2
40
123
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1038/nrclinonc.2011.95" target="_blank" rel="noreferrer">http://doi.org/10.1038/nrclinonc.2011.95</a>
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Title
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Challenging issues in pediatric oncology
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Nature Reviews Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Pui CH; Gajjar A; Kane JR; Qaddoumi IA; Pappo AS; Medscape
Description
An account of the resource
Improvements in protocol-driven clinical trials and supportive care for children and adolescents with cancer have reduced mortality rates by more than 50% over the past three decades. Overall, the 5-year survival rate for patients with pediatric cancer has increased to approximately 80%. Recognition of the biological heterogeneity within specific subtypes of cancer, the discovery of genetic lesions that drive malignant transformation and cancer progression, and improved understanding of the basis of drug resistance will undoubtedly catalyze further advances in risk-directed treatments and the development of targeted therapies, boosting the cure rates further. Emerging new treatments include novel formulations of existing chemotherapeutic agents, monoclonal antibodies against cancer-associated antigens, and molecular therapies that target genetic lesions and their associated signaling pathways. Recent findings that link pharmacogenomic variations with drug exposure, adverse effects, and efficacy should accelerate efforts to develop personalized therapy for individual patients. Finally, palliative care should be included as an essential part of cancer management to prevent and relieve the suffering and to improve the quality of life of patients and their families.
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<a href="http://doi.org/10.1038/nrclinonc.2011.95" target="_blank" rel="noreferrer">10.1038/nrclinonc.2011.95</a>
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Type
The nature or genre of the resource
Journal Article
2011
Backlog
Gajjar A
Journal Article
Kane JR
Medscape
Nature Reviews Clinical Oncology
Pappo AS
Pui CH
Qaddoumi IA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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<a href="http://doi.org/10.1056/NEJMp1100674" target="_blank" rel="noreferrer">http://doi.org/10.1056/NEJMp1100674</a>
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Title
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Into the water--the clinical clerkships
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The New England Journal Of Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Humans; Physician-Patient Relations; Massachusetts; Curriculum; Schools; Medical; empathy; Students; Teaching/methods; Clinical Clerkship/methods; Medical/psychology; Mentors
Creator
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Treadway K; Chatterjee N
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<a href="http://doi.org/10.1056/NEJMp1100674" target="_blank" rel="noreferrer">10.1056/NEJMp1100674</a>
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Type
The nature or genre of the resource
Journal Article
2011
Backlog
Chatterjee N
Clinical Clerkship/methods
Curriculum
Empathy
Humans
Journal Article
Massachusetts
Medical
Medical/psychology
Mentors
Physician-patient Relations
Schools
Students
Teaching/methods
The New England Journal Of Medicine
Treadway K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1080/07481187.2011.553336" target="_blank" rel="noreferrer">http://doi.org/10.1080/07481187.2011.553336</a>
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Title
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End-of-life care in an acute care hospital: Linking policy and practice
Publisher
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Death Studies
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Sorensen R
Description
An account of the resource
Federal and state government policymakers in Australia are promoting shared decision making in acute care hospitals as a means to improve the quality of end-of-life care. If policy is to be effective, health care professionals who provide hospital care will need to respond to its patient-centered purpose. Health services will also be called upon to train health care professionals to work with dying people in a more participatory way and to assist them to develop the clinical processes that support shared decision making. Health professionals who manage clinical workplaces become central in reshaping this practice environment by promoting patient-centered care policy objectives and restructuring health service systems to routinely incorporate patient and family preferences about care at key points in the patient's care episode.
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<a href="http://doi.org/10.1080/07481187.2011.553336" target="_blank" rel="noreferrer">10.1080/07481187.2011.553336</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Death studies
Journal Article
Sorensen R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
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URL Address
<a href="http://doi.org/10.1080/13607863.2010.543658" target="_blank" rel="noreferrer">http://doi.org/10.1080/13607863.2010.543658</a>
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Title
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The Spanish version of the dementia quality of life questionnaire: a validation study
Publisher
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Aging & Mental Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Male; Aged; Middle Aged; Severity of Illness Index; European Continental Ancestry Group; Sensitivity and Specificity; Reproducibility of Results; Spain; Diagnostic and Statistical Manual of Mental Disorders; Language; 80 and over; Quality of Life/psychology; Questionnaires/standards; Dementia/diagnosis/physiopathology/psychology; Psychometrics/instrumentation; Translations
Creator
An entity primarily responsible for making the resource
Lucas-Carrasco R; Gomez-Benito J; Rejas J; Brod M
Description
An account of the resource
BACKGROUND: The aim of the study was to adapt and validate culturally the dementia-specific health-related quality of life instrument (HRQoL) into Spanish for patients with mild to moderate dementia. METHODS: Two forward translations, a reconciled version, and then a back translation were completed and subjected to expert review. A total of 112 patients with dementia, diagnosed according to DSM-IV criteria, from six centres providing care for persons with dementia in Spain participated in the study. The following patient-reported information was obtained by interview: demographics, subjective perception of health, depressive symptoms (Geriatric Depression Scale-15; GDS-15), functional ability (Barthel Index), and both generic (World Health Organization Quality of Life; WHOQOL-BREF) and dementia-specific quality of life (DQoL). RESULTS: The Spanish version of the DQoL showed acceptable psychometric properties. Internal consistency (Cronbach's alpha) was acceptable for most of the DQoL scales. As expected, associations were found between DQoL scales and the WHOQOL-BREF psychological domain and the GDS-15, indicating good validity. Neither functional status nor severity of dementia was associated with QoL; but depressive symptoms and self-reported feeling ill had a negative association on QoL. CONCLUSIONS: The results showed that the Spanish version of the DQoL has comparable psychometric properties to the US version. The DQoL appears to be a reliable and valid instrument intended to be administered to patients with mild/moderate dementia who are living at home.
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<a href="http://doi.org/10.1080/13607863.2010.543658" target="_blank" rel="noreferrer">10.1080/13607863.2010.543658</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
80 And Over
Aged
Aging & Mental Health
Backlog
Brod M
Dementia/diagnosis/physiopathology/psychology
Diagnostic and Statistical Manual of Mental Disorders
European Continental Ancestry Group
Female
Gomez-Benito J
Humans
Journal Article
Language
Lucas-Carrasco R
Male
Middle Aged
Psychometrics/instrumentation
Quality Of Life/psychology
Questionnaires/standards
Rejas J
Reproducibility of Results
Sensitivity and Specificity
Severity Of Illness Index
Spain
Translations
-
Dublin Core
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Title
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PedPalASCNet Member Publications
Subject
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A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1080/13691058.2010.525665" target="_blank" rel="noreferrer">http://doi.org/10.1080/13691058.2010.525665</a>
Dublin Core
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Title
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Managing Stigma in Adolescent HIV: Silence, Secrets and Sanctioned Spaces
Publisher
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Culture, Health And Sexuality
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Fielden S; Chapman G; Cadell S
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<a href="http://doi.org/10.1080/13691058.2010.525665" target="_blank" rel="noreferrer">10.1080/13691058.2010.525665</a>
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Type
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Journal Article
2011
Backlog
Cadell S
Chapman G
Culture, Health And Sexuality
Fielden S
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jayao.2011.1500" target="_blank" rel="noreferrer">http://doi.org/10.1089/jayao.2011.1500</a>
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Title
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Trailblazers in Adolescent and Young Adult Oncology
Publisher
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Journal Of Adolescent And Young Adult Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Bleyer A; Albritton KH; Barr R; Lewis IJ; Sender LS
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<a href="http://doi.org/10.1089/jayao.2011.1500" target="_blank" rel="noreferrer">10.1089/jayao.2011.1500</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
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Journal Article
2011
Albritton KH
Backlog
Barr R
Bleyer A
Journal Article
Journal Of Adolescent And Young Adult Oncology
Lewis IJ
Sender LS
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
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URL Address
<a href="http://doi.org/10.1089/jpm.2010.0328" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0328</a>
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Title
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Missed Opportunities: Use of an End-of-Life Symptom Management Order Protocol among Inpatients Dying Expected Deaths
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Walling AM; Ettner SL; Barry T; Yamamoto MC; Wenger NS
Description
An account of the resource
Abstract Background: When a patient is expected to die, the ideal plan of care focuses on comfort. Prior investigation of application of one institution's end-of-life symptom management order (ESMO) protocol suggested that comfort measures were often instituted too late and sometimes not at all. We studied patient factors associated with missed opportunities for use of an ESMO protocol and protocol adherence in order to identify areas for quality improvement. Methods: We abstracted the terminal hospitalization medical record for all adult decedents hospitalized for at least 3 days between April 2005 and April 2006 (n = 496) at a university medical center. Detailed information was collected about ESMO use and opiate titration at the end of life. Among patients expected to die, we used multivariate logistic regression to evaluate factors associated with whether patients were placed on the ESMO protocol prior to death. Results: Half of patients who died received ESMO protocol care (n = 248). All had documentation of a do-not-resuscitate (DNR) order (a requirement of the protocol). An opiate drip was used for 95% of patients placed on the ESMO protocol and it was titrated up at least once for 67% of those patients. Patients had a mean of 4 opiate titrations, but for only a mean of 2.2 was a justification documented (symptom documentation is required for each titration per the protocol). In a multivariable regression accounting for other demographic, clinical and provider variables, uninsured patients (risk ratio [RR] 0.25, 95% confidence interval [CI] 0.06-0.62), patients admitted from a nursing home (RR 0.57, 95% CI 0.30-0.99), and patients considered for transplant (RR 0.60, 95% CI 0.40-0.85) were significantly less likely to be placed on the ESMO protocol prior to death. Conclusions: Evaluation of implementation of a standardized order set can identify areas for quality improvement and missed opportunities for use.
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<a href="http://doi.org/10.1089/jpm.2010.0328" target="_blank" rel="noreferrer">10.1089/jpm.2010.0328</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Barry T
Ettner SL
Journal Article
Journal of Palliative Medicine
Walling AM
Wenger NS
Yamamoto MC
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0387" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0387</a>
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Title
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Spirituality of parents of children in palliative care
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Knapp C; Madden V; Wang H; Curtis C; Sloyer P; Shenkman E
Description
An account of the resource
Abstract Aims: To determine the spirituality of parents whose children have life-limiting illnesses and to determine the factors associated with parents' spirituality. Methods: Telephone survey of 129 parents whose children were enrolled in a pediatric palliative care program in Florida. The Functional Assessment of Chronic Illness Therapy-Spiritual Well-being (FACIT-Sp) scale was used to measure parents' spirituality. The Health Utilities Index (HUI) was used to measure health status. Results: Parents' average score on the FACIT-Sp meaning/peace subscale was 24.1 out of 32, and 12.5 out of 16 for the faith subscale. Parents' average total FACIT-Sp score was 36.6 of 48. Multivariate analyses show that parental black non-Hispanic race, "other" race, being married, as well as children's higher vision and hearing health status were associated with higher spirituality, as measured by the total FACIT-Sp. Two parent household and children's higher speech health status were associated with lower FACIT-Sp scores. Conclusions: Our results suggest that non-white parents have greater faith-based and overall spirituality than white parents. Spiritual assessments should be conducted for all parents as differing supportive services may be needed. The palliative care team should ensure that parents' spirituality is being incorporated, as appropriate, into their children's routine care.
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<a href="http://doi.org/10.1089/jpm.2010.0387" target="_blank" rel="noreferrer">10.1089/jpm.2010.0387</a>
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Type
The nature or genre of the resource
Journal Article
2011
Backlog
Curtis C
Journal Article
Journal of Palliative Medicine
Knapp C
Madden V
Shenkman E
Sloyer P
Wang H
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0392" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0392</a>
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Title
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Adverse events in hospice and palliative care: a pilot study to determine feasibility of collection and baseline rates
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; Male; Young Adult; Adult; Aged; Middle Aged; Pilot Projects; Feasibility Studies; Australia; Urinary Retention; 80 and over; retrospective studies; Palliative Care/standards; Hospice Care/standards; Accidental Falls; Confusion; Hyperglycemia; Hypoglycemia; Hypotension
Creator
An entity primarily responsible for making the resource
Currow DC; Agar MR; To TH; Rowett D; Greene A; Abernethy AP
Description
An account of the resource
BACKGROUND: Continuous quality improvement is fundamental in all health care, including hospice and palliative care. Identifying and systematically reducing symptomatic adverse events is limited in hospice and palliative care because these events are mostly attributed to disease progression. OBJECTIVES: The aim of this study was to assess the feasibility of symptomatic adverse events in hospice and palliative care and assessing their incidence. METHODS: A retrospective, consecutive cohort of notes from a specialist palliative care inpatient service was surveyed by a clinical nurse consultant for symptomatic adverse events: falls, confusion, decreased consciousness, hypo- and hyperglycaemia, urinary retention, and hypotension. Demographic and clinical factors were explored for people at higher risk. RESULTS: Data were available on the most recent admissions of 65 people, generating >900 inpatient days. Fifty people (78%) had events precipitating admission, of whom 31 (62%) had at least one further event during admission. Eleven of 15 people who were admitted without an event experienced at least one during their admissions. Only 4 did not have an adverse event. During their stay, there were 0.13 (standard deviation [SD] = 0.19) events per patient per day. No drug-drug or drug-host events were noted. No clinical or demographic factors predicted groups at higher risk. CONCLUSIONS: This pilot highlights the feasibility of collecting, and ubiquity of, symptomatic adverse events, and forms a baseline against which future interventions to decrease the frequency or intensity can be measured. Given the frailty of hospice and palliative patients, any adverse event is likely to accelerate irreversibly their systemic decline.
Identifier
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<a href="http://doi.org/10.1089/jpm.2010.0392" target="_blank" rel="noreferrer">10.1089/jpm.2010.0392</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
80 And Over
Abernethy AP
Accidental Falls
Adult
Agar MR
Aged
Australia
Backlog
Confusion
Currow DC
Feasibility Studies
Female
Greene A
Hospice Care/standards
Humans
Hyperglycemia
Hypoglycemia
Hypotension
Journal Article
Journal of Palliative Medicine
Male
Middle Aged
Palliative Care/standards
Pilot Projects
Retrospective Studies
Rowett D
To TH
Urinary Retention
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0409" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0409</a>
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Title
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Pediatric nurses' individual and group assessments of palliative, end-of-life, and bereavement care
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cross-Sectional Studies; Female; Humans; Male; Palliative Care; Terminal Care; Attitude of Health Personnel; Hospitals; Nursing Staff; Pediatric; bereavement; Nurses/psychology; Hospital/psychology
Creator
An entity primarily responsible for making the resource
Tubbs-Cooley HL; Santucci G; Kang T; Feinstein JA; Hexem KR; Feudtner C
Description
An account of the resource
BACKGROUND: Although pediatric nurses working in children's hospitals often provide care to dying children, little is known about their palliative care beliefs and experiences as individuals or members of groups within the hospital. OBJECTIVE: To describe pediatric nurses' ratings of palliative care goals and problems, as individuals and members of clusters of nurses with similar views, and nurses' degree of collaboration with an inpatient palliative care team across hospital units. METHOD: A cross-sectional survey of nurses at a freestanding children's hospital in 2005. RESULTS: Nurses rated the most important goals as managing pain, maintaining the child's quality of life, and improving communication. Commonly cited problems were lack of opportunity to debrief after a patient's death, uncertainty about the goals of care, and the health care team's reluctance to discuss hospice with family. Based on individual views about goals and problems, nurses clustered into 5 groups that differed in terms of the adamancy of their views and the scope of the goals and problems they considered important or significant. The hospital unit was the most important factor in predicting nurses' degree of collaboration with the palliative care team even after accounting for individual characteristics. CONCLUSIONS: Pediatric nurses broadly endorse both the importance of palliative care goals and the presence of problems yet perceive the importance of these goals and problems differently. Further, they vary in their level of collaborative practice with a palliative care team in ways that should be accounted for when planning and implementing palliative care programs.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1089/jpm.2010.0409" target="_blank" rel="noreferrer">10.1089/jpm.2010.0409</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Attitude Of Health Personnel
Backlog
Bereavement
Cross-sectional Studies
Feinstein JA
Female
Feudtner C
Hexem KR
Hospital/psychology
Hospitals
Humans
Journal Article
Journal of Palliative Medicine
Kang T
Male
Nurses/psychology
Nursing Staff
Palliative Care
Pediatric
Santucci G
Terminal Care
Tubbs-Cooley HL
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">http://doi.org/10.1089/jpm.2010.0450</a>
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Title
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Care goals and decisions for children referred to a pediatric palliative care program
Publisher
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Journal Of Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Young Adult; Palliative Care; Pediatrics; Goals; Health Status; quality of life; adolescent; Preschool; decision making; infant; referral and consultation; Newborn; care goals; Life-limiting conditions; Therapeutic Processes; treatment decision making
Creator
An entity primarily responsible for making the resource
Tamburro R F; Shaffer ML; Hahnlen NC; Felker P; Ceneviva GD
Description
An account of the resource
OBJECTIVE: To describe goals of care for children with complex, life-limiting conditions and to assess the variables that may influence these goals. METHODS: Goals of care were elicited from the parents and children with complex, life-limiting conditions during initial palliative care consultation. Data abstracted included: diagnoses, demographics, time from diagnosis until initial palliative care consult, spirituality status, resuscitative status, and disposition at discharge. Goals of care were categorized into one of four quality-of-life domains: 1) physical health and independence, 2) psychological and spiritual, 3) social, and 4) environment. Summary statistics were prepared and comparisons were made between the four categories of goals. Descriptive statistics were utilized to explore potential associations with a decision to pursue full medical support. RESULTS: One hundred and forty goals of care were obtained from 50 patients/parents. The median patient age was 4.6 years. Thirty-seven patients had significant cognitive delay/impairment. Neuromuscular disorders accounted for more than half of the diagnoses. Forty-nine patients identified at least one goal pertaining to physical health and independence. This was significantly more than any other category (p < 0.0001). Thirty-three of the 50 patients (66%) opted for full medical support at the time of initial consult. CONCLUSIONS: Children with complex, life-limiting conditions and their families referred to a palliative care service commonly verbalize goals related to health maintenance and independence. Anticipating this expectation may foster communication and improve patient care.
Identifier
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<a href="http://doi.org/10.1089/jpm.2010.0450" target="_blank" rel="noreferrer">10.1089/jpm.2010.0450</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
care goals
Ceneviva GD
Child
Decision Making
Felker P
Female
Goals
Hahnlen NC
Health Status
Humans
Infant
Journal Article
Journal of Palliative Medicine
Life-limiting Conditions
Male
Newborn
Palliative Care
Pediatrics
Preschool
Quality Of Life
Referral And Consultation
Shaffer ML
Tamburro R F
Therapeutic Processes
treatment decision making
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.2.73" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.2.73</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Pearls
Publisher
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Paediatrics & Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Hillman ES
Identifier
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<a href="http://doi.org/10.1093/pch/16.2.73" target="_blank" rel="noreferrer">10.1093/pch/16.2.73</a>
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Type
The nature or genre of the resource
Journal Article
2011
Backlog
Hillman ES
Journal Article
Paediatrics & Child Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.2.87" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.2.87</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Chest compressions and epinephrine during resuscitation of infants born at the border of viability: Yes, no or maybe?
Publisher
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Paediatric Child And Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Moore GP; Daboval T; Coughlin KW
Identifier
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<a href="http://doi.org/10.1093/pch/16.2.87" target="_blank" rel="noreferrer">10.1093/pch/16.2.87</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Coughlin KW
Daboval T
Journal Article
Moore GP
Paediatric Child And Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.2.91" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.2.91</a>
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Title
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Emergency management of the paediatric patient with generalized convulsive status epilepticus
Publisher
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Paediatric Child And Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Friedman JN
Identifier
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<a href="http://doi.org/10.1093/pch/16.2.91" target="_blank" rel="noreferrer">10.1093/pch/16.2.91</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Friedman JN
Journal Article
Paediatric Child And Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.3.139" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.3.139</a>
Dublin Core
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Title
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Reflection of a career in paediatrics: A calling becomes a fulfililng profession
Publisher
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Paediatrics & Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Chan-Yip AM
Identifier
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<a href="http://doi.org/10.1093/pch/16.3.139" target="_blank" rel="noreferrer">10.1093/pch/16.3.139</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Chan-Yip AM
Journal Article
Paediatrics & Child Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1093/pch/16.3.157" target="_blank" rel="noreferrer">http://doi.org/10.1093/pch/16.3.157</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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When should nebulilzed hypertonic saline solution be used in the treatment of bronchiolitis?
Publisher
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Paediatrics & Child Health
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Hom J; Fernandes RM
Identifier
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<a href="http://doi.org/10.1093/pch/16.3.157" target="_blank" rel="noreferrer">10.1093/pch/16.3.157</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Fernandes RM
Hom J
Journal Article
Paediatrics & Child Health
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/JPN.0b013e318209e1d2" target="_blank" rel="noreferrer">http://doi.org/10.1097/JPN.0b013e318209e1d2</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Neonatal end-of-life spiritual support care
Publisher
An entity responsible for making the resource available
The Journal Of Perinatal & Neonatal Nursing
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Female; Humans; infant; Pregnancy; Parent-Child Relations; Attitude to Death; Nurse's Role; Spirituality; bereavement; Newborn; Parents/psychology; Nursing Assessment/methods; Palliative Care/methods/psychology; Neonatal Nursing/methods; Pregnancy Outcome/psychology
Creator
An entity primarily responsible for making the resource
Rosenbaum JL; Smith JR; Zollfrank R
Description
An account of the resource
The death of an infant is a profound loss that may complicate, disrupt, or end relationships between parents; and lead to maladaptive grieving, long-term decreased quality of life, and symptoms related to psychological morbidity. Facing neonatal loss is frequently experienced as traumatic assault on parents' spiritual and existential world of meaning. This article highlights the importance of supporting parents through loss by providing comprehensive care that focuses not only on the neonate's physical needs, but also addresses parents' and families' spiritual, religious, and existential needs. Our objective is to increase practitioners' awareness of spiritual and existential distress and to provide strategies to address such needs, particularly at the end of life.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/JPN.0b013e318209e1d2" target="_blank" rel="noreferrer">10.1097/JPN.0b013e318209e1d2</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Attitude To Death
Backlog
Bereavement
Female
Humans
Infant
Journal Article
Neonatal Nursing/methods
Newborn
Nurse's Role
Nursing Assessment/methods
Palliative Care/methods/psychology
Parent-child Relations
Parents/psychology
Pregnancy
Pregnancy Outcome/psychology
Rosenbaum JL
Smith JR
Spirituality
The Journal Of Perinatal & Neonatal Nursing
Zollfrank R
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1097/mlr.0b013e318206c50d" target="_blank" rel="noreferrer">http://doi.org/10.1097/mlr.0b013e318206c50d</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Hospital costs and length of stay among homeless patients admitted to medical, surgical, and psychiatric services
Publisher
An entity responsible for making the resource available
Medical Care Research and Review
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
An entity primarily responsible for making the resource
Hwang S; Weaver J; Aubry T; Hoch J
Identifier
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<a href="http://doi.org/10.1097/mlr.0b013e318206c50d" target="_blank" rel="noreferrer">10.1097/mlr.0b013e318206c50d</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Aubry T
Backlog
Cohen 2006 BMC HSR Refs
Hoch J
Hwang S
Journal Article
Medical Care Research and Review
Weaver J
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2141.2011.08764.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2141.2011.08764.x</a>
Dublin Core
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Title
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Palliative care: what approaches are suitable in developing countries?
Publisher
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British Journal Of Haematology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Ddungu H
Description
An account of the resource
The enormous burden of life-threatening illnesses, including cancer, human immunodeficiency virus infection, and others, such as sickle cell disease, associated with physical and psychosocial suffering explains the illustrious need for palliative care in developing countries. Despite the demonstrated need, current provision of palliative care in Africa is at best limited, and at worst non-existent. Access to essential pain medicines, particularly oral morphine, for control of pain is extremely limited and far below the global mean. There is a general lack of government policies that recognize palliative care as an essential component of health care and there is inadequate training for both health care professionals and the general public about palliative care. A public health strategy, as recommended by the World Health Organization (WHO), offers the best approach for translating knowledge and skills into evidence-based, cost-effective interventions that can reach everyone in need of palliative care in developing countries.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2141.2011.08764.x" target="_blank" rel="noreferrer">10.1111/j.1365-2141.2011.08764.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
British Journal Of Haematology
Ddungu H
Journal Article
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1365-2214.2011.01318.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1365-2214.2011.01318.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Healthcare transitions for adolescents with chronic life-threatening conditions using a Delphi method to identify research priorities for clinicians and academics in Canada
Publisher
An entity responsible for making the resource available
Child: Care, Health And Development
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Fletcher-Johnston M; Marshall SK; Straatman L
Description
An account of the resource
Purpose Research has only begun to examine the complexity of transition to adulthood under illness conditions. A Delphi method may be utilized to identify pertinent research priorities for academics and clinicians in adolescent healthcare transitions and prioritize a framework for an ongoing programme of research. Methods Through a comprehensive recruitment strategy throughout Canada, 114 clinicians and academics were invited to participate in this national study. Three phases were conducted until consensus could be achieved for the five most pressing research priorities. Results Thirty-eight respondents completed at least one of the three phases of the process. All responses were analysed, and five questions in phase 3 achieving a level of consensus ranging 64-80% were identified as the top five research priorities. These questions included: skills and knowledge adolescents require for the transition process, how to measure success, the factors that influence a successful transition and whether good transitions improve health outcomes. Conclusions The results of this study can inform and prioritize a framework for an ongoing programme of research in Canada. The inclusion of clinicians and academics ensures that the research agenda incorporates perspectives from the front-line work of individuals providing care to this population as well as individuals from the academic community with important knowledge and skills related to research approaches and methods.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1365-2214.2011.01318.x" target="_blank" rel="noreferrer">10.1111/j.1365-2214.2011.01318.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Child: Care, Health and Development
Fletcher-Johnston M
Journal Article
Marshall SK
Straatman L
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1399-0004.2011.01636.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1399-0004.2011.01636.x</a>
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Title
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The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services
Publisher
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Clinical Genetics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
McAllister M; Wood AM; Dunn G; Shiloh S; Todd C
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1399-0004.2011.01636.x" target="_blank" rel="noreferrer">10.1111/j.1399-0004.2011.01636.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Clinical Genetics
Dunn G
Journal Article
McAllister M
Shiloh S
Todd C
Wood AM
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1467-8519.2011.01939.x</a>
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Title
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End-of-life decision-making in Canada: the report by the Royal Society of Canada expert panel on end-of-life decision-making.
Publisher
An entity responsible for making the resource available
Bioethics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Humans; United States; Palliative Care; Advance Directives; Adult; Canada; Deep Sedation; Withholding Treatment; Aged; Euthanasia; Europe; Suicide; decision making; Active; DNAR; Assisted/lj [Legislation & Jurisprudence]; Terminal Care; Voluntary; Bioethical Issues; Public Opinion
Creator
An entity primarily responsible for making the resource
Schuklenk U; van Delden JJM; Downie Jocelyn; McLean SAM; Upshur R; Weinstock D
Description
An account of the resource
This report on end-of-life decision-making in Canada was produced by an international expert panel and commissioned by the Royal Society of Canada. It consists of five chapters. Chapter 1 reviews what is known about end-of-life care and opinions about assisted dying in Canada. Chapter 2 reviews the legal status quo in Canada with regard to various forms of assisted death. Chapter 3 reviews ethical issues pertaining to assisted death. The analysis is grounded in core values central to Canada's constitutional order. Chapter 4 reviews the experiences had in a number of jurisdictions that have decriminalized or recently reviewed assisted dying in some shape or form. Chapter 5 provides recommendations with regard to the provision of palliative care in Canada, as well as recommendations for reform with respect to the various forms of assisted death covered in this document.Copyright © 2011 Blackwell Publishing Ltd.
Identifier
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<a href="http://doi.org/10.1111/j.1467-8519.2011.01939.x" target="_blank" rel="noreferrer">10.1111/j.1467-8519.2011.01939.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Active
Adult
Advance Directives
Aged
Assisted/lj [Legislation & Jurisprudence]
Backlog
Bioethical Issues
Bioethics
Canada
Child
Decision Making
Deep Sedation
DNAR
Downie Jocelyn
Europe
Euthanasia
Humans
Journal Article
McLean SAM
Palliative Care
Public Opinion
Schuklenk U
Suicide
Terminal Care
United States
Upshur R
van Delden JJM
Voluntary
Weinstock D
Withholding Treatment
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1468-0009.2011.00632.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1468-0009.2011.00632.x</a>
Dublin Core
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Title
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Increased access to palliative care and hospice services: opportunities to improve value in health care
Publisher
An entity responsible for making the resource available
The Milbank Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; quality of life; United States/epidemiology; Chronic Disease/therapy; Quality of Health Care/organization & administration; Needs Assessment/organization & administration; Health Services Accessibility/economics/organization & administration; Hospice Care/economics/organization & administration/utilization; Hospices/organization & administration; Palliative Care/economics/organization & administration/utilization; Patient-Centered Care/economics/organization & administration/utilization
Creator
An entity primarily responsible for making the resource
Meier DE
Description
An account of the resource
CONTEXT: A small proportion of patients with serious illness or multiple chronic conditions account for the majority of health care spending. Despite the high cost, evidence demonstrates that these patients receive health care of inadequate quality, characterized by fragmentation, overuse, medical errors, and poor quality of life. METHODS: This article examines data demonstrating the impact of the U.S. health care system on clinical care outcomes and costs for the sickest and most vulnerable patients. It also defines palliative care and hospice, synthesizes studies of the outcomes of palliative care and hospice services, reviews variables predicting access to palliative care and hospice services, and identifies those policy priorities necessary to strengthen access to high-quality palliative care. FINDINGS: Palliative care and hospice services improve patient-centered outcomes such as pain, depression, and other symptoms; patient and family satisfaction; and the receipt of care in the place that the patient chooses. Some data suggest that, compared with the usual care, palliative care prolongs life. By helping patients get the care they need to avoid unnecessary emergency department and hospital stays and shifting the locus of care to the home or community, palliative care and hospice reduce health care spending for America's sickest and most costly patient populations. CONCLUSIONS: Policies focused on enhancing the palliative care workforce, investing in the field's science base, and increasing the availability of services in U.S. hospitals and nursing homes are needed to ensure equitable access to optimal care for seriously ill patients and those with multiple chronic conditions.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1111/j.1468-0009.2011.00632.x" target="_blank" rel="noreferrer">10.1111/j.1468-0009.2011.00632.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Chronic Disease/therapy
Health Services Accessibility/economics/organization & administration
Hospice Care/economics/organization & administration/utilization
Hospices/organization & administration
Humans
Journal Article
Meier DE
Needs Assessment/organization & administration
Palliative Care/economics/organization & administration/utilization
Patient-Centered Care/economics/organization & administration/utilization
Quality of Health Care/organization & administration
Quality Of Life
The Milbank Quarterly
United States/epidemiology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1111/j.1523-536X.2010.00457.x" target="_blank" rel="noreferrer">http://doi.org/10.1111/j.1523-536X.2010.00457.x</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Swedish parents' experiences of parenthood and the need for support to siblings when a baby is stillborn
Publisher
An entity responsible for making the resource available
Birth (berkeley, Calif.)
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Adult; Siblings; Sweden; Stillbirth; Preschool; sibling bereavement; parenting
Creator
An entity primarily responsible for making the resource
Avelin P; Erlandsson K; Hildingsson I; RÃ¥destad I
Description
An account of the resource
BACKGROUND: It has been argued that having a stillborn baby in the family affects older siblings more than parents realize. The aim of this study was to describe parenthood and the needs of siblings after stillbirth from the parents' perspective. METHODS: Six focus groups were held with 27 parents who had experienced a stillbirth and who had had children before the loss. The discussion concerned parents' support to the siblings, and the sibling's meeting, farewell, and memories of their little sister or brother. Data were analyzed using qualitative content analysis. RESULTS: The overall theme of the findings was parenthood in a balance between grief and everyday life. In the analysis, three categories emerged that described the construction of the theme: support in an acute situation, sharing the experiences within the family, and adjusting to the situation. CONCLUSIONS: The siblings' situation is characterized by having a parent who tries to maintain a balance between grief and everyday life. Parents are present and engaged in joint activities around the stillbirth together with the siblings of the stillborn baby. Although parents are aware of the sibling's situation, they feel that they are left somewhat alone in their parenthood after stillbirth and therefore need support and guidance from others.
Identifier
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<a href="http://doi.org/10.1111/j.1523-536X.2010.00457.x" target="_blank" rel="noreferrer">10.1111/j.1523-536X.2010.00457.x</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Adult
Avelin P
Backlog
Birth (berkeley, Calif.)
Child
Erlandsson K
Female
Hildingsson I
Humans
Infant
Journal Article
Male
Parenting
Preschool
RÃ¥destad I
sibling bereavement
Siblings
Stillbirth
Sweden
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2009.163931</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Transition to adult services for children and young people with palliative care needs: a systematic review
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Young Adult; adolescent; Palliative Care/organization & administration; Models; Continuity of Patient Care/organization & administration; Adolescent Health Services/organization & administration; Delivery of Health Care/organization & administration; Organizational; Evidence-Based Medicine/methods; Health Services Research/methods/standards
Creator
An entity primarily responsible for making the resource
Doug M; Adi Y; Williams J; Paul M; Kelly D; Petchey R; Carter YH
Description
An account of the resource
OBJECTIVE: To evaluate the evidence on the transition process from child to adult services for young people with palliative care needs. DESIGN: Systematic review. SETTING: Child and adult services and interface between healthcare providers. PATIENTS: Young people aged 13-24 years with palliative care conditions in the process of transition. MAIN OUTCOME MEASURES: Young people and their families' experiences of transition, the process of transition between services and its impact on continuity of care and models of good practice. RESULTS: 92 studies included. Papers on transition services were of variable quality when applied to palliative care contexts. Most focussed on common life-threatening and life-limiting conditions. No standardised transition program identified and most guidelines used to develop transition services were not evidence-based. Most studies on transition programs were predominantly condition-specific (eg, cystic fibrosis (CF), cancer) services. CF services offered high-quality transition with the most robust empirical evaluation. There were differing condition-dependent viewpoints on when transition should occur but agreement on major principles guiding transition planning and probable barriers. There was evidence of poor continuity between child and adult providers with most originating from within child settings. CONCLUSIONS: Palliative care was not, in itself, a useful concept for locating transition-related evidence. It is not possible to evaluate the merits of the various transition models for palliative care contexts, or their effects on continuity of care, as there are no long-term outcome data to measure their effectiveness. Use of validated outcome measures would facilitate research and service development.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2009.163931" target="_blank" rel="noreferrer">10.1136/adc.2009.163931</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adi Y
Adolescent
Adolescent Health Services/organization & administration
Archives of Disease in Childhood
Backlog
Carter YH
Continuity Of Patient Care/organization & Administration
Delivery of Health Care/organization & administration
Doug M
Evidence-Based Medicine/methods
Health Services Research/methods/standards
Humans
Journal Article
Kelly D
Models
Organizational
Palliative Care/organization & Administration
Paul M
Petchey R
Williams J
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2009.178269" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2009.178269</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Place of death and palliative care following discharge from paediatric intensive care units
Publisher
An entity responsible for making the resource available
Archives Of Disease In Childhood
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; infant; Male; Intensive Care Units; Cohort Studies; adolescent; Preschool; infant; Newborn; Hospitalization/statistics & numerical data; Palliative Care/statistics & numerical data; location of death; Pediatric/statistics & numerical data; child mortality; Great Britain/epidemiology; Home Care Services/statistics & numerical data; Hospice Care/statistics & numerical data; Patient Discharge/statistics & numerical data; Referral and Consultation/statistics & numerical data
Creator
An entity primarily responsible for making the resource
Fraser LK; Miller M; Draper ES; McKinney PA; Parslow RC; Paediatric Intensive Care Audit Network
Description
An account of the resource
OBJECTIVE: To determine where children die following discharge from paediatric intensive care units (PICUs) in Great Britain and to investigate if this varies by discharge to palliative care. DESIGN: National cohort of PICU admissions linked to Office of National Statistics death certificate data. SETTING: 31 PICUs in Great Britain. PARTICIPANTS: A cohort of 35 383 children admitted to PICUs between 1 November 2002 until 25 January 2007. MAIN OUTCOME MEASURES: Place of death by palliative care discharge status. RESULTS: 2346 (6.6%) deaths occurred after discharge during the study period, which is more than 10 times the normal child population mortality of 6.0 per 1000. Discharge to palliative care resulted in fewer deaths in hospital (44.1%) (compared to non-palliative care discharges (77.7%)), a greater proportion of deaths were at home (33.3% compared to non-palliative discharges 16.1%) and in a hospice (22.5% compared to non-palliative discharges 5.8%). CONCLUSIONS: Children referred to palliative care services at discharge from PICU are more likely to die in the community (home or hospice) than children not referred to palliative care.
Identifier
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<a href="http://doi.org/10.1136/adc.2009.178269" target="_blank" rel="noreferrer">10.1136/adc.2009.178269</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Archives of Disease in Childhood
Backlog
Child
Child Mortality
Cohort Studies
Draper ES
Female
Fraser LK
Great Britain/epidemiology
Home Care Services/statistics & Numerical Data
Hospice Care/statistics & Numerical Data
Hospitalization/statistics & numerical data
Humans
Infant
Intensive Care Units
Journal Article
Location Of Death
Male
McKinney PA
Miller M
Newborn
Paediatric Intensive Care Audit Network
Palliative Care/statistics & Numerical Data
Parslow RC
Patient Discharge/statistics & Numerical Data
Pediatric/statistics & Numerical Data
Preschool
Referral And Consultation/statistics & Numerical Data
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1136/adc.2010.185272" target="_blank" rel="noreferrer">http://doi.org/10.1136/adc.2010.185272</a>
Dublin Core
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Title
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Personal resuscitation plans and end of life planning for children with disability and life-limiting/life-threatening conditions
Publisher
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Archives Of Disease In Childhood - Education & Practice Edition
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Wolff A; Browne J; Whitehouse WP
Description
An account of the resource
This article discusses the need for person-specific planning for the increasing numbers of disabled children with life-limiting and life-threatening conditions. It describes the system developed in Nottingham for this client group to have a family-held personal resuscitation plan, (PRP) which is developed with the child and family by their lead paediatrician. The PRP is an emergency medical care plan which supports the provision of the most appropriate level of intervention for the child whether they are at home, school, short break unit or hospital. The PRP template is presented with advice on implementation and case examples. Feedback from families, medical and nursing staff is that PRPs are useful and empowering. The system supports timely discussions about appropriate care in an emergency and the communication of decisionsmade jointly by the child, family and medical team to all concerned. A flexible and person-specific PRP stating what interventions to do such as airway clearance, facial oxygen, trial of bag and mask ventilation is preferable to a do not attempt resuscitation form which is an 'all or nothing system' and can seem very negative to families. A PRP in the home can support appropriate action from local rapid response teams set up to review unexpected child deaths.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1136/adc.2010.185272" target="_blank" rel="noreferrer">10.1136/adc.2010.185272</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Archives Of Disease In Childhood - Education & Practice Edition
Backlog
Browne J
Journal Article
Whitehouse WP
Wolff A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0009922811398959" target="_blank" rel="noreferrer">http://doi.org/10.1177/0009922811398959</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Distraction, exposure therapy, counterconditioning, and topical anesthetic for acute pain management during needle sticks in children with intellectual and developmental disabilities
Publisher
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Clinical Pediatrics
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Child; Female; Humans; Male; Cooperative Behavior; Developmental Disabilities; Task Performance and Analysis; adolescent; Preschool; Psychological; Stress; caregivers; Behavior Therapy/methods; Phlebotomy
Creator
An entity primarily responsible for making the resource
Slifer KJ; Hankinson JC; Zettler MA; Frutchey RA; Hendricks MC; Ward CM; Reesman J
Description
An account of the resource
A behavior therapy approach for obtaining cooperation during needle sticks was provided to 8 pediatric patients with intellectual and developmental disabilities. Therapy was provided during mock needle sticks. Hand lotion was applied to simulate topical anesthetic. Distracting activities established relaxation while needle stick materials were gradually introduced. Positive reinforcement was provided for cooperation. Behavioral distress was ignored, blocked, or redirected. After cooperating with mock needle sticks, needle sites were prepared with topical anesthetic (EMLA), then therapists and medical staff implemented the behavioral protocol while completing the actual needle stick(s). Observational measures of cooperation and interfering were obtained. Results were replicated across 8 children and evaluated using paired samples t tests. Initially, all children were uncooperative with needle sticks. With treatment, behavioral distress decreased, and patients cooperated with mock and actual needle sticks. Results support the effectiveness of behavior therapy for promoting cooperation in children with intellectual and developmental disabilities during needle sticks.
Identifier
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<a href="http://doi.org/10.1177/0009922811398959" target="_blank" rel="noreferrer">10.1177/0009922811398959</a>
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Behavior Therapy/methods
Caregivers
Child
Clinical Pediatrics
Cooperative Behavior
Developmental Disabilities
Female
Frutchey RA
Hankinson JC
Hendricks MC
Humans
Journal Article
Male
Phlebotomy
Preschool
Psychological
Reesman J
Slifer KJ
Stress
Task Performance and Analysis
Ward CM
Zettler MA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0022022110381123" target="_blank" rel="noreferrer">http://doi.org/10.1177/0022022110381123</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Deity and Destiny: Patterns of Fatalistic Thinking in Christian and Hindu Cultures
Publisher
An entity responsible for making the resource available
Journal Of Cross-cultural Psychology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Young MJ; Morris MW; Burrus J; Krishnan L; Prasad RM
Identifier
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<a href="http://doi.org/10.1177/0022022110381123" target="_blank" rel="noreferrer">10.1177/0022022110381123</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Burrus J
Journal Article
Journal Of Cross-cultural Psychology
Krishnan L
Morris MW
Prasad RM
Young MJ
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216310391346</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Challenging symptom profiles of life-limiting conditions in children: a survey of care professionals and families
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Malcolm C; Forbat L; Anderson G; Gibson F; Hain R
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1177/0269216310391346" target="_blank" rel="noreferrer">10.1177/0269216310391346</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Anderson G
Backlog
Forbat L
Gibson F
Hain R
Journal Article
Malcolm C
Palliative Medicine
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/0269216310391691" target="_blank" rel="noreferrer">http://doi.org/10.1177/0269216310391691</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention
Publisher
An entity responsible for making the resource available
Palliative Medicine
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Sampson E L; Jones L; Thune-Boyle IC; Kukkastenvehmas R; King M; Leurent B; Tookman A; Blanchard MR
Description
An account of the resource
Patients with advanced dementia often receive poor end-of-life care. We aimed to design and pilot a palliative care and advance care plan (ACP) intervention. Patients had undergone emergency hospital admission and had severe dementia. The intervention consisted of a palliative care patient assessment which informed an ACP discussion with the carer, who was offered the opportunity to write an ACP for the person with dementia. Carer-patient dyads were randomized to 'usual care' or the intervention. Carer-related outcome measures included the Kessler Distress Scale, Decision Satisfaction Inventory, Client Satisfaction Questionnaire and the Euroqol-5D, measured at baseline, six weeks, six months and three months after bereavement. The Satisfaction with End of Life Care in Dementia Scale was completed if the patient died. The 32 patient participants were physically frail and in the advanced stages of dementia: 62% had pressure damage to the skin, all needed feeding assistance and 95% were in pain. Nearly 50% died during the six-month follow-up period. Carers were difficult to recruit during acute admission; 33 patients and carers entered the study (22 intervention arm; 11 control arm). Only seven carers made ACPs. The care planning discussion was well received, but few carers wrote an ACP, despite intensive support from an experienced nurse specialist. Advance care planning is, in theory, a necessary intervention for people with severe dementia; the reluctance of carers to write plans needs to be explored further.
Identifier
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<a href="http://doi.org/10.1177/0269216310391691" target="_blank" rel="noreferrer">10.1177/0269216310391691</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Blanchard MR
Jones L
Journal Article
King M
Kukkastenvehmas R
Leurent B
Palliative Medicine
Sampson E L
Thune-Boyle IC
Tookman A
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909110380594" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909110380594</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
adolescent; Child; Female; Humans; infant; Male; Palliative Care; Terminal Care; referral and consultation; Pediatrics; Health Personnel; Program Evaluation; Continuity of Patient Care; Biomedical Research; Inservice Training; District of Columbia; quality of life; Preschool; Newborn; PEDI Study; Quality of Health Care
Creator
An entity primarily responsible for making the resource
Rogers SK; Gomez CF; Carpenter P; Farley J; Holson D; Markowitz M; Rood B; Smith K; Nigra Peter
Description
An account of the resource
The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.
Identifier
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<a href="http://doi.org/10.1177/1049909110380594" target="_blank" rel="noreferrer">10.1177/1049909110380594</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Adolescent
Backlog
Biomedical Research
Carpenter P
Child
Continuity Of Patient Care
District of Columbia
Farley J
Female
Gomez CF
Health Personnel
Holson D
Humans
Infant
Inservice Training
Journal Article
Male
Markowitz M
Newborn
Nigra Peter
Palliative Care
PEDI Study
Pediatrics
Preschool
Program Evaluation
Quality Of Health Care
Quality Of Life
Referral And Consultation
Rogers SK
Rood B
Smith K
Terminal Care
The American Journal of Hospice & Palliative Care
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1177/1049909111399408" target="_blank" rel="noreferrer">http://doi.org/10.1177/1049909111399408</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Intensive care unit palliative medicine: some issues-part II.
Publisher
An entity responsible for making the resource available
The American Journal Of Hospice & Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Humans; Resuscitation Orders; Medical; DNAR; Sociology; Palliative Care/og [Organization & Administration]; Palliative Care/ec [Economics]; Health Care Rationing/og [Organization & Administration]; Intensive Care Units/og [Organization & Administration]; Health Care Rationing/ec [Economics]; Intensive Care Units/ec [Economics]
Creator
An entity primarily responsible for making the resource
Enck RE
Identifier
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<a href="http://doi.org/10.1177/1049909111399408" target="_blank" rel="noreferrer">10.1177/1049909111399408</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
DNAR
Enck RE
Health Care Rationing/ec [economics]
Health Care Rationing/og [Organization & Administration]
Humans
Intensive Care Units/ec [Economics]
Intensive Care Units/og [Organization & Administration]
Journal Article
Medical
Palliative Care/ec [economics]
Palliative Care/og [Organization & Administration]
Resuscitation Orders
Sociology
The American Journal of Hospice & Palliative Care
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
PedPalASCNet Member Publications
Subject
The topic of the resource
A collection of relevant articles published by one or more of PedPalASCNet's members
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">http://doi.org/10.1186/1472-6963-11-343</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Using network analysis to map the formal clinical reporting process in pediatric palliative care: a pilot study
Publisher
An entity responsible for making the resource available
Bmc Health Services Research
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
NET CV
Creator
An entity primarily responsible for making the resource
Siden H; Urbanoski K
Description
An account of the resource
ABSTRACT: BACKGROUND: Continuity of care is a key component of care in complex and chronic conditions. Despite its importance, it is often absent in chronic-disease management. One challenge has been identifying tools to measure care continuity. In one context important to families, namely pediatric palliative care, we undertook a project to identify continuity and to pilot the use of network analysis as a tool. METHODS: Network analysis studies patterns of relationships or interactions between members, providing qualitative and quantitative description of network structure. RESULTS: In this report we applied network analysis to paper records of clinical consultations and reports for 6 patients with complex conditions. A high degree of discontinuity was identified, and care was fragmented amongst specialist and generalist providers. Information was shared selectively and often moved in only one direction. CONCLUSIONS: Families have anecdotally reported frustration with poor continuity of care. Network analysis can be a useful tool in describing the discontinuity of care experienced by families dealing with complex and chronic conditions. This tool could be expanded to other systems such as electronic health records and many other health care situations.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1472-6963-11-343" target="_blank" rel="noreferrer">10.1186/1472-6963-11-343</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
BMC Health Services Research
Journal Article
NET CV
Siden H
Urbanoski K
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/1748-5908-6-26" target="_blank" rel="noreferrer">http://doi.org/10.1186/1748-5908-6-26</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
How can we improve guideline use? A conceptual framework of implementability
Publisher
An entity responsible for making the resource available
Implementation Science
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
An entity primarily responsible for making the resource
Gagliardi AR; Brouwers MC; Palda VA; Lemieux-Charles L; Grimshaw J
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/1748-5908-6-26" target="_blank" rel="noreferrer">10.1186/1748-5908-6-26</a>
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Brouwers MC
Gagliardi AR
Grimshaw J
Implementation Science
Journal Article
Lemieux-Charles L
Palda VA
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1186/ar3306" target="_blank" rel="noreferrer">http://doi.org/10.1186/ar3306</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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The role of the central nervous system in the generation and maintenance of chronic pain in rheumatoid arthritis, osteoarthritis and fibromyalgia
Publisher
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Arthritis Research & Therapy
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Humans; Animals; Arthritis; Central Nervous System/physiopathology; Chronic Pain/complications/physiopathology; Fibromyalgia/complications/physiopathology; Osteoarthritis/complications/physiopathology; Rheumatoid/complications/physiopathology
Creator
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Lee YC; Nassikas NJ; Clauw DJ
Description
An account of the resource
Pain is a key component of most rheumatologic diseases. In fibromyalgia, the importance of central nervous system pain mechanisms (for example, loss of descending analgesic activity and central sensitization) is well documented. A few studies have also noted alterations in central pain processing in osteoarthritis, and some data, including the observation of widespread pain sensitivity, suggest that central pain-processing defects may alter the pain response in rheumatoid arthritis patients. When central pain is identified, different classes of analgesics (for example, serotonin-norepinephrine reuptake inhibitors, alpha2delta ligands) may be more effective than drugs that treat peripheral or nociceptive pain (for example, nonsteroidal anti-inflammatory drugs and opioids).
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1186/ar3306" target="_blank" rel="noreferrer">10.1186/ar3306</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Animals
Arthritis
Arthritis Research & Therapy
Backlog
Central Nervous System/physiopathology
Chronic Pain/complications/physiopathology
Clauw DJ
Fibromyalgia/complications/physiopathology
Humans
Journal Article
Lee YC
Nassikas NJ
Osteoarthritis/complications/physiopathology
Rheumatoid/complications/physiopathology
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1200/JCO.2010.31.4047" target="_blank" rel="noreferrer">http://doi.org/10.1200/JCO.2010.31.4047</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Publisher
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Journal Of Clinical Oncology
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
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Child; Cross-Sectional Studies; Female; Humans; Male; Parents; Questionnaires; Health Status; Psychology; quality of life; Neoplasms/physiopathology/psychology
Creator
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Tomlinson D; Hinds PS; Bartels U; Hendershot E; Sung L
Description
An account of the resource
PURPOSE: To compare quality of life of children with cancer with no reasonable chance of cure reported by parents 6 months or fewer versus more than 6 months before death. PATIENTS AND METHODS: This cross-sectional study included children between the ages of 2 and 18 years with cancer and no reasonable chance of cure at The Hospital for Sick Children, Toronto, Ontario, Canada. Parents reported quality of life on behalf of their children. Outcomes were the PedsQL 4.0 Generic Core Scales, Acute Cancer Module, and Multidimensional Fatigue Scale. RESULTS: Seventy-three parents of children participated. Compared with children who survived more than 6 months (n = 43), those who died at 6 months or fewer (n = 30) had significantly worse physical health (mean difference, 15.9; 95% CI, 1.8 to 30.0; P = .028), more pain and hurt (mean difference, 15.5; 95% CI, 0.9 to 30.0; P = .037), and worse general fatigue (mean difference, 15.8; 95% CI, 2.4 to 29.1; P = .021) and sleep/rest fatigue (mean difference, 16.0; 95% CI, 3.5 to 28.5; P = .013). Among the entire cohort, those with leukemia/lymphoma had worse physical and psychosocial quality of life compared with those with solid or brain tumors. Recent stem-cell transplantation was associated with worse psychosocial health. CONCLUSION: Parents of children with cancer reported worse physical health, pain, and fatigue proximal to death. Those with leukemia/lymphoma were at higher risk for impaired quality of life. This knowledge can help in the design of targeted interventions to improve quality of life for children dying as a result of cancer.
Identifier
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<a href="http://doi.org/10.1200/JCO.2010.31.4047" target="_blank" rel="noreferrer">10.1200/JCO.2010.31.4047</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Bartels U
Child
Cross-sectional Studies
Female
Health Status
Hendershot E
Hinds PS
Humans
Journal Article
Journal Of Clinical Oncology
Male
Neoplasms/physiopathology/psychology
Parents
Psychology
Quality Of Life
Questionnaires
Sung L
Tomlinson D
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.12927/hcq.0000.22580" target="_blank" rel="noreferrer">http://doi.org/10.12927/hcq.0000.22580</a>
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The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Integrated complex care model: lessons learned from inter-organizational partnership
Publisher
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Healthcare Quarterly
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Subject
The topic of the resource
Cohen 2006 BMC HSR Refs
Creator
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Cohen E; Bruce-Barrett C; Kingsnorth S; Keilty K; Cooper A; Daub S
Identifier
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<a href="http://doi.org/10.12927/hcq.0000.22580" target="_blank" rel="noreferrer">10.12927/hcq.0000.22580</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Bruce-Barrett C
Cohen 2006 BMC HSR Refs
Cohen E
Cooper A
Daub S
Healthcare Quarterly
Journal Article
Keilty K
Kingsnorth S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.100511" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.100511</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Impact of death and dying on the personal lives and practices of palliative and hospice care professionals
Publisher
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Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Sinclair S
Description
An account of the resource
Background Working within the landscape of death and dying, professionals in palliative and hospice care provide insight into the nature of mortality that may be of benefit to individuals facing the end of life. Much less is known about how these professionals incorporate these experiences into their personal lives and clinical practices. Methods This ethnographic inquiry used semi-structured interviews and participant observation to elicit an in-depth understanding of the impact of death and dying on the personal lives of national key leaders (n = 6) and frontline clinicians (n = 24) involved in end-of-life care in Canada. Analysis of findings occurred in the field through constant comparative method and member checking, with more formal levels of analysis occurring after the data-collection phase. Results Eleven specific themes, organized under three overarching categories (past, present and future), were discovered. Early life experiences with death were a common and prominent feature, serving as a major motivator in participants' career path of end-of-life care. Clinical exposure to death and dying taught participants to live in the present, cultivate a spiritual life, reflect on their own mortality and reflect deeply on the continuity of life. Interpretation Participants reported that their work provided a unique opportunity for them to discover meaning in life through the lessons of their patients, and an opportunity to incorporate these teachings in their own lives. Although Western society has been described as a "death-denying" culture, the participants felt that their frequent exposure to death and dying was largely positive, fostering meaning in the present and curiosity about the continuity of life.
Identifier
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<a href="http://doi.org/10.1503/cmaj.100511" target="_blank" rel="noreferrer">10.1503/cmaj.100511</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Canadian Medical Association Journal
Journal Article
Sinclair S
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
Backlog
URL Address
<a href="http://doi.org/10.1503/cmaj.100610" target="_blank" rel="noreferrer">http://doi.org/10.1503/cmaj.100610</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Doing, when there is nothing to be done
Publisher
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Canadian Medical Association Journal
Date
A point or period of time associated with an event in the lifecycle of the resource
2011
Creator
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Schattner A
Identifier
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<a href="http://doi.org/10.1503/cmaj.100610" target="_blank" rel="noreferrer">10.1503/cmaj.100610</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Type
The nature or genre of the resource
Journal Article
2011
Backlog
Canadian Medical Association Journal
Journal Article
Schattner A