Browse Items (984 total)
- Tags: Adolescent
Palliative care for adolescents and young adults with advanced illness: A scoping review
Health care information sources for adolescents: age and gender differences on use, concerns, and needs
Tags: 2001, Ackard DM, Adolescent, Adolescent Behavior/ethnology, Adolescent Health Services/utilization, Adolescent Psychology, Age Distribution, Attitude To Health, Backlog, Child, Confidentiality/psychology, Female, Health Services Accessibility/standards/trends, Humans, Journal Article, Male, Neumark-Sztainer D, Sex Distribution, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, United States
Use of paclitaxel to successfully treat children, adolescents, and young adults with Kaposi sarcoma in southwestern Tanzania
Tags: 2021, 2023 SE5 - Low Resource Setting, Adinani H, Adolescent, Adult, antiretroviral therapy, antiretrovirus agent/dt [Drug Therapy], Article, Bacha J, bleomycin/cb [Drug Combination], bleomycin/dt [Drug Therapy], bleomycin/iv [Intravenous Drug Administration], Campbell L, cancer combination chemotherapy, Cancer Palliative Therapy, Cancer Recurrence, Cancer Survival, Child, Children, Cohort Analysis, dexamethasone/dt [Drug Therapy], doxorubicin/cb [Drug Combination], doxorubicin/dt [Drug Therapy], drug contraindication, El-Mallawany NK, Female, Follow Up, Human, Human immunodeficiency virus infection/dt [Drug Therapy], Kaposi sarcoma/dt [Drug Therapy], lack of drug effect, long term survival, Major Clinical Study, Male, Mehta P, multiple cycle treatment, Paclitaxel, paclitaxel/dt [Drug Therapy], Quality Of Life, Retrospective Study, Slone J, Tanzania, treatment duration, Treatment Outcome, Treatment Planning, trend study, vincristine/cb [Drug Combination], vincristine/dt [Drug Therapy], vincristine/iv [Intravenous Drug Administration], virus load, Young Adult
Respiratory events and obstructive sleep apnea in children with achondroplasia: investigation and treatment outcomes
Tags: 2011, achondroplasia, Achondroplasia/di [Diagnosis], Achondroplasia/ep [Epidemiology], Achondroplasia/th [Therapy], Adolescent, Afsharpaiman S, Age Factors, Airway Obstruction/di [Diagnosis], Airway Obstruction/ep [Epidemiology], Airway Obstruction/th [Therapy], Ault J E, Body Mass Index, breathing difficulties, characteristics, Child, Child Preschool, Cohort Studies, Comorbidity, Cross-sectional Studies, Female, Humans, Infant, Male, obstructive sleep apnea, Polysomnography, Sheikhvatan M, Sillence D O, Sleep and Breathing, Sleep Apnea Central/di [Diagnosis], Sleep Apnea Central/ep [Epidemiology], Sleep Apnea Central/th [Therapy], Sleep Apnea Obstructive/di [Diagnosis], Sleep Apnea Obstructive/ep [Epidemiology], Sleep Apnea Obstructive/th [Therapy], Trajectory, Treatment Outcome, Waters K
Acute pain relief after Mantram meditation in children with neuroblastoma undergoing anti-GD2 monoclonal antibody therapy
Deep brain stimulation in children: experience and technical pearls
Tags: 2011, Adolescent, Adult, Age, Air E L, Brain/ra [Radiography], Child, deep brain stimulation, Deep Brain Stimulation/ae [Adverse Effects], Deep Brain Stimulation/mt [Methods], Dystonia/pp [Physiopathology], Dystonia/th [Therapy], Factors Brain/pa [Pathology], Female, Follow-up Studies, Glutaric acidemia type I, Humans, Journal of Neurosurgery - Pediatrics, Lesch-Nyhan syndrome, Magnetic Resonance Imaging, Male, Movement, Ostrem J L, Preschool, Retrospective Studies, Sanger T D, secondary dystonia, Starr P A, Tomography, tone and motor problems, X-Ray Computed Treatment Outcome
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer
Tags: 2020, Adolescent, Advanced Cancer, Akard T F, Article, Cancer Recurrence, cancer resistance, Caregiver, Child, Dietrich M S, Female, Friedman D L, Gerhardt C A, Gilmer M J, Given B, Hendricks-Ferguson V, Hinds P S, Human, Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, Major Clinical Study, Male, Oncology 2020 List, Palliative Therapy, Satisfaction, Wray S
Facebook Advertisements Recruit Parents of Children With Cancer for an Online Survey of Web-Based Research Preferences
Tags: 2014, Adolescent, advertizing, Akard TF, Article, Backlog, Cancer Nursing, Cancer Palliative Therapy, Cancer Patient, Cancer Recurrence, Cancer Research, Caregiver, Child, Childhood Cancer, click, computer, Diseases, Facebook, Female, Gilmer Mary Jo, Health Survey, Human, Income, Information Processing, Internet, Interpersonal Communication, Journal Article, legal guardian, Major Clinical Study, Male, mobile phone, Neoplasm, Nurse, Oncology, Only Child, Palliative Therapy, Parent, Parental Attitude, participant recruitment, Patient, Population, Priority Journal, Sample Size, School Child, social media, social network, Video Recording, Wray S
Infantile Systemic Haylinosis
Tags: 2003, Adolescent, Al-Najjadah I, Backlog, Bang RL, Child, Collagen Diseases/metabolism/pathology, Consanguinity, Contracture/pathology, Female, Fibromatosis, Ghoneim IE, Gingival/pathology/surgery, Humans, Hyalin/metabolism, Journal Article, Kanjoor JR, Skin Diseases/metabolism/pathology/surgery, The Journal Of Craniofacial Surgery
Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study
Tags: 2023, 2023 SE3 - Oncology, Abdal-Rahman M, Adolescent, Adult, advanced cancer/dm [Disease Management], Ahmed F, Al-Awady S, Alajarmeh S, Alarjeh G, Alnassan A, Alrjoub W, Article, Attitude To Health, Boufkhed S, Caregiver, Child, Cross-sectional Study, doctor patient relationship, Female, Frontiers in Oncology, Guo P, Harding R, Health Care Personnel, Health Care Policy, health care practice, Human, Human Experiment, implicit bias, Information Dissemination, Jordan, Jordanian, Kutluk T, Male, Medical Information, myelodysplastic syndrome, myeloproliferative disorder, Palliative Therapy, pediatric patient, Qualitative Research, refugee, reticuloendothelial tumor, Semi Structured Interview, Shamieh O, Yurdusen S
The Outcome of Critically Ill Pediatric Cancer Patients Admitted to the Pediatric Intensive Care Unit in a Tertiary University Oncology Center in a Developing Country: A 5-Year Experience
Tags: 2016, Academic Medical Centers, Adolescent, Ali AM, Cancer Care Facilities, Child, Critical Illness, Developing Countries, Female, Hematologic Neoplasms/complications/ Mortality/therapy, Humans, Infant, Intensive Care Units, Journal Of Pediatric Hematology/oncology, Male, Mohammed MM, Multiple Organ Failure/etiology, Oncology 2017 List, Pediatric, Preschool, Prognosis, Respiratory Insufficiency/etiology, Retrospective Studies, Sayed HA, Sepsis/etiology, Tertiary Care Centers, Treatment Outcome
Consistency in end of life care
Tags: 2016, Adolescent, Allen D, August 2017 List, Child, Child Preschool, Communication, Decision Making, Hospice And Palliative Care Nursing/ Standards, Humans, Infant, Nurse-patient Relations, Nursing Children and Young People, Patient Participation, Pediatric Nursing/ Standards, Practice Guidelines As Topic
Biphosphonates
Tags: 1997, Adolescent, Adult, Allgrove J, Archives of Disease in Childhood, Backlog, Bone Diseases/drug therapy, Calcinosis/drug therapy, Child, Diphosphonates/adverse effects/pharmacology/therapeutic use, Female, Humans, Hypercalcemia/drug therapy, Journal Article, Osteoporosis/drug therapy, Preschool
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Tags: 2017, Adolescent, Adult, Alveno RA, Cardiology, Carneiro-Sampaio M, Carvalho WB, Child, Chronic Patient, Controlled Study, Cross Sectional Study, Death, December 2017 List, Emergency Health Service, Emergency Ward, Endocrinology, Farhat SCL, Female, Hematology, Hojo ES, Hospital Admission, Hospitalization, Human, Intensive Care Unit, Jornal De Pediatria., Kidney Transplantation, Major Clinical Study, Male, Miranda CV, Nephrology, Neurology, Odone-Filho V, Oncology, Outpatient, Pain, Passone CG, Physician, Psychiatry, Rheumatology, Silva CA, Tannuri U, University Hospital, Waetge AR
Musculoskeletal Injections for Palliative Treatment of Neuromuscular Hip Dysplasia patients: How I Do It
Tags: 2024, Adolescent, Amaral JZ, April List 2024, Article, Cerebral Palsy, Child, Diagnosis, Drug Administration, Drug Therapy, hip dysplasia, hip joint, Human, Kan JH, Male, oral drug administration, Palliative Care, Palliative Therapy, Pediatric Radiology, Quality Of Life, Rosenfeld SB, School Child, Schultz RJ, steroid, Surgery
Family-centered care and the pediatrician's role
Withholding or termination of resuscitation in pediatric out-of-hospital traumatic cardiopulmonary arrest
Tags: 2014, Adolescent, American Academy of Pediatrics Committee on Pediatric Emergency Medicine, American College of Surgeons Committee on Trauma, Annals Of Emergency Medicine, Backlog, Cardiopulmonary Resuscitation, Child, Fallat ME, Humans, Journal Article, National Association of EMS Physicians, Out-of-Hospital Cardiac Arrest, Pediatric Emergency Medicine Committee - American College of Emergency Physicians, Resuscitation Orders, Thoracotomy, Wounds and Injuries
Self-injury in Lesch-Nyhan disease
Cognitive abilities of patients with Lesch-Nyhan disease
Tags: 1992, achievement, Adolescent, Adult, alertness, Anderson L T, attempted suicide, Awareness, Behavior Therapy, behavioral, characteristics, Child, Child Preschool, Combined Modality Therapy, Davis S V, Ernst M, Female, Humans, Intellectual Disability/di [Diagnosis], Intellectual Disability/px [Psychology], Intellectual Disability/th [Therapy], Intelligence, Journal of Autism and Developmental Disorders, Language Development Disorders/di [Diagnosis], Language Development Disorders/px [Psychology], Language Development Disorders/th [Therapy], Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/di [Diagnosis], Lesch-Nyhan Syndrome/px [Psychology], Lesch-Nyhan Syndrome/th [Therapy], Male, Neuropsychological Tests, Self-Injurious Behavior/di [Diagnosis], Self-Injurious Behavior/px [Psychology], Self-Injurious Behavior/th [Therapy], Social Adjustment, Social Behavior, Social Environment, Suicide, thinking, Trajectory
Behavioral contingencies and self-mutilation in Lesch-Nyhan disease
Tags: 1978, Adolescent, Alpert M, Anderson L, aversive stimulation electric shock, Behavior Therapy/mt [Methods], behavioral problems, Child, Dancis J, Humans, Journal Of Consulting And Clinical Psychology, Lesch-Nyhan syndrome, Lesch-Nyhan Syndrome/px [Psychology], Lesch-Nyhan Syndrome/th [Therapy], Male Punishment, positive reinforcement, Preschool, psychological intervention, Self Mutilation/th [Therapy], self-injury, self-mutilation, time-out
Efficacy and safety of endoscopic dilation of esophageal strictures in epidermolysis bullosa
Tags: 2004, Adolescent, Adult, Anderson S H C, Article, Balloon dilatation, barium, Body Weight, Chappiti U, contrast enhancement, Doig L, Dysphagia, Eady R A J, endoscopic balloon dilatation, endoscopic therapy, epidermolysis bullosa, epidermolysis bullosa/th [Therapy], esophagus dilatation, esophagus stricture/th [Therapy], feeding difficulties, Female, Follow Up, Gastrointestinal Endoscopy, Human, Major Clinical Study, Male, Meenan J, Morbidity, Nutritional Status, Prinja H, Priority Journal, Propofol, School Child, scoring system, surgical intervention, Thompson R P H, Treatment Outcome, Williams K N
Home-based Palliative Intervention to Improve Quality of Life in Children with Cancer: A Randomized Controlled Trial
Tags: 2022, 2022 Special Edition Low Resource Setting Issue, Adolescent, Andriastuti M, Anorexia, Asian Pacific Journal Of Cancer Prevention, Cancer, Child, Child Preschool, Halim PG, home visits, Humans, Neoplasms/therapy, Pain, Palliative, Palliative Care, Pediatric, Quality Of Life, Tunjungsari E, Widodo DP
PRECIOUS demonstrated satisfactory measurement properties for assessing the quality of care for children with serious illnesses
Tags: 2024, Adolescent, Adult, Amin Z, Ang FJL, April List 2024, Article, Bun Cheung Y, Caregiver Support, Child, convergent validity, correlation coefficient, Cristelle Chow CT, Cronbach alpha coefficient, exploratory factor analysis, Female, Finkelstein EA, Follow Up, Gandhi M, Hanim Buang SN, Heng Chong P, Hospitalization, Human, Internal Consistency, Journal Of Clinical Epidemiology, Major Clinical Study, Male, Malhotra C, Malhotra R, Ostbye T, Palliative Therapy, person centered care, psychometry, root mean squared error, Teresa Tan SZ, test retest reliability, Tewani K, Therapy
Multidiciplinary approach of transition into home care for peadiatric and AYA end-of life cancer patients: A single center experience
Tags: 2018, Adolescent, Adult, Arakawa A, cancer center, Cancer Patient, Cancer Staging, Child, Clinical Article, conference abstract, Controlled Study, Female, Home Care, Human, Ishiki H, Ishimaru S, Kumamoto T, Male, Nakajima M, Ogawa C, Oncology 2019 List, Pediatric Blood and Cancer, Retrospective Study, Satomi E, Shimizu M, Shirakawa N, Social Worker, Sonoda T, time of death, Young Adult
Development of an in-home standardized end-of-life treatment program for pediatric patients dying of brain tumors
Tags: 2013, Adolescent, Arland LC, Backlog, Brain Neoplasms, Child, Colorado, Female, Foreman NK, Health Personnel, Hendricks-Ferguson VL, home care services, Hospice Care, Hospital Mortality, Humans, Infant, Journal Article, Journal for Specialists in Pediatric Nursing, Length Of Stay, Madden JR, Male, Newborn, Palliative Care, Patient Admission, Pearson J, Pediatric Nursing, Preschool, Program Development, Program Evaluation, Retrospective Studies, Terminal Care, Young Adult
Prevalence and progression of mitochondrial diseases: a study of 50 patients
Tags: 2003, Adolescent, Adult, Age of Onset, Aged, Arenas J, Arpa J, Arpa-Fernandez A, Backlog, Campos Y, Chronic Progressive External/ep [Epidemiology], Chronic Progressive External/ge [Genetics], Chronic Progressive External/pa [Pathology], Cruz-Martinez A, Del Hoyo P, Disease Progression, DNA, Electromyography, Epilepsies, Female, Garcia-Rio F, Gutierrez-Molina M, Humans, IM, Journal Article, Lactic Acid/bl [Blood], Male, Martin MA, MELAS Syndrome/ep [Epidemiology], MELAS Syndrome/ge [Genetics], MELAS Syndrome/pa [Pathology], Middle Aged, Mitochondrial Diseases/ep [Epidemiology], Mitochondrial Diseases/ge [Genetics], Mitochondrial Diseases/pa [Pathology], Mitochondrial/ge [Genetics], Muscle, Muscle & Nerve, Myoclonic/ep [Epidemiology], Myoclonic/ge [Genetics], Myoclonic/pa [Pathology], Neural Conduction/ph [Physiology], Ophthalmoplegia, Perez-Conde C, Phenotype, Rubio JC, Skeletal/pa [Pathology], Spain/ep [Epidemiology], Survival Analysis
The ocular features of the mucopolysaccharidoses
Tags: 2006, Adolescent, Adult, Ashworth JL, Backlog, Biswas S, Child, Corneal Opacity/etiology, Eye (london, England), Eye Diseases/etiology, Female, Follow-up Studies, Humans, Infant, Journal Article, Lloyd IC, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis I/complications, Mucopolysaccharidosis VI/complications, Ocular Hypertension/etiology, Optic Atrophy/etiology, Papilledema/etiology, Preschool, Q3 Scoping Review Results, Retrospective Studies, Vision Disorders/etiology, Visual Acuity, Wraith E
Social Workers in Pediatric Intensive Care Units: A Physician Perspective
Tags: 2022, abuse, Adolescent, April List 2023, Article, Aslan K, Atakul G, Caglar A, Child, child custody, child neglect, Child Psychiatry, community mental health center, Consultation, Counseling, Demircan TO, Female, Follow Up, hospital information system, Hospitalization, Human, Infant, Intensive Care Units, Male, Ozhan P, Palliative Therapy, Pediatric Intensive Care Unit, Physician, Retrospective Study, social problem, Social Work, Social Worker, Turkey (republic), Turkish Journal of Pediatric Disease
Risperidone treatment of autistic disorder: longer-term benefits and blinded discontinuation after 6 months
Tags: 2005, Adolescent, Aggression/drug effects/psychology, Antipsychotic Agents/adverse effects/therapeutic use, Autism Network Research Units on Pediatric Psychopharmacology, Autistic Disorder/diagnosis/drug therapy/psychology, Backlog, Child, Child Behavior Disorders/diagnosis/drug therapy/psychology, Drug Administration Schedule, Female, Humans, Journal Article, Longitudinal Studies, Male, Personality Inventory, Placebos, Preschool, Psychiatric Status Rating Scales, Risperidone/adverse effects/therapeutic use, Self-Injurious Behavior/diagnosis/drug therapy/psychology, Substance Withdrawal Syndrome/diagnosis/psychology, The American Journal Of Psychiatry, Treatment Outcome
Swedish parents' experiences of parenthood and the need for support to siblings when a baby is stillborn
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, Adult, Advanced Cancer, Avoine-Blondin J, BMC Palliative Care, Child, Concept Formation, Dumont É, Duval M, Female, Humans, Male, Marquis MA, Mixed-method, Neoplasms, Palliative Care, Pediatrics, psychology/therapy, Quality Of Life, Reproducibility of Results, Sultan S, Surveys And Questionnaires
Increase of plasmatic beta-endorphin immunoreactive material in children in the perioperative period: the influence of the site of surgery
Tags: 2008, Adaptation, Adolescent, Ambulatory Surgical Procedures/adverse effects/statistics & numerical data, Analysis of Variance, Bachiocco V, Backlog, beta-Endorphin/blood/immunology, Child, European Journal Of Pediatric Surgery, Female, Gentili A, Humans, Journal Article, Lima M, Linear Models, Male, Mastrolia A, Perioperative Care/statistics & numerical data, Physiological/immunology, Pipitone E, Preschool, Stress/immunology, Time Factors
New antidepressive and antipsychotic drugs in juvenile neuronal ceroid lipofuscinoses--a pilot study
Tags: (Antipsychotic Agents) 0, (Benzodiazepines) 132539-06-1, (Citalopram) 12794-10-4, (Dibenzothiazepines) 0DHU5B8D6V, (olanzapine) 2S3PL1B6UJ, (Pirenzepine) L6UH7ZF8HC, (Quetiapine Fumarate) 3G0285N20N, (Second-Generation) 0, 2001, Aberg L E, Adolescent, Adult, Aggression, alertness, Antidepressive Agents, Aronen E T, Backman M L, Behavior, characteristics, European Journal of Paediatric Neurology, Risperidone, Santavuori P R, Second-Generation/ad [Administration & Dosage], Trajectory
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
Fathers' experiences of their child's life-limiting condition: An attachment narrative perspective.
Tags: *Chronic Disease/px [Psychology], *Father-Child Relations, *Fathers/px [Psychology], *Object Attachment, 2018, 2023 SE4 - Parent Perspectives, Adolescent, Adult, Bailey-Pearce, Oliver, Child, Clinical Child Psychology And Psychiatry, Dallos, Rudi, Davis, George, Female, Humans, Male, Middle Aged, Qualitative Research, Stedmon, Jacqui
Diagnostic evaluation using whole-body technetium bone scan in children with cerebral palsy and pain.
Tags: 2008, Adolescent, Adult, Backlog, Bajelidze G, Belthur MV, Bone and Bones/radionuclide imaging, Cerebral Palsy/complications/radionuclide imaging, Child, Dabney Kirk W, Diagnosis, Differential, Emission-Computed, Female, Humans, Journal Article, Journal Of Pediatric Orthopedics, Littleton AG, Male, Miller F, Pain Measurement, Pain/etiology/radionuclide imaging, Preschool, Reproducibility of Results, Retrospective Studies, Severity Of Illness Index, Single-Photon/methods, Technetium/diagnostic use, Tomography, Whole Body Imaging/methods
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
Tags: 2009, Adolescent, African Continental Ancestry Group, Althoff J, Baker JN, Burghen EA, Cancer Care Facilities, Child, Decision Making, European Continental Ancestry Group, Female, Funk A, Gattuso JS, Hinds PS, Humans, Infant, Journal of Palliative Medicine, Kane JR, Liu W, Male, Medical Audit, Oncology 2017 List, Pediatrics, Preschool, Rai S, Resuscitation Orders, Srivastava K, Terminal Care, United States, West N, Zawistowski CA