Browse Items (908 total)
- Tags: Adult
Progressive sensorineural hearing loss in children with mitochondrial encephalomyopathies
Tags: 2001, Acoustic Impedance Tests, Acoustic/ph [Physiology], Adolescent, Adult, Audiometry, Auditory, Backlog, Brain Stem/ph [Physiology], Child, Evoked Potentials, Female, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Hearing Loss, Humans, IM, Journal Article, Kearns-Sayer Syndrome/di [Diagnosis], Kearns-Sayer Syndrome/pp [Physiopathology], Laryngoscope, Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/pp [Physiopathology], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/pp [Physiopathology], Otoacoustic Emissions, Preschool, Pure-Tone, Reflex, Sensorineural/di [Diagnosis], Sensorineural/pp [Physiopathology], Speech, Spontaneous/ph [Physiology], Wilichowski E, Zwirner P
Anti-parkinson drugs in the Batten-Spielmeyer-Vogt syndrome; a pilot trial
Tags: 1982, Adolescent, Adult, amantadine, Amantadine/therapeutic use, Antiparkinson Agents/therapeutic use, Benserazide/therapeutic use, Clinical Neurology and Neurosurgery, Drug Combinations/therapeutic use, Humans, Levodopa/therapeutic use, Lipidoses/drug therapy, madopar, NCL3, orfenadrine, pharmacologic intervention, Psychoses Substance-Induced/etiology, Syndrome, tone and motor problems, van der Zee H J, van Nieuwenhuizen O, Zweije-Hofman I L
Telehealth Needs and Concerns of Stakeholders in Pediatric Palliative Home Care
Tags: 2023, Adult, Children, Data Analysis Software, Deckers MJ, Descriptive Statistics, Family Attitudes, Female, Fisch-Jessen M, Funding Source, Hauch H, Health Services Needs And Demand, Heilmann ML, Home Health Care, Human, Kruempelmann S, Male, Middle Age, Moeller H, Nagel L, Nathrath M, November List 2023, Palliative Care, Patient Attitudes, Pediatric Care, Pilot Studies, Qualitative Studies, Quality Of Health Care, Quantitative Studies, Semi-Structured Interview, Telehealth, Telemedicine, Vaillant V, Voelker T, Zimmermann J
Structural equation and log-linear modeling: a comparison of methods in the analysis of a study on caregivers' health
Tags: 2006, Adaptation, Adult, Backlog, Bmc Medical Research Methodology, Caregivers/psychology/statistics & numerical data, Cerebral Palsy, Child, Cross-sectional Studies, Disabled Children, Family/psychology, Female, Health Status, Humans, Journal Article, Linear Models, Logistic Models, Male, Ontario, Psychological, Questionnaires, Raina P, Rosenbaum P, Russell DJ, Self Concept, Social Support, Socioeconomic Factors, Telemeres, Walter SD, Zhu B
Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Tags: 2022, acceptance, Adult, Aged, Analgesia, Article, Attitude, Barriers, Black BP, CARE, China, Chinese, Clinical, controlled, Death, decision, Education, emotional, Facilitators, Female, Frontiers in Pediatrics, guidance, Human, intensive, Kain VJ, Major, making, Male, middle, Multicenter, Neonatal, Newborn, Nurse, Nurses, October 2022 List, Palliative, Scale, script, simplified, Skill, Social, Song Y, study, Therapy, Unit, vocational, Well-being, Zhong Y
Factors important to patients' quality of life at the end of life
Tags: 2012, Adult, Aged, Archives Of Internal Medicine, Attitude To Death, Backlog, Caregivers, Drug Therapy, Female, Follow-up Studies, Humans, Journal Article, Male, Meditation, Middle Aged, Models, Neoplasms, Nilsson ME, Pastoral Care, Physician-patient Relations, Prigerson HG, Prospective Studies, Quality Of Life, statistical, Terminal Care, Terminally Ill, United States, Zhang B
Mitochondrial disorders
Tags: 2004, Adult, Backlog, Brain, Child, Di Donato S, DNA, DNA/genetics, Electron Transport/genetics, Gene Rearrangement/genetics, Humans, Journal Article, Mitochondrial Diseases/genetics/therapy, Mitochondrial/genetics, Mutation, Oxidative Phosphorylation, Point Mutation/genetics, Proteins/genetics, Zeviani M
Palliative care of children with brain tumors: a parental perspective
Tags: 2010, Activities of Daily Living, Adaptation, Adolescent, Adult, Archives Of Pediatrics & Adolescent Medicine, Attitude To Death, Attitudes, Backlog, Bannister SL, Brain Neoplasms, Cairney A, Cataudella D, Child, Elizabeth L, Female, Focus Groups, Health Knowledge, home care services, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Parents, PEDI Study, Practice, Preschool, Psychological, Qualitative Research, Spirituality, Young Adult, Zelcer S
Emotion regulation in patients with rheumatic diseases: validity and responsiveness of the Emotional Approach Coping Scale (EAC)
Tags: 2009, 80 And Over, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Backlog, Bmc Musculoskeletal Disorders, Cross-sectional Studies, Emotions, Female, Finset A, Garratt A, Hagen KB, Humans, Journal Article, Male, Middle Aged, Mowinckel P, Pain Measurement, Psychological, Rheumatic Diseases, Stanton AL, Stress, Young Adult, Zangi HA
Sleep disorders in Cornelia de Lange syndrome
Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E
Vulnerability and Agency across Treatment-Seeking Journeys for Acutely Ill Children: How Family Members Navigate Complex Healthcare Before, During and After Hospitalisation in A Rural Kenyan Setting
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Acute Disease, Adult, agency, Berkley JA, Caregivers, Charo A, Child Health, Child Mortality, Child Preschool, Childhood acute illness, Cohort Studies, Continuity Of Patient Care, Delivery of Health Care/standards, Family, Family Characteristics, Female, Health Facilities, Hospitalization, Humans, Infant, International Journal for Equity in Health, Kelley M, Kenya/epidemiology, Kimani MN, Male, Marsh V, Molyneux S, Muraya K, Njeru RW, Prospective Studies, Qualitative Research, Rural Population, Sanga G, Sarma H, Social Support, Treatment-seeking, Uddin MF, VULNERABILITY, Vulnerable Populations, Walson JL, Zakayo SM
Ethnicity, race, and advance directives in an inpatient palliative care consultation service.
Tags: 2013, 80 And Over, Adult, Advance Directives/eh [Ethnology], African Americans/statistics & numerical data, Aged, Asian Continental Ancestry Group/sn [Statistics & Numerical Data], Attitude to Death/eh [Ethnology], Backlog, Cooper LB, Cross-cultural Comparison, Decision Making, DNAR, European Continental Ancestry Group/sn [Statistics & Numerical Data], Female, Hispanic Americans/sn [Statistics & Numerical Data], Humans, Journal Article, Lesser ML, Liberman T, Male, Middle Aged, Mir Tanveer P, New York/ep [Epidemiology], Nouryan CN, Palliative & Supportive Care, Palliative Care/og [Organization & Administration], Pekmezaris R, Program Evaluation, Referral and Consultation/og [Organization & Administration], Resuscitation Orders, Sison CP, Spirituality, Terminal Care/og [organization & Administration], Wolf-Klein GP, Zaide GB
A D2 antagonist enhances the rewarding and priming effects of a gambling episode in pathological gamblers.
Tags: 2007, Adult, Analysis of Variance, Backlog, Blood Pressure/de [Drug Effects], Dopamine Antagonists/ad [Administration & Dosage], Dopamine Antagonists/ae [Adverse Effects], Double-Blind Method, Female, Gambling/px [Psychology], Haloperidol/ad [Administration & Dosage], Haloperidol/ae [Adverse Effects], Humans, IM, Journal Article, Male, Middle Aged, Motivation, Neuropsychological Tests, Neuropsychopharmacology, Pain Measurement, Poulos CX, Psychiatric Status Rating Scales, Reaction Time/de [Drug Effects], Reward, Semantics, Zack M
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Tags: 2003, Adolescent, Adolescent Transitions, Adult, Aging/psychology, Attitudes, Backlog, Boston, Colin AA, Continuity Of Patient Care/organization & Administration, Counseling/organization & administration, Cystic Fibrosis/psychology/therapy, Day Care/organization & administration, Emans SJ, Female, Harney K, Health Care Surveys, Health Knowledge, Humans, Jacobs CP, Journal Article, Keenan PM, Male, Massachusetts, Needs Assessment, Pediatric Pulmonology, Practice, Preventive Medicine/organization & administration, Prospective Studies, Pulmonary Disease (Specialty)/statistics & numerical data, Woods ER, Zack J
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Use of health care among adults with chronic and complex physical disabilities of childhood
Tags: 2005, Adolescent Transitions, Adult, Backlog, Brain Injury, Cerebral Palsy/rehabilitation, Chronic/rehabilitation, Disability And Rehabilitation, Disabled Persons/rehabilitation, Emergency Service, Fehlings D, Female, Health Services/utilization, Hospital/utilization, Humans, Journal Article, Jutai J, Male, Olmsted N, Ontario, Primary Health Care/utilization, Retrospective Studies, Spinal Dysraphism/rehabilitation, Steele C, Williams JI, Young NL
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Advance care planning for adolescent patients with life-threatening neurological conditions: A survey of Japanese paediatric neurologists
Tags: 2017, Adult, Advance Care Planning, Article, Artificial Ventilation, BMJ Paediatrics Open, Cross-sectional Study, do not resuscitate order, Family, Female, Health Care Survey, hematologist, Human, Japan, Kizawa Y, living will, Male, Middle Aged, Neurologic Disease, neurologist, November 2018 List, Pediatrician, Priority Journal, Prognosis, Shintaku H, Terminal Care, Yotani N
Specialist palliative care service for children with life-threatening conditions in Japan: A nationwide survey of resources and utilization
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
A longitudinal method of teaching pediatric palliative care to interns: preliminary findings regarding changes in interns' comfort level
Tags: 2010, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chung PJ, Curriculum/standards, Documentation/standards, Evan E, Female, Humans, Internship And Residency, Journal Article, Longitudinal Studies, Male, Palliative & Supportive Care, Palliative Care/methods, Pediatrics/education, Professional Competence, Professional-family Relations, Professional-patient Relations, Questionnaires, Roubinov D, Teaching/methods, Yazdani S, Young Adult, Zeltzer L
Attitudes on pain and opioid prescription practices in cystic fibrosis centers
Tags: 2017, 53663-61-9 (opiate), 8002-76-4 (opiate), 8008-60-4 (opiate), Adult, Analgesia, anxiety, Child, Chronic Pain, cyst, Cystic Fibrosis, drug combination, Female, Hollatz T, Human, January 2018 List, Laxova A, Life Expectancy, Male, Meyer KC, Mood, Mukadam Z, Nurse, Opiate, opiate addiction, Palliative Therapy, Pediatric Pulmonology, prescription, Prevalence, Quality Of Life, Questionnaire, sinus headache, thorax wall, Yang Y
The Experiences Of Families Living With The Anticipatory Loss Of A School-age Child With Spinal Muscular Atrophy – The Parents’ Perspectives
To probe into parents’ anticipatory loss of school-age children with Type I or II spinal muscular atrophy.
Background
Spinal muscular atrophy is a rare disorder that causes death. Children die early due to either gradual atrophy…
Tags: 2016, Adult, Anticipatory Loss, Child, Female, Grief, Humans, Interviews As Topic, Journal of Clinical Nursing, July 2016 List, Male, Middle Aged, Muscular Atrophy Spinal/nursing, Muscular Atrophy Spinal/psychology, Nurse's Role, Parents/psychology, School-age Children, Spinal Muscular Atrophy, Taiwan, Yang
Age-dependent change in behavioral feature in Rubinstein-Taybi syndrome
Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult
Caring Decisions: The Development Of A Written Resource For Parents Facing End-of-life Decisions
Tags: 2015, Adult, Advance Care Planning/ethics, Advance Care Planning/standards, Attitude Of Health Personnel, Australia, Child, Consumer Health Information/methods, Cossich M, Decision Making/ethics, Gillam L, Humans, Hynson J, Internet, Journal of Palliative Medicine, July 2017 List, Parents/education, Parents/psychology, Pilot Projects, Professional-family Relations, Publications, Sullivan J, Terminal Care/methods, Terminal Care/standards, Wilkinson D, Xafis V
Natural history of trisomy 13
Tags: 1994, Adult, Archives of Disease in Childhood, Backlog, Burn J, Chromosomes, Congenital/diagnosis/genetics/mortality, England/epidemiology, Female, Fetal Diseases/diagnosis, Heart Defects, Human, Humans, Hunter S, Incidence, Infant, Journal Article, Longitudinal Studies, Male, Neural Tube Defects/diagnosis/genetics/mortality, Newborn, Pair 13, Pregnancy, Prenatal Diagnosis, Syndrome, Trisomy, Wright MJ, Wyllie JP
The impact of a palliative care team on residents' experiences and comfort levels with pediatric palliative care
Tags: 2014, Adult, Attitude Of Health Personnel, Attitudes, Backlog, Child, Female, Friderici J, Goff Sarah L, Health Knowledge, Humans, Internship And Residency, Journal Article, Journal of Palliative Medicine, Male, Palliative Care, Patient Care Team, Pediatrics, Practice, Questionnaires, United States, Wu KL
End of living: maintaining a lifeworld during terminal illness
Tags: 2009, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adult, Aged, Attitude To Death, Backlog, Female, Folkman S, Goodman S, Humans, Interviews As Topic, Journal Article, Male, Middle Aged, Neoplasms/psychology, New York City, Psychology & Health, Questionnaires, San Francisco, Terminally Ill/psychology, Wrubel J
Exploring perceptions of psychological services in a children's hospice in the United Kingdom
Tags: 2013, Adult, Andrews L, Backlog, Child, Child Health Services, Critical Illness, Crozier K, Disabled Children, Focus Groups, Great Britain, Hospice Care, Humans, Journal Article, Leeson J, Lindsay B, Palliative & Supportive Care, Palliative Care, Parents, Professional-family Relations, Psychological, Stress, Wray Jo, Young Adult
Physicians' attitudes when faced with life-threatening events in children with severe neurological disabilities
Tags: 2019, Adult, Article, childhood disease/ep [Epidemiology], Clinical Decision Making, Cross-sectional Study, Developmental Neurorehabilitation, Disability, Emergency Ward, Female, Follow Up, Health Care Access, Human, Intensive Care, Likert scale, Major Clinical Study, Male, May 2019 List, neurologic disease/ep [Epidemiology], Newman C J, Noninvasive Ventilation, Palliative Therapy, Patient Care, Patient Comfort, Pediatric Rehabilitation, Personal Experience, Physician Attitude, Priority Journal, profound intellectual and multiple disability, rehabilitation center, Resuscitation, Risk, risk factor, Spinal Muscular Atrophy, Swiss, Terminal Care, Tracheostomy, Wosinski B
Pediatric organ donation and transplantation
Positive change processes and post-traumatic growth in people who have experienced childhood abuse: understanding vehicles of change
Tags: 2003, Adult, Affect, Aged, Attitude, Backlog, Child, Child Abuse/psychology, Female, Humans, Interpersonal Relations, Joseph S, Journal Article, Male, Middle Aged, Narration, Post-Traumatic/diagnosis/etiology/psychology, Psychology And Psychotherapy, Social Behavior, Stress Disorders, Woodward CA
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Designing the physical environment for inpatient palliative care: A narrative review
Tags: Child, Hospice Care, Hospital Care, Human, Thematic Analysis, 2021, Adult, BMJ Supportive and Palliative Care, Built Environment, Cinahl, Collins A, Comfort, Conception, data extraction, Data Synthesis, Emergency Ward, Family Interaction, Family Management, Female, Furniture, Hospice Care, Hospital care, Hospital Patient, Human Dignity, January List 2023, Male, McLaughlan R, Medline, Narrative, nursing home, Nursing Home Care, Palliative Therapy, Philip J, Privacy, Psycinfo, Review, Systematic Review, Wong K
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
Challenges and coping styles of fathers as primary medical caretakers: a multicultural qualitative study.
Tags: *Adaptation, Psychological, *Caregivers/px [Psychology], *Father-Child Relations/eh [Ethnology], *Fathers/px [Psychology], 2010, 2023 SE4 - Parent Perspectives, Adult, Anemia, Sickle Cell, Ethnicity/px [Psychology], Family Conflict, Humans, Journal Of Psychosocial Oncology, Katz, Ernest, Male, Meeske, Kathleen, Middle Aged, Neoplasms, Pak, Jenny, Qualitative Research, Social Support, Socioeconomic Factors, United States, Wolff, Joshua, Worden, J William
Stress, social support, and sense of coherence
Tags: 1999, Adaptation, Adult, Age Factors, Attitude To Health, Backlog, Canada, Child, Female, Health Status, Health Surveys, Humans, Internal-External Control, Journal Article, Life Change Events, Male, Middle Aged, Models, Motivation, Predictive Value of Tests, Psychological, Psychological/prevention & control/psychology, Questionnaires, Ratner PA, Social Support, Socioeconomic Factors, Stress, Western Journal of Nursing Research, Wolff AC
Understanding of prognosis among parents of children who died of cancer: Impact on treatment goals and integration of palliative care
Tags: 2000, Adult, Attitude To Death, Backlog, Child, Data Collection, Death and Euthanasia, Decision Making, Empirical Approach, et al, Female, Grier HE, Humans, JAMA, Journal Article, Klar N, Male, Neoplasms/mortality/therapy, Oncology at EOL, Palliative Care, Parents/psychology, Physicians/psychology, Professional Patient Relationship, Prognosis, Regression Analysis, Terminally Ill, Wolfe J
Pediatric Ethics and Communication Excellence (PEACE) Rounds: Decreasing Moral Distress and Patient Length of Stay in the PICU
Tags: 2017, Ackerman V, Adult, Benneyworth B, Clinical Ethics, Communication, Ethics Intervention, Female, HEC Forum, Humans, Icu Length Of Stay, Intensive Care Units Pediatric/ Ethics, Interprofessional Relations, Leland B, Length Of Stay, Life Support Care/ethics, Male, Middle Aged, Moral Distress, Nitu M, November 2017 List, Patel V, Pediatrics, Psychometrics/instrumentation/methods, Severity Of Illness Index, Stress Psychological/ Psychology, Teaching Rounds/manpower/methods, Tong Y, Unnecessary Procedures/ Ethics, Wocial L