Browse Items (908 total)
- Tags: Adult
Adding Life to Their Years: The Current State of Pediatric Palliative Care in CKD
Tags: 2021, Adult, Child, chronic kidney disease, dialysis, end stage kidney disease, geriatric and palliative nephrology, Hospice And Palliative Care Nursing, House TR, Humans, kidney supportive care, Kidney360, May 2022 List, Nephrology, Palliative Care/psychology, Pediatric Nephrology, Pediatric Palliative Care, Quality Of Life, Renal Insufficiency Chronic/therapy, Wightman A
Programs to Support Pediatric to Adult Healthcare Transitions for Youth with Complex Care Needs and their Families: A Scoping Review
End-of-Life Decision-Making in Pediatric and Neonatal Intensive Care Units in Croatia-A Focus Group Study among Nurses and Physicians
Tags: 2022, Adult, April 2022 List, Borovecki A, Brajkovic L, Child, Critical Care, Croatia, Curkovic M, Death, Decision Making, end-of-life, Filipovic-Grcic B, Focus Groups, Humans, Infant Newborn, Intensive Care Units, Intensive Care Units Neonatal, Lah Tomulic K, Medicina (Kaunas), Mestrovic J, Neonatal Intensive Care Unit, Nevajdic B, Novak M, Nurses, Pediatric Intensive Care Unit, Peter B, Physicians, Rubic F, Terminal Care
Adult healthcare is associated with more emergency healthcare for young people with life-limiting conditions
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Advances in pediatric psychooncology
Tags: 2020, Adult, Attention, Bereavement, cancer center, Cancer Patient, Child, Childhood Cancer, chimeric antigen receptor T-cell immunotherapy, Current Opinion In Pediatrics, Devine K A, Distress Syndrome, evidence based practice center, hereditary tumor syndrome, Human, Infant, Oncology 2020 List, outcome assessment, Palliative Therapy, patient reported outcome, Psycho-Oncology, psychosocial care, Review, Sibling, Survivorship, Thompson A L, toddler, Wiener L, Young Adult
Factors During a Child's Illness Are Associated With Levels of Prolonged Grief Symptoms in Bereaved Mothers and Fathers
Tags: 2020, Adolescent, Adult, Attitude To Death, Child, Fathers/psychology, Female, Grief, Humans, Journal Of Clinical Oncology, Kreicbergs U, Male, Middle Aged, Mothers/psychology, Neoplasms/*psychology, Oncology 2020 List, Parent-child Relations, Parents/*psychology, Pohlkamp L, Sex Factors, Surveys And Questionnaires, Sveen J
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
Basic neonatal resuscitation skills of midwives and nurses in Eastern Ethiopia are not well retained: An observational study
Tags: 2020, Adolescent, Adult, Asphyxia Neonatorum/*therapy, Checklist, Clinical Competence, Cross-sectional Studies, Desalew A, Developing World 2020 List, Education, Ethiopia, Female, Geda B, Humans, Infant, Male, Mezmur H, Middle Aged, Midwifery/*education, Mulatu T, Neonatal Nursing/*education, Newborn, Nursing/statistics & numerical data, PLoS One, Pregnancy, Resuscitation/*methods, Shiferaw K, Sintayehu Y, Tiruye G, Young Adult
Safety and pharmacokinetics of medical cannabis preparation in a monocentric series of young patients with drug resistant epilepsy
Tags: 2020, Adolescent, Adult, Astuni P, Barco S, Calevo MG, Cangemi G, Cannabidiol (CBD), Child, Child Preschool, childhood, Complementary Therapies in Medicine, De Grandis E, Delta-9-tetrahydrocannabinol (THC), Dose-Response Relationship Drug, Drug Resistant Epilepsy/drug therapy, Drug-resistant epilepsy, Female, Fucile C, Gherzi M, Humans, January 2021 List, Male, Mancardi MM, Manfredini L, Marini V, Mattioli F, Medical cannabis galenic preparation, Medical Marijuana/administration & dosage/adverse effects/pharmacokinetics, Milano G, Nobili L, Prospective Studies, Young Adult
Parents' attitudes towards a difficult situation resulting from the chronic disease of their child
Tags: 2020, Adaptation, Adolescent, Adult, Annals of Agricultural and Environmental Medicine, Attitude To Health, Bartoszuk-Popko M, Brodowicz-Król M, Child, Children, Chronic Disease, Chronic Disease/*psychology, difficult situation, Disabled Persons/psychology, Female, Guz E, Humans, Kulbaka E, Lutomski P, Male, Middle Aged, November 2020 List, paediatric patient, Parental Attitudes, Parents, Parents/*psychology, Poland, Preschool, Psychological
Ethics and patient and public involvement with children and young people
Tags: 2019, Adolescent, Adult, Akhtar S, Archives of Disease in Childhood - Education and Practice, August 2020 List, Child, Coad J, Dale J, Female, Guidelines As Topic, Health Services Research/es [Ethics], Health Services Research/st [Standards], Humans, Hyde E, Khan D, Male, Middle Aged, Mitchell S J, Patient Participation/px [Psychology], Patient Participation/sn [Statistics & Numerical Data], Research Design/st [Standards], Research Personnel/es [Ethics], Research Personnel/px [Psychology], Research Personnel/st [Standards], Slowther A, United Kingdom
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, Adult, August 2020 List, Female, Fetal Diseases/diagnosis/*mortality, George T, Hospice, Humans, Infant, Journal of Palliative Medicine, Kamrath H J, Mothers/*psychology, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Palliative Care/*organization & Administration, Patient Care Planning/*organization & administration, Perinatal, Perinatal Care/*organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Fifteen-minute consultation: Not the whole story-considering children's spirituality and advance care planning
Tags: 2019, Adolescent, Adult, Advance Care Planning/*standards, Aldridge J, Archives of Disease in Childhood - Education and Practice, Attitude To Death, Attitude To Health, August 2020 List, Child, Clayton M, Family/*psychology, Female, Humans, Male, Middle Aged, Paediatric Practice, Palliative Care, Palliative Care/*psychology/*standards, Pediatrics/*standards, Practice Guidelines As Topic, Preschool, Spirituality, United Kingdom
Welcoming expertise: Bereaved parents' perceptions of the parent-healthcare provider relationship when a critically ill child is admitted to the paediatric intensive care unit
Tags: 2019, Adult, Australian Critical Care, Bereavement, Butler A E, Child, child and family wishes, Copnell B, Critical Illness -- Singapore, Death, Female, Grounded Theory, Hall H, Health Personnel Attitude, Hospital Mortality, Hospitalized, Humans, Intensive care unit-paediatric, Intensive Care Units Pediatric, Interviews As Topic, June 2020 List, Male, Nurse, Parents, Parents/*psychology, Pediatric, Professional-family Relations, Victoria
Bereaved mothers' and fathers' prolonged grief and psychological health 1 to 5 years after loss-A nationwide study
Tags: 2019, Adaptation, Adult, Attitude To Death, Child, Childhood Cancer, Depression, Depression/psychology, Fathers, Fathers/*psychology, Female, Grief, Humans, insomnia, Kreicbergs U, Male, May 2020 List, Mental Health/*statistics & numerical data, Middle Aged, Mothers, Mothers/*psychology, Parents/psychology, Pediatric Oncology, Pgd, Pohlkamp L, Posttraumatic stress, prolonged grief disorder, Psycho-Oncology, Psychological, Sveen J
Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study
Tags: 2020, Adolescent, Adult, Advance Care Planning, Article, Attention, Blume E D, Child, Clinical Article, Cousino M K, Cross-sectional Study, Decision Making, Female, heart graft, Human, Lowery R, Male, May 2020 List, Miller V A, Palliative Medicine, Patient Participation, Pilot Study, Prognosis, Rottach N, School Child, Schumacher K R, Smith C, Uzark K, Young Adult
Inter-Rater Reliability of the Phase of Illness Tool in Pediatric Palliative Care
Tags: 2020, Adult, Anderson A K, Article, Burke K, Child, Cohort Analysis, Controlled Study, Coombes L H, Feasibility Study, Female, Human, interrater reliability, Major Clinical Study, Male, May 2020 List, Palliative Therapy, pediatric patient, Petruckevitch A, Prospective Study, Reproducibility, The American journal of hospice & palliative care., Uncertainty
Evaluation of Comfort and Confidence of Neonatal Clinicians in Providing Palliative Care
Tags: 2018, Adult, Age Factors, April 2020 List, Chang Y C, Clinical Competence, confidence and comfort, Cross-sectional Studies, Educational Status, Female, Humans, Journal of Palliative Medicine, Lee H Y, Liang H F, Liu H F, Male, Marital Status, Neonatal Palliative Care, neonatal professional, Neonatology, Palliative Care, Peng N H, Self Concept, Social Support, Surveys And Questionnaires, Taiwan, Wang T M
Caregiver-reported impact on quality of life and disease burden in patients diagnosed with metachromatic leukodystrophy: Results of an online survey and a qualitative interview
Tags: 2020, Adolescent, Adult, April 2020 List, biomedical technology assessment, Bone Marrow Transplantation, Calcagni C, Caregiver, Child, Clinical Article, conference abstract, Controlled Study, Disease Burden, enzyme replacement, European Quality of Life 5 Dimensions Questionnaire, Female, Follow Up, France, Germany, Howie K, Human, Human Tissue, Infant, Institutional Review, Interview, investment, juvenile, Male, Metachromatic Leukodystrophy, Molecular Genetics and Metabolism, Multicenter Study, Palliative Therapy, Pang F, Patient Advocacy, Patient Care, preliminary data, Quality Of Life, Recall, Sample Size, Shapovalov Y, Walz M, Wellbeing, Wilds A
GPs' role in caring for children and young people with life-limiting conditions: a retrospective cohort study
Tags: 2020, accident, Adult, April 2020 List, Article, Attention, care behavior, Child, Clinical Article, Clinical Practice, Cohort Analysis, Consultation, England, Female, Fraser L K, general practice, Health Care Utilization, Hewitt C, Hospital Patient, Human, Icd-10, Jarvis S, Male, Mitchell S, Parslow R C, Patient Care, Primary Health Care, Read code, Retrospective Study, secondary health care, The British journal of general practice : the journal of the Royal College of General Practitioners.
Healthcare professionals' experiences of perinatal loss: A systematic review
Tags: 2019, Abortion, Adult, April 2020 List, Bernaudo A, Di Fini G, Female, Gandino G, Health Personnel/*psychology, Healthcare Professionals, Humans, Infant, Journal Of Health Psychology, Maternal Health Services/*manpower, neonatal units, Newborn, Perinatal Death, Perinatal Loss, Pregnancy, psychological experiences, Spontaneous/*psychology, Stillbirth, Stillbirth/*psychology, Vanni I, Veglia F
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Tags: 2020, Adult, Blume E, Cardiology, Caucasian, Child, Cohort Analysis, conference abstract, Controlled Study, Conversation, Decision Making, Expectation, Female, Feraco A, Goldberg S, heart single ventricle, high school, Hospitalization, Hospitalized Child, Human, Infant, Intubation, Journal of Pain and Symptom Management, Length Of Stay, Major Clinical Study, Male, March 2020 List, married person, Medical Record Review, Miller M K, Morell E, Mother, Prognosis, Prospective Study, pulmonary hypertension, pulmonary vein stenosis, Recall, Reichman J, Sahakian L, Sleeper L, Young Adult
Symptoms and Suffering at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions (S756)
Tags: 2020, Adult, Central Nervous System, Child, Chromosome, Chronic Disease, conference abstract, Data Analysis, DeCourcey D, Dyspnea, Female, Human, Journal of Pain and Symptom Management, Kao P C, Ma C, Major Clinical Study, Male, March 2020 List, Marcus K, Medical Technology, Pain, Prospective Study, Wolfe J, Young Adult
Telemedicine: the Pediatric Palliative Perspective (FR476)
Tags: 2020, Adult, Aggression, Bower K A, California, Child, Clinical Article, clinical assessment, conference abstract, Current Procedural Terminology, Drug Safety, Female, Human, Journal of Pain and Symptom Management, Kuelker A, laptop, logging, Male, Marc-Aurele K L, March 2020 List, Medicaid, Nurse, Palliative Therapy, Patient Comfort, physical examination, Stevens V, Telemedicine, vital sign, Young Adult
Mothers of angels: (re)living the death of the child as a coping strategy
Tags: 2020, Adult, Anna Nery School Journal of Nursing / Escola Anna Nery Revista de Enfermagem, Attitude To Death, Child, Coping, Data Analysis Software, de Azevedo Mazza V, Death -- In Infancy and Childhood, Descriptive Research, Exploratory Research, Focus Groups, Gramazio Soares L, Hardiness, Human, Kuchla É, March 2020 List, Mother-child Relations, Mothers -- Psychosocial Factors, Padilha Mattei A, Qualitative Studies, Raimondo Ferraz M I, Thematic Analysis
National Institute of Nursing Research and MedlinePlus Team Up to Offer a Palliative Care Text Campaign (QI632)
Tags: 2020, Adult, Burroughs A, Child, conference abstract, Coppess S, E-mail, Human, Journal of Pain and Symptom Management, Lemon A, March 2020 List, Mental Health, Miller J, national health organization, Nursing Research, Palliative Therapy, pediatric patient, transcription initiation, videorecording, Wellbeing
Trends in the aggressiveness of pediatric cancer near the end-of-life
Tags: 2018, Adult, aggressiveness, Artificial Ventilation, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Death, Diagnosis, Female, Fushimi K, Hematologic Malignancy, Human, Intubation, Japan, Major Clinical Study, Male, Matsumoto K, Oncology 2019 List, Pediatric Blood and Cancer, Resuscitation, School Child, Shinjo D, Terminal Care, Yotani N, Young Adult
Vulnerable Populations Receiving Palliative Radiation in a Children's Hospital: Reporting on the Underreported
Tags: 2019, Adult, Anesthesia, Asia, cancer radiotherapy, Central Nervous System Tumor, Child, conference abstract, Controlled Study, Death, electronic medical record, employer, Female, Follow Up, fraud, housing, Human, Hwang L, immigration, International Journal Of Radiation Oncology Biology Physics, Lee H J, Liu K X, lowest income group, Major Clinical Study, Male, Medical Record Review, Mental Stress, Neuroblastoma, Olch A J, Oncology 2019 List, Organization, Pain, Poverty, race, radiation oncologist, Radiotherapy, Retrospective Study, Rhabdomyosarcoma, School Child, South and Central America, Terminal Care, vulnerable population, Wong K, Young Adult
"It Could Have Been Me": An Interpretive Phenomenological Analysis of Health Care Providers' Experiences Caring for Adolescents and Young Adults with Terminal Cancer
Tags: 2019, Adult, Article, Canada, Clinician, Controlled Study, Drake E K, Health Care Delivery, Health Care Personnel, Human, Journal of adolescent and young adult oncology., Nurse, Oncology 2019 List, Semi Structured Interview, Terminal Care, Tutelman P R, Uncertainty, Urquhart R, Wellbeing, Young Adult
The 'good death' in pediatric oncology
Tags: 2019, Adult, Advanced Cancer, advanced practice provider, Aged, avoidance behavior, Barton K, Childhood Cancer, Clergy, Clinical Article, Cohort Analysis, conference abstract, Content Analysis, Controlled Study, Female, genetic transcription, Human, Male, Medical Staff, music, Oncology 2019 List, Pediatric Blood and Cancer, Pediatric Hospital, physiotherapist, Prospective Study, Rosenberg A, Semi Structured Interview, Software, sudden death, Taylor M, Terminal Care, Young Adult
Legacy Artwork in Pediatric Oncology: The Impact on Bereaved Caregivers' Psychological Functioning and Grief
Tags: 2019, Adolescent, Adult, Article, Barnett M, Bereavement, Brief Symptom Inventory, Caregiver, Child, Childhood Cancer, Clinical Article, Complicated Grief, Controlled Study, Female, Grief, Health Care Personnel, Human, Infant, Journal of Palliative Medicine, Madan-Swain A, Male, mental function, Oncology 2019 List, Perception, prolonged grief, Questionnaire, Reynolds N C, Schaefer M R, Spencer S K, support group, time of death
End-of-Life Communication Needs for Adolescents and Young Adults with Cancer: Recommendations for Research and Practice
Tags: 2019, Adolescent, Adult, Article, Cohn R J, Controlled Study, Conversation, face cancer, Fardell J E, Human, Journal of adolescent and young adult oncology., Narrative, Oncology 2019 List, Pain, Palliative Therapy, Patterson P, Rosenberg A R, Sansom-Daly U M, Terminal Care, Wakefield C E, Wiener L, Young Adult
Barriers to Palliative Care in Pediatric Oncology in Switzerland: A Focus Group Study
Tags: 2019, Adult, Article, Awareness, Child, Childhood Cancer, Clinical Article, Controlled Study, De Clercq E, Education, Elger B, Female, Human, Journal Of Pediatric Oncology Nursing, Male, Nurse, Oncologist, Oncology 2019 List, outpatient care, Palliative Therapy, personnel shortage, Politics, Qualitative Research, Rakic M, Reimbursement, Rost M, Social Worker, Switzerland, Thematic Analysis, Wangmo T
End-of-life care among adolescent and young adult patients with cancer living in poverty
Tags: 2019, Adolescent, Adult, Article, Bakitas M, Cancer, Cancer Patient, Cancer Therapy, Controlled Study, Currie E R, Female, Friedman S, Gilbertson-White S, Hospice, Hospital Patient, Human, Insurance, Lindley L C, lowest income group, Mack J W, Male, Medical Record, Multicenter Study, Oncology 2019 List, Palliative Therapy, Patient Referral, Poverty, Retrospective Study, Roeland E J, Saeidzadeh S, Statistical Significance, Terminal Care, Young Adult
High-intensity end-of-life care among children, adolescents, and young adults with cancer who die in the hospital: A population-based study from the French national hospital database
Tags: 2019, Adolescent, Adolescents, Adult, Andre N, Article, Auquier P, Baumstarck K, Bernard C, Boyer L, Cancer, Cancer Chemotherapy, Cancer Diagnosis, Cancer Patient, Child, Children, Cohort Analysis, Controlled Study, Emergency Care, Emergency Ward, End Of Life, Female, Fond G, France, Gentet J C, Hematologic Malignancy, Hospitalization, Human, Intensive Care Unit, Major Clinical Study, Male, Michel G, Multicenter Study, Oncology 2019 List, Orleans V, outcome assessment, Palliative Care, Palliative Therapy, Pauly V, Retrospective Study, Revon-Riviere G, Seyler C, Terminal Care, time of death, Young Adult, Young Adults
Medication utilization for symptom management by pediatric inpatients with cancer at end-of-life
Tags: 2019, Adult, anxiety, Benzodiazepine, Black person, Cancer Patient, Child, Childhood Cancer, conference abstract, Controlled Study, Davidoff A, Death, Decision Making, do not resuscitate order, Drug Therapy, Ethnicity, Female, Gender, Hospital Patient, Hospitalization, Human, Length Of Stay, Major Clinical Study, Male, manager, Massaro S, Medicaid, Multicenter Study, Nausea, Oncology 2019 List, Opiate, Pain, patient history of bone marrow transplantation, Pediatric Blood and Cancer, pediatric patient, Prozora S, Recipient, Retrospective Study, Shabanova V, solid malignant neoplasm, tumor diagnosis, University Hospital, Young Adult
Medical marijuana use for pediatric oncology patients: single institution experience
Tags: 2019, Adolescent, Adult, Adverse Drug Reaction, anxiety, Article, Bar-Sela G, burn, Cancer Patient, Cancer Therapy, Child, Childhood Cancer, Clinical Article, Drug Safety, Drug Therapy, Female, Human, Male, medical cannabis, Medical Marijuana, microcapsule, Mood, Nausea And Vomiting, Ofir R, Oncology 2019 List, Pain, Palliative Therapy, Pediatric Hematology and Oncology., Pediatric Oncology, Postovsky S, prescription, Side Effect, Sleep, smoke, Smoking, Supportive Care, throat, vaporization, Weyl Ben-Arush M, Young Adult
Utilizing a collaborative learning activity to sensitize interprofessional students to palliative care scopes of practice with adolescent and young adults
Tags: 2019, Adult, Article, collaborative learning, Education, graduate student, Health Care Personnel, Human, Interprofessional Relations, Interview, Jones B, Journal Of Interprofessional Care, Linton B, Lippe M, Malignant Neoplasm, Oncology, Oncology 2019 List, Palliative Care, Palliative Therapy, Professional, Professional Role, public relations, responsibility, Scope Of Practice, vulnerable population, Young Adult