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Text
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<a href="http://doi.org/10.1542/peds.2012-2394" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2012-2394</a>
<a href="http://pediatrics.aappublications.org/content/early/2013/02/05/peds.2012-2394" target="_blank" rel="noreferrer">http://pediatrics.aappublications.org/content/early/2013/02/05/peds.2012-2394</a>
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Title
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Pediatric Advance Care Planning: A Systematic Review
Publisher
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Pediatrics
Date
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2013
Subject
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Child; Humans; Palliative Care; end of life; Pediatric; advance care planning; DNAR; Pediatrics/td [Trends]; Advance Care Planning/td [Trends]; pediatric advance life support [PALS]; Pediatrics/mt [Methods]; Randomized Controlled Trials as Topic/mt [Methods]
Creator
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Lotz JD; Jox RJ; Borasio GD; Führer M
Description
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BACKGROUND AND OBJECTIVES: Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults, but ACP is also being practiced in pediatrics. We conducted a systematic review on empirical literature on pediatric ACP (pACP) to assess current practices, effects, and perspectives of pACP. METHODS: We searched PubMed, BELIT, and PSYCinfo for empirical literature on pACP, published January 1991 through January 2012. Titles, abstracts, and full texts were screened by 3 independent reviewers for studies that met the predefined criteria. The evidence level of the studies was assessed. Relevant study outcomes were retrieved according to predefined questions. RESULTS: We included 5 qualitative and 8 quantitative studies. Only 3 pACP programs were identified, all from the United States. Two of them were informed by adult programs. Major pACP features are discussions between families and care providers, as well as advance directives. A chaplain and other providers may be involved if required. Programs vary in how well they are evaluated; only 1 was studied by using a randomized controlled trial. Preliminary data suggest that pACP can successfully be implemented and is perceived as helpful. It may be emotionally relieving and facilitate communication and decision-making. Major challenges are negative reactions from emergency services, schools, and the community. CONCLUSIONS: There are few systematic pACP programs worldwide and none in Europe. Future research should investigate the needs of all stakeholders. In particular, the perspective of professionals has so far been neglected.
2013-02
Identifier
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<a href="http://doi.org/10.1542/peds.2012-2394" target="_blank" rel="noreferrer">10.1542/peds.2012-2394</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2013
Advance Care Planning
Advance Care Planning/td [Trends]
Backlog
Borasio GD
Child
DNAR
End Of Life
Führer M
Humans
Journal Article
Jox RJ
Lotz JD
Palliative Care
Pediatric
pediatric advance life support [PALS]
Pediatrics
Pediatrics/mt [methods]
Pediatrics/td [trends]
Randomized Controlled Trials as Topic/mt [Methods]