1
40
3
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/00002727-199708000-00009" target="_blank" rel="noreferrer">http://doi.org/10.1097/00002727-199708000-00009</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Bereavement care in the critical care setting
Publisher
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Critical Care Nursing Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
1997
Subject
The topic of the resource
Humans; Cultural Diversity; Professional-Family Relations; Clinical Competence; Adaptation; Psychological; bereavement; Family/psychology; social support; SSHRC CURA; Aftercare; Critical Care/psychology
Creator
An entity primarily responsible for making the resource
Warren NA
Description
An account of the resource
Bereavement care in critical care units should involve providing support and counseling for the family members prior to death, immediately after the death has occurred, and at least some follow-up in the future months. These are crucial moments: Once the death has occurred, the family members status changes from anticipatory to bereaved status.
1997
Identifier
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<a href="http://doi.org/10.1097/00002727-199708000-00009" target="_blank" rel="noreferrer">10.1097/00002727-199708000-00009</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
1997
Adaptation
Aftercare
Backlog
Bereavement
Clinical Competence
Critical Care Nursing Quarterly
Critical Care/psychology
Cultural Diversity
Family/psychology
Humans
Journal Article
Professional-family Relations
Psychological
Social Support
SSHRC CURA
Warren NA
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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February 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
February 2022 List
URL Address
<a href="http://doi.org/10.1186/s12913-021-07335-x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12913-021-07335-x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Discontinuation of follow-up care for young people with complex chronic conditions: conceptual definitions and operational components
Publisher
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BMC Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Adolescent; Aftercare; Chronic Disease; Continuity of patient care: patient transfer; Delivery of health care; Health Personnel; Lost to follow-up; Young adult
Creator
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Skogby S; Bratt EL; Johansson B; Moons P; Goossens E
Description
An account of the resource
BACKGROUND: A substantial proportion of young people with Complex Chronic Conditions (CCCs) experience some degree of discontinuation of follow-up care, which is an umbrella term to describe a broken chain of follow-up. Discontinuation of follow-up care is not clearly defined, and the great plethora of terms used within this field cannot go unnoticed. Terms such as "lost to follow-up", "lapses in care" and "care gaps", are frequently used in published literature, but differences between terms are unclear. Lack of uniformity greatly affects comparability of study findings. The aims of the present study were to (i) provide a systematic overview of terms and definitions used in literature describing discontinuation of follow-up care in young people with CCC's; (ii) to clarify operational components of discontinuation of follow-up care (iii); to develop conceptual definitions and suggested terms to be used; and (iv) to perform an expert-based evaluation of terms and conceptual definitions. METHODS: A systematic literature search performed in PubMed was used to provide an overview of current terms used in literature. Using a modified summative content analysis, operational components were analysed, and conceptual definitions were developed. These conceptual definitions were assessed by an expert panel using a survey. RESULTS: In total, 47 terms and definitions were retrieved, and a core set of operational components was identified. Three main types of discontinuation of follow-up care emerged from the analysis and expert evaluation, conceptually defined as follows: Lost to follow-up care: "No visit within a defined time period and within a defined context, and the patient is currently no longer engaged in follow-up care"; Gap in follow-up care: "Exceeded time interval between clinic visits within a defined context, and the patient is currently engaged in follow-up care"; and Untraceability: "Failure to make contact due to lack of contact information". CONCLUSION: By creating a common vocabulary for discontinuation of follow-up care, the quality of future studies could improve. The conceptual definitions and operational components provide guidance to both researchers and healthcare professionals focusing on discontinuation of follow-up care for young people with CCCs.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12913-021-07335-x" target="_blank" rel="noreferrer noopener">10.1186/s12913-021-07335-x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2021
Adolescent
Aftercare
BMC Health Services Research
Bratt EL
Chronic Disease
Continuity of patient care: patient transfer
Delivery of Health Care
February 2022 List
Goossens E
Health Personnel
Johansson B
Lost to follow-up
Moons P
Skogby S
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
September 2022 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2022 List
URL Address
<a href="http://doi.org/10.1002/ppul.25934" target="_blank" rel="noreferrer noopener">http://doi.org/10.1002/ppul.25934</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Postdischarge Health Resource Use in Pediatric Survivors of Prolonged Mechanical Ventilation for Acute Respiratory Illness
Publisher
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Pediatric Pulmonology
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Child; Infant; Pediatrics; Respiration; Aftercare; Pneumonia; Critical illness; Discharge; Health resources; Healthcare; Intensive care unit; Respiratory distress syndrome
Creator
An entity primarily responsible for making the resource
Vo M; Miller K; Bennett TD; Mourani PM; LaVelle J; Carpenter TC; Scott Watson R; Pyle L L; Maddux AB
Description
An account of the resource
We aimed to identify characteristics associated with postdischarge health resource use in children without medical complexity who survived an episode of prolonged mechanical ventilation for respiratory illness. We hypothesized that longer durations of mechanical ventilation, noncomplex chronic conditions, and severe acute respiratory distress syndrome (ARDS) would be associated with readmission or an Emergency Department (ED) visit. In this retrospective cohort, we evaluated children without a complex chronic condition who survived a respiratory illness requiring ≥3 days of mechanical ventilation and who had insurance eligibility within the Colorado All Payers Claims Database. We used insurance claims to characterize health resource use and multivariable logistic regression to identify characteristics associated with readmission or an ED visit during the postdischarge year. We evaluated 82 children, median age 12.8 months (interquartile range [IQR]: 4.0-24.1), 20 (24%) with a noncomplex chronic condition and 62 (76%) without any chronic conditions. Bronchiolitis (60%) and pneumonia/aspiration pneumonitis (17%) were the most common etiologies of respiratory failure and 47 (57%) patients had severe ARDS. Forty-six (56%) patients had an ED visit or readmission. Among the 18 readmitted patients, 16/18 (89%) readmissions were for respiratory illness. Forty (49%) patients had ≥2 outpatient pulmonary visits and 45 (55%) filled a pulmonary medication prescription. In analyses controlling for age, illness severity and mechanical ventilation duration, severe ARDS was predictive of ED visit or readmission (odds ratio [OR]: 5.53 [95% confidence interval [CI]: 1.79, 19.09]). Children who survive prolonged mechanical ventilation for respiratory disease experience high rates of postdischarge health resource use, particularly those surviving severe ARDS.
Identifier
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<a href="http://doi.org/10.1002/ppul.25934" target="_blank" rel="noreferrer noopener">10.1002/ppul.25934</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2022
Aftercare
Bennett TD
Carpenter TC
Child
Critical Illness
discharge
Health Resources
healthcare
Infant
Intensive Care Unit
LaVelle J
Maddux AB
Miller K
Mourani PM
Pediatric Pulmonology
Pediatrics
Pneumonia
Pyle L L
Respiration
Respiratory Distress Syndrome
Scott Watson R
September 2022 List
Vo M