabilities Publisher An entity responsible for making the resource available American Journal Of Bioethics Date A point or period of time associated with an event in the lifecycle of the resource 2016 Subject The topic of the resource Child Developmental-disabilities Decision Makinghumans Intellectual Disability Terminal Care Creator An entity primarily responsible for making the resource PM Jones Identifier An unambiguous reference to the resource within a given context DOI: 10.1080/15265161.2015.1132046 Rights Information about rights held in and over the resource Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s). 2016 American Journal of Bioethics August 2016 List Child Developmental-disabilities Decision Makinghumans Intellectual Disability Terminal Care PM Jones