Browse Items · Pediatric Palliative Care Library

Maternal Grief: A Qualitative Investigation of Mothers' Responses to the Death of a Child From Cancer

This study explored bereaved mothers' responses to the death of a child from cancer, with a focus on identifying adaptive and complicated grief reactions. To understand the unique meaning of their loss, in-depth interviews were conducted with 13…

Cellular oxygen sensing need in CNS function: physiological and pathological implications.

Structural and functional integrity of brain function profoundly depends on a regular oxygen and glucose supply. Any disturbance of this supply becomes life threatening and may result in severe loss of brain function. In particular, reductions in…

Use of family management styles in family intervention research

Family management styles (FMSs) explain some of the complexities embedded in a family with a child who has chronic illness. The FMS typologies provide descriptions of family adjustment and management of care. These 5 distinct patterns may be valuable…

Tags: 2006, Adaptation, Alderfer MA, Backlog, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, PedPal Lit, Post-Traumatic/prevention & control, Psychological Child Chronic Disease/nursing/psychology Clinical Nursing Research/methods Family Nursing Humans Models, Psychological Neoplasms/nursing/psychology Nuclear Family/psychology Randomized Controlled Trials Stress Disorders

Vulnerability and resilience to combat exposure: can stress have lifelong effects?

The purpose of this study was to examine whether appraisals of desirable and undesirable effects of military service mediated the effect of combat stress on posttraumatic stress disorder (PTSD) symptoms in later life in 1,287 male veterans, aged…

The long-term effects of later life spousal and parental bereavement on personal functioning

Using data from Americans' Changing Lives: Wave 1, 1986, this study examined the long-term effects on the personal functioning of older women and men following the death of an adult child or a spouse. Guided by Weiss's (1993) theoretical framework,…

Coping through emotional approach: a new look at emotion, coping, and health-related outcomes

Researchers studying stress and coping processes have attempted to identify which coping strategies are most adaptive in stressful encounters. A generally accepted conclusion has been that emotion-focused coping processes are associated with…

Tags: 2004, Adaptation, Adult, Austenfeld Jennifer L, Backlog, Emotions, Health Status, Humans, Journal Article, Journal Of Personality, Outcome Assessment (health Care), Psychological, Psychometrics, Stanton AL, Stress

Increase of plasmatic beta-endorphin immunoreactive material in children in the perioperative period: the influence of the site of surgery

BACKGROUND: The primary aim of the study was to confirm the increase of plasmatic IR beta-endorphin material during the perioperative period in children. The second was to search for the factors responsible for this increment. METHODS: Seventy-two…

Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II randomized controlled trial

CONTEXT: There are few randomized controlled trials on the effectiveness of palliative care interventions to improve the care of patients with advanced cancer. OBJECTIVE: To determine the effect of a nursing-led intervention on quality of life,…

Beta-endorphin mediates behavioral despair and the effect of ethanol on the tail suspension test in mice.

Background: The opioid peptide beta-endorphin (beta-E) is synthesized and released in response to stressful stimuli as well as acute alcohol administration. The release of beta-E following exposure to an inescapable aversive situation may mediate…

Psycho-educational interventions for children with chronic disease, parents and siblings: an overview of the research evidence base

BACKGROUND: The role of psycho-educational interventions in facilitating adaptation to chronic disease has received growing recognition and is in keeping with policy developments advocating greater involvement of patients in their own care. The…

The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.

BACKGROUND: Chronic disease of childhood may have implications for the psychosocial well-being of children and their families. The purpose of this paper is to provide an overview of the current literature regarding the psychosocial well-being of…

Behavioral, social, and educational outcomes after pediatric stem cell transplantation and related factors

BACKGROUND: The purpose of the current study was to investigate longitudinally children's behavioral and social competence outcomes up to 2 years after pediatric stem cell transplantation (SCT) and related factors. METHODS: Ninety-nine mothers and 24…

Evidence based medicine

2004

Tags: 2004, Adaptation, Backlog, Baxter P, Capital Financing/economics, Cerebral Palsy/therapy, Child, Developmental Medicine and Child Neurology, Epilepsy/drug therapy, Evidence-based Medicine, Gastrostomy/utilization, Health Personnel, Home Care Services/organization & administration, Humans, Journal Article, Melatonin/physiology, Muscular Dystrophies, Psychological, Q3 Scoping Review Results

Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration

The concept of quality of life (QoL) is used in consultations to plan the care and treatment of children and young people (CYP) with brain tumors (BTs). The way in which CYP, their parents, and their health care professionals (HCP) each understand…

Preventing psychosocial impairment in siblings of terminally ill children

A review of the literature provides the basis for a discussion of the impact of sibling death on healthy children whose emotional needs may be unattended both by parents and professionals. Factors which may deter hospice practitioners from delivering…

Tags: 1989, Adaptation, Adolescent, Backlog, Bendor SJ, Child, Death, Family/psychology, Grief, Humans, Journal Article, Parent caregivers, Preschool, Psychological, Psychological/prevention & control, Sibling Relations, Stress, The Hospice Journal

Loss, trauma, and human resilience: have we underestimated the human capacity to thrive after extremely aversive events?

Many people are exposed to loss or potentially traumatic events at some point in their lives, and yet they continue to have positive emotional experiences and show only minor and transient disruptions in their ability to function. Unfortunately,…

Tags: 2004, Adaptation, Adult, Backlog, Bonanno GA, Emotions, Grief, Humans, Journal Article, Laughter, Models, Psychological, Repression, The American Psychologist, Wounds and Injuries/psychology

Toward an integrative perspective on bereavement

For nearly a century, bereavement theorists have assumed that recovery from loss requires a period of grief work in which the ultimate goal is the severing of the attachment bond to the deceased. Reviews appearing in the 1980s noted a surprising…

Tags: 1999, Adaptation, Backlog, Bereavement, Bonanno GA, Grief, Humans, Journal Article, Kaltman S, Object Attachment, P.H.S., Psychological, Psychological Bulletin, Psychological Theory, Research Support, U.S. Gov't

Gender differences in parenting a child with cancer

This study of 124 parents of children diagnosed with cancer investigates parents' perceptions of their role in the illness situation. The study found that mothers and fathers differ in their experience of and response to parenting a child with…

Parental assessment of pain coping in individuals with intellectual and developmental disabilities

Pain coping is thought to be the most significant behavioural contribution to the adjustment to pain. Little is known about how those with intellectual and developmental disabilities (IDD) cope with pain. We describe parental reported coping styles…

Informing social work practice through research with parent caregivers of a child with a life-limiting illness

Pediatric palliative care is an evolving field of practice in social work. As such, research plays a critical role in informing best social work practices in this area. For parents, caring for a child with a life-limiting illness (LLI) is a stressful…

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

Starvation in man

A short form of the Posttraumatic Growth Inventory

A short form of the Posttraumatic Growth Inventory (PTGI-SF) is described. A sample of 1351 adults who had completed the Posttraumatic Growth Inventory (PTGI) in previous studies provided the basis for item selection. The resulting 10-item form…

Evidence for healing interventions with perinatal bereavement

The purpose of this article is to explore the concept of perinatal grief and evidence-based healing interventions for it. The loss of a pregnancy or death of an infant causes profound grief, yet society has long minimized or ignored this grief, which…

The moral experience of parents regarding life-support decisions for their critically-ill children: a preliminary study in France

The common paediatric critical care practice in France is for physicians (rather than parents) to maintain the ultimate responsibility for lifesupport decisions in children. Some French literature asserts that it is inappropriate for parents to bear…

Family function in families of children with Duchenne muscular dystrophy

This article investigates the relationships of child- and family-related variables with family function in families with children who have Duchenne muscular dystrophy. Child-related variables included level of disability (indicator: Barthel Index)…

Mother's home healthcare: emotion work when a child has cancer

Home healthcare work, involving physical labor, nursing care, medical monitoring, administrative, planning and accounting, advocacy and emotion work, is unpaid and largely invisible. This article, based on focus group interviews with mothers whose…

Tags: 2006, Adaptation, Backlog, Cancer Nursing, Clarke JN, Journal Article, Non-U.S. Gov't Self Concept Social Isolation Trust Uncertainty Workload/psychology, PedPal Lit, PreschoolCost of Illness Emotions Fear Female Focus Groups Home Nursing/psychology Humans Infant Marriage/psychology Middle Aged Mothers/psychology Neoplasms/nursing Nursing Methodology Research Qualitative Research Questionnaires Research Support, Psychological Adolescent AdultAttitude to Health Canada Child Child

Parental communication and children's behaviour following diagnosis of childhood leukaemia

2005

Tags: 2005, Acute/diagnosis/drug therapy/psychology Male Parent-Child Relations Research Support, Adaptation, Backlog, Clarke SA, Davies H, Eiser C, Glaser A, Jenney M, Journal Article, Lymphocytic, mean age = 7.33 years) newly diagnosed with acute lymphoblastic leukaemia (ALL) were interviewed about (i) the child's reactions and behaviour following diagnosis, parents differ in their views about what to tell the child. In this study 55 parents of children (36 boys and 19 girls, parents' perceptions of childhood cancer affect the way they communicate with their child. These findings may be used to inform training packages in order to facilitate improved communicatio n amongst health professionals., PedPal Lit, Psycho-Oncology, Psychological Affect Antineoplastic Agents/administration & dosage Child Child BehaviorCommunication Female Health Education Humans Interview, Psychological Leukemia, Truth Disclosure

Emotionally focused interventions for couples with chronically ill children: a 2-year follow-up

Couples with chronically ill children are particularly at risk for experiencing marital distress. The study presented here is a 2-year follow-up of a randomized control trial that assessed the efficacy of Emotionally Focused Therapy (EFT) in…

Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis

OBJECTIVE: To examine how individual- and family-level predictors in late childhood and preadolescence relate to psychosocial adaptation (i.e., scholastic success, social acceptance, and positive self-worth) in early adolescence. METHOD: This…

Perinatal mortality: assisting parental affirmation

The health professional's role does not cease with perinatal death, but shifts towards the prevention of postmortem psychiatric sequelae in the parents. A multidisciplinary bereavement service has found that an increased awareness of the final…

Tags: 1978, Adaptation, Backlog, Burial, Cohen L, Female, Fetal Death/psychology, Humans, Infant, Journal Article, Middleton J, Newborn, O'Donnohue N, Pregnancy, Psychological, The American Journal Of Orthopsychiatry, Zilkha S

Because statistics don't tell the whole story: a call for comprehensive care for children with cancer

Death of adolescents: parental grief and coping strategies

The death of an adolescent is a particularly complex issue. The process of grieving and coping can be complicated by the tension that may have existed in the parent/child relationship because of the conflict in terms of personal ideology at this…

Tags: 2001, Adaptation, Adolescent, Adult, Attitude To Death, Backlog, British Journal Of Nursing, Child, Davies AM, Grief, Humans, Journal Article, Parent caregivers, Parent-child Relations, Parents/psychology, Psychological

A typology of fatigue in children with cancer

Fatigue in adults with cancer has received considerable attention as a troublesome symptom that requires nursing intervention. Fatigue in children with cancer, however, has received considerably less focus. The first phase of the present study used…

When a child cannot be cured - reflections of health professionals

2005

Tags: 2005, Adaptation, Aranda S, as an awareness and acceptance that slowly develops. New models of care that incorporate palliative care throughout the disease trajectory are recommended., Backlog, De Graves S, especially following relapse where there is reduced clarity surrounding the child's outcome. Prognostic uncertainty and continued hope for survival make the shift to palliation difficult, European Journal Of Cancer Care, Journal Article, PedPal Lit, PsychologicalAttitude of Health Personnel Attitude to Health Child Humans Medical Oncology Neoplasms/mortality/psychology/therapy Oncologic Nursing Palliative Care/psychology Prognosis Social Work Treatment Failure Uncertainty, raising questions about the applicability of traditional palliative care models for these children and their families. Decision making in this context is complicated by a lack of clarity, uncertainty and continued hope. Shifting the focus of care from cure to palliation is not experienced as a discrete event but rather

Family Management Style Framework: a new tool with potential to assess families who have children with brain tumors

Qualitative studies of families with children who have cancer or other serious illnesses have found that families often come to view their child and their lives as normal. They manage illness-related demands using family management styles that…

Tags: 2006, Adaptation, Backlog, Davey BH, Deatrick JA, Journal Article, Journal Of Pediatric Oncology Nursing, Mooney K, PedPal Lit, Pollack R, Psychological Brain Neoplasms/nursing/psychology Child Disease Management Family Nursing Humans Models, Psychological Nuclear Family/psychologyNursing AssessmentParenting, Schmus C, Thibodeaux AG

The art of healing and knowing in cancer and palliative care

This article examines the role of artwork in cancer and palliative care. The literature review focuses on both children and adults. One case scenario focuses on a child's reaction to his mother's illness showing his distress through painting. Artwork…

Patterns of children's coping with life stress: implications for clinicians

In a study of children's patterns of coping with daily stressors, boys and girls 9-17 years old were asked to complete a coping checklist in response to one of four types of stressors--school, parents/family, siblings, or peer/interpersonal. Patterns…

Tags: 2000, Adaptation, Adolescent, Backlog, Child, Danovsky M, Defense Mechanisms, Donaldson D, Female, Humans, Journal Article, Male, Personality Inventory, Prinstein MJ, Psychological, Psychological/psychology, Spirito A, Stress, The American Journal Of Orthopsychiatry

Spirituality among parents of children with cancer in a Middle Eastern country

PURPOSE: Family caregivers of children with cancer face emotional, psychological, and spiritual challenges coping with their child's illness. For ensuring comprehensive multidisciplinary pediatric care, there is a need to understand and define what…

Tags: 2019, Adaptation, Cancer, Caregivers, Children, Developing World 2019 List, Doumit M A A, European Journal Of Oncology Nursing, Hermeneutics, Lebanon, Majdalani M, Palliative Care, Psychological, Qualitative Study, Rahi A C, Saab R, Spirituality

Parental grieving after a child dies from cancer: is stress from stem cell transplant a factor?

2005

Tags: 2005, Adaptation, Backlog, Drew D, Foreman T, Goodenough B, Grief Health Services Needs and Demand Humans Male Mass Screening Neoplasms/psychology/, International Journal of Palliative Nursing, Journal Article, Maurice L, Non-U.S. Gov't Risk Assessment Risk Factors Stem Cell Transplantation/, PedPal Lit, Psychological Adult Analysis of Variance Anxiety/psychology Attitude to Death Attitude to Health Case-Control Studies Child Cross-Sectional Studies Depression/psychology Female, Psychological/diagnosis/etiology/, Psychology, psychology Questionnaires Research Support, Stress (Psychology), therapy New South Wales Nursing Assessment Nursing Methodology Research Parents/, Willis L

Browse Items (212 total)