Browse Items (984 total)
- Tags: Adolescent
Progressive sensorineural hearing loss in children with mitochondrial encephalomyopathies
Tags: 2001, Acoustic Impedance Tests, Acoustic/ph [Physiology], Adolescent, Adult, Audiometry, Auditory, Backlog, Brain Stem/ph [Physiology], Child, Evoked Potentials, Female, Friedreich Ataxia/di [Diagnosis], Friedreich Ataxia/pp [Physiopathology], Hearing Loss, Humans, IM, Journal Article, Kearns-Sayer Syndrome/di [Diagnosis], Kearns-Sayer Syndrome/pp [Physiopathology], Laryngoscope, Longitudinal Studies, Male, MELAS Syndrome/di [Diagnosis], MELAS Syndrome/pp [Physiopathology], Mitochondrial Encephalomyopathies/di [Diagnosis], Mitochondrial Encephalomyopathies/pp [Physiopathology], Otoacoustic Emissions, Preschool, Pure-Tone, Reflex, Sensorineural/di [Diagnosis], Sensorineural/pp [Physiopathology], Speech, Spontaneous/ph [Physiology], Wilichowski E, Zwirner P
Anti-parkinson drugs in the Batten-Spielmeyer-Vogt syndrome; a pilot trial
Tags: 1982, Adolescent, Adult, amantadine, Amantadine/therapeutic use, Antiparkinson Agents/therapeutic use, Benserazide/therapeutic use, Clinical Neurology and Neurosurgery, Drug Combinations/therapeutic use, Humans, Levodopa/therapeutic use, Lipidoses/drug therapy, madopar, NCL3, orfenadrine, pharmacologic intervention, Psychoses Substance-Induced/etiology, Syndrome, tone and motor problems, van der Zee H J, van Nieuwenhuizen O, Zweije-Hofman I L
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Tags: 103-90-2 (paracetamol), 2018, Adolescent, Aebi C, Ansari M, Article, Baer R, Bergstraesser E, Bernet V, Bmc Pediatrics, Brazzola P, Bucher HU, Buder R, Cagnazzo S, Cardiology, Cause Of Death, Child, Child Care, Child Death, Cignacco E, Cohort Analysis, community care, Dinten B, Dorsaz A, Drug Use, Elmer F, Engberg S, Enriquez R, Eskola K, Fahrni-Nater P, Female, Finkbeiner G, Frey B, Frey U, Greiner J, Hassink RI, Health Care Utilization, Home Care, Hospital Admission, Human, Infant, Intensive Care Unit, invasive procedure, Keller S, Kretschmar O, Kroell J, Laubscher B, Leibundgut K, Length Of Stay, Life Sustaining Treatment, Major Clinical Study, Malaer R, Male, Medical Record Review, Meyer A, narcotic analgesic agent, Nelle M, Neonatology, Neuhaus T, Neurology, Newborn, Niggli F, October 2018 List, Oncology, Paracetamol, Perrenoud G, Pfammatter JP, Plecko B, Popovic MB, Ramelet AS, Resuscitation, Retrospective Study, Rupf D, Sennhauser F, September 2018 List, Stade C, Steinlin M, Stoffel L, Stuessi C, Switzerland, Terminal Care, Thomas K, Treatment Withdrawal, Von der Weid N, von Vigier R, Vonarburg C, Wagner B, Wernz B, Wieland J, Zimmermann K
Physician Decision-Making Process about Withholding/Withdrawing Life-Sustaining Treatments in Paediatric Patients: A Systematic Review of Qualitative Evidence
Pediatric Palliative Care for Children with Cancer in a Children's Tertiary Hospital in China: Six-Year Experience of a Pediatric Palliative Care Service
Childhood idiopathic thrombocytopenic purpura in the Nordic countries: epidemiology and predictors of chronic disease
Tags: 2005, Acta Paediatrica, Acute Disease/epidemiology, Adolescent, Backlog, Child, Chronic Disease/epidemiology, Female, Finland/epidemiology, Hedlund-Treutiger I, Hemorrhage/epidemiology/etiology, Henter JI, Humans, Iceland/epidemiology, Idiopathic/complications/diagnosis/epidemiology, Incidence, Infant, Jonsson OG, Journal Article, Male, Newborn, Nonparametric, NOPHO ITP, Preschool, Prognosis, Prospective Studies, Purpura, Rajantie J, Risk Factors, Scandinavia/epidemiology, Statistics, Tedgard U, Thrombocytopenic, Wesenberg F, Zeller B
Palliative care of children with brain tumors: a parental perspective
Tags: 2010, Activities of Daily Living, Adaptation, Adolescent, Adult, Archives Of Pediatrics & Adolescent Medicine, Attitude To Death, Attitudes, Backlog, Bannister SL, Brain Neoplasms, Cairney A, Cataudella D, Child, Elizabeth L, Female, Focus Groups, Health Knowledge, home care services, Humans, Infant, Journal Article, Male, Middle Aged, Palliative Care, Parents, PEDI Study, Practice, Preschool, Psychological, Qualitative Research, Spirituality, Young Adult, Zelcer S
A descriptive study of children dying in the pediatric intensive care unit after withdrawal of life-sustaining treatment
Tags: 2004, Adolescent, Analgesics/administration & dosage, Backlog, Child, DeVita MA, Euthanasia, Female, Humans, Hypnotics and Sedatives/administration & dosage, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Neuromuscular Blockade, Palliative Care, Parents/psychology, Passive, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Retrospective Studies, Time Factors, Zawistowski CA
Emotion regulation in patients with rheumatic diseases: validity and responsiveness of the Emotional Approach Coping Scale (EAC)
Tags: 2009, 80 And Over, Activities of Daily Living, Adaptation, Adolescent, Adult, Aged, Backlog, Bmc Musculoskeletal Disorders, Cross-sectional Studies, Emotions, Female, Finset A, Garratt A, Hagen KB, Humans, Journal Article, Male, Middle Aged, Mowinckel P, Pain Measurement, Psychological, Rheumatic Diseases, Stanton AL, Stress, Young Adult, Zangi HA
Sleep disorders in Cornelia de Lange syndrome
Tags: 2016, Adolescent, Adult, Ajmone P, American Journal of Medical Genetics Part C - Seminars in Medical Genetics, Article, body mass, Canevini M P, characteristics, Child, Clinical Article, Comorbidity, Controlled Study, De Lange syndrome, Epilepsy, Female, Fossati C, Furia F, Gastroesophageal Reflux, gene, gene mutation, Gervasini C, HDAC8 gene, histone deacetylase 8, Human, Intellectual Impairment, Kullman G, Male, Masciadri M, NIPBL gene, Priority Journal, problem behavior, RAD21 gene, Russo S, Selicorni A, sleep disorder, sleep disturbance/disorders, SMC1A gene, SMC3 gene, Taiana M, Trajectory, Turner K, Vignoli A, Zambrelli E
Opening end-of-life discussions: how to introduce Voicing My CHOiCESTM, an advance care planning guide for adolescents and young adults
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Tags: 2003, Adolescent, Adolescent Transitions, Adult, Aging/psychology, Attitudes, Backlog, Boston, Colin AA, Continuity Of Patient Care/organization & Administration, Counseling/organization & administration, Cystic Fibrosis/psychology/therapy, Day Care/organization & administration, Emans SJ, Female, Harney K, Health Care Surveys, Health Knowledge, Humans, Jacobs CP, Journal Article, Keenan PM, Male, Massachusetts, Needs Assessment, Pediatric Pulmonology, Practice, Preventive Medicine/organization & administration, Prospective Studies, Pulmonary Disease (Specialty)/statistics & numerical data, Woods ER, Zack J
How Parents And Physicians Experience End-of-life Decision-making For Children With Profound Intellectual And Multiple Disabilities.
End-of-life decisions (EoLD) often concern children with profound intellectual and multiple disabilities (PIMD). Yet, little is known about how parents and physicians discuss and make these decisions.
AIMS:
The objective of this research…
Tags: 2016, Adolescent, Adult, Attitude Of Health Personnel, Attitude To Health, Caregiver, Cerebral Palsy, Child, Child Preschool, de Vos MA, Decision Making, Disabled Children, Dissent And Disputes, End Of Life, Ewals FV, Female, Healthcare Professional, Humans, Infant, Infant Newborn, Intellectual Disability, Male, Middle Aged, Neurologists, Palliative Care, Parents, Pediatricians, Professional-family Relations, Qualitative Research, Research in Developmental Disabilities, Resuscitation Orders, Retrospective Studies, September 2016 List, Severity Of Illness Index, Shared Decision-making, Terminal Care, van Goudoever JB, Willems DL, Young Adult, Zaal-Schuller IH
Association of Mortality With the Death of a Sibling in Childhood.
Tags: 2017, Adolescent, Age Factors, Bereavement, Cause Of Death, Child, Child, Preschool, Cnattingius S, December 2017 List, Denmark/epidemiology, Family Health/ Statistics & Numerical Data, Female, Follow-up Studies, Fu B, Humans, JAMA Pediatrics, Li J, Liew Z, Life Change Events, Male, Mortality, Olsen J, Parner ET, Qin G, Registries, Risk Factors, Sex Factors, Siblings, Sweden/epidemiology, Time Factors, Vestergaard M, Yu Y, Zhao N
Youth and young adults with cerebral palsy: their use of physician and hospital services
Tags: 2007, Adolescent, Adolescent Transitions, Adult, Ambulatory Care/utilization, Archives Of Physical Medicine And Rehabilitation, Ayling-Campos A, Backlog, Boydell K, Cerebral Palsy/therapy, Chronic Disease, Fehlings DL, Female, Gilbert TK, Hospitalization/statistics & numerical data, Humans, Journal Article, Law M, Male, McCormick A, Medical/statistics & numerical data, Mukherjee S, Ontario/epidemiology, Specialties, Wedge JH, Williams JI, Young NL
Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents
Tags: 2003, Adolescent, Backlog, Bmj (clinical Research Ed.), Child, Chronic Disease, Communication, Critical Illness, Dixon-Woods M, Empirical Approach, Female, Heney D, Humans, Journal Article, Male, Neoplasms/psychology/therapy, Parent caregivers, Physician-patient Relations, Professional Patient Relationship, Professional-family Relations, Windridge KC, Young B
Japanese physicians' attitudes toward end-of-life discussion with pediatric patients with cancer
Tags: 2018, Adolescent, Adult, anxiety, Article, Cancer Patient, Child, Controlled Study, Death, Dotani C, Human, Inoguchi H, Kato M, Kobayashi M, Malignant Neoplasm, Multicenter Study, Nakahara R, Ogawa C, Oncology 2018 List, Oshima Y, Palliative Therapy, pediatric patient, Pediatrician, Questionnaire, Shimizu K, Supportive Care In Cancer : Official Journal Of The Multinational Association Of Supportive Care In Cancer, Yoshida S
Evaluation of heart murmurs in children: cost-effectiveness and practical implications
Tags: 2002, Adolescent, Backlog, Cardiology/economics, Child, Child welfare, Comparative Study, Cost-Benefit Analysis/economics, Decision Support Techniques, Echocardiography/economics, Electrocardiography/economics, Heart Murmurs/diagnosis/economics/epidemiology, Humans, Infant, Infant Welfare, Journal Article, Kimball TR, Kotagal UR, Mrus JM, Newborn, Non-U.S. Gov't, Pediatrics/economics, Preschool, Prevalence, Radiography, Referral and Consultation/economics, Research Support, Sensitivity and Specificity, The Journal Of Pediatrics, Thoracic/economics, Tsevat J, Yi MS
Self-portraits of families with young adult cancer survivors: using photovoice
Tags: 2010, Adolescent, Backlog, Ethnic Groups/statistics & numerical data, Family/psychology, Female, Humans, Journal Article, Journal Of Psychosocial Oncology, Male, Narration, Neoplasms/ethnology/psychology, Photography, Psychology, Quality Of Life/psychology, Questionnaires, Self Concept, Semantics, Socioeconomic Factors, Survivors/psychology, Voice, Yi J, Young Adult, Zebrack B
Chronic illness and disability
Tags: 2005, Adolescent, Adolescent Transitions, Backlog, Bmj (clinical Research Ed.), Chronic Disease/psychology/therapy, Disabled Persons/psychology, Educational Status, Emotions, Family Health, Humans, Journal Article, Mental Health, Patient Compliance, Patient Transfer, Primary Health Care, Sawyer S, Yeo M
Adaptational process of parents of pediatric oncology patients
Tags: 2000, Adaptation, Adolescent, Adult, Aged, Backlog, Caregivers/psychology, Chen ML, Child, Data Collection, Family Health, Family Relations, Female, Humans, Infant, Journal Article, Lee TT, Li W, Male, Middle Aged, Neoplasms/psychology, Non-U.S. Gov't, Parents/psychology, Pediatric Hematology And Oncology, Preschool, Psychological, Religion, Research Support, Social Support, Stress, Taiwan/ethnology, Yeh CH
Age-dependent change in behavioral feature in Rubinstein-Taybi syndrome
Tags: 2012, Adolescent, Adult, Age, Aggression, aggressive behavior, anxiety, Behavior, behavioral problems, characteristics, Child, Congenital Anomalies, Depression, Factors, Female, Humans, Infant, Kosaki K, Kosaki R, Kurosawa K, Male, Mizuno S, Okamoto N, Preschool, Rubinstein-Taybi Syndrome, Rubinstein-Taybi Syndrome/di [Diagnosis], Sato Y, Surveys And Questionnaires, Takahashi T, Trajectory, Yagihashi T, Young Adult
Pediatric organ donation and transplantation
Comparing parent loss with sibling loss
The experiences of Chinese family members of terminally ill patients - a qualitative study
Tags: 2007, 80 And Over, Adaptation, Adolescent, Adult, Aged, Anger, Attitude To Death/ethnology, Attitude to Health/ethnology, Attitudes, Backlog, Chan SW, Family/ethnology, Female, Grief, Health Education, Health Knowledge, Health Services Needs And Demand, Hong Kong, Hospital/psychology, Humans, Journal Article, Journal of Clinical Nursing, Male, Middle Aged, Nurse's Role/psychology, Nursing Methodology Research, Nursing Staff, Palliative Care/organization & administration/psychology, Practice, Professional-family Relations, Psychological, Qualitative Research, Questionnaires, Social Support, Wong MS
Frequent school-based clinic utilization: a comparative profile of problems and service needs
Tags: 1993, Adolescent, Ambulatory Care Facilities/utilization, Backlog, Continental Population Groups, Educational Status, Female, Health Services Needs And Demand, Health Services Research, Humans, Journal Article, Kaplan DW, Male, Mental Health, Risk-Taking, School Health Services/utilization, Sex Factors, Socioeconomic Factors, Students/statistics & numerical data, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Wolk LI
How do teens view the physical and social impact of asthma compared to other chronic diseases?
Direct measurement of intracranial pressure at high altitude and correlation of ventricular size with acute mountain sickness: Brian Cummins' results from the 1985 Kishtwar expedition
Tags: 2008, Acute Disease, Adolescent, Adult, Altitude Sickness/diagnosis/etiology/physiopathology, Backlog, Brain/complications/physiopathology, Cerebral Ventricles/physiopathology, Expeditions, Experimental, Headache/etiology, Humans, Hypoxia, Implants, India, Intracranial Hypertension/diagnosis/etiology, Intracranial Pressure, Journal Article, Male, Middle Aged, Milledge J, Neurosurgery, Physical Exertion, Severity Of Illness Index, Telemetry/instrumentation, Tomography, Wilson MH, X-Ray Computed, Young Adult
Hypercalcaemia in osteogenesis imperfecta treated with pamidronate
Transition: a conceptual analysis in the context of siblings of children with cancer
Tags: 2006, Adaptation, Adolescent, Adolescent Psychology, Attitude To Health, Backlog, Bereavement, Child, Child Psychology, Family Health, Female, Health Promotion, Human Development, Humans, Journal Article, Journal of Pediatric Nursing, Life Change Events, Models, Neoplasms, Nurse's Role, Nursing, Nursing Evaluation Research, Nursing Methodology Research, Oncology Nursing, Pediatric Nursing, Psychological, sibling bereavement, Sibling Relations, Siblings, Wilkins KL, Woodgate RL
Lessons Learned in Implementing Youth and Parent Participatory Action Research in a School-Based Intervention
Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency
Tags: 1994, Acyl-CoA Dehydrogenase, Adolescent, Archives of Disease in Childhood, Backlog, Child, Deficiency Diseases/epidemiology, Fatty Acid Desaturases/deficiency, Hammond J, Hemiplegia/complications, Humans, Inborn Errors/epidemiology/mortality, Incidence, Infant, Journal Article, Lipid Metabolism, Morbidity, New South Wales/epidemiology, Newborn, Preschool, Prognosis, Q3 Scoping Review Results, Silink M, Wilcken B
Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child's death follow-up study
Tags: 2016, Acta Oncologica, Adolescent, Adult, Bereavement, Cernvall M, Child, Child Preschool, Fathers/psychology/statistics & numerical data, Female, Follow-up Studies, Hoven E, Humans, Infant, Infant Newborn, Ljungman G, Ljungman L, Male, Mothers/psychology/statistics & numerical data, Neoplasms/economics/mortality/psychology/therapy, Oncology 2018 List, Sick Leave/statistics & numerical data, Survival Rate, Survivors, Sweden, Treatment Outcome, von Essen L, Wikman A
When silence is not golden: Engaging adolescents and young adults in discussions around end-of-life care choices
Protocol: Evaluating The Impact Of A Nation-wide Train-the-trainer Educational Initiative To Enhance The Quality Of Palliative Care For Children With Cancer
There are identified gaps in the care provided to children with cancer based on the self-identified lack of education for health care professionals in pediatric palliative care and in the perceptions of bereaved parents who describe…
Tags: 2016, Adolescent, BMC Palliative Care, Bouffet E, Canada, Cancer Quality Care, Child, Child Preschool, Curriculum/standards, Education Knowledge Translation, Friedrichsdorf SJ, Greenberg M, Health Personnel/education, Humans, Husain A, Liben S, Neoplasms/therapy, November 2016 List, Palliative Care, Palliative Care/methods, Palliative Care/standards, Pediatrics, Pediatrics/methods, Pole JD, Program Evaluation, Quality Of Life/psychology, Rapoport A, Siden H, Teaching/standards, Whitlock JA, Widger K, Wolfe J
Good practices that address continuity during transition from child to adult care: synthesis of the evidence
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration/standards, Adolescent Transitions, Adult, AID - 10.1111/j.1365-2214.2004.00440.x [doi], AID - CCH440 [pii], Backlog, Child, Child Health Services/organization & administration/standards, Child: Care, Health and Development, Continuity of Patient Care/organization & administration/standards, CRDT- 2004/08/24 05:00, Delivery of Health Care/organization & administration/standards, EDAT- 2004/08/24 05:00, Family, Forbes A, Griffiths P, Health Services/standards, Humans, Journal Article, Lewis S, Mathes L, MHDA- 2005/02/04 09:00, Models, Organizational, PST - ppublish, Quality of Health Care/organization & administration/standards, Research Design, Ullman R, While A
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
Views of adolescents and parents on pediatric research without the potential for clinical benefit
Tags: 2012, Abdoler E, Adolescent, Adolescent Psychology, Adult, Altruism, Attitude To Health, Backlog, Benefits of PPC, Female, Grady C, Humans, Journal Article, Male, Motivation, Nontherapeutic Human Experimentation, Parents/psychology, Pediatrics, Questionnaires, Research Subjects/psychology, Risk-Taking, Wendler D, Wiener L
Supporting the family after the death of a child.
Tags: 2012, Adolescent, AIM, Backlog, Child, Chronic Disease, Counseling, Death, Disabled Children, Grief, Guidelines As Topic, Guilt, HEALTH COMMITTEE ON PSYCHOSOCIAL ASPECTS OF CHILD AND FAMILY, Humans, IM, Infant, Journal Article, Mortality, Parenting, Parents, Pediatrics, Physician's Role, Premature, Preschool, Professional-family Relations, sibling bereavement, Siblings, Social Support, Substance-Related Disorders, Sudden, Sudden Infant Death, Suicide, Wender E
The Marital Implications of Bereavement: Child Death and Intimate Partner Violence in West and Central Africa
Tags: 2020, 2021 Special Edition 1 - Low Resource Settings, Adolescent, Adult, Africa Central, Africa Western, Bereavement, Child, Child Mortality, Child Preschool, Demography, Female, Humans, Infant, Infant Newborn, Intimate partner violence, Intimate Partner Violence/statistics & numerical data, Male, Marriage/statistics & numerical data, Middle Aged, Parents/psychology, Risk Factors, Smith-Greenaway E, Weitzman A, West and Central Africa, Young Adult