1
40
5
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Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/09540120412331291779" target="_blank" rel="noreferrer">http://doi.org/10.1080/09540120412331291779</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Home-based care for orphaned children infected with HIV/AIDS in Uganda
Publisher
An entity responsible for making the resource available
AIDS Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2005
Subject
The topic of the resource
PedPal Lit; Child Health Services/organization & administration; Non-U.S. Gov't Uganda; Preschool Female Foster Home Care/organization & administrationHIV Infections/mortality Home Care Services/organization & administration Humans Infant Male Program Evaluation Research Support
Creator
An entity primarily responsible for making the resource
O'Hare BA; Venables J; Nalubeg JF; Nakakeeto M; Kibirige M; Southall DP
Description
An account of the resource
The primary aim of this paper is to describe an outreach programme from a main state hospital in sub-Saharan Africa, which has been running for three years. This programme is based in Mulago Hospital, Kampala, Uganda and cares for up to 200 children infected with HIV/AIDS in their home. We describe the clinic and how we meet the families and enrol them, the infrastructure of the programme and the personnel involved. Children and their families receive physical, psychological and social care and we describe each aspect of this. The knowledge base about older children with AIDS in Africa is scarce and the secondary aim of this paper is to publish observations that were made while providing care. This includes demographics and the health problems encountered among children living with HIV/AIDS in a resource-poor setting who do not receive antiretroviral medication. Finally, we discuss the strengths and weaknesses of this model of care and the prerequisites to setting up a similar model.
2005
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09540120412331291779" target="_blank" rel="noreferrer">10.1080/09540120412331291779</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2005
AIDS care
Backlog
Child Health Services/organization & administration
Journal Article
Kibirige M
Nakakeeto M
Nalubeg JF
Non-U.S. Gov't Uganda
O'Hare BA
PedPal Lit
Preschool Female Foster Home Care/organization & administrationHIV Infections/mortality Home Care Services/organization & administration Humans Infant Male Program Evaluation Research Support
Southall DP
Venables J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/09540120600568376" target="_blank" rel="noreferrer">http://doi.org/10.1080/09540120600568376</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Perceived stress in HIV-infected individuals: Physiological and psychological correlates.
Publisher
An entity responsible for making the resource available
AIDS Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Subject
The topic of the resource
Female; Humans; Male; Adult; Aged; Middle Aged; Longitudinal Studies; Perception; Stress; adolescent; Adaptation; Psychological; Psychiatric Status Rating Scales; Psychological/psychology; Anxiety Disorders - psychology; Depressive Disorder/psychology; HIV Infections/psychology; South Carolina
Creator
An entity primarily responsible for making the resource
Hand GA; Phillips KD; Dudgeon WD
Description
An account of the resource
The purpose of this study was to determine the correlation of perceived stress with selected physiological and psychological factors in an HIV-infected, predominantly African American population and to assess the multivariable effects on perceived stress. The variables that correlated significantly with perceived stress were entered into a backward stepwise regression model. Pearson's r analysis showed significant correlations between perceived stress and state and trait anxiety, depression, HIV-related symptoms, sleep quality, daytime sleepiness and fatigue. State and trait anxiety, depression and fatigue retained significance (p<0.1) in the final regression model. These factors explained approximately 80% of the variance in perceived stress. The significant interactions of multiple physiological and psychological correlates suggest that perceived stress is a complex outcome with a multifactorial etiology. Further, the model suggests that psychological factors may contribute to perceived stress in this population more than physiological factors such as HIV-related symptomatology or stage of disease.
2006
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09540120600568376" target="_blank" rel="noreferrer">10.1080/09540120600568376</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2006
Adaptation
Adolescent
Adult
Aged
AIDS care
Anxiety Disorders - psychology
Backlog
Depressive Disorder/psychology
Dudgeon WD
Female
Hand GA
HIV Infections/psychology
Humans
Journal Article
Longitudinal Studies
Male
Middle Aged
Perception
Phillips KD
Psychiatric Status Rating Scales
Psychological
Psychological/psychology
South Carolina
Stress
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/09540120600581460" target="_blank" rel="noreferrer">http://doi.org/10.1080/09540120600581460</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV
Publisher
An entity responsible for making the resource available
AIDS Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2006
Creator
An entity primarily responsible for making the resource
Fielden SJ; Scheckter L; Chapman GE; Alimenti A; Forbes JC; Sheps S; Cadell S; Frankish JC
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09540120600581460" target="_blank" rel="noreferrer">10.1080/09540120600581460</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
Description
An account of the resource
2006
2006
AIDS care
Alimenti A
Backlog
Cadell S
Chapman GE
Fielden SJ
Forbes JC
Frankish JC
Journal Article
Scheckter L
Sheps S
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/09540120310001595122" target="_blank" rel="noreferrer">http://doi.org/10.1080/09540120310001595122</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Trauma and growth in Canadian carers
Publisher
An entity responsible for making the resource available
AIDS Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2003
Subject
The topic of the resource
Female; Humans; Male; Family; Adult; Canada; Questionnaires; Aged; Middle Aged; Attitude; Internal-External Control; Non-U.S. Gov't; Research Support; bereavement; Caregivers/psychology; Psychological; Stress; Depression/psychology; Sociology; Acquired Immunodeficiency Syndrome/psychology
Creator
An entity primarily responsible for making the resource
Cadell S
Description
An account of the resource
The phenomenon of post-traumatic growth has been explored within the context of HIV disease in only a limited fashion. One hundred and seventy-six bereaved HIV/AIDS carers located all over Canada responded to a questionnaire about their experiences; 51.7% of these individuals were male, 46% were female and 2.3% were transgender. The range of deaths experienced was from 0 to 110. Forty-four per cent of the carers were themselves HIV-positive. Of all the HIV carers in this study, 86.4% of them exhibited symptoms of post-traumatic stress disorder. Despite this, 81.8% had scores high enough to be indicative of post-traumatic growth. This study provides a portrait of bereaved HIV carers in Canada and both the positive and negative realities associated with that situation.
2003
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09540120310001595122" target="_blank" rel="noreferrer">10.1080/09540120310001595122</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2003
Acquired Immunodeficiency Syndrome/psychology
Adult
Aged
AIDS care
Attitude
Backlog
Bereavement
Cadell S
Canada
Caregivers/psychology
Depression/psychology
Family
Female
Humans
Internal-External Control
Journal Article
Male
Middle Aged
Non-U.S. Gov't
Psychological
Questionnaires
Research Support
Sociology
Stress
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/28359212
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
A Randomized Clinical Trial Of Adolescents With Hiv/aids: Pediatric Advance Care Planning
Publisher
An entity responsible for making the resource available
Aids Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Advance Care Planning; Congruence; Decision-making; End-of-life; Palliative Care; Pediatric
Creator
An entity primarily responsible for making the resource
Lyon Maureen E; D'Angelo Lawrence J; Dallas Ronald H; Hinds S; Garvie A; Wilkins Megan L; Garcia A; Briggs Linda; Flynn Patricia M; Rana Sohail R; Cheng Yao Iris; Wang Jichuan
Description
An account of the resource
The objective of this study is to determine if pediatric advance care planning (pACP) increases adolescent/family congruence in end-of-life (EOL) treatment preferences longitudinally. Adolescents aged 14-21 years with HIV/AIDS and their families were randomized (N = 105 dyads) to three-60-minute sessions scheduled one week apart: either the pACP intervention (survey administered independently, facilitated conversation with adolescent and family present, completion of legal advance directive document with adolescent and family present) or an active control (developmental history, safety tips, nutrition and exercise education). This longitudinal, single-blinded, multi-site, randomized controlled trial was conducted in six pediatric hospital-based HIV-clinics, located in high HIV mortality cities. The Statement of Treatment Preferences measured adolescent/family congruence in EOL treatment preferences at immediately following the facilitated pACP conversation (Session 2), and at 3-month post-intervention. The mean age of adolescent participants was 18 years (range 14-21 years); 54% were male; and 93% were African-American. One-third had an AIDS diagnosis. Immediately post-intervention the Prevalence Adjusted Bias Adjusted Kappa showed substantial treatment preference agreement for pACP dyads compared to controls (High burden/low chance of survival, PABAK = 0.688 vs. 0.335; Functional impairment, PABAK = 0.687 vs. PABAK= 0.34; Mental impairment, PABKA = 0.717 vs. 0.341). Agreement to limit treatments was greater among intervention dyads than controls (High burden: 14.6% vs. 0%; Functional impairment = 22.9% vs. 4.4%; and Mental impairment: 12.5% vs. 4.4%). Overall treatment preference agreement among pACP dyads was high immediately post-intervention, but decreased over time. In contrast, treatment agreement among control dyads was low and remained low over time. As goals of care change over time with real experiences, additional pACP conversations are needed.
Identifier
An unambiguous reference to the resource within a given context
10.1080/09540121.2017.1308463
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Advance Care Planning
AIDS care
Briggs Linda
Cheng Yao Iris
congruence
D'Angelo Lawrence J
Dallas Ronald H
Decision Making
end-of-life
Flynn Patricia M
Garcia A
Garvie A
Hinds S
June 2017 List
Lyon Maureen E
Palliative Care
Pediatric
Rana Sohail R
Wang Jichuan
Wilkins Megan L