Browse Items · Pediatric Palliative Care Library

Adolescents in transition of adult care: why the concern?

This article has described issues associated with transition planning for youth with CHD. A number of approaches have been described to address the needs of this growing number of youth with CHD. Transition to adulthood has been and will continue to…

Chronic illness in adolescents: transfer or transition to adult services?

It is widely believed that the improved survival of young people with chronic diseases will be associated with the development of appropriate services within the adult healthcare domain. There is, however, little evidence to suggest that this is…

Tags: 1997, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Australia, Backlog, Blair S, Bowes G, Case Management/standards, Chronic Disease/therapy, Humans, Journal Article, Journal of Paediatrics and Child Health, Patient Transfer/organization & administration, Pediatrics/methods, Primary Health Care/organization & administration, Sawyer SM

Cudahy high school survey and focus groups: assessment of the needs of a teen population. A community-campus collaboration

Collaboration between local public health agencies and university schools of nursing can be advantageous to both parties. Students need opportunities to learn aggregate-based care; health officers need community partnerships that expand their…

Development and preliminary validation of the 'Mind the Gap' scale to assess satisfaction with transitional health care among adolescents with juvenile idiopathic arthritis

BACKGROUND: To develop a scale to assess satisfaction with transitional health care among adolescents with a chronic illness and their parents. METHODS: The 'Mind the Gap' scale was developed using evidence from a previous needs assessment, in three…

Educate, communicate, anticipate-practical recommendations for transitioning adolescents with IBD to adult health care

The cyclical nature of chronic illness requires that children with inflammatory bowel disease be transitioned to the adult medical system with as much continuity of care as possible. Transition from pediatric to adult medical care continues to…

GPs provide valuable continuity during age transition

2006

Tags: 2006, Adolescent, Adolescent Health Services/organization & administration, Backlog, Bmj, Brown M, Child, Child Health Services/organization & administration, Continuity Of Patient Care/organization & Administration, Family Practice, Humans, Journal Article, McKinstry B, PedPal Lit, Simm EA

Growing up and moving on: transition from pediatric to adult care

The development of transitional care is one of the major challenges for the twenty-first century as the survival rates and medical outcomes for child and adolescent recipients of transplants continue to improve. Such developments must include both…

Tags: 2005, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Communication, Continuity Of Patient Care/organization & Administration, Counseling, Humans, Journal Article, McDonagh JE, Models, Organ Transplantation, Organizational, Parenting, Pediatric Transplantation

Health care transition: youth, family, and provider perspectives

OBJECTIVE: This study examined the process of health care transition (HCT) posing the following questions: What are the transition experiences of youths and young adults with disabilities and special health care needs, family members, and health care…

Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care

Transition is a process that attends to the medical, psychosocial and educational needs of young people as they transfer to adult-orientated care. With a growing population of adolescents surviving with chronic illness well into adulthood, it is…

Lost in transition? Between paediatric and adult services

2006

Tags: 2006, Adolescent, Adolescent Health Services/organization & administration, Backlog, Bmj, Child, Continuity Of Patient Care, Great Britain, Humans, Journal Article, McDonagh JE, Pediatrics, PedPal Lit, Viner RM

Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views

Although general principles guiding the transition of individuals with chronic illness from pediatric to adult care have been established, guidelines specific for the transition of individuals with cystic fibrosis (CF) have not. To aid in the…

The ON TRAC model for transitional care of adolescents

This article describes the framework and clinical pathway for ON TRAC (Taking Responsibility for Adolescent/Adult Care), a model of transition care for adolescents with chronic health conditions, as applied to pediatric transplant transition. This…

Tags: 2006, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Backlog, Child, Continuity Of Patient Care/organization & Administration, Critical Pathways, Humans, Journal Article, Models, Organ Transplantation/psychology, Organizational, Paone MC, Patient Care Planning/organization & administration, Progress In Transplantation (aliso Viejo, Calif.), Saewyc E, Wigle M

Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease

Pediatric providers can expect that 1 of every 10 patients they see will have a chronic, activity-limiting health condition. Thanks to earlier diagnosis and improved therapies, most of these children will live well into adulthood. This means that…

Transition of care from child to adult mental health services: the great divide

PURPOSE OF REVIEW: Adolescents with mental health problems often require transition of care from child and adolescent to adult mental health services. This review is a synthesis of current research and policy literature on transition to describe the…

Transition to adult services for children and young people with palliative care needs: a systematic review

OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS:…

Young people's satisfaction of transitional care in adolescent rheumatology in the UK

BACKGROUND: To examine the quality of transitional health care from the perspectives of young people with juvenile idiopathic arthritis (JIA) and their parents. METHODS: Adolescents with JIA and their parents were recruited from 10 major UK…

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