Browse Items · Pediatric Palliative Care Library

Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up

This article is a follow-up study of bereaved caregiving male partners of men with AIDS (T.A. Richards & S. Folkman, 1997). The earlier study examined spiritual beliefs, experiences, and practices reported in interviews with 125 caregivers conducted…

Comparing parent loss with sibling loss

The death of a loved one is a traumatic loss for children, but little attention has been paid to how children's responses vary according to who died--a parent or a sibling. This article reports the findings of a comparison between children's…

Laboratory integration and utilization of tandem mass spectrometry in neonatal screening: a model for clinical mass spectrometry in the next millennium

Clinical and neonatal screening methods using a tandem mass spectrometer are clearly a model for modern laboratory testing in the new Millennium. By the year 2000, more than 1 million blood and plasma samples will have been tested in laboratories…

Narrative strategies in grief therapy

The field of grief therapy is currently in a state of conceptual revolution, opening the prospect of reconfiguring our understanding of the human experience of loss along constructivist lines. In this article I outline some of the tenets of such an…

Tags: 1999, Backlog, Grief, Human, Journal Article, Journal Of Constructivist Psychology, Meaning, Narrative, Neimeyer RA

Preparation for oncology settings: what hospice social workers say they need

According to recent data, 78 percent of hospice social workers' direct practice hours are spent with patients and families diagnosed with terminal cancer. A national sample of 108 hospice social workers participated in an exploratory study…

Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education

Better for it: how people benefit from adversity

Recently, researchers in several different fields have discovered that people who have experienced seriously adverse events frequently report that they were positively changed by the experience. Respondents in these studies typically have reported a…

Tags: 1999, Adaptation, Backlog, Humans, Internal-External Control, Journal Article, Life Change Events, McMillen JC, P.H.S., Psychiatric, Psychological, Research Support, Social Work, Survivors/psychology, U.S. Gov't

Children with Cognitive Impairment: Parent report of pain and coping

1999

Tags: 1999, Backlog, Conrad T, Developmental And Behavioral Pediatrics, Fanurik D, Harrison RD, Journal Article, Koh J, Schmitz M

Pain in Children with Significant Neurological Impairment

1999

Tags: 1999, Analgesics/therapeutic use, Backlog, Cerebral Palsy/complications, Child, Communication, Developmental And Behavioral Pediatrics, Humans, Journal Article, Montgomery C, Nervous System Diseases/complications, O'Donnell M, Oberlander T, Pain Measurement, Pain/complications/diagnosis/drug therapy/etiology, RDF Project

Electrogastrography in gastrostomy-tube-fed children

Following gastrostomy tube placement some children develop gagging, retching, vomiting, pain, or irritability during feedings. Conventional medical management is not always successful. It is possible that intolerance of gastrostomy tube feedings…

Oropharyngeal dysfunction and gastroesophageal dysmotility are present in girls and women with Rett syndrome

BACKGROUND: Feeding impairment frequently complicates the course of children with neurologic disorders and places them at risk for malnutrition and growth failure. Although feeding abnormalities have been reported in female patients with Rett…

Neostigmine for the treatment of acute colonic pseudo-obstruction

BACKGROUND: Acute colonic pseudo-obstruction -- that is, massive dilation of the colon without mechanical obstruction -- may develop after surgery or severe illness. Although it may resolve with conservative therapy, colonoscopic decompression is…

Sexual dysfunction in male cardiac transplant recipients

Sexual dysfunction in male cardiac transplant recipients has received little systematic study. Problems reported in the literature include impotence, ejaculation problems, decreased libido and avoidance of sexual opportunities. PURPOSE: Investigate…

Tags: 1999, Abbey S, Backlog, Cardiac Transplant, Cohen E, Heart Transplant, Heart transplantation, Journal Article, Male, Ross H, Sex disorders, Sexual Dysfunction, Straatman L, Transplant, Transplant Recipient, Transplantation

The proopiomelanocortin system in cutaneous neuroimmunomodulation. An introductory overview

1999

Tags: 1999, Animals, Annals Of The New York Academy Of Sciences, Backlog, Biomarkers of Pain, Humans, Journal Article, Lipton J, Luger TA, Neuroimmunomodulation/physiology, Paus R, Pro-Opiomelanocortin/physiology, Skin Physiology, Skin/immunology, Slominski A

Proopiomelanocortin and the immune-neuroendocrine connection

This presentation will cover the history, recent developments in, and implications of the ability of both the immune and neuroendocrine systems to produce POMC. The discovery of POMC in immune cells was one of the events that heralded a molecular…

Tags: 1999, Amino Acid Sequence, Animals, Annals Of The New York Academy Of Sciences, Backlog, Base Sequence, Biomarkers of Pain, Biomarkers Reference List, Blalock JE, Humans, Immune System/physiology, Interleukin-1/physiology, Journal Article, Molecular Sequence Data, Neuroimmunomodulation/physiology, Neurosecretory Systems/physiology, Pro-Opiomelanocortin/genetics/physiology

Juvenile hyaline fibromatosis: clinical heterogeneity in three patients

BACKGROUND: Systemic hyalinoses are genetic generalized fibromatoses characterized by an accumulation of hyalin in the dermis. Two distinctive syndromes are recognized in the literature: infantile systemic hyalinosis (ISH) and juvenile hyaline…

Bisphosphonates: from grandparents to grandchildren

Bisphosphonates are synthetic analogues of pyrophosphate that inhibit bone resorption by their action on osteoclasts. Bisphosphonates have been extensively used in the elderly with primary and secondary osteoporosis, Paget's disease, and…

Stress, social support, and sense of coherence

In the Salutogenic Model, Aaron Antonovsky suggested that a sense of coherence (SOC) is the key determinant in the maintenance of health. He theorized that individuals with a strong SOC have the ability to (a) define life events as less stressful…

Consulting with the bereaved mother

1999

Tags: 1999, Backlog, Journal Article, Journal Of Human Lactation, Pugmire L

Using reflexivity to optimize teamwork in qualitative research

1999

Tags: 1999, Backlog, Barber N, Barry CA, Bradley C, Britten N, Journal Article, Qualitative Health Research, Stevenson F

Defensive mothering in HIV-positive mothers

1999

Tags: 1999, Backlog, Hutchison Sally A, Ingram D, Journal Article, Mothers, Qualitative Health Research

Treasure Weekend: supporting bereaved siblings

The importance of allowing bereaved siblings the opportunity to be involved and mourn the loss of a sibling family member has gained increasing recognition. Child family members may need support in the same way that parents might need support to cope…

Prospective study of symptom control in 133 cases of palliative care inpatients in Shatin Hospital

We report a prospective study assessing the prevalence and severity of physical and nonphysical symptoms, and the benefits from treatment and intervention, in advanced cancer patients presenting to a local palliative care unit in Hong Kong. Patients…

Levomepromazine (methotrimeprazine) and the last 48 hours

Levomepromazine (previously known as methotrimeprazine) has a broad range of beneficial effects in the terminal phase of many illnesses, resulting from its combined antipsychotic, anxiolytic and sedative actions. Levomepromazine can safely be…

Tags: 1999, Antipsychotic Agents/pharmacology/therapeutic use, Backlog, Fountain A, Hospital Medicine, Humans, Journal Article, Methotrimeprazine/pharmacology/therapeutic use, Non-U.S. Gov't, O'Neill J, Psychomotor Agitation/therapy, Psychotic Disorders/drug therapy, Research Support, Terminal Care, Terminally Ill/psychology

Levomepromazine for nausea and vomiting in advanced cancer

Levomepromazine (previously known as methotrimeprazine), despite virtually no high quality scientific data to support its use, has become a very popular antiemetic for use in patients with advanced cancer. This article considers the reasons for this.

Tags: 1999, Backlog, Dopamine Antagonists/adverse effects/therapeutic use, Hospital Medicine, Humans, Journal Article, Methotrimeprazine/adverse effects/therapeutic use, Nausea/drug therapy/etiology, Neoplasms/complications, Non-U.S. Gov't, Palliative Care, Research Support, Skinner A, Skinner J, Vomiting/drug therapy/etiology

Advancing social work practice in end-of-life care

Insufficient training of health professionals has often been cited as a major barrier to improving the system of care for dying patients and for the bereaved. Although specific problems have been identified for physicians and nurses, the problems of…

Tags: 1999, Backlog, Bereavement, Christ GH, Continuing, Education, Focus Groups, Health Care Surveys, Humans, Journal Article, New Jersey, New York City, Palliative Care, Social Work in Health Care, Social Work/education, Sormanti M, Terminal Care, United States

Advance directives in a pediatric emergency department.

Parents of children with terminal illnesses are not always present when a life-threatening event occurs. For many of these children, an advance directive specifying alternate code orders has been written by the parent or legal guardian (hereafter the…

Variability in physician opinion on limiting pediatric life support

OBJECTIVE: We conducted this study to investigate how physicians in a pediatric intensive care unit (ICU) currently make decisions to withdraw and withhold life support. Consultation with the patient's primary caregiver often precedes decisions about…

Sedation and analgesia in paediatric intensive care units: a guide to drug selection and use

The indications for sedation in the paediatric intensive care unit (PICU) patient are varied ranging from short term use for various procedures to prolonged administration to provide comfort during mechanical ventilation. When faced with the decision…

Tags: 1999, Analgesics/tu [Therapeutic Use], Backlog, Child, Human, Hypnotics and Sedatives/tu [Therapeutic Use], Intensive Care Units, Journal Article, Paediatric Drugs, Pediatric, Tobias JD

Diagnosing suffering: a perspective

The alleviation of suffering is crucial in all of medicine, especially in the care of the dying. Suffering cannot be treated unless it is recognized and diagnosed. Suffering involves some symptom or process that threatens the patient because of fear,…

Tags: 1999, Annals Of Internal Medicine, Backlog, Cassell EJ, Clinical Competence, Death and Euthanasia, Humans, Journal Article, Pain/diagnosis/therapy, Physician-patient Relations, Professional Patient Relationship, Psychological, Stress, Terminally Ill/psychology

Trisomy 18 in Kuwait.

1999

Tags: 1999, Abulhassan SA, Al-Awadi SA, Backlog, Bastaki L, Gouda S, International Journal Of Epidemiology, Journal Article, Longitudinal Studies, Moussa MA, Murthy DS, Mustafa F, Naguib KK, Redha MA, Tayel SM

Adolescent sibling bereavement as a catalyst for spiritual development: a model for understanding.

While our understanding of adolescent bereavement has greatly expanded in recent years, one area yet to be clarified is the relationship between grief following a significant loss and spirituality. This article strengthens our understanding of this…

Mission Statement of the CHPCA

1999

Tags: 1999, Association Canadian Hospice Palliative Care, Backlog, CHPCA, Journal Article, PPC Book Chapter 2011 (Kim Widger)

Pain management and weaning from narcotics and sedatives

Over the last 10 years, there has been a fundamental change in physicians' attitudes toward analgesia and sedation in pediatrics. In this time, basic and clinical research have provided a wealth of information. In this paper we review important…

Tags: 1999, Analgesia/trends, Analgesics/pharmacology/therapeutic use, Attitude Of Health Personnel, Backlog, Bogue CW, Child, Current Opinion In Pediatrics, Drug Administration Schedule, Ganea GR, Human, Hypnotics and Sedatives/administration & dosage, Journal Article, Narcotics/administration & dosage, Pain/psychology/therapy, Physician's Practice Patterns/standards/trends

Methadone titration in opioid-resistant cancer pain

AIM: To assess the use of methadone in patients with cancer pain who fail to respond to increasing doses of other opioids or experience intolerable side-effects from them. METHOD: Inpatients of a specialist palliative care unit were titrated onto…

Population pharmacokinetics of oral morphine and its glucuronides in children receiving morphine as immediate-release liquid or sustained-release tablets for cancer pain

OBJECTIVES: (1) To determine the pharmacokinetics of morphine, morphine-6-glucuronide (M6G), and morphine-3-glucuronide (M3G) in children with cancer receiving morphine as immediate-release morphine liquid or sustained-release tablets. (2) To…

Lessons learned and not learned from the SUPPORT project

1999

Tags: 1999, Adult, Backlog, Decision Making, Euthanasia, Health Care Costs, Hospitalization, Human, Journal Article, Palliative Medicine, Passive, Quality Of Life, Randomized Controlled Trials, Teno JM, Terminally Ill

Cerebral palsy: diagnosing something that is not one thing

1999

Tags: 1999, Backlog, Cerebral Palsy/diagnosis/etiology/physiopathology, Child, Current Opinion In Pediatrics, Ferriero DM, Human, Journal Article

Current concepts of cerebral malformation syndromes

In the past, children with many brain malformations were classified as having static encephalopathies (cerebral palsy), often attributed to perinatal or prenatal distress. Understanding of the frequency and clinical manifestations of brain…

Tags: 1999, Backlog, Barkovich AJ, Brain Diseases/diagnosis/pathology/physiopathology, Cerebral Palsy/diagnosis/pathology/physiopathology, Child, Current Opinion In Pediatrics, Human, Journal Article, Lequin MH, Magnetic Resonance Imaging, Muscular Dystrophies/diagnosis/pathology/physiopathology, Nervous System Malformations/diagnosis/pathology/physiopathology, Syndrome

Neuromuscular disorders of childhood

Neuromuscular disorders are common causes of weakness and hypotonia in the infantile period and in childhood. Accurate diagnosis of specific neuromuscular disorders depends first on identification of which aspect of the peripheral neuromuscular…

Tags: 1999, Andersson PB, Backlog, Charcot-Marie-Tooth Disease/diagnosis/physiopathology, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Human, Journal Article, Muscular Dystrophies/diagnosis/genetics, Myasthenia Gravis/diagnosis, Neuromuscular Diseases/diagnosis/physiopathology/therapy, Peripheral Nervous System Diseases/diagnosis, Rando TA, Spinal Muscular Atrophies of Childhood/diagnosis

Cerebral palsy and neurodegenerative disease

Cerebral palsy refers to a neurologic disorder of motor skills that is static in nature and is the result of injury to the brain before its development is complete. Many neurodegenerative or metabolic disorders have a slow rate of progression and can…

Tags: 1999, Backlog, Bass N, Cerebral Palsy/diagnosis, Child, Current Opinion In Pediatrics, Diagnosis, Differential, Disease Progression, Human, Journal Article, Mitochondrial Myopathies/diagnosis, Neurodegenerative Diseases/diagnosis

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