1
40
123
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://www.capc.org/tools-for-palliative-care-programs/marketing/public-opinion-research/2011-public-opinion-research-on-palliative-care.pdf" target="_blank" rel="noreferrer">http://www.capc.org/tools-for-palliative-care-programs/marketing/public-opinion-research/2011-public-opinion-research-on-palliative-care.pdf</a>
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Title
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2011 Public Opinion Research on Palliative Care.
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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McInturff B; Harrington E
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Harrington E
Journal Article
McInturff B
-
Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1111/j.1365-2788.2010.01377.x" target="_blank" rel="noreferrer noopener">http://doi.org/10.1111/j.1365-2788.2010.01377.x</a>
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Title
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A description of adaptive and maladaptive behaviour in children and adolescents with Cri-du-chat syndrome
Publisher
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Journal of Intellectual Disability Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
adolescent; development; Rehabilitation; epidemiology; Neurology; child; Education & Educational Research; prevalence; Genetics & Heredity; individuals; Neurosciences &; Psychiatry; adults; behaviour; Cri-du-chat syndrome; behavioral problems; Cri-du-chat; trajectory; characteristics; maladaptive behaviors
Creator
An entity primarily responsible for making the resource
Teixeira Mctv; Emerich D R; Orsati F T; Rimerio R C; Gatto K R; Chappaz I O; Kim C A
Description
An account of the resource
Background Psychological tests can be useful to record adaptive and maladaptive behaviours of children with intellectual disability. The objective of this study was to describe the adaptive and maladaptive behaviour of children and adolescents with Cri-du-chat syndrome. Methods The sample consisted of 10 children and adolescents with Cri-du-chat syndrome (mean chronological age = 11.3 years, mean mental age = 18 months). The developmental quotient was calculated through the Psychoeducational Profile - Revised. An observational protocol was used to record adaptive and maladaptive behaviours. Results The number of maladaptive behaviours observed was different among participants. However, all of them had high rates of adaptive behaviours, such as rule-following. Conclusions These results, though preliminary, justify that we continue to think about the need for psychoeducational interventions aimed at stimulating the repertoire of adaptive behaviours, in people with Cri-du-chat syndrome.
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<a href="http://doi.org/10.1111/j.1365-2788.2010.01377.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2788.2010.01377.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Adolescent
adults
behavioral problems
behaviour
Chappaz I O
characteristics
Child
Cri-du-chat
cri-du-chat syndrome
development
Education & Educational Research
Emerich D R
Epidemiology
Gatto K R
Genetics & Heredity
INDIVIDUALS
Journal Of Intellectual Disability Research
Kim C A
maladaptive behaviors
Neurology
Neurosciences &
Orsati F T
Prevalence
Psychiatry
Rehabilitation
Rimerio R C
Teixeira Mctv
Trajectory
-
Text
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Citation List Month
Backlog
URL Address
<a href="http://www.cbc.ca/news/health/features/a-good-death/index.html" target="_blank" rel="noreferrer">http://www.cbc.ca/news/health/features/a-good-death/index.html</a>
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Title
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A Good Death: Palliative Care in Canada
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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CBC
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
CBC
Journal Article
-
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Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">http://doi.org/10.1080/15524256.2011.593153</a>
<a href="http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435" target="_blank" rel="noreferrer">http://ovidsp.ovid.com/ovidweb.cgi?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=medl&AN=21895435</a>
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Title
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A qualitative study of advice from bereaved parents and siblings.
Publisher
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Journal Of Social Work In End-of-life & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
IM; sibling bereavement
Creator
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Thompson AL; Miller KS; Barrera M; Davies B; Foster TL; Gilmer MJ; Hogan N; Vannatta K; Gerhardt CA
Description
An account of the resource
Despite a growing bereavement literature, relatively little is known about what families find helpful after a child's death and how best to assist them during the grieving process. In this qualitative study, the authors explored advice from 40 families (65 parents, 39 siblings) of children who died from cancer 6-19 months earlier. Content analysis emphasized the individual nature of grief and revealed advice that fit into three temporal categories: before the death, soon after, and long-term. Findings are discussed in the context of contemporary theory and provide insight into the development and timing of grief interventions.
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<a href="http://doi.org/10.1080/15524256.2011.593153" target="_blank" rel="noreferrer">10.1080/15524256.2011.593153</a>
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Type
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Journal Article
2011
Backlog
Barrera M
Davies B
Foster TL
Gerhardt CA
Gilmer MJ
Hogan N
IM
Journal Article
Journal of Social Work in End-of-Life & Palliative Care
Miller KS
sibling bereavement
Thompson AL
Vannatta K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2010.08.017" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2010.08.017</a>
<a href="http://www.sciencedirect.com/science/article/pii/S0885392411000157" target="_blank" rel="noreferrer">http://www.sciencedirect.com/science/article/pii/S0885392411000157</a>
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Title
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A Strategy for Conversion From Subcutaneous to Oral Ketamine in Cancer Pain Patients: Effect of a 1:1 Ratio
Publisher
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Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
cancer pain; dose ratio; oral ketamine; Subcutaneous ketamine
Creator
An entity primarily responsible for making the resource
Benítez-Rosario MA; Salinas-Martín A; González-Guillermo Toribio; Feria M
Description
An account of the resource
Context No consensus exists about the most appropriate dose ratio for conversion from parenteral to oral ketamine. Objectives To confirm that a 1:1 dose ratio is suitable for converting subcutaneous (s.c.) to oral ketamine in cancer patients. Methods Patients with opioid poorly responsive cancer pain, who responded to 0.4, 0.6, or 0.8 mg s.c. ketamine bolus, were treated with 0.1, 0.15, or 0.2 mg/kg/h ketamine infusion, respectively. Switching to the oral route, by applying a 1:1 dose ratio, was carried out in patients who experienced adequate pain relief and continued to need ketamine as a coanalgesic. Pain, somnolence, feelings of insobriety, confusion, and cardiovascular parameters were assessed throughout the process. Results Twenty-nine patients were enrolled in the study. Ketamine infusion decreased pain intensity from severe to no pain or slight pain in 23 of 29 and six of 29 patients, respectively. The median of s.c. ketamine doses was 0.2 mg/kg/h (range 0.1–0.5). After oral switching, 27 of 29 patients remained as successfully controlled as when receiving s.c. ketamine. The other two patients needed a slight dose ratio readjustment, to 1:1.3 and 1:1.5, to maintain pain control. The median of oral ketamine doses was 300 mg/day (interquartile range 240–382.5). Seven of 29 patients receiving s.c. ketamine developed moderate and transitory side effects, such as feelings of insobriety and somnolence. No side effects were present while receiving oral ketamine. No significant changes were observed in cardiovascular parameters. Conclusion A 1:1 dose ratio for conversion from s.c. to oral ketamine is safe and effective in cancer pain patients.
Identifier
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<a href="http://doi.org/10.1016/j.jpainsymman.2010.08.017" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2010.08.017</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Benítez-Rosario MA
cancer pain
dose ratio
Feria M
González-Guillermo Toribio
Journal Article
Journal of Pain and Symptom Management
oral ketamine
Salinas-Martín A
Subcutaneous ketamine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1089/jpm.2010.0392" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0392</a>
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Title
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Adverse events in hospice and palliative care: a pilot study to determine feasibility of collection and baseline rates
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Adult; Aged; Middle Aged; Pilot Projects; Feasibility Studies; Australia; Urinary Retention; 80 and over; retrospective studies; Palliative Care/standards; Hospice Care/standards; Accidental Falls; Confusion; Hyperglycemia; Hypoglycemia; Hypotension
Creator
An entity primarily responsible for making the resource
Currow DC; Agar MR; To TH; Rowett D; Greene A; Abernethy AP
Description
An account of the resource
BACKGROUND: Continuous quality improvement is fundamental in all health care, including hospice and palliative care. Identifying and systematically reducing symptomatic adverse events is limited in hospice and palliative care because these events are mostly attributed to disease progression. OBJECTIVES: The aim of this study was to assess the feasibility of symptomatic adverse events in hospice and palliative care and assessing their incidence. METHODS: A retrospective, consecutive cohort of notes from a specialist palliative care inpatient service was surveyed by a clinical nurse consultant for symptomatic adverse events: falls, confusion, decreased consciousness, hypo- and hyperglycaemia, urinary retention, and hypotension. Demographic and clinical factors were explored for people at higher risk. RESULTS: Data were available on the most recent admissions of 65 people, generating >900 inpatient days. Fifty people (78%) had events precipitating admission, of whom 31 (62%) had at least one further event during admission. Eleven of 15 people who were admitted without an event experienced at least one during their admissions. Only 4 did not have an adverse event. During their stay, there were 0.13 (standard deviation [SD] = 0.19) events per patient per day. No drug-drug or drug-host events were noted. No clinical or demographic factors predicted groups at higher risk. CONCLUSIONS: This pilot highlights the feasibility of collecting, and ubiquity of, symptomatic adverse events, and forms a baseline against which future interventions to decrease the frequency or intensity can be measured. Given the frailty of hospice and palliative patients, any adverse event is likely to accelerate irreversibly their systemic decline.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2010.0392" target="_blank" rel="noreferrer">10.1089/jpm.2010.0392</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
80 And Over
Abernethy AP
Accidental Falls
Adult
Agar MR
Aged
Australia
Backlog
Confusion
Currow DC
Feasibility Studies
Female
Greene A
Hospice Care/standards
Humans
Hyperglycemia
Hypoglycemia
Hypotension
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Palliative Care/standards
Pilot Projects
Retrospective Studies
Rowett D
To TH
Urinary Retention
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1136/jech.2008.082602" target="_blank" rel="noreferrer">http://doi.org/10.1136/jech.2008.082602</a>
<a href="http://jech.bmj.com/cgi/doi/10.1136/jech.2008.082602" target="_blank" rel="noreferrer">http://jech.bmj.com/cgi/doi/10.1136/jech.2008.082602</a>
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Title
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Alternatives to randomisation in the evaluation of public health interventions: design challenges and solutions
Publisher
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Journal Of Epidemiology And Community Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Bonell CP; Hargreaves J; Cousens S; Ross D; Hayes R; Petticrew M; Kirkwood BR
Identifier
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<a href="http://doi.org/10.1136/jech.2008.082602" target="_blank" rel="noreferrer">10.1136/jech.2008.082602</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Bonell CP
Cousens S
Hargreaves J
Hayes R
Journal Article
Journal Of Epidemiology And Community Health
Kirkwood BR
Petticrew M
Ross D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpainsymman.2011.01.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpainsymman.2011.01.002</a>
Dublin Core
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Title
A name given to the resource
An advance directive in two questions.
Publisher
An entity responsible for making the resource available
Journal Of Pain And Symptom Management
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Palliative Care; Aged; Resuscitation Orders; Fatal Outcome; DNAR; Pain/et [Etiology]; Advance Directives; Health care reform; Living Wills; Meningitis/et [Etiology]; Pain Management; Pancreatic Neoplasms/co [Complications]; Pancreatic Neoplasms/pa [Pathology]; Pancreatic Neoplasms/th [Therapy]
Creator
An entity primarily responsible for making the resource
Mahon MM
Description
An account of the resource
It has been two decades since advance directives have become an integral part of health care. Impediments to their optimal usage are common and multifactorial. Decisions commonly have to be made when patients are unable to do so or choose not to participate in decision making, often at the end of life. The use of two questions, 1) "If you cannot, or choose not to participate in health care decisions, with whom should we speak?" and 2) "If you cannot, or choose not to participate in decision making, what should we consider when making decisions about your care?," may accomplish the major goals of an advance directive.Copyright © 2011 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.jpainsymman.2011.01.002" target="_blank" rel="noreferrer">10.1016/j.jpainsymman.2011.01.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Advance Directives
Aged
Backlog
DNAR
Fatal Outcome
Female
Health Care Reform
Humans
Journal Article
Journal of Pain and Symptom Management
Living Wills
Mahon MM
Meningitis/et [Etiology]
Pain Management
Pain/et [Etiology]
Palliative Care
Pancreatic Neoplasms/co [Complications]
Pancreatic Neoplasms/pa [Pathology]
Pancreatic Neoplasms/th [Therapy]
Resuscitation Orders
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2010-3175" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2010-3175</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Annual summary of vital statistics: 2008
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; United States; Young Adult; Adult; adolescent; Preschool; infant; Newborn; Maternal Age; Age Distribution; Infant Mortality/trends; Mortality/trends; Birth Rate/trends; Vital Statistics
Creator
An entity primarily responsible for making the resource
Mathews TJ; Minino AM; Osterman MJ; Strobino DM; Guyer B
Description
An account of the resource
The number of births in the United States decreased between 2007 and 2008 (preliminary estimate: 4 251 095). Birth rates declined among all women aged 15 to 39 years; the decrease among teenagers reverses the increases seen in the previous 2 years. The total fertility rate decreased 2% in 2008 to 2085.5 births per 1000 women. The proportion of all births to unmarried women increased to 40.6% in 2008, up from 39.7% in 2007. The 2008 preterm birth rate was 12.3%, a decline of 3% from 2007. In 2008, 32.3% of all births occurred by cesarean delivery, up nearly 2% from 2007. Twin and triplet birth rates were unchanged. The infant mortality rate was 6.59 infant deaths per 1000 live births in 2008 (significantly lower than the rate of 6.75 in 2007). Life expectancy at birth was 77.8 years in 2008. Crude death rates for children aged 1 to 19 years decreased by 5.5% between 2007 and 2008. Unintentional injuries and homicide were, respectively, the first and second leading causes of death in this age group. These 2 causes of death jointly accounted for 51.2% of all deaths of children and adolescents in 2008. This annual article is a long-standing feature in Pediatrics and provides a summary of the most current vital statistics data for the United States. We also include a special feature this year on the differences in cesarean-delivery rates according to race and Hispanic origin.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2010-3175" target="_blank" rel="noreferrer">10.1542/peds.2010-3175</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Adult
Age Distribution
Backlog
Birth Rate/trends
Child
Female
Guyer B
Humans
Infant
Infant Mortality/trends
Journal Article
Male
Maternal Age
Mathews TJ
Minino AM
Mortality/trends
Newborn
Osterman MJ
Pediatrics
Preschool
Strobino DM
United States
Vital Statistics
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2010-0072" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2010-0072</a>
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Title
A name given to the resource
Approaches to the difficult patient/parent encounter
Publisher
An entity responsible for making the resource available
Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; Male; Physician-Patient Relations; Pediatrics; Parents; Conflict (Psychology); adolescent; Patients/classification
Creator
An entity primarily responsible for making the resource
Breuner CC; Moreno MA
Description
An account of the resource
Most pediatricians have experienced uneasy interactions involving patients and/or their parents. The majority of literature on this topic reflects encounters in adult medicine, without providing much information for pediatricians who also face this challenge. Unique to the pediatric approach is the added quotient of the parent/family dynamic. Patients or their parents may have personality disorders or subclinical mental health issues, physicians may be overworked or have a lack of experience, and the health care system may be overburdened, fragmented, and inundated with poor communication. Recognizing the physical or emotional responses triggered by challenging patients/families may allow the provider to effectively partner with, instead of confront, the patient or the family. In this article we review existing literature on this subject and describe possible strategies for the pediatrician to use during a difficult encounter.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1542/peds.2010-0072" target="_blank" rel="noreferrer">10.1542/peds.2010-0072</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Breuner CC
Child
Conflict (Psychology)
Female
Humans
Journal Article
Male
Moreno MA
Parents
Patients/classification
Pediatrics
Physician-patient Relations
-
Dublin Core
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Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1352/1944-7558-116.4.278" target="_blank" rel="noreferrer noopener">http://doi.org/10.1352/1944-7558-116.4.278</a>
Dublin Core
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Title
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Association Between Fatigue and Autistic Symptoms in Children With Cri du Chat Syndrome
Publisher
An entity responsible for making the resource available
American Journal on Intellectual and Developmental Disabilities
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
alertness; sleep disturbance; cri-du-chat; trajectory; characteristics; fatigue; autistic symptoms
Creator
An entity primarily responsible for making the resource
Claro A; Cornish K; Gruber R
Description
An account of the resource
In the current study, the authors examined whether the fatigue level of children diagnosed with cri du chat syndrome was associated with the expression of autistic symptoms. Sixty-nine children with cri du chat syndrome were compared with 47 children with moderate to severe intellectual disabilities who did not differ on intellectual severity. Participants were assessed using the Infant Sleep Questionnaire (J. M. B. Morrell, 1999) for fatigue-level rating and the Childhood Autism Rating Scale (E. Schopler, R. J. Reichler, & B. R. Renner, 1988) for autism-level rating. In support of the authors' hypothesis, results indicated that children who exhibited high levels of fatigue were more likely to express high levels of autistic symptoms. Contrary to the authors' hypothesis, children in the comparison group who exhibited high levels of fatigue conferred the greatest vulnerability to the expression of autistic symptoms.
Identifier
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<a href="http://doi.org/10.1352/1944-7558-116.4.278" target="_blank" rel="noreferrer noopener">10.1352/1944-7558-116.4.278</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
alertness
American Journal on Intellectual and Developmental Disabilities
autistic symptoms
characteristics
Claro A
Cornish K
Cri-du-chat
Fatigue
Gruber R
sleep disturbance
Trajectory
-
Text
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URL Address
<a href="http://doi.org/10.1001/jama.2011.370" target="_blank" rel="noreferrer">http://doi.org/10.1001/jama.2011.370</a>
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Association between opioid prescribing patterns and opioid overdose-related deaths
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Jama
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Female; Humans; Male; Young Adult; Cohort Studies; Adult; Analgesics; Aged; Middle Aged; Risk; Acute Disease; Case-Control Studies; adolescent; Physician's Practice Patterns/statistics & numerical data; Chronic disease; United States/epidemiology; Drug Prescriptions/statistics & numerical data; Opioid/administration & dosage/poisoning; Overdose/epidemiology; Pain/drug therapy; Veterans/statistics & numerical data
Creator
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Bohnert AS; Valenstein M; Bair MJ; Ganoczy D; McCarthy JF; Ilgen MA; Blow FC
Description
An account of the resource
CONTEXT: The rate of prescription opioid-related overdose death increased substantially in the United States over the past decade. Patterns of opioid prescribing may be related to risk of overdose mortality. OBJECTIVE: To examine the association of maximum prescribed daily opioid dose and dosing schedule ("as needed," regularly scheduled, or both) with risk of opioid overdose death among patients with cancer, chronic pain, acute pain, and substance use disorders. DESIGN: Case-cohort study. SETTING: Veterans Health Administration (VHA), 2004 through 2008. PARTICIPANTS: All unintentional prescription opioid overdose decedents (n = 750) and a random sample of patients (n = 154,684) among those individuals who used medical services in 2004 or 2005 and received opioid therapy for pain. Main Outcome Measure Associations of opioid regimens (dose and schedule) with death by unintentional prescription opioid overdose in subgroups defined by clinical diagnoses, adjusting for age group, sex, race, ethnicity, and comorbid conditions. RESULTS: The frequency of fatal overdose over the study period among individuals treated with opioids was estimated to be 0.04%.The risk of overdose death was directly related to the maximum prescribed daily dose of opioid medication. The adjusted hazard ratios (HRs) associated with a maximum prescribed dose of 100 mg/d or more, compared with the dose category 1 mg/d to less than 20 mg/d, were as follows: among those with substance use disorders, adjusted HR = 4.54 (95% confidence interval [CI], 2.46-8.37; absolute risk difference approximation [ARDA] = 0.14%); among those with chronic pain, adjusted HR = 7.18 (95% CI, 4.85-10.65; ARDA = 0.25%); among those with acute pain, adjusted HR = 6.64 (95% CI, 3.31-13.31; ARDA = 0.23%); and among those with cancer, adjusted HR = 11.99 (95% CI, 4.42-32.56; ARDA = 0.45%). Receiving both as-needed and regularly scheduled doses was not associated with overdose risk after adjustment. CONCLUSION: Among patients receiving opioid prescriptions for pain, higher opioid doses were associated with increased risk of opioid overdose death.
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<a href="http://doi.org/10.1001/jama.2011.370" target="_blank" rel="noreferrer">10.1001/jama.2011.370</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Acute Disease
Adolescent
Adult
Aged
Analgesics
Backlog
Bair MJ
Blow FC
Bohnert AS
Case-Control Studies
Chronic Disease
Cohort Studies
Drug Prescriptions/statistics & numerical data
Female
Ganoczy D
Humans
Ilgen MA
JAMA
Journal Article
Male
McCarthy JF
Middle Aged
Opioid/administration & dosage/poisoning
Overdose/epidemiology
Pain/drug Therapy
Physician's Practice Patterns/statistics & numerical data
Risk
United States/epidemiology
Valenstein M
Veterans/statistics & numerical data
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://www.labour.gov.za/legislation/acts/basic-guides/basic-guide-to-family-responsibility-leave" target="_blank" rel="noreferrer">http://www.labour.gov.za/legislation/acts/basic-guides/basic-guide-to-family-responsibility-leave</a>
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Title
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Basic Guide to Family Responsibility Leave
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Bereavement Leave Policy Paper
Creator
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Department of Labour Government of South Africa
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Bereavement Leave Policy Paper
Department of Labour Government of South Africa
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0450</a>
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Title
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Care goals and decisions for children referred to a pediatric palliative care program
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Journal Of Palliative Medicine
Date
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2011
Subject
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Child; Female; Humans; infant; Male; Young Adult; Palliative Care; Pediatrics; Goals; Health Status; quality of life; adolescent; Preschool; decision making; infant; referral and consultation; Newborn; care goals; Life-limiting conditions; Therapeutic Processes; treatment decision making
Creator
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Tamburro R F; Shaffer ML; Hahnlen NC; Felker P; Ceneviva GD
Description
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OBJECTIVE: To describe goals of care for children with complex, life-limiting conditions and to assess the variables that may influence these goals. METHODS: Goals of care were elicited from the parents and children with complex, life-limiting conditions during initial palliative care consultation. Data abstracted included: diagnoses, demographics, time from diagnosis until initial palliative care consult, spirituality status, resuscitative status, and disposition at discharge. Goals of care were categorized into one of four quality-of-life domains: 1) physical health and independence, 2) psychological and spiritual, 3) social, and 4) environment. Summary statistics were prepared and comparisons were made between the four categories of goals. Descriptive statistics were utilized to explore potential associations with a decision to pursue full medical support. RESULTS: One hundred and forty goals of care were obtained from 50 patients/parents. The median patient age was 4.6 years. Thirty-seven patients had significant cognitive delay/impairment. Neuromuscular disorders accounted for more than half of the diagnoses. Forty-nine patients identified at least one goal pertaining to physical health and independence. This was significantly more than any other category (p < 0.0001). Thirty-three of the 50 patients (66%) opted for full medical support at the time of initial consult. CONCLUSIONS: Children with complex, life-limiting conditions and their families referred to a palliative care service commonly verbalize goals related to health maintenance and independence. Anticipating this expectation may foster communication and improve patient care.
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<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">10.1089/jpm.2010.0450</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
care goals
Ceneviva GD
Child
Decision Making
Felker P
Female
Goals
Hahnlen NC
Health Status
Humans
Infant
Journal Article
Journal of Palliative Medicine
Life-limiting Conditions
Male
Newborn
Palliative Care
Pediatrics
Preschool
Quality Of Life
Referral And Consultation
Shaffer ML
Tamburro R F
Therapeutic Processes
treatment decision making
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.101627" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.101627</a>
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Title
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Caring for dying patients can be a satisfying experience
Publisher
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Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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McGrath P; Kearsley J
Identifier
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<a href="http://doi.org/10.1503/cmaj.101627" target="_blank" rel="noreferrer">10.1503/cmaj.101627</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Canadian Medical Association Journal
Journal Article
Kearsley J
McGrath P
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/ajmg.a.34329" target="_blank" rel="noreferrer">http://doi.org/10.1002/ajmg.a.34329</a>
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Title
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Causes of death and autopsy findings in a large study cohort of individuals with Cornelia de Lange syndrome and review of the literature
Publisher
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American Journal Of Medical Genetics.Part A
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Schrier SA; Sherer I; Deardorff MA; Clark D; Audette L; Gillis L; Kline AD; Ernst L; Loomes K; Krantz ID; Jackson LG
Description
An account of the resource
To identify causes of death (COD) in propositi with Cornelia de Lange syndrome (CdLS) at various ages, and to develop guidelines to improve management and avoid morbidity and mortality, we retrospectively reviewed a total of 426 propositi with confirmed clinical diagnoses of CdLS in our database who died in a 41-year period between 1966 and 2007. Of these, 295 had an identifiable COD reported to us. Clinical, laboratory, and complete autopsy data were completed on 41, of which 38 were obtainable, an additional 19 had autopsies that only documented the COD, and 45 propositi had surgical, imaging, or terminal event clinical documentation of their COD. Proband ages ranged from fetuses (21-40 weeks gestation) to 61 years. A literature review was undertaken to identify all reported causes of death in CdLS individuals. In our cohort of 295 propositi with a known COD, respiratory causes including aspiration/reflux and pneumonias were the most common primary causes (31%), followed by gastrointestinal disease, including obstruction/volvulus (19%). Congenital anomalies accounted for 15% of deaths and included congenital diaphragmatic hernia and congenital heart defects. Acquired cardiac disease accounted for 3% of deaths. Neurological causes and accidents each accounted for 8%, sepsis for 4%, cancer for 2%, renal disease for 1.7%, and other causes, 9% of deaths. We also present 21 representative clinical cases for illustration. This comprehensive review has identified important etiologies contributing to the morbidity and mortality in this population that will provide for an improved understanding of clinical complications, and management for children and adults with CdLS.
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<a href="http://doi.org/10.1002/ajmg.a.34329" target="_blank" rel="noreferrer">10.1002/ajmg.a.34329</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
American Journal Of Medical Genetics.Part A
Audette L
Backlog
Clark D
Deardorff MA
Ernst L
Gillis L
Jackson LG
Journal Article
Kline AD
Krantz ID
Loomes K
Schrier SA
Sherer I
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1038/nrclinonc.2011.95" target="_blank" rel="noreferrer">http://doi.org/10.1038/nrclinonc.2011.95</a>
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Title
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Challenging issues in pediatric oncology
Publisher
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Nature Reviews Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Pui CH; Gajjar A; Kane JR; Qaddoumi IA; Pappo AS; Medscape
Description
An account of the resource
Improvements in protocol-driven clinical trials and supportive care for children and adolescents with cancer have reduced mortality rates by more than 50% over the past three decades. Overall, the 5-year survival rate for patients with pediatric cancer has increased to approximately 80%. Recognition of the biological heterogeneity within specific subtypes of cancer, the discovery of genetic lesions that drive malignant transformation and cancer progression, and improved understanding of the basis of drug resistance will undoubtedly catalyze further advances in risk-directed treatments and the development of targeted therapies, boosting the cure rates further. Emerging new treatments include novel formulations of existing chemotherapeutic agents, monoclonal antibodies against cancer-associated antigens, and molecular therapies that target genetic lesions and their associated signaling pathways. Recent findings that link pharmacogenomic variations with drug exposure, adverse effects, and efficacy should accelerate efforts to develop personalized therapy for individual patients. Finally, palliative care should be included as an essential part of cancer management to prevent and relieve the suffering and to improve the quality of life of patients and their families.
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<a href="http://doi.org/10.1038/nrclinonc.2011.95" target="_blank" rel="noreferrer">10.1038/nrclinonc.2011.95</a>
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Type
The nature or genre of the resource
Journal Article
2011
Backlog
Gajjar A
Journal Article
Kane JR
Medscape
Nature Reviews Clinical Oncology
Pappo AS
Pui CH
Qaddoumi IA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216310391346</a>
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Title
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Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families
Publisher
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Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Malcolm C; Forbat L; Anderson G; Gibson F; Hain R
Identifier
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<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">10.1177/0269216310391346</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Anderson G
Backlog
Forbat L
Gibson F
Hain R
Journal Article
Malcolm C
Palliative Medicine
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1177/0883073811402688" target="_blank" rel="noreferrer noopener">http://doi.org/10.1177/0883073811402688</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Change in gross motor abilities of girls and women with rett syndrome over a 3- to 4-year period
Publisher
An entity responsible for making the resource available
Journal of Child Neurology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Age Factors; Disease Progression; Young Adult; Humans; Longitudinal Studies; Adult; Adolescent; Female; Retrospective Studies; Australia; Linear Models; Mutation/genetics; Methyl-CpG-Binding Protein 2/genetics; Arginine/genetics; Motor Skills/physiology; Movement Disorders/etiology/genetics; Rett Syndrome/complications/genetics; tone and motor problems; Rett syndrome; trajectory; characteristics
Creator
An entity primarily responsible for making the resource
Foley K R; Downs J; Bebbington A; Jacoby P; Girdler S; Kaufmann W E; Leonard H
Description
An account of the resource
Rett syndrome is a rare but severe neurological disorder typically associated with a mutation in the MECP2 gene. We describe change in gross motor function over 3 to 4 years for 70 subjects participating in the Australian Rett Syndrome Database. Linear regression was used to assess relationships with age, genotype, and general and complex gross motor skills scores measured on the Gross Motor Scale for Rett syndrome. Skills were slightly better or maintained in approximately 40% of subjects and slightly decreased in approximately 60%. Teenagers and women who walked in 2004 were less likely to lose complex skills than those younger. Girls with a p.R294X mutation were more likely to lose complex motor skills, otherwise skill changes were spread across the mutation categories. In conclusion, small changes were observed over this period with greater stability of skills in teenagers and women with the ability to walk.
Identifier
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<a href="http://doi.org/10.1177/0883073811402688" target="_blank" rel="noreferrer noopener">10.1177/0883073811402688</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Adolescent
Adult
Age Factors
Arginine/genetics
Australia
Bebbington A
characteristics
Disease Progression
Downs J
Female
Foley K R
Girdler S
Humans
Jacoby P
Journal of Child Neurology
Kaufmann W E
Leonard H
Linear Models
Longitudinal Studies
Methyl-CpG-Binding Protein 2/genetics
Motor Skills/physiology
Movement Disorders/etiology/genetics
Mutation/genetics
Retrospective Studies
Rett syndrome
Rett Syndrome/complications/genetics
tone and motor problems
Trajectory
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/j.jpeds.2011.02.002" target="_blank" rel="noreferrer">http://doi.org/10.1016/j.jpeds.2011.02.002</a>
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Title
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Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity
Publisher
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Journal Of Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Berry JG; Agrawal R; Kuo DZ; Cohen E; Risko W; Hall M; Casey P; Gordon J; Srivastava R
Identifier
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<a href="http://doi.org/10.1016/j.jpeds.2011.02.002" target="_blank" rel="noreferrer">10.1016/j.jpeds.2011.02.002</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Agrawal R
Backlog
Berry JG
Casey P
Cohen 2006 BMC HSR Refs
Cohen E
Gordon J
Hall M
Journal Article
Journal of Pediatrics
Kuo DZ
Risko W
Srivastava R
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="http://doi.org/10.1016/j.ijporl.2010.11.003" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.ijporl.2010.11.003</a>
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Title
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Characterization of sleep disturbance in Cornelia de Lange Syndrome
Publisher
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International Journal of Pediatric Otorhinolaryngology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cornelia de Lange Syndrome; Sleep disordered breathing; Sleepiness; Snoring; breathing difficulties; sleep disturbance; De Lange syndrome; trajectory; characteristics; sleep disordered breathing
Creator
An entity primarily responsible for making the resource
Stavinoha Rose C; Kline A D; Levy H P; Kimball A; Mettel T L; Ishman S L
Description
An account of the resource
Prior studies have suggested that sleep disturbance is common in Cornelia de Lange Syndrome (CdLS); however, the nature of this sleep disturbance has not been well characterized. In this study, we evaluate the prevalence of sleep disordered breathing (SDB) and sleepiness in children and young adults with CdLS. Caregivers of 22 patients with CdLS completed 3 validated Pediatric Sleep Questionnaires: the Pediatric Sleep Questionnaire (PSQ), Pediatric Daytime Sleepiness Scale (PDSS), and OSA18. Both measures of SDB (OSA18 and PSQ) suggest that 35–36% of these patients may have moderate to severe SDB. This is much higher than the general population estimates of 1–4% for SDB with a relative risk of 5.2 (95% CI: 2.8–9.9). Correlation between the OSA18 and PSQ was significant (R=0.67; 95% CI: 0.33–0.85, p=0.0007). Confirming these results among patients with a high probability of SDB (based upon OSA18 scores ≥60), there was a non-significant trend toward increased sleepiness with a relative risk of 2.0 (95% CI: 0.73–5.7, p=0.31) on the PDSS and 2.9 (95% CI: 0.93–9.1, p=0.08) on the PSQ sleepiness scale. In those patients with low probability of SDB (OSA18<60), sleepiness was still seen in 13–29% of patients. Overall 23–35% of participants were characterized as sleepy. Sleep disordered breathing and sleepiness appear to be common in CdLS although small sample sizes limit further conclusions. Additional studies with larger sample size and confirmation with polysomnography are needed to further explore the nature and extent of sleep disturbance in this population.
Identifier
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<a href="http://doi.org/10.1016/j.ijporl.2010.11.003" target="_blank" rel="noreferrer noopener">10.1016/j.ijporl.2010.11.003</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
breathing difficulties
characteristics
Cornelia de Lange syndrome
De Lange syndrome
International Journal of Pediatric Otorhinolaryngology
Ishman S L
Kimball A
Kline A D
Levy H P
Mettel T L
Sleep disordered breathing
sleep disturbance
Sleepiness
snoring
Stavinoha Rose C
Trajectory
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.2.87" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.2.87</a>
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Title
A name given to the resource
Chest compressions and epinephrine during resuscitation of infants born at the border of viability: Yes, no or maybe?
Publisher
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Paediatric Child And Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Moore GP; Daboval T; Coughlin KW
Identifier
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<a href="http://doi.org/10.1093/pch/16.2.87" target="_blank" rel="noreferrer">10.1093/pch/16.2.87</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2011
Backlog
Coughlin KW
Daboval T
Journal Article
Moore GP
Paediatric Child And Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1542/peds.2010-0910" target="_blank" rel="noreferrer">http://doi.org/10.1542/peds.2010-0910</a>
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Title
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Children with medical complexity: An emerging population for clinical and research initiatives
Publisher
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Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
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Cohen E; Kuo D; Agrawal R; Berry J; Simon T; Bhagat S; Srivastava R
Identifier
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<a href="http://doi.org/10.1542/peds.2010-0910" target="_blank" rel="noreferrer">10.1542/peds.2010-0910</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2011
Agrawal R
Backlog
Berry J
Bhagat S
Cohen 2006 BMC HSR Refs
Cohen E
Journal Article
Kuo D
Pediatrics
Simon T
Srivastava R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
n/a
URL Address
<a href="http://doi.org/10.4102/sajhivmed.v12i1.204" target="_blank" rel="noreferrer">http://doi.org/10.4102/sajhivmed.v12i1.204</a>
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Title
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Children's palliative care in South Africa: An urgent need for an evidence base
Creator
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Campbell LM
Identifier
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<a href="http://doi.org/10.4102/sajhivmed.v12i1.204" target="_blank" rel="noreferrer">10.4102/sajhivmed.v12i1.204</a>
Publisher
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Southern African Journal Of HIV Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child Health Care; palliative Therapy; Child; Childhood Mortality; Evidence Based Practice; Human; Human Immunodeficiency Virus Infection/ep [epidemiology]; Quality Of Life; Short Survey; South Africa
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Campbell LM
Southern African Journal Of HIV Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1002/pbc.22939" target="_blank" rel="noreferrer">http://doi.org/10.1002/pbc.22939</a>
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Title
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Complementary and alternative therapy use in pediatric oncology patients with failure of frontline chemotherapy
Publisher
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Pediatric Blood & Cancer
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Survival Rate; Young Adult; Adult; Questionnaires; Treatment Outcome; Religion; Complementary Therapies; Treatment Failure; adolescent; Preschool; infant; Newborn; Neoplasms/therapy; Antineoplastic Agents/therapeutic use; Salvage Therapy
Creator
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Paisley MA; Kang T; Insogna IG; Rheingold SR
Description
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BACKGROUND: The use of CAM by the relapsed pediatric oncology population has largely gone unstudied. The main objective of this study was to describe the prevalence of and change in CAM use in oncology patients for whom frontline therapy had failed. Secondary objectives included describing patient/family objectives for using CAM, satisfaction with CAM, financial and time expenditures on CAM, and patient desire for physician involvement in CAM use. PROCEDURE: Fifty-four patients 0-25 years of age, for whom frontline therapy had failed, were enrolled. The subjects completed an anonymous one-time self-administered questionnaire. RESULTS: Eighty-two percent of respondents reported using CAM, 52% of which reported initiating or increasing CAM use after failure of frontline therapy. The most commonly used CAM categories were prayer/spiritual healing (83%) and oral/dietary supplements (31%). Prayer/spiritual healing was most commonly used to cure or slow the progression of cancer (59%). Oral/dietary supplements were used to improve overall health and well-being (65%). Estimates of money and time spent ranged from $0 to >$1,275 (median $225) and 1 to > 700 hr (median 10 hr). Sixty percent of CAM users reported their oncologist was unaware of their use. Most participants who used non-spiritual/prayer CAM continued use while hospitalized or while receiving chemotherapy. CONCLUSIONS: Understanding usage patterns may better help pediatric oncologists and palliative-care specialists address the needs of this population, and protect against potentially dangerous drug interactions or side effects from combined CAM and chemotherapy use.
Identifier
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<a href="http://doi.org/10.1002/pbc.22939" target="_blank" rel="noreferrer">10.1002/pbc.22939</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Adult
Antineoplastic Agents/therapeutic use
Backlog
Child
Complementary Therapies
Female
Humans
Infant
Insogna IG
Journal Article
Kang T
Male
Neoplasms/therapy
Newborn
Paisley MA
Pediatric Blood & Cancer
Preschool
Questionnaires
Religion
Rheingold SR
Salvage Therapy
Survival Rate
Treatment Failure
Treatment Outcome
Young Adult
-
Dublin Core
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Title
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Book Publications
Text
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Dublin Core
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Title
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Correlation Network Analysis and Knowledge Integration
Publisher
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Applied Statistics For Network Biology: Methods In Systems Biology
Date
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2011
Creator
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Plasterer TN; Stanley R; Gombocz E
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Book/Book Section
2011
Applied Statistics For Network Biology: Methods In Systems Biology
Book/Book Section
Gombocz E
Plasterer TN
Stanley R
-
Dublin Core
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Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
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URL Address
<a href="http://doi.org/10.3171/2011.8.PEDS11153" target="_blank" rel="noreferrer noopener">http://doi.org/10.3171/2011.8.PEDS11153</a>
Dublin Core
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Title
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Deep brain stimulation in children: experience and technical pearls
Publisher
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Journal of Neurosurgery - Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Adolescent; Adult; Age; Factors Brain/pa [Pathology]; Brain/ra [Radiography]; Child; Preschool; Deep Brain Stimulation/ae [Adverse Effects]; Deep Brain Stimulation/mt [Methods]; Dystonia/pp [Physiopathology]; Dystonia/th [Therapy]; Female; Follow-Up Studies; Humans; Magnetic Resonance Imaging; Male; Movement; Retrospective Studies; Tomography; X-Ray Computed Treatment Outcome; tone and motor problems; Glutaric acidemia type I; Lesch-Nyhan syndrome; deep brain stimulation; secondary dystonia
Creator
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Air E L; Ostrem J L; Sanger T D; Starr P A
Description
An account of the resource
OBJECT: Deep brain stimulation (DBS) is an established technique for the treatment of several movement disorders in adults. However, the technical approach, complications, and results of DBS in children have not been well documented. METHODS: A database of DBS implantations performed at a single institution, prospectively established in 1998, was reviewed for patients who received DBS prior to the age of 18. Diagnoses, surgical technique, and complications were noted. Outcomes were assessed using standard rating scales of neurological function. RESULTS: Of 815 patients undergoing DBS implantation over a 12-year period, 31 were children (mean age at surgery 13.2 years old, range 4-17 years old). Diagnoses included the following: DYT1 primary dystonia (autosomal dominant, Tor1ADELTAGAG mutation, 10 cases), non-DYT1 primary dystonia (3 cases), secondary dystonia (11 cases), neurodegeneration with brain iron accumulation (NBIA, 3 cases), levodopa-responsive parkinsonism (2 cases), Lesch-Nyhan disease (1 case), and glutaric aciduria Type 1 (1 case). Six children ages 15-17 years old underwent awake microelectrode-guided surgery. For 25 children operated under general anesthesia, the surgical technique evolved from microelectrode-guided surgery to image-guided surgeries using real-time intraoperative MR imaging or CT for lead location confirmation. Complications included 5 hardware infections, all in children younger than 10 years old. At 1 year after implantation, patients with DYT1 dystonia had a mean improvement in the Burke-Fahn-Marsden Dystonia Rating Scale movement subscore of 75%, while those with secondary dystonia had only small improvements. Outcomes in the 3 children with NBIA were disappointing. CONCLUSIONS: Results of DBS in children with primary and secondary dystonias were similar to those in adults, with excellent results for DYT1 dystonia in children without fixed orthopedic deformity and much more modest results in secondary dystonia. In contrast to reported experience in adults with NBIA, these results in children with NBIA were poor. Infection risk was highest in the youngest patients.
Identifier
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<a href="http://doi.org/10.3171/2011.8.PEDS11153" target="_blank" rel="noreferrer noopener">10.3171/2011.8.PEDS11153</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Adolescent
Adult
Age
Air E L
Brain/ra [Radiography]
Child
deep brain stimulation
Deep Brain Stimulation/ae [Adverse Effects]
Deep Brain Stimulation/mt [Methods]
Dystonia/pp [Physiopathology]
Dystonia/th [Therapy]
Factors Brain/pa [Pathology]
Female
Follow-up Studies
Glutaric acidemia type I
Humans
Journal of Neurosurgery - Pediatrics
Lesch-Nyhan syndrome
Magnetic Resonance Imaging
Male
Movement
Ostrem J L
Preschool
Retrospective Studies
Sanger T D
secondary dystonia
Starr P A
Tomography
tone and motor problems
X-Ray Computed Treatment Outcome
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0022022110381123" target="_blank" rel="noreferrer">http://doi.org/10.1177/0022022110381123</a>
Dublin Core
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Deity and Destiny: Patterns of Fatalistic Thinking in Christian and Hindu Cultures
Publisher
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Journal Of Cross-cultural Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Young MJ; Morris MW; Burrus J; Krishnan L; Prasad RM
Identifier
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<a href="http://doi.org/10.1177/0022022110381123" target="_blank" rel="noreferrer">10.1177/0022022110381123</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Burrus J
Journal Article
Journal Of Cross-cultural Psychology
Krishnan L
Morris MW
Prasad RM
Young MJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1016/s1553-7250(11)37002-x" target="_blank" rel="noreferrer">http://doi.org/10.1016/s1553-7250(11)37002-x</a>
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Title
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Developing a policy for do not resuscitate orders within a framework of goals of care.
Publisher
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Joint Commission Journal On Quality And Patient Safety / Joint Commission Resources
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Humans; Policy; decision making; DNAR; Palliative Care/og [Organization & Administration]; Hospital Administration/es [Ethics]; Patient Care Planning/es [Ethics]; Patient Care Planning/og [Organization & Administration]; Resuscitation Orders/es [Ethics]; Palliative Care/es [Ethics]; Terminal Care/es [Ethics]; Terminal Care/og [Organization & Administration]
Creator
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Kaldjian LC; Broderick A
Description
An account of the resource
BACKGROUND: Discussions about DNR (do not resuscitate) orders or code status are common but can be difficult and may not lead to accurate understanding between clinicians and patients. These discussion are often isolated from the larger context of a patient's plan of care. Addressing patients goals of care, which provide a basic orientation for clinical and ethical decision making, may improve clinicians' understanding about patients' code-status preferences., A POLICY FOR DNR ORDERS WITHIN A FRAMEWORK OF GOALS OF CARE: On the basis of experience at the University of Iowa Hospitals and Clinics, which entailed incorporating goals of care in ethics education, identifying six goals of care through a structured literature review, surveying hospitalized adults, and integrating goals of care into palliative care education, the University of Iowa Hospitals and Clinics ethics committee revised the hospital policy regarding DNR orders. The intention was to avoid treating DNR orders as an isolated clinical phenomenon and to instead place the discussion of DNR orders in the more general context of end-of-life discussions and to place both of these discussions within an even more general framework of goals of care., CONCLUSIONS: The DNR order policy represents an effort to translate conceptual analysis, empirical research, and clinical experience into hospital policy so that clinicians are encouraged to place code-status discussions within a larger, goal-oriented context. Using goals of care to guide decision making about DNR orders and other treatments should enhance the quality of patient care by improving the fit between the biomedical information we provide patients and the values our patients rely on to make their medical decisions.
Identifier
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<a href="http://doi.org/10.1016/s1553-7250(11)37002-x" target="_blank" rel="noreferrer">10.1016/s1553-7250(11)37002-x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Broderick A
Decision Making
DNAR
Hospital Administration/es [Ethics]
Humans
Joint Commission Journal On Quality And Patient Safety / Joint Commission Resources
Journal Article
Kaldjian LC
Palliative Care/es [Ethics]
Palliative Care/og [Organization & Administration]
Patient Care Planning/es [Ethics]
Patient Care Planning/og [Organization & Administration]
Policy
Resuscitation Orders/es [Ethics]
Terminal Care/es [ethics]
Terminal Care/og [organization & Administration]
-
Dublin Core
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2023 Special Edition 4 - Parent Perspectives List
Text
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Citation List Month
2023 SE4 - Parent Perspectives
URL Address
<a href="http://doi.org/10.1111/j.1365-2702.2010.03523.x" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1111/j.1365-2702.2010.03523.x</a>
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Development and implementation of a bereavement follow-up intervention for grieving fathers: an action research.
Publisher
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Journal of Clinical Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Male; Health Services Research; Finland; Program Development; *Bereavement; *Fathers/px [Psychology]; *Social Support; Evidence-Based Nursing
Creator
An entity primarily responsible for making the resource
Aho, Anna L; Astedt-Kurki, Paivi; Tarkka, Marja-Terttu; Kaunonen, Marja
Description
An account of the resource
AIMS AND OBJECTIVES: The aim is to present the development and implementation of a bereavement follow-up intervention for grieving fathers. The development and implementation process and components of the intervention are presented., BACKGROUND: There is a lack of research into fathers' grief and bereavement support for them after the death of a child. Promotion of evidence-based nursing requires transparent development and implementation of nursing interventions and models to be able to repeat, evaluate their effectiveness and redevelop them., DESIGN: Phases of action research were used when developing and implementing the intervention., METHODS: Results of the baseline study of father's grief and social support, the study of current bereavement support and the literature review were combined using triangulation., RESULTS: In this action research, the development of a bereavement follow-up intervention for grieving fathers began with the planning phase that included a baseline study about fathers' grief and social support, a study of current bereavement support systems in Finnish university hospitals and a systematic review of literature on the topic area and collaboration with a panel of experts. The developed bereavement follow-up intervention included three complementary components: support package, peer supporters' contact and health care personnel's contact. Implementation of the intervention included the development of a programme to be used in nursing practice, intervention training for programme implementers and intervention implementation., CONCLUSIONS: Developing and implementing an intervention is a complex, demanding and long-term process. The planning required theoretical knowledge as well as understanding the experiences of fathers, nursing practice and collaboration with those who implemented the intervention., RELEVANCE TO CLINICAL PRACTICE: New information about the fathers' grief and bereavement follow-up support is described. The model developed is evidence-based and can be applied in nursing care where grieving fathers and families are met. Copyright © 2010 Blackwell Publishing Ltd.
Identifier
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<a href="http://doi.org/10.1111/j.1365-2702.2010.03523.x" target="_blank" rel="noreferrer noopener">10.1111/j.1365-2702.2010.03523.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
*Bereavement
*Fathers/px [Psychology]
*Social Support
2011
2023 SE4 - Parent Perspectives
Aho, Anna L
Astedt-Kurki, Paivi
Evidence-Based Nursing
Finland
Health Services Research
Humans
Journal of Clinical Nursing
Kaunonen, Marja
Male
Program Development
Tarkka, Marja-Terttu
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
URL Address
<a href="https://doi.org/10.1016/j.pedn.2010.01.007" target="_blank" rel="noreferrer">https://doi.org/10.1016/j.pedn.2010.01.007</a>
Notes
<p>1532-8449<br />Schneider, Monica<br />Steele, Rose<br />Cadell, Susan<br />Hemsworth, David<br />MOP-79526/Canadian Institutes of Health Research/Canada<br />Journal Article<br />Research Support, Non-U.S. Gov't<br />United States<br />J Pediatr Nurs. 2011 Jun;26(3):186-99. doi: 10.1016/j.pedn.2010.01.007. Epub 2010 Feb 25.</p>
Dublin Core
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Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Title
A name given to the resource
Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses
Publisher
An entity responsible for making the resource available
Journal Of Pediatric Nursing
Subject
The topic of the resource
Parent-child Relations; Adaptation Psychological; Adult; Aged; Caregivers/ Psychology; Child; Chronic Disease; Cost Of Illness; Fathers/ Psychology; Female; Humans; Male; Middle Aged; Mothers/ Psychology; Palliative Care/ Psychology; Sex Factors; Stress Psychological/psychology; Young Adult
Creator
An entity primarily responsible for making the resource
Schneider M; Steele R; Cadell S; Hemsworth D
Description
An account of the resource
This secondary analysis of data examined the psychosocial outcomes of meaning in caregiving, self-esteem, optimism, burden, depression, spirituality, and posttraumatic growth in 273 parents caring for children with life-limiting illnesses to (a) determine if there were gender differences and (b) identify gender-specific correlations among these outcomes. Findings suggest that significant gender differences exist. Women reported higher average scores compared with men for meaning in caregiving, depression, burden, and posttraumatic growth and lower average scores for optimism. Correlations also revealed some significant differences. Health care professionals need to be aware of gender differences and tailor their interventions appropriately.
Identifier
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<a href="https://doi.org/10.1016/j.pedn.2010.01.007" target="_blank" rel="noreferrer">10.1016/j.pedn.2010.01.007</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Adaptation Psychological
Adult
Aged
Cadell S
Caregivers/ Psychology
Child
Chronic Disease
Cost Of Illness
Differences On Psychosocial Outcomes Between Male And Female Caregivers Of Children With Life-limiting Illnesses
Fathers/ Psychology
Female
Hemsworth D
Humans
Journal of Pediatric Nursing
Male
Middle Aged
Mothers/ Psychology
Palliative Care/ Psychology
Parent-child Relations
Schneider M
Sex Factors
Steele R
Stress Psychological/psychology
Young Adult
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Dublin Core
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Title
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Discovering strengths and growth in palliative care
Publisher
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Oxford Textbook Of Palliative Social Work
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Cadell S; Shermak S; Johnston M
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Book/Book Section
2011
Book/Book Section
Cadell S
Johnston M
Oxford Textbook Of Palliative Social Work
Shermak S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0009922811398959" target="_blank" rel="noreferrer">http://doi.org/10.1177/0009922811398959</a>
Dublin Core
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Title
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Distraction, exposure therapy, counterconditioning, and topical anesthetic for acute pain management during needle sticks in children with intellectual and developmental disabilities
Publisher
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Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; Male; Cooperative Behavior; Developmental Disabilities; Task Performance and Analysis; adolescent; Preschool; Psychological; Stress; caregivers; Behavior Therapy/methods; Phlebotomy
Creator
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Slifer KJ; Hankinson JC; Zettler MA; Frutchey RA; Hendricks MC; Ward CM; Reesman J
Description
An account of the resource
A behavior therapy approach for obtaining cooperation during needle sticks was provided to 8 pediatric patients with intellectual and developmental disabilities. Therapy was provided during mock needle sticks. Hand lotion was applied to simulate topical anesthetic. Distracting activities established relaxation while needle stick materials were gradually introduced. Positive reinforcement was provided for cooperation. Behavioral distress was ignored, blocked, or redirected. After cooperating with mock needle sticks, needle sites were prepared with topical anesthetic (EMLA), then therapists and medical staff implemented the behavioral protocol while completing the actual needle stick(s). Observational measures of cooperation and interfering were obtained. Results were replicated across 8 children and evaluated using paired samples t tests. Initially, all children were uncooperative with needle sticks. With treatment, behavioral distress decreased, and patients cooperated with mock and actual needle sticks. Results support the effectiveness of behavior therapy for promoting cooperation in children with intellectual and developmental disabilities during needle sticks.
Identifier
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<a href="http://doi.org/10.1177/0009922811398959" target="_blank" rel="noreferrer">10.1177/0009922811398959</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Behavior Therapy/methods
Caregivers
Child
Clinical Pediatrics
Cooperative Behavior
Developmental Disabilities
Female
Frutchey RA
Hankinson JC
Hendricks MC
Humans
Journal Article
Male
Phlebotomy
Preschool
Psychological
Reesman J
Slifer KJ
Stress
Task Performance and Analysis
Ward CM
Zettler MA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.100610" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.100610</a>
Dublin Core
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Title
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Doing, when there is nothing to be done
Publisher
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Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Schattner A
Identifier
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<a href="http://doi.org/10.1503/cmaj.100610" target="_blank" rel="noreferrer">10.1503/cmaj.100610</a>
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Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Canadian Medical Association Journal
Journal Article
Schattner A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1001/archpediatrics.2011.5" target="_blank" rel="noreferrer">http://doi.org/10.1001/archpediatrics.2011.5</a>
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Title
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Effect of Hospital-Based Comprehensive Care Clinic on Health Costs for Medicaid-Insured Medically Complex Children
Publisher
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Archives Of Pediatrics & Adolescent Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Cohen 2006 BMC HSR Refs
Creator
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Casey PH; Lyle RE; Bird TM; Robbins JM; Kuo DZ; Brown C; Lal A; Tanios A; Burns K
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<a href="http://doi.org/10.1001/archpediatrics.2011.5" target="_blank" rel="noreferrer">10.1001/archpediatrics.2011.5</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Archives Of Pediatrics & Adolescent Medicine
Backlog
Bird TM
Brown C
Burns K
Casey PH
Cohen 2006 BMC HSR Refs
Journal Article
Kuo DZ
Lal A
Lyle RE
Robbins JM
Tanios A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.2.91" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.2.91</a>
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Title
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Emergency management of the paediatric patient with generalized convulsive status epilepticus
Publisher
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Paediatric Child And Health
Date
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2011
Creator
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Friedman JN
Identifier
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<a href="http://doi.org/10.1093/pch/16.2.91" target="_blank" rel="noreferrer">10.1093/pch/16.2.91</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Friedman JN
Journal Article
Paediatric Child And Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://europa.eu/pol/socio/index_en.htm" target="_blank" rel="noreferrer">http://europa.eu/pol/socio/index_en.htm</a>
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Title
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Employment and Social Affairs
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Bereavement Leave Policy Paper
Creator
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Europa
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Bereavement Leave Policy Paper
Europa
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/07481187.2011.553336" target="_blank" rel="noreferrer">http://doi.org/10.1080/07481187.2011.553336</a>
Dublin Core
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Title
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End-of-life care in an acute care hospital: Linking policy and practice
Publisher
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Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Sorensen R
Description
An account of the resource
Federal and state government policymakers in Australia are promoting shared decision making in acute care hospitals as a means to improve the quality of end-of-life care. If policy is to be effective, health care professionals who provide hospital care will need to respond to its patient-centered purpose. Health services will also be called upon to train health care professionals to work with dying people in a more participatory way and to assist them to develop the clinical processes that support shared decision making. Health professionals who manage clinical workplaces become central in reshaping this practice environment by promoting patient-centered care policy objectives and restructuring health service systems to routinely incorporate patient and family preferences about care at key points in the patient's care episode.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/07481187.2011.553336" target="_blank" rel="noreferrer">10.1080/07481187.2011.553336</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Death studies
Journal Article
Sorensen R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-8519.2011.01939.x</a>
Dublin Core
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Title
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End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.
Publisher
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Bioethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Humans; United States; Palliative Care; Advance Directives; Adult; Canada; Deep Sedation; Withholding Treatment; Aged; Euthanasia; Europe; Suicide; decision making; Active; DNAR; Assisted/lj [Legislation & Jurisprudence]; Terminal Care; Voluntary; Bioethical Issues; Public Opinion
Creator
An entity primarily responsible for making the resource
Schuklenk U; van Delden JJM; Downie Jocelyn; McLean SAM; Upshur R; Weinstock D
Description
An account of the resource
This report on end-of-life decision-making in Canada was produced by an international expert panel and commissioned by the Royal Society of Canada. It consists of five chapters. Chapter 1 reviews what is known about end-of-life care and opinions about assisted dying in Canada. Chapter 2 reviews the legal status quo in Canada with regard to various forms of assisted death. Chapter 3 reviews ethical issues pertaining to assisted death. The analysis is grounded in core values central to Canada's constitutional order. Chapter 4 reviews the experiences had in a number of jurisdictions that have decriminalized or recently reviewed assisted dying in some shape or form. Chapter 5 provides recommendations with regard to the provision of palliative care in Canada, as well as recommendations for reform with respect to the various forms of assisted death covered in this document.Copyright © 2011 Blackwell Publishing Ltd.
Identifier
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<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">10.1111/j.1467-8519.2011.01939.x</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Active
Adult
Advance Directives
Aged
Assisted/lj [Legislation & Jurisprudence]
Backlog
Bioethical Issues
Bioethics
Canada
Child
Decision Making
Deep Sedation
DNAR
Downie Jocelyn
Europe
Euthanasia
Humans
Journal Article
McLean SAM
Palliative Care
Public Opinion
Schuklenk U
Suicide
Terminal Care
United States
Upshur R
van Delden JJM
Voluntary
Weinstock D
Withholding Treatment
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Treatment of Symptoms in Children with Q3 Conditions Scoping Review Results
Text
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URL Address
<a href="http://doi.org/10.1016/j.ijporl.2011.07.031" target="_blank" rel="noreferrer noopener">http://doi.org/10.1016/j.ijporl.2011.07.031</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Endoscopic balloon dilatation of esophageal strictures in children
Publisher
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International Journal of Pediatric Otorhinolaryngology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Children; Pediatrics; experience; management; Dysphagia; Otorhinolaryngology; atresia; Balloon dilatation; conservative treatment; dilation; epidermolysis bullosa; Esophageal strictures; ingestion; repair; feeding difficulties; surgical intervention; endoscopic balloon dilatation
Creator
An entity primarily responsible for making the resource
Alshammari J; Quesnel S; Pierrot S; Couloigner V
Description
An account of the resource
Aim of the study: To assess the efficacy and safety of endoscopic balloon dilatation of esophageal strictures in children. Material and methods: Design: retrospective case series; population: 49 patients under 18 years of age referred to our center for esophageal strictures; treatment: endoscopic balloon dilatation: outcome parameters: residual dysphagia, weight gain, iatrogenic esophageal perforation, assessment of the esophageal lumen by endoscopy or esophagogram. Results: The three main etiologies were esophageal atresia (49%; n = 24), corrosive injury (25%; n = 12), and epidermolysis bullosa (14%; n = 7), followed by a heterogeneous group of rarer causes (12%; n = 6). The number of dilatations ranged from 1 to 8 sessions per patient (median +/- SEM: 2 +/- 0.3). The length of the follow-up period ranged from 20 to 109 months (median +/- SEM: 40 +/- 4 months). Treatment was successful in 86% of cases (n = 42). Twelve percent of patients (n = 6) had a residual stenosis requiring surgery, and a further one still experienced swallowing difficulties requiring enteral nutrition via gastrostomy in spite of the absence of significant residual stricture. Results were less satisfactory in cases of corrosive injury than with other etiologies. Three esophageal perforations were observed (6% of patients; 2% of procedures). All were medically treated. Conclusions: Endoscopic balloon dilatation is a simple, safe and efficacious treatment of esophageal strictures in children. (C) 2011 Elsevier Ireland Ltd. All rights reserved.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1016/j.ijporl.2011.07.031" target="_blank" rel="noreferrer noopener">10.1016/j.ijporl.2011.07.031</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2011
Alshammari J
atresia
Balloon dilatation
Children
conservative treatment
Couloigner V
dilation
Dysphagia
endoscopic balloon dilatation
epidermolysis bullosa
Esophageal strictures
Experience
feeding difficulties
ingestion
International Journal of Pediatric Otorhinolaryngology
Management
Otorhinolaryngology
Pediatrics
Pierrot S
Quesnel S
repair
surgical intervention