Positive aspects of caregiving: rounding out the caregiver experience
Female; Humans; Male; Adult; Canada; Aged; Middle Aged; Cost of Illness; Motivation; Personality Inventory; 80 and over; Non-U.S. Gov't; Research Support; Caregivers/psychology; Alzheimer Disease/psychology; Activities of Daily Living/psychology; Depressive Disorder/diagnosis/psychology
OBJECTIVES: To identify positive aspects of caregiving and examine how they are associated with caregiver outcomes. METHOD: This study used a national sample of caregivers derived from the Canadian Study of Health and Aging (part 2). Two hundred and eighty-nine caregivers caring for seniors living in the community were questioned about their experience of caregiving. Caregivers were asked whether they could identify any positive aspects related to their role, the type of positive aspects and to rate their feelings about caring. Using a conceptual model developed by Noonan and Tennstedt (1997), a staged stepwise multiple regression approach was used factoring the background/contextual variables, stressor variables (3 MS score, ADL limitations), mediator variables (positive aspects of caregiving, number of services used) and outcome variables (depression, burden and self-assessed health measures) into the model. RESULTS: Two hundred and eleven caregivers (73%) could identify at least one specific positive aspect of caregiving. An additional 20 (6.9%) could identify more than one positive aspect. Positive feelings about caring were associated with lower CES-D scores ( p<0.001), lower burden scores ( p<0.001) and better self assessed health ( p<0.001). CONCLUSION: Clinicians should inquire about the positive aspects of caregiving if they are to fully comprehend the caregiver experience and identify risk factors for negative caregiver outcomes.
2002
Cohen CA; Colantonio A; Vernich L
International Journal Of Geriatric Psychiatry
2002
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1002/gps.561" target="_blank" rel="noreferrer">10.1002/gps.561</a>
Improving functional skills and physical fitness in children with Rett syndrome
Treatment Outcome; Child; Humans; Female; Motor Skills; Statistics as Topic; Feasibility Studies; Social Behavior; Physical Fitness; Activities of Daily Living/psychology; Education of Intellectually Disabled; Exercise/psychology; Rett Syndrome/psychology/rehabilitation; tone and motor problems; Rett syndrome; psychological intervention; daily conductive educational program
BACKGROUND: To investigate the feasibility of a physical exercise programme with treadmill for persons with Rett syndrome (RS) in order to promote fitness and health. METHODS: A daily training programme on a treadmill was designed for four females with RS over a period of 2 months with tests performed in three intervals, at time 1, 2 and 3, 2 months apart with intervention taking place between tests 2 and 3. Participants were four girls with RS aged 8.5-11 years (mean: 10 years) attending the educational facility Beit Issie Shapiro, Raanana, Israel, all with independent mobility and with typical characteristics of RS stage III. The training took place at the educational facility, on a 1400 model treadmill (Trimline, capable of very low speeds < 0.5 k/h), with very long side rails. Special low side rails were adapted to the treadmill in order to fit the height of the children and velcro straps were added to assist in safely placing the hands. Pulse was monitored constantly during exercise by an A3 polar pulse belt. Pulse measurements at rest during training were considered as evaluators of aerobic physical condition. Functional measurement was based on a scale specially established for the present study. The scale was a 31-item motor-functioning tool that measures the ability of participants to knee walk and knee stand, to get up to a standing position, duration of walking different paths, and to go up and down stairs and slopes. RESULTS: The study showed that physical fitness of the children at the end of the training programme had improved considerably (P < 0.05). Tests showed that general functional abilities had improved considerably (P < 0.0001). Although all items of the functional ability measure showed impressive positive change, some of the 31 items on it showed statistically significant improvement (knee walking, going up and down stairs and speed of walking for 25 m. Pearson correlation showed high linkage (r = -0.76) between functional improvement and change in physical fitness. CONCLUSIONS: Physical fitness programme executed on a daily basis is capable of improving functional ability of children with RS. Nonprofessional personnel can execute such a programme under supervision of a qualified physical therapist.
Lotan M; Isakov E; Merrick J
Journal of Intellectual Disability Research
2004
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
<a href="http://doi.org/10.1111/j.1365-2788.2003.00589.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2788.2003.00589.x</a>
Chronic disease and perceived developmental progression in adolescence
Female; Humans; Male; Peer Group; Sick Role; Social Adjustment; Body Image; adolescent; Adaptation; Psychological; Adolescent Transitions; Activities of Daily Living/psychology; Personality Development; Diabetes Mellitus; Life Style; Type 1/psychology
This study examined whether chronic illness causes delays in adolescents' perceived developmental status. Longitudinal data were obtained from 86 adolescents afflicted with insulin-dependent diabetes mellitus and 103 healthy adolescents. The adolescents annually completed a questionnaire pertaining to their current developmental status and their desired future developmental status in 11 age-specific developmental tasks. Health status and physical maturity were also determined. In the first year of the study, the diabetics reported delays compared with their healthy peers in some developmental tasks, particularly physical maturity and an independent lifestyle. However, the overall developmental progression perceived by chronically ill adolescents was impressive. The difficulty of balancing normative development with the demands of chronic illness is discussed.
1998
Seiffge-Krenke I
Developmental Psychology
1998
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1037//0012-1649.34.5.1073" target="_blank" rel="noreferrer">10.1037//0012-1649.34.5.1073</a>
Predictors of burden in spouse caregivers of individuals with Alzheimer's disease
Female; Humans; Male; Follow-Up Studies; Aged; Longitudinal Studies; Sick Role; Personal Satisfaction; P.H.S.; Research Support; U.S. Gov't; Adaptation; Psychological; Anger; Anxiety/psychology; Depression/psychology; Activities of Daily Living/psychology; Alzheimer Disease/psychology/therapy; Hostility; Marriage/psychology; Mental Status Schedule/statistics & numerical data; Personality Assessment/statistics & Psychometrics
This study used the following model of distress: Distress = [Exposure to Stress + Vulnerability]/[Psychological and Social Resources]. The constructs in the model were operationalized as (a) distress in response to caregiver experiences (burden); (b) exposure to stress (care recipient functional impairment in activities of daily living [ADLs]); (c) vulnerability (caregiver health problems, anger, and anxiety); and (d) resources (coping, outlook on life, and social supports). Long-term burden (15-18 months after entry) was predicted by several baseline variables: burden, care recipient ADLs, vulnerability and resource variables, and specific interactions of burden, ADLs, vulnerability, and resource variables. The interactions showed that caregivers with high vulnerability and low resources had higher burden scores than caregivers with other combinations of these variables.
1991
Vitaliano PP; Russo J; Young HM; Teri L; Maiuro RD
Psychology And Aging
1991
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Journal Article
<a href="http://doi.org/10.1037/0882-7974.6.3.392" target="_blank" rel="noreferrer">10.1037/0882-7974.6.3.392</a>