Browse Items (395 total)
- Tags: 2005
Quality of life related to type 1 Gaucher disease: Spanish experience
Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective
Tags: 'Independence', 'Physical', 'Social Exclusion') with acceptable internal consistency., 'Social Inclusion', 13-16 years) with different chronic health conditions (asthma, 2005, Adolescent Child Chronic Disease/psychology Disabled Children/psychology Europe Health Status Humans Pilot Projects Quality of Life/psychologyQuestionnaires Research Support, and cystic fibrosis) as well as their families were included. Data were analysed according to predefined psychometric and content criteria. Psychometric an alyses resulted in a 56-item chronic generic HRQOL questionnaire with six domains ('Medication', and implement European instruments for the assessment of HRQOL of children and adolescents with disabilities and their families. The current paper describes the development and pilot testing of a chronic generic HRQOL measure. Using literature searches, Arthritis, atopic dermatitis, Backlog, Bullinger M, Cerebral Palsy, Diabetes, Emotion, Epilepsy, expert consulting and focus groups with children/adolescents and their families, items of the instruments were developed and translated into the respective languages. A pilot test with 360 children and adolescents was conducted. Children and adolescents (8-12, Journal Article, Non-U.S. Gov'tSickness Impact Profile%X Health-related quality of life (HRQOL) assessment in children and adolescents with chronic health conditions is increasingly considered as a relevant topic. The aim of the EU-funded DISABKIDS project is to develop, PedPal Lit, Petersen C, Power M, Quality of Life Research, Schmidt S, test
Health-related quality of life of mothers of children with leukemia in Japan
Tags: 'general health perception' (GH), 'social functioning' (SF) and 'mental health' (MH). Their SF-36 domain scores, 'vitality' (VT), 2005, Adolescent Adult Caregivers/psychology Child Child, and are at a greater risk for depression. These results suggest that the current system for treating leukemic diseases of children in Japan should also include close monitoring of mothers' mental health, and compared their scores to those of 240 mothers of children without leukemia matched to the children with leukemia. MAIN RESULTS: Of the eight unadjusted domain scores of the SF-36, and provision of appropriate treatment and psycho-social support., approximately 20 points (1 standard deviation (SD), Backlog, Eboshida A, five were significantly low among mothers of children with leukemia compared to mothers of children without leukemia: 'role-physical functioning' (RP), Fukuhara S, GH, Journal Article, Mizoue T, Newborn JapanLeukemia/nursing Male Mother-Child Relations Mothers/psychology Quality of Life/psychology Questionnaires Research Support, Non-U.S. Gov't, p < 0.0001) and 30 points (1.5 SD, p < 0.0001) lower than that of mothers of children without leukemia. CONCLUSION: Mothers of children with leukemia requiring hospital care have poor HRQOL, particularly with regard to mental health and social functioning, PedPal Lit, Preschool Comparative StudyCost of Illness Female Health Status Humans Infant Infant, Quality of Life Research, range 0-14) with leukemia diagnosed between 1999 and 2000, RE and MH. The MH and SF scores in mothers of children with leukemia requiring hospital care w ere, respectively, SF, Sokejima S, VT, when adjusted for demographic and clinical factors were also significantly low in RP, Yamazaki S
Proxy assessment of quality of life in pediatric clinical trials: application of the Health Utilities Index 3
Tags: 2005, Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support, Backlog, Burghen E, Cox CL, domains specific and sensitive to both disease and treatment, Extramural Research Support, Hinds P, Journal Article, Lensing S, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates, pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease, PedPal Lit, Pui CH, Quality of Life Research, Rai SN, Symptoms, the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined, U.S. Gov't
Is treatment adherence associated with better quality of life in children with sickle cell disease?
Translation and cultural adaptation of Health Utilities Index (HUI) Mark 2 (HUI2) and Mark 3 (HUI3) with application to survivors of childhood cancer in Brazil
Tags: 2005, Adult Brazil ChildCulture Female Humans Male Neoplasms/ethnology/physiopathology/therapy Psychometrics/instrumentationQuality of Life Quality-Adjusted Life YearsQuestionnaires Research Support, and review of the back-translat ions by original developers of the HUI. The final questionnaires were tested by surveying a sample of convenience of 50 patients recruited at the Centro de Tratamento e Pesquisa-Hospital do Cancer in Sao Paulo, back-translation by two independent translators of the forward translation, Backlog, Barr RD, Brazil. RESULTS: Fifty patients were enrolled in the study. No assessor, consensus between translators on a forward translation, De Camargo B, Furlong W, Horsman J, Journal Article, Lopes LF, patient or nurse or physician, PedPal Lit, preference-based systems for describing health status and HRQL. Developed in Canada, Quality of Life Research, Seber A, Shimoda S, Sickness Impact Profile Survivors/psychology Translating, understandabl(TRUNCATED)
Psychometrics of Child Health Questionnaire parent short form (CHQ-28) used to measure quality of life in HIV-infected children on complex anti-retroviral therapy
Tags: 2005, Adolescent Antiretroviral Therapy, Backlog, Byrne MW, Highly Active/psychology ChildChild Welfare Child, Honig J, Journal Article, P.H.S.Sickness Impact Profile, PedPal Lit, Preschool Disease Transmission, Quality of Life Research, U.S. Gov't, Vertical Female HIV Infections/drug therapy/physiopathology/psychology Humans Male Psychometrics/instrumentationQuality of Life Questionnaires Research Support
Seizures and metabolic disease.
Tags: 2005, Anticonvulsants/tu [Therapeutic Use], Backlog, Bennett HD, Current Neurology And Neuroscience Reports, Humans, Journal Article, Khademian Z, KT Synthesis, Metabolic Diseases/di [Diagnosis], Metabolic Diseases/me [Metabolism], Metabolic Diseases/th [Therapy], Neuroprotective Agents/tu [Therapeutic Use], Pearl PL, Seizures/di [Diagnosis], Seizures/me [Metabolism], Seizures/th [Therapy]
Issues and challenges in palliative care for children with cancer
Tags: 2005, Adolescent Bioethics Child Health Care Costs Humans Neoplasms/, and the family. The way in which the care is delivered, and the place in which that care is given are not carved into a simple protocol. Quality of life is an important concept that is often overlooked. Educational initiatives for patients, Backlog, complications Pain/, Current Pain and Headache Reports, etiology, Families, Friedman DL, health-care providers, Hilden JM, Journal Article, methods Reimbursement Mechanisms Terminal Care%X Although the majority of children with cancer are cured of their illness, PedPal Lit, Powaski K, the child, the services provided, therapy Palliative Care/economics/ethics/
Treatment of mania in children and adolescents
Tags: 2005, Adolescent, Antimanic Agents/adverse effects/therapeutic use, Antipsychotic Agents/adverse effects/therapeutic use, Backlog, Bipolar Disorder/diagnosis/drug therapy/psychology, Carbamazepine/adverse effects/therapeutic use, Child, Current Psychiatry Reports, Humans, Journal Article, Kang J, Lithium Compounds/adverse effects/therapeutic use, Randomized Controlled Trials as Topic, Sheikh R, Valproic Acid/adverse effects/therapeutic use, Weller EB, Weller R
Difficult pain assessment and lack of clinician knowledge are ongoing barriers to effective pain management in children with cognitive impairment
Tags: 2005, Acute Pain, Backlog, Journal Article, Malviya S, Merkel S, PedPal Lit, Tait AR, Voepel-Lewis T
Variation in Institutional Review processes for a multisite observational study
Tags: 2005, American Journal Of Surgery, Backlog, Ethics Committees, Finan KR, Hawn MT, Health Services Research/organization & administration, Hernia, Humans, Journal Article, Kiefe C, Multi-site Ethics, Neumayer L, Observation/methods, Outcome Assessment (health Care), Program Evaluation, Research/organization & administration, United States, United States Department of Veterans Affairs, Ventral/surgery, Vick CC
A Delphi study of district nursing research priorities in Australia
Recruitment and retention in a longitudinal palliative care study.
Tags: 2005, Acquired Immunodeficiency Syndrome/therapy, Adult, Applied Nursing Research, Backlog, Caregivers, Clinical Nursing Research/organization & administration, Data Collection, et al, Feasibility Studies, Female, Focus Groups, Humans, Journal Article, Longitudinal Studies, Male, McSherry CB, Middle Aged, Neoplasms/therapy, Palliative Care, Parkas V, Patient Care Team, Patient Dropouts, Patient Selection, Sherman DW
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
Death in the pediatric ICU: caring for children and families at the end of life
Tags: 2005, Attitude of Health Personnel Attitude to Death Attitude to Health Bereavement Child Child, Backlog, Copnell B, Critical Care Nursing Clinics Of North America, Hospital/psychology Pediatric Nursing/organization & administration Professional-Family Relations Social Support Terminal Care/organization & administration/psychology Total Quality Management, Hospitalized/psychology Critical Care/organization & administration/psychology Decision Making, Journal Article, Organizational Empathy Family/psychology Forecasting Health Services Needs and Demand Humans Nurse's Role/psychology Nurse-Patient Relations Nursing Research Nursing Staff, PedPal Lit
Metadata-driven Delphi rating on the Internet
Food, toys, and love: pediatric palliative care
Tags: 2005, Adolescent Adult Child Child, Backlog, Benitz W, Brown M, Case C, Contro N, Current Problems in Pediatric and Adolescent Health Care, Frankel L, Good J, Jones L, Journal Article, Komejan J, Modderman-Marshall J, Non-U.S. Gov't United States, PedPal Lit, Preschool Cultural DiversityFood Humans Infant Interdisciplinary CommunicationLove Needs Assessment Palliative Care/organization & administrationPediatricsPlay and Playthings Research Support, Reichard W, Sentivany-Collins S, Sourkes B, Sunde C
Use of paediatric versus adult oncology treatment centres by adolescents 15-19 years old: the Canadian Childhood Cancer Surveillance and Control Program
Tags: 2005, Adolescent Cancer Care Facilities/utilization Child Child Health Services/utilization Comparative Study Delivery of Health Care Humans Neoplasms/epidemiology/therapy Ontario/epidemiology Research Support, and can be improved., Backlog, Barr RD, Disease, European Journal Of Cancer, Greenberg ML, Journal Article, Klein-Geltink J, Morrison HI, PedPal Lit, Shaw AK, the demographic
The role of the specialist nurse in paediatric oncology in the United Kingdom
Tags: 2005, Backlog, Child Clinical Competence/standards Education, European Journal Of Cancer, Hollis R, Journal Article, Nursing, nursing Nurse Clinicians, organization & administration Great Britain Health Policy Humans Neoplasms, organization & administration Pediatric Nursing, organization & administration State Medicine, organization & administrationNurse's Role Oncologic Nursing, PedPal Lit
Quality of life of children following bone marrow transplantation: critical review of the research literature
Tags: 2005, Adaptation, Backlog, European Journal Of Oncology Nursing, Journal Article, more methodologically rigorous trials using prospective longitudinal study designs with pre- and post-measures to examine all QOL domains in children., one cross-sectional, PedPal Lit, practice and theory. The studies' methodological quality was evaluated separately by two investigators according to a set of formal criteria modified from Hoodin and Weber (Psychosomatics 44 (2003) 181). The review yielded one retrospective, PsychologicalAttitude to Health Bone Marrow Transplantation/adverse effects/psychology ChildChild Psychology Child Welfare Cross-Sectional Studies Data Collection Data Interpretation, psychometrically sound, QOL measure. Timing of assessments ranged from pre-BMT to 21 years following BMT. Due to the poor methodological quality, rendering conclusions across the studies was challenging. While the available evidence seems to suggest children experience good QOL following BMT, several studies found BMT to have a negative impact on various aspects of QOL. These results appear to be influenced by timing and type of measurements undertaken. Ultimately, six descriptive surveys and two prospective longitudinal study designs. The studies included 568 childhood BMT recipients ranging from 0.8 to 33 years. Only one study used a generic and disease-specific, Statistical Humans Mental Health Nursing Methodology Research Outcome Assessment (Health Care) Prospective Studies PsychometricsQuality of Life Research Design/standards Research Support, Stevens B, Stinson J, there is a need for larger, Tsimicalis A
Evidence in action: fostering growth of research-based practice in children's cancer nursing
Tags: 2005, and in terms of research in nursing this has only become integrated into our work in more recent years. Like many areas in nursing we continue to evolve, and the speciality, as both similar and different to other nurses and other specialities. Secondly, as the solutions described have the potential for translation to other areas within cancer care. Children's cancer nur sing is a relatively new speciality, Backlog, Child Evidence-Based Medicine HumansNursing Research Oncologic Nursing/trends Pediatric Nursing/trends Professional Autonomy Specialties, describing stages of growth, development, European Journal Of Oncology Nursing, Gibson F, I want to explore the notion of evidence and action and share some of the challenges we face in developing research for practice. The challenges themselves are of interest to all cancer nurses, I will spend some time reflecting on how far we have come, Journal Article, maturation and differentiation in children's cancer nursing that defines nurses, Nursing/trends%X It is an honour to be the first children's nurse to be asked to deliver the Robert Tiffany Lecture. However, PedPal Lit, that of growth and evidence in action. Firstly, the essence of which is knowing about children and young people.
Withholding or withdrawing intensive care treatment in paediatric bone marrow transplant: a moral maze
Tags: 2005, Backlog, Bone Marrow Transplantation/ethics/psychology Child Child Advocacy/ethics Child Psychology/ethics Decision Making/ethics Humans Intensive Care/ethics/psychology Medical Futility Morals Pediatrics/ethics Quality of Life Withholding Treatment/ethics, European Journal Of Oncology Nursing, Hopkins S, Journal Article, PedPal Lit
Involvement of cytokines, chemokines and adhesion molecules in opioid analgesia
Safety and efficacy of rosuvastatin therapy for the prevention of hyperlipidemia in adult cardiac transplant recipients
Tags: 2005, 80 And Over, Aged, Backlog, Cohort Studies, Comparative Study, Control, dosage, Dose-Response Relationship, Drug, Drug Administration Schedule, Female, Fluorobenzenes/administration &, Follow-up Studies, Frolich J, Graft Rejection, Graft Survival, Heart Transplantation/adverse effects/methods, Humans, Humphries K, Hyperlipidemia/drug therapy/prevention &, Ignaszewski A, Imai C, Journal Article, Male, Middle Aged, Postoperative Complications/prevention &, Prospective Studies, Pyrimidines/administration &, Risk Assessment, Samman A, Straatman L, Sulfonamides/administration &, Survival Rate, The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation, Treatment Outcome
A prospective study of adverse reactions to the weaning of opioids and benzodiazepines among critically ill children
Tags: 13-20% for 4-7 days, 2005, 8-13% for 8-14 days, 8% for 15-21 days, Adolescent Age Factors, Analgesics, and 2-4% for more t han 21 days of infusions. The authors recommend that the rate of weaning of opioids and benzodiazepines in critically ill children be tailored to the length of time the child received continuous infusions of these agents., Backlog, Benzodiazepines/administration & dosage/adverse effects Child Child, Carnevale FA, Clermont MS, Ducharme C, Health Care Statistics, Intensive and Critical Care Nursing, Intravenous Intensive Care Units, Journal Article, Methods, methods/standards Critical Illness/therapy Drug Administration Schedule Drug Monitoring/, Newborn Infusions, Nonparametric, Nursing, Opioid/administration & dosage/adverse effects, Pediatric Nursing Assessment Nursing Evaluation Research Pediatric Nursing, PedPal Lit, Preschool Conscious Sedation/adverse effects/methods/nursing Critical Care/, Shea S, standards Humans Infant Infant, standards Prospective Studies Quality Assurance, Substance Withdrawal Syndrome/diagnosis/etiology/prevention & control Time Factors
Children's voices: qualitative data from the 'Barretstown studies'
Tags: 2005, Backlog, Camping ChildChild Health Services Chronic Disease Europe/ethnology Female Humans Ireland Longitudinal Studies Male NeoplasmsPatient Satisfaction Qualitative Research Research Support, Guerin S, International Journal Of Nursing Studies, Journal Article, Kiernan G, Maclachlan M, Non-U.S. Gov't, PedPal Lit
Coping with chronic pain
Tags: 2005, Adaptation, Adult, Aged, Attitude To Health, Backlog, Chronic Disease, Depression, Dysvik Elin, Eikeland Ole-Johan, Emotions, Female, Humans, International Journal Of Nursing Studies, Journal Article, Lindstrøm TC, Male, Middle Aged, Models, Multivariate Analysis, Natvig GK, Norway, Nurse's Role, Nursing Methodology Research, Pain, Predictive Value of Tests, Problem Solving, Psychiatric Status Rating Scales, Psychological, Questionnaires, Regression Analysis, Self Concept, Social Support, Stress
Description and adequacy of parental coping behaviours in childhood leukaemia
Tags: 2005, Acute, Adaptation, Backlog, International Journal Of Nursing Studies, Journal Article, L1/psychology/therapy Life Change Events Male Middle Aged Nursing Methodology Research Parents/education/psychology Professional-Family Relations Questionnaires Self Concept Sex Factors Social Support, Lymphocytic, Patistea E, Pediatric HumansLeukemia, PedPal Lit, Preschool Communication Family Health Fear Female Greece Hospitals, Psychological Adolescent Adult Analysis of VarianceAttitude to Health Child Child
Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs
Tags: 2005, Adolescent Transitions, Adult, Allada V, Backlog, Cardiology/education, Chang RK, Child, Child JS, Congenital, Data Collection, Education, Educational, Fellowships And Scholarships, Graduate/economics/standards, Gurvitz MZ, Heart Defects, Humans, Journal Article, Journal of the American College of Cardiology, Klitzner TS, Medical, Models, Pediatrics/education, Program Evaluation, Ramos FJ, United States
ACCF/AHA/AAP recommendations for training in pediatric cardiology. Task force 6: training in transition of adolescent care and care of the adult with congenital heart disease
Tags: 2005, Adolescent, Adolescent Transitions, Adult, Age Factors, American College of Cardiology Foundation, American College of Physicians Task Force on Clinical Competence (ACC/AHA/AAP Writing Committee to Develop Training Recommendations for Pediatric Cardiology), American Heart Association, Backlog, Cardiology/education, Foster E, Heart Diseases/congenital/therapy, Humans, Journal Article, Journal of the American College of Cardiology, Murphy DJ, Pediatrics/education, United States
Interaction of serotonergic antidepressants and opioid analgesics: Is serotonin syndrome going undetected?
Tags: 2005, 80 And Over, Aged, Analgesics, Antidepressive Agents/pharmacology, Backlog, Drug Interactions, Espinoza RT, Female, Gnanadesigan N, Homes for the Aged, Humans, Israel M, Journal Article, Journal Of The American Medical Directors Association, Mianserin/analogs & derivatives/pharmacology, Nursing Homes, Opioid/pharmacology, Reuben DB, Serotonin Agents/pharmacology, Serotonin Syndrome/etiology, Smith RA