Browse Items (984 total)
- Tags: Adolescent
Youth With Chronic Conditions and Risky Behaviors: An Indirect Path
Tags: 2018, Adolescent, Akre C, Article, Barrense-Dias Y, Berchtold A, Chronic Disease, Controlled Study, daily life activity, December 2018 List, Eating, Education, Female, gambling, Gubelmann A, Health Status, high risk behavior, Human, internet addiction, Journal of Adolescent Health., juvenile, Major Clinical Study, Male, Newman CJ, psychological adjustment, statistical analysis, structural equation modeling, Student, substance use, Suris J C, vision, Wellbeing
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Young people's satisfaction of transitional care in adolescent rheumatology in the UK
Tags: 2007, Adolescent, Adolescent Health Services/organization & administration, Adolescent Rheumatology, Adolescent Transitions, Adult, Arthritis, Backlog, British Society of Paediatric, Child, Child: Care, Health and Development, Chronic Disease, Cohort Studies, Continuity Of Patient Care/organization & Administration, Female, Great Britain, Humans, Journal Article, Juvenile Rheumatoid/psychology/rehabilitation, Male, McDonagh JE, Parents, Patient Satisfaction, Program Development, Quality Of Life, Questionnaires, Self Care/methods, Shaw KL, Sickness Impact Profile, Southwood TR
Young people with chronic illness: the approach to transition
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Age Factors, Australia, Backlog, Chronic Disease, Continuity Of Patient Care/organization & Administration, Delivery of Health Care/organization & administration, Douglass JA, Humans, Internal Medicine Journal, Journal Article, Kennedy A, Pediatrics, Sawyer SM, Self Care, Sloman F
Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood
Tags: 2006, Adolescent, Adolescent Transitions, Adult, Backlog, Chronic Disease, Chronic/complications/psychology/rehabilitation, Deurloo JA, Esophageal Atresia/complications/psychology/rehabilitation, Grootenhuis MA, Groothoff J, Hartman EE, Health Status, Hirschsprung Disease/complications/psychology/rehabilitation, Humans, Journal Article, Kidney Failure, Life Change Events, Neoplasms/complications/psychology/rehabilitation, Netherlands, Peer Group, Quality Of Life, Risk-Taking, Stam H, Survivors, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine
Withholding or termination of resuscitation in pediatric out-of-hospital traumatic cardiopulmonary arrest
Tags: 2014, Adolescent, American Academy of Pediatrics Committee on Pediatric Emergency Medicine, American College of Surgeons Committee on Trauma, Annals Of Emergency Medicine, Backlog, Cardiopulmonary Resuscitation, Child, Fallat ME, Humans, Journal Article, National Association of EMS Physicians, Out-of-Hospital Cardiac Arrest, Pediatric Emergency Medicine Committee - American College of Emergency Physicians, Resuscitation Orders, Thoracotomy, Wounds and Injuries
Withdrawal of ventilatory support outside the intensive care unit: guidance for practice
Tags: 2014, Adolescent, Archives of Disease in Childhood, Backlog, Bluebond-Langner M, Brierley J, Child, Craig F, Female, Guildlines, Humans, Infant, Intensive Care Units, Journal Article, Kelly P, Laddie J, Male, Mechanical, Newborn, Paediatric Intensive Care (PICU), Palliative Care, Pediatric, Place Of Death, Practice Guidelines As Topic, Preschool, Resuscitation Orders, Retrospective Studies, Ventilators
Withdrawal and limitation of life-sustaining treatments in a paediatric intensive care unit and review of the literature.
Tags: 2008, Adolescent, Backlog, Child, Gillis J, Hospital Mortality, Hospitals, Humans, Infant, Intensive Care Units, Isaacs D, Jacobe S, Journal Article, Journal of Paediatrics and Child Health, Kerridge I, Medical Audit, Medical Futility, Moore P, New South Wales, Pediatric/statistics & Numerical Data, Physician's Practice Patterns/statistics & numerical data, Preschool, Retrospective Studies, Terminal Care, Withholding Treatment/statistics & Numerical Data
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families
Tags: 2015, Adolescent, Backlog, Brown E, Chambers L, Chesworth B, Child, Child Health Services, Children’s participation, Coad J, Disabled Children, Family, Focus Groups, Hacking S, Health Services Needs And Demand, Health Services Research, Humans, Hunt A, Interviews As Topic, Journal Article, Journal Of Child Health Care, Palliative Care, Quality Of Care, Referral And Consultation, Staniszewska S
Who Will Speak for Me? Disparities in Palliative Care Research with "unbefriended" Adolescents Living with HIV/AIDS
Tags: 2017, Adolescent, Adult, City, Clinical Trial, Controlled Study, D'Angelo LJ, December 2017 List, Female, Houston PE, Human, Human Dignity, Human Immunodeficiency Virus, Journal of Palliative Medicine, Justice, Kimmel AL, Lee BC, Lyon ME, Major Clinical Study, Male, Medical Decision Making, Mortality, Multicenter Study, Nonhuman, Palliative Therapy, Pediatric Hospital, Rana SR, Randomized Controlled Trial, Single Blind Procedure, Stigma
Who are the children using hospice care?
Tags: 2014, Adolescent, April 2019 List, California, Child, Child Preschool, Female, Health Services Needs and Demand/og [Organization & Administration], Health Services Needs and Demand/sn [Statistics & Numerical Data], Hospice Care/mt [Methods], Hospice Care/sn [statistics & Numerical Data], Humans, Infant, Infant Newborn, Journal for Specialists in Pediatric Nursing, Lindley LC, Male, Neuromuscular Diseases/nu [Nursing], Nurse-patient Relations, Palliative Care/mt [methods], Palliative Care/sn [Statistics & Numerical Data], Pediatric Nursing/mt [methods], Pediatric Nursing/sn [Statistics & Numerical Data], Professional-family Relations, Shaw SL, Socioeconomic Factors, Young Adult
Which children and young people are at higher risk of severe disease and death after hospitalisation with SARS-CoV-2 infection in children and young people: A systematic review and individual patient meta-analysis
Tags: 2022, Adolescent, April 2022 List, Child, Chronic Condition, Clark M, COVID-19, Davis PJ, Draper ES, EClinicalMedicine, Fraser LK, Harwood R, Hospitalisation, Intensive Care, Kenny SE, Linney M, Luyt K, Meta-Analysis, Mortality, risk factor, Saatci D, SARS-CoV-2, severity, Smith C, Systematic Review, Talawila Da Camara N, Tudur-Smith C, Viner RM, Ward J, Whittaker E, Yan H
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
Tags: 2002, Adolescent, Backlog, Cause Of Death, Child, Christakis DA, Chronic Disease/mortality, Female, Feudtner C, Humans, ICU Decision Making, Infant, Journal Article, Location Of Death, Male, Newborn, P.H.S., Pediatrics, Preschool, Research Support, Retrospective Studies, Silveira MJ, Survival Analysis, U.S. Gov't, Washington/epidemiology
When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices
When a child becomes terminal: Discrepant adolescent and parent perspectives on discussing a terminal prognosis with adolescents with cardiomyopathy, heart failure, and heart transplant
Tags: 2018, Adolescent, Advance Care Planning, Cancer Prognosis, Cardiomyopathy, Child, Circulation. Conference, Cohen H, conference abstract, Controlled Study, Conversation, Death, Edwards L A, Halpern-Felsher B, Hansen K, Heart Failure, heart graft, Human, June 2019 List, Kaufman B, Luong R, Malignant Neoplasm, Outpatient, Perception, Prognosis, School Child, Yohannes K
What's Missing in Missing Data? Omissions in Survey Responses among Parents of Children with Advanced Cancer
Tags: 2014, Adolescent, Adult, Backlog, Disease Progression, Dussel V, Female, Feudtner C, Geyer JR, Humans, Journal Article, Journal of Palliative Medicine, Kang TI, Life Expectancy, Male, Neoplasms, Orellana L, Parents, prog, Prognosis, Quality Of Life, Questionnaires, Research, Rosenberg AR, surveys, Wolfe J
What influences parents' decisions to limit or withdraw life support?
Tags: 2005, Adolescent, Adult, Attitude To Death, Backlog, Child, Decision Making, Emotions, Female, Humans, ICU Decision Making, Infant, Journal Article, Life Change Events, Life Support Care/psychology, Male, Meert KL, Middle Aged, Parents/psychology, Pediatric Critical Care Medicine, Pilot Projects, Preschool, Prospective Studies, Sarnaik AP, Sharman M, Withholding Treatment
What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis
Tags: 2023, Adolescent, Adverse Drug Reaction, Aged, Article, Burgess A, Child, Child Parent Relation, Controlled Study, Disability, Drug Therapy, February List 2024, Female, Health Care System, Health Expectations, Hospital care, Human, Intellectual Impairment, Interpersonal Communication, Interview, kindness, Long J, Lucien A, Male, Ong N, Palliative Therapy, Parent, Patient Safety, Pediatric Hospital, Preschool Child, Qualitative Research, School Child, Semi Structured Interview, Side Effect, special situation for pharmacovigilance, Thematic Analysis, Walton M, Weise J
What constitutes 'good quality care' from the perspectives of children and young people with life-limiting and life-threatening conditions?
Tags: 2023, Adolescent, Archives of Disease in Childhood, Braybrook D, Bristowe K, Child, Clinical Article, conference abstract, Conversation, Coombes L, developmental stage, Female, Fraser L, genetic transcription, Harding R, Haroardottir D, Hospital Patient, Human, Male, Malignant Neoplasm, Nervous System, October List 2029, Only Child, Outpatient, Preschool Child, Scott HM, Semi Structured Interview, Social Care
Was there a plan? End-of-life care for children with life-limiting conditions: a review of multi-service healthcare records
Tags: 2014, Adolescent, Advance Directives, advance planning, Backlog, Beringer AJ, Child, child and family wishes, Child: Care, Health and Development, Communication, Decision Making, DNAR, Documentation, End Of Life, Female, Heckford EJ, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Neoplasms/mo [mortality], Parents, Parents/px [psychology], Patient Care Planning/og [Organization & Administration], Patient Care Planning/st [Standards], Pediatrics, Physician-patient Relations, Practice Guidelines As Topic, Preschool, Quality Of Life, Resuscitation Orders, Retrospective Studies, Review, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology], Time Factors
Volunteer Activity In Specialist Paediatric Palliative Care: A National Survey
Tags: 2015, Adolescent, Adult, BMJ Supportive & Palliative Care, Bravery R, Burbeck R, Candy B, Cross-sectional Study, England, Female, Health Care Survey, Home Care, Hospice, Hospice Care, Hospital Volunteer, Human, Internet, Low J, Male, Organization And Management, Palliative Therapy, Pediatrics, Procedures, Questionnaire, Sampson E L, Scott R, September 2017 List, Specialization, Statistics And Numerical Data, Young Adult
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
Views and experiences of young people, their parents/carers and healthcare professionals of the advance care planning process: A summary of the findings from a qualitative study
Variables influencing end-of-life care in children and adolescents with cancer
Tags: 2001, Adolescent, Adult, Backlog, Cause Of Death, Child, Clark C, Death and Euthanasia, Decision Making, Empirical Approach, Female, home care services, Hospice Care, Humans, Hutchison C, Infant, Journal Article, Journal Of Pediatric Hematology/oncology, Klopfenstein KJ, Location Of Death, Male, Neoplasms/complications/therapy, Preschool, Resuscitation Orders, Ruymann FB, Terminal Care/trends, Withholding Treatment, Young D
Validation of the Non-communicating Children's Pain Checklist-Postoperative Version
Tags: 2002, Adolescent, Anesthesiology, Backlog, Behavior/physiology, Breau LM, Camfield CS, Caregivers, Child, Communication, Facial Expression, Female, Finley GA, Humans, Journal Article, Male, McGrath PJ, Mental Retardation/psychology, Motor Activity, Non-U.S. Gov't, Nurses, Observer Variation, Pain, Pain Measurement/methods/standards, Postoperative/diagnosis, Predictive Value of Tests, Research Support, Social Behavior
Utilization of palliative care in pediatric oncology: An interprofessional evaluation of knowledge, beliefs, perceived barriers, and involvement of services
Tags: 2017, Adolescent, Bell C, Child, Childhood Cancer, Controlled Study, Data Analysis Software, Diagnosis, Diver J, Doctor Patient Relation, E-mail, Family, Female, Hematology, Human, Male, Nurse, Oncology 2017 List, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, Prince-Paul M, Professional Standard, Toly V
Utilization and costs for children who have special health care needs and are enrolled in a hospital-based comprehensive primary care clinic
Tags: 2005, Adolescent, Backlog, Berman S, Child, Cohort Studies, Colorado, Costs And Cost Analysis, Disabled Children, Dryer LJ, Elias E, Exceptional, Female, Health Expenditures, Health Maintenance Organizations/economics/utilization, Health Resources/statistics & numerical data, Health Services Needs and Demand/economics, Hospital Costs, Hospital Departments/economics/utilization, Hospital/economics/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Inpatients, Jones MD, Journal Article, Laboratories, Male, Medicaid/economics/utilization, Medical/economics, Moore L, Needs Assessment/economics, Newborn, Outpatient Clinics, Outpatients, Pediatric/economics/organization & administration, Pediatrics, Preschool, Primary Health Care/economics/utilization, Rannie M, Specialties
Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Tags: 2009, Adolescent, Adult, Armfield NR, Australia, Backlog, Barnett AG, Bensink ME, Child, Computer Communication Networks/economics, Computer Security, Continuity Of Patient Care, Cost-Benefit Analysis, Early Termination of Clinical Trials, Female, Hallahan A, Health Services Accessibility/economics, Home Care Services/economics, Humans, Irving H, Journal Article, Male, Neoplasms/therapy, Palliative Care, Palliative Medicine, Parents/psychology, Patient Acceptance of Health Care, Patient Satisfaction, Pinkerton R, PPC Book Chapter 2011 (Kim Widger), Preschool, Rural Health Services/economics, Russell T, Scuffham P, Telemedicine/economics/instrumentation/methods, Theodoros DG, Videoconferencing/economics/instrumentation, Wootton R
Using Photo-Elicitation Interviews With Families of Children and Adolescents With Chronic Illness
Using drugs to end life without an explicit request of the patient
Tags: 2007, 80 And Over, Adolescent, Adult, Aged, Assisted/ethics/legislation & jurisprudence/psychology, Backlog, Belgium, Bilsen J, Death studies, Decision Making, Denmark, Ethics, Euthanasia/ethics/legislation & jurisprudence/psychology, Female, Fischer S, Humans, Informed Consent, Intention, Journal Article, Male, Medical, Mental Competency/legislation & jurisprudence, Miccinessi G, Middle Aged, Netherlands, Norup M, Onwuteaka-Philipsen BD, Patient Participation/legislation & jurisprudence/psychology, Physician's Practice Patterns/ethics, Questionnaires, Rietjens JA, Suicide, Switzerland, Terminal Care/ethics/legislation & jurisprudence/psychology, van der Heide A, van der Maas PJ, van der Wal G, Vrakking AM
Use of standardized body composition measurements and malnutrition screening tools to detect malnutrition risk and predict clinical outcomes in children with chronic conditions
Tags: 2020, Adolescent, American Journal of Clinical Nutrition, Anthropometry, Body Composition, Child, Child Preschool, Child Development, Child Nutrition Disorders/diagnosis, Chronic Disease, Clinical outcomes, Fawbert K, Female, Fewtrell M, Hill S, Humans, Kennedy K, Lara-Pompa NE, Macdonald S, Male, malnutrition, March 2021 List, nutritional risk, pediatric patients, Risk Factors, Screening, Shaw V, Valente J, Wells JC, Williams J
Use of patient-controlled analgesia for pain control in dying children
Tags: 0 (analgesics Opioid), 2008, 76I7G6D29C (Morphine), Adolescent, Analgesia Patient-Controlled, Analgesics Opioid/ad [Administration & Dosage], Analgesics Opioid/tu [Therapeutic Use], Child, Child Preschool, Female, Gravou C, Griessinger N, Humans, January 2018 List, Male, Morphine/ad [Administration & Dosage], Morphine/tu [Therapeutic Use], Neoplasms/pp [Physiopathology], Pain Intractable/dt [Drug Therapy], Pain Measurement, Palliative Care, Retrospective Studies, Schiessl C, Sittl R, Supportive Care In Cancer, Terminal Care, Treatment Outcome, Zernikow B
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult
Use of health services by chronically ill and disabled children
Tags: 1984, Adolescent, Backlog, Breslau N, Child, Child Health Services/utilization, Chronic Disease, Dental Health Services/utilization, Disabled Persons, Gortmaker S, Hospitalization, Humans, Journal Article, Medical Care, Mental Health Services/utilization, Occupational Therapy/utilization, Ohio, Physical Therapy Modalities/utilization, Physicians/utilization, Preschool, Process Mapping, School Nursing, Smyth-Staruch K, Social Work/utilization, Socioeconomic Factors, Speech Therapy/utilization, Statistics as Topic, Weitzman M
Use Of Buccal Fentanyl As A Breakthrough Opioid For Symptom Management In Patients Receiving Palliative Care
Tags: 2023, absence of side effects, Adolescent, Archives of Disease in Childhood, Box D, buccal drug administration, Case Study, Child, Clinical Article, conference abstract, drug megadose, Drug Therapy, Dyspnea, Female, Fentanyl, Hain R, Hills M, Hospice, Human, Male, maximum permissible dose, mouth cavity, Neurologic Disease, October List 2032, Opiate, Pain, Palliative Care, Palliative Therapy, Retrospective Study, Taylor N, Woods S
Use of bisphosphonate therapy for osteoporosis in childhood and adolescence
Tags: 2003, Adolescent, Backlog, Batch JA, Bone Density, Child, Clodronate, Couper JJ, Cowell CT, Densitometry, Diphosphonates/adverse effects/therapeutic use, Dose-Response Relationship, Drug, Drug Administration Schedule, Female, Follow-up Studies, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Osteoporosis/diagnosis/drug therapy, Preschool, Risk Assessment, Rodda C, Severity Of Illness Index, Treatment Outcome, X-Ray, Zacharin M
Use of a clinical pathway to improve the acute management of vaso-occlusive crisis pain in pediatric sickle cell disease
Tags: 2014, Adolescent, Adult, Analgesics, Anemia, Arterial Occlusive Diseases, Babineau J, Backlog, Child, Critical Pathways, Ender KL, Female, Follow-up Studies, Humans, Infant, Journal Article, Kharbanda A, Krajewski JA, Male, Pain, Pain Management, Pediatric Blood & Cancer, Preschool, Prognosis, Prospective Studies, Saroyan JM, Schechter W, Sickle Cell, Tertiary Care Centers, Tresgallo M, Young Adult
Unilateral closed-lip schizencephaly and epilepsy: a comparison with cases of unilateral polymicrogyria
Tags: 2004, Adolescent, Adult, Backlog, Brain & Development, Brain/abnormalities/pathology, Caraballo RH, Cersosimo RO, Child, Electroencephalography, Epilepsy/pathology, Fejerman N, Female, Follow-up Studies, Frontal Lobe/pathology, Gait Disorders, Humans, Infant, Journal Article, Magnetic Resonance Imaging, Male, Neurologic/complications/pathology, Preschool, Q3 Scoping Review Results, Temporal Lobe/pathology, Tomography, X-Ray Computed
Understanding sleep-wake behavior and sleep disorders in children: the value of a model
Tags: 2006, Adolescent, Adolescent Behavior/physiology, Age Factors, Backlog, Behavior/physiology, Biological, Child, Child Behavior/physiology, Circadian Rhythm/physiopathology, Comprehension/physiology, Crying, Current Opinion In Psychiatry, Homeostasis, Humans, Infant, Infant Behavior/physiology, Jenni OG, Journal Article, LeBourgeois MK, Models, Predictive Value of Tests, Preschool, Sleep Disorders, Sleep Disorders/physiopathology, Sleep/physiology, Time Factors, Wakefulness/physiology