1
40
6
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Text
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Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/jme.12.2.72" target="_blank" rel="noreferrer">http://doi.org/10.1136/jme.12.2.72</a>
Dublin Core
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Title
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Informed dissent: the views of some mothers of severely mentally handicapped young adults
Publisher
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Journal Of Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
1986
Subject
The topic of the resource
Female; Humans; infant; Adult; Middle Aged; Euthanasia; Disabled Persons; Informed Consent; Patient Compliance; Empirical Approach; Mental Health Therapies; Death and Euthanasia; Mothers/psychology; Newborn; Genetics and Reproduction; Passive; Value of Life; Abortion; Congenital Abnormalities/therapy; Induced
Creator
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Simms M
Description
An account of the resource
Much of the discussion since the Arthur case has centred round the rights of handicapped infants to medical treatment. Little has centred round the question of how far one person can rightly be required to sacrifice her life for another, when she has not been consulted beforehand. This may be due to the fact that most of the discussants are men, while nearly all the carers are women. This small study attempts to redress this balance by asking mothers who have cared for 20 years, whether they felt it was worthwhile.; KIE: As part of a larger study by a British regional health authority, 15 mothers of severely mentally handicapped young adults from varying socioeconomic areas were asked for their views on selective abortion and treatment of severely handicapped newborns. Ten of the 15 women wished with hindsight that they could have had an abortion, and 12 thought such infants should be allowed to die. Simms concludes that the views of those who have cared devotedly for their severely mentally handicapped children deserve more consideration. Davis, herself disabled and an activist for the handicapped, asserts that human rights devolve to every individual at fertilization and cannot be apportioned according to perceived "worth." She suggests that parents who are unable to cope with a handicapped child should consider offering the baby for adoption as an alternative to "killing" the child.
1986
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/jme.12.2.72" target="_blank" rel="noreferrer">10.1136/jme.12.2.72</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
1986
Abortion
Adult
Backlog
Congenital Abnormalities/therapy
Death and Euthanasia
Disabled Persons
Empirical Approach
Euthanasia
Female
Genetics and Reproduction
Humans
Induced
Infant
Informed Consent
Journal Article
Journal of Medical Ethics
Mental Health Therapies
Middle Aged
Mothers/psychology
Newborn
Passive
Patient Compliance
Simms M
Value of Life
-
Dublin Core
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Title
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June 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2019 List
URL Address
<a href="http://doi.org/10.1136/jim-2018-000974.461" target="_blank" rel="noreferrer noopener">http://doi.org/10.1136/jim-2018-000974.461</a>
Dublin Core
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Title
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Development and integration of a perinatal palliative care program at a tertiary care center
Publisher
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Journal of Investigative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
hospice; newborn; anencephalus; intensive care; clergy; nurse; social worker; comfort; practice guideline; neonatologist; tertiary care center; conference abstract; human; child; female; controlled study; perinatal care; palliative therapy; abortion; electronic medical record; fetus malformation; Oklahoma; prenatal diagnosis
Creator
An entity primarily responsible for making the resource
Shah B A; May R; White L; Wlodaver A
Description
An account of the resource
Purpose of study Advances in fetal medicine have increased referrals to tertiary perinatal care centers. NRP guidelines recommend that only neonates with anencephaly and less than. 400 grams are not to be resuscitated. In 2015, Oklahoma passed a law stating 'it is the duty of the physician to inform the woman who carries a fetus with anomalies that perinatal hospice services are available and that this is an alternative to abortion'. We aim to describe the process of developing a perinatal palliative care (PPC) program for newborns with prenatal diagnoses of life-limiting conditions. Methods used Focus groups were conducted with responsible parties. Existing resources were identified. Implementation approaches were discussed. Summary of results The need for a PPC team was identified. Nurses, neonatologists, chaplains, social workers and child life specialists were integrated into this service with the support of an existing pediatric palliative care team. A new PPC program was introduced. Prenatal consults initiated by maternal-fetal medicine are an integral part of the prenatal care. Options of intensive care versus comfort care are offered. A neonatologist attends all these deliveries. The newborn stays with the mother. Special nurses were assigned for comfort care in the mother's room. Guidelines and specific PPC orders are now available in the electronic medical record. Examples are listed in the table 1. A website was created to inform referring physicians about this new program. Conclusions PPC was successfully established at a regional tertiary center. Parents of newborns diagnosed with lethal conditions have the choice of often non-beneficial intensive care or care focused on comfort after birth. This specialized care allows parents to celebrate the limited life of their precious newborns. Providers across the state have now access to a referral center offering perinatal neonatal palliative care. (Table Presented).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/jim-2018-000974.461" target="_blank" rel="noreferrer noopener">10.1136/jim-2018-000974.461</a>
2019
Abortion
anencephalus
Child
Clergy
Comfort
conference abstract
Controlled Study
electronic medical record
Female
Fetus Malformation
Hospice
Human
Intensive Care
Journal Of Investigative Medicine
June 2019 List
May R
Neonatologist
Newborn
Nurse
Oklahoma
Palliative Therapy
Perinatal Care
Practice Guideline
Prenatal Diagnosis
Shah B A
Social Worker
tertiary care center
White L
Wlodaver A
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="https://www.ncbi.nlm.nih.gov/pubmed/26679311" target="_blank" rel="noreferrer">https://www.ncbi.nlm.nih.gov/pubmed/26679311</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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End-of-life decisions in perinatal care: A view from health-care providers in Mexico
Publisher
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Salud Publica De Mexico
Date
A point or period of time associated with an event in the lifecycle of the resource
2015
Subject
The topic of the resource
Attitude Of Health Personnel;decision Making;perinatal Care;terminal Care/psychology; Abortion; Adult; Aged; Attitude To Death; Euthanasia; Female; Fetal Diseases; Humans; Induced/psychology; Infant; Male; Mexico; Middle Aged; Newborn; Nurses/psychology; Palliative Care/psychology; Passive/psychology; Perinatal Death; Physicians/psychology; Pregnancy; Religion; Social Workers/psychology; Young Adult
Creator
An entity primarily responsible for making the resource
Grether P; Lisker R; Loria A; Alvarez-del-Rio A
Description
An account of the resource
OBJECTIVE: To examine the opinions of a perinatal health team regarding decisions related to late termination of pregnancy and severely ill newborns. MATERIALS AND METHODS: An anonymous questionnaire was administered to physicians, social workers, and nurses in perinatal care. Differences were evaluated using the chi square and Student's t tests. RESULTS: When considering severely ill fetuses and newborns, 82% and 93% of participants, respectively, opted for providing palliative care, whereas 18% considered feticide as an alternative. Those who opted for palliative care aimed to diminish suffering and those who opted for intensive care intended to protect life or sanctity of life. There was poor knowledge about the laws that regulate these decisions. CONCLUSIONS: Although there is no consensus on what decisions should be taken with severely ill fetuses or neonates, most participants considered palliative care as the first option, but feticide or induced neonatal death was not ruled out.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://www.ncbi.nlm.nih.gov/pubmed/26679311" target="_blank" rel="noreferrer">26679311</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2015
Abortion
Adult
Aged
Alvarez-del-Rio A
Attitude Of Health Personnel
Attitude To Death
Decision Making
Euthanasia
Female
Fetal Diseases
Grether P
Humans
Induced/psychology
Infant
Lisker R
Loria A
Male
Mexico
Middle Aged
Newborn
Nurses/psychology
Palliative Care/psychology
Passive/psychology
Perinatal Care
Perinatal Death
Physicians/psychology
Pregnancy
Religion
Salud Publica De Mexico
Social Workers/psychology
Terminal Care/psychology
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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April 2020 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
April 2020 List
URL Address
<a href="http://doi.org/10.1177/1359105317705981" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/1359105317705981</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Healthcare professionals' experiences of perinatal loss: A systematic review
Publisher
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Journal of Health Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Abortion; Adult; Female; Health Personnel/*psychology; healthcare professionals; Humans; Infant; Maternal Health Services/*manpower; neonatal units; Newborn; Perinatal Death; Perinatal loss; Pregnancy; psychological experiences; Spontaneous/*psychology; Stillbirth; Stillbirth/*psychology
Creator
An entity primarily responsible for making the resource
Gandino G; Bernaudo A; Di Fini G; Vanni I; Veglia F
Description
An account of the resource
Healthcare professionals' psychological involvement in perinatal loss is a largely overlooked subject by healthcare systems, scientific research and prevention policies. A systematic scientific review has been carried out about emotional experiences, attributed meanings and needs conveyed by healthcare professionals in relation to perinatal loss. We identified 213 studies between 1985 and 2015, 20 of which were included in the present study for qualitative analysis. Our results point out the need for a targeted vocational training in perinatal loss, enabling healthcare professionals to achieve a proper management of their own internal states.
Identifier
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<a href="http://doi.org/10.1177/1359105317705981" target="_blank" rel="noreferrer noopener">10.1177/1359105317705981</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Abortion
Adult
April 2020 List
Bernaudo A
Di Fini G
Female
Gandino G
Health Personnel/*psychology
Healthcare Professionals
Humans
Infant
Journal Of Health Psychology
Maternal Health Services/*manpower
neonatal units
Newborn
Perinatal Death
Perinatal Loss
Pregnancy
psychological experiences
Spontaneous/*psychology
Stillbirth
Stillbirth/*psychology
Vanni I
Veglia F
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/08964280309596060" target="_blank" rel="noreferrer">http://doi.org/10.1080/08964280309596060</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The sense of coherence in early pregnancy and crisis support and posttraumatic stress after pregnancy loss: a prospective study
Publisher
An entity responsible for making the resource available
Behavioral Medicine (washington, D.C.)
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; Pregnancy; Adult; Prospective Studies; social support; Stress Disorders; Post-Traumatic/epidemiology/psychology/therapy; Abortion; Crisis Intervention; First/psychology; Pregnancy Trimester; Spontaneous/psychology
Creator
An entity primarily responsible for making the resource
Engelhard IM; van den Hout MA; Vlaeyen JW
Description
An account of the resource
A. Antonovsky (1987) defined the sense of coherence (SOC) as the ability to perceive a stressor as comprehensible, manageable, and meaningful. In this prospective study of pregnant women, the authors tested the relationships between the SOC in early pregnancy and crisis support and symptom severity of posttraumatic stress disorder (PTSD) and depression after pregnancy loss. A total of 1,372 women completed questionnaires in early pregnancy, including measures for the SOC and depressive symptoms, and were followed for every 2 months thereafter until 1 month after the birth due-date. Of this group, 126 women had a pregnancy loss, and 118 of them completed measures for crisis support, PTSD, and depression about 1 month later. The results showed that a stronger SOC in early pregnancy renders women somewhat resilient to symptoms of PTSD and depression after pregnancy loss, which appears to be due to the mobilization of crisis support.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/08964280309596060" target="_blank" rel="noreferrer">10.1080/08964280309596060</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Abortion
Adult
Backlog
Behavioral Medicine (washington, D.C.)
Crisis Intervention
Engelhard IM
Female
First/psychology
Humans
Journal Article
Post-Traumatic/epidemiology/psychology/therapy
Pregnancy
Pregnancy Trimester
Prospective Studies
Social Support
Spontaneous/psychology
Stress Disorders
van den Hout MA
Vlaeyen JW
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
October 2019 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
October 2019 List
URL Address
<a href="http://doi.org/10.1186/s12910-019-0393-7" target="_blank" rel="noreferrer noopener">http://doi.org/10.1186/s12910-019-0393-7</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Parental decision-making following a prenatal diagnosis that is lethal, life-limiting, or has long term implications for the future child and family: a meta-synthesis of qualitative literature
Publisher
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BMC Medical Ethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2019
Subject
The topic of the resource
Abortion; Birth; Continuation; Disorder; Life-limiting; Pregnancy; Termination
Creator
An entity primarily responsible for making the resource
Blakeley C; Smith D M; Johnstone E D; Wittkowski A
Description
An account of the resource
BACKGROUND: Information on the factors influencing parents' decision-making process following a lethal, life-limiting or severely debilitating prenatal diagnosis remains deficient. A comprehensive systematic review and meta-synthesis was conducted to explore the influencing factors for parents considering termination or continuation of pregnancy following identification of lethal, life-limiting or severely debilitating fetal abnormalities. METHODS: Electronic searches of 13 databases were conducted. These searches were supplemented by hand-searching Google Scholar and bibliographies and citation tracing. Thomas and Harden's (2008) thematic synthesis method was used to synthesise data from identified studies. RESULTS: Twenty-four papers were identified and reviewed, but two papers were removed following quality assessment. Three main themes were identified through systematic synthesis. Theme 1, entitled 'all life is precious', described parents' perception of the importance of the fetus' life, a fatalistic view of their situation alongside moral implications as well as the implications decisions would have on their own life, in consideration of previous life experiences. Theme 2 ('hope for a positive outcome') contained two sub-themes which considered the parent's own imagined future and the influence of other people's experiences. Finally, Theme 3 ('a life worth living') presented three sub-themes which may influence their parental decision-making: These described parental consideration of the quality of life for their unborn child, the possibility of waiting to try for another pregnancy, and their own responsibilities and commitments. CONCLUSION: The first review to fully explore parental decision-making process following lethal, life-limiting, or severely debilitating prenatal diagnosis provided novel findings and insight into which factors influenced parents' decision-making process. This comprehensive and systematic review provides greater understanding of the factors influential on decision-making, such as hope, morality and potential implications on their own and other's quality of life, will enable professionals to facilitate supported decision-making, including greater knowledge of the variables likely to influence parental choices.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/s12910-019-0393-7" target="_blank" rel="noreferrer noopener">10.1186/s12910-019-0393-7</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2019
Abortion
Birth
Blakeley C
Bmc Medical Ethics
Continuation
Disorder
Johnstone E D
Life-limiting
October 2019 List
Pregnancy
Smith D M
Termination
Wittkowski A