Browse Items · Pediatric Palliative Care Library

A community survey of children with severe intellectual disability and their families: psychological adjustment, carer distress and the effect of respite care

The present paper describes a cross-sectional study of the psychosocial adjustment of 143 children with severe disability and their families identified from a regional case register for children with special needs. Thirty-eight per cent of the…

A comparative longitudinal study of gastrostomy devices in children

Long-term gastrostomy is a predictable intervention to ameliorate the effects of feeding and swallowing difficulties among children with severe spastic cerebral palsy. The evidence evaluating the efficacy and implications of the available gastrostomy…

A comparison of two regimens of patient-controlled analgesia for children with sickle cell disease

Recently, patient controlled analgesia (PCA) has gained prominence in the treatment of pain for children suffering from vaso-occlusive crisis associated with sickle cell disease. Because there are several different regimens that can be used for PCA,…

A computerized school-based health assessment with rapid feedback to improve adolescent health

Adolescent health problems are often undetected in physicians' offices. The Dartmouth Primary Care Cooperative Information Project has developed a validated and reliable approach to identify adolescent health problems and initiate education in a…

A follow up study of myocardial involvement in patients with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS)

OBJECTIVE: To investigate cardiac function in patients with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS) and clarify the clinical features of cardiomyopathy in MELAS. PATIENTS: 11 consecutive patients with MELAS…

A new definition of children with special health care needs

1998

Tags: 1998, Arango P, Backlog, Cohen 2006 BMC HSR Refs, Fox H, Journal Article, Lauver C, McManus M, McPherson M, Newacheck P, Pediatrics, Perrin JM, Shonkoff JP, Strickland B

A possible role for saliva as a diagnostic fluid in patients with chronic pain

OBJECTIVES: The focus of this review was on proteins and peptides found in saliva. Of greatest interest were those neuropeptides relevant to nociception and to the pathogenesis of chronic pain syndromes. An additional goal was to develop a…

A qualitative approach to community and provider needs assessment in a telehealth project

OBJECTIVE: Needs assessment is a critical part of the design and implementation of telehealth projects. This study assessed the need for a telehealth link between a local community and a tertiary-care medical center. METHODS: The assessment was…

Tags: 1998, Backlog, British Columbia, Focus Groups, Humans, Journal Article, Needs Assessment, Non-U.S. Gov't, Program Development, Remote Consultation, Research Support, Siden HB, Telemedicine, Telemedicine Journal : The Official Journal Of The American Telemedicine Association

ABC of palliative care. Special problems of children

1998

Tags: 1998, Backlog, Bereavement, Bmj (clinical Research Ed.), Child, Child Health Services, Child welfare, Family Health, Goldman A, Great Britain, Humans, Journal Article, Pain Measurement, Pain/etiology, Palliative Care, Preschool, Social Support

Adaptive and maladaptive behaviour in children with Cri-du-chat syndrome

Twenty children with cri-du-chat syndrome were assessed on the Vineland Adaptive Behavioural Scales. Strengths within rather than between the adaptive domains were identified with posthoc analyses revealing the main differences to lie within the…

Tags: 1998, Bramble D, characteristics, Cornish K M, Cri-du-chat, externalizing behaviors, hyperactivity, impulsiveness, Journal Of Applied Research In Intellectual Disabilities, Munir F, poor concentration, Psychology, Rehabilitation behavioral problems, Trajectory

Analysis of a trial randomised in clusters

1998

Tags: 1998, Backlog, Bland JM, Bmj (clinical Research Ed.), Cluster Analysis, Journal Article, Kerry SM, Randomized Controlled Trials

Aspects of altered metabolism in children with cancer

Severe weight loss associated with cancer continues to be a major cause of morbidity in cases of childhood malignancy. The etiology is not completely understood but is probably multifactorial, including reduced ingestion and altered metabolism of…

Tags: 1998, Animals, Backlog, Cachexia/etiology, Child, Energy Metabolism, Humans, Interleukin-1/physiology, Interleukin-6/physiology, International Journal Of Cancer. Supplement, Journal Article, Neoplasms/complications/metabolism/physiopathology, Nutritional Failure, Nutritional Requirements, Picton SV, Tumor Necrosis Factor-alpha/physiology

Benzodiazepine dependence and withdrawal: a review of the syndrome and its clinical management

The treatment of anxiety has evolved through various phases. Currently, there is a growing recognition that anxiety disorders are frequently chronic and/or recurrent. There is also less optimism than a decade ago that benzodiazepines will be replaced…

Bisphosphonates for treatment of childhood hypercalcemia

Most clinicians only have a limited experience in treating childhood hypercalcemia with bisphosphonates. We report our experience in the use of intravenous and oral bisphosphonates in a 5-year-old with hypercalcemia secondary to acute lymphocytic…

Bisphosphonates: mechanisms of action

1998

Tags: 1998, Animals, Backlog, Bone Development/drug effects, Bone Resorption/physiopathology, Clodronate, Diphosphonates/chemistry/metabolism/pharmacology, Endocrine Reviews, Fleisch H, Humans, Journal Article

Broad-spectrum group treatment for parents bereaved by the violent deaths of their 12-to 28-year-old children: A randomized control trial

1998

Tags: 1998, Backlog, Baugher R, Cain KC, Death, Death studies, Dimond M, Gupta AD, Johnson C, Journal Article, Lohan JA, Murphy SA, Parents

Building measurement and data collection into medical practice

Clinicians can use data to improve daily clinical practice. This paper offers eight principles for using data to support improvement in busy clinical settings: 1) seek usefulness, not perfection, in the measurement; 2) use a balanced set of process,…

Children and families in health and illness

Tags: 1998, Book/Book Section, Family Nursing, Pediatric Nursing, Research

Chronic disease and perceived developmental progression in adolescence

This study examined whether chronic illness causes delays in adolescents' perceived developmental status. Longitudinal data were obtained from 86 adolescents afflicted with insulin-dependent diabetes mellitus and 103 healthy adolescents. The…

Comparing the quality of death for hospice and non-hospice cancer patients

1998

Tags: 1998, Backlog, Baugher RJ, Burger C, Journal Article, Medical Care, Smith RA, Wallston KA

Conducting feminist research in nursing: personal and political challenges

The challenges of doing feminist nursing research include both personal and political elements. Some of these arise from the threefold influences of being nurses, women, and academics within a larger social context that may be antithetical to…

Tags: 1998, Attitude Of Health Personnel, Backlog, Choice Behavior, Female, Feminism, Health Care For Women International, Humans, Journal Article, Maxwell-Young L, Nurses/psychology, Nursing Methodology Research/methods/standards, Olshansky E, Politics, Research Personnel/psychology, Steele R, Women/psychology

Cyclic administration of pamidronate in children with severe osteogenesis imperfecta

BACKGROUND: Severe osteogenesis imperfecta is a disorder characterized by osteopenia, frequent fractures, progressive deformity, loss of mobility, and chronic bone pain. There is no effective therapy for the disorder. We assessed the effects of…

Deaths of pediatric patients: relevance to their medical home, an urban primary care clinic

2005

Tags: 1998, 2002, 2005, Academic Medical Centers Adolescent AdultCause of Death Child Child, and 19 (52%) were identified through the clinic-initiated tracking system for deaths that occurred outside the institution. Only 1 anticipated death occurred in the patient's home. Sixty-six percent of patients h(TRUNCATED), and June 31, and to compare the characteristics of deaths that were sudden, and whether an autopsy was performed. RESULTS: Thirty-six patient deaths were identified between July 1, Backlog, epidemiology United States%X BACKGROUND: The Institute of Medicine's report When Children Die emphasizes the importance of the medical home in end-of-life care, Hospital, Hospital-Based, Journal Article, Nellis ME, Newborn Male Outpatient Clinics, Pediatrics, PedPal Lit, preexisting medical conditions, Preschool Death FemaleHospital Mortality Hospitals, resident continuity clinic, Serwint JR, setting and cause of death, statistics & numerical data Primary Health Care Professional-Family Relations Sudden Infant Death, to determine the mechanisms of communication about these deaths, unexpected, Urban/statistics & numerical data Humans Infant Infant, within a clinic population of 7000 patients (average annual mortality rate: 0.13%). Seventeen patient deaths (48%) were identified through the institutional tracking system

Decreased levels of beta-endorphin in circulating mononuclear leukocytes from patients with acute myocardial infarction

Lymphocytes can be activated to produce and release opioid peptides. We investigated the levels of immunoreactive beta-endorphin in peripheral blood mononuclear cells from 11 patients with acute myocardial infarction. The concentrations of…

Differences in pediatric ICU mortality risk over time

OBJECTIVES: To compare pediatric intensive care unit (ICU) mortality risk using models from two distinct time periods; and to discuss the implications of changing mortality risk for severity systems and quality-of-care assessment. DATA SOURCES AND…

Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review

The objective of the study was to determine whether teams providing specialist palliative care improve the health outcomes of patients with advanced cancer and their families or carers when compared to conventional services. The study involved a…

Tags: 1998, Backlog, Developed Countries, Hearn J, Higginson IJ, Human, Journal Article, Neoplasms/therapy, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/economics/organization & administration/utilization, Palliative Medicine, Patient Care Team, Patient Satisfaction, Psychology, Quality Of Life, Social, Support

Economic burden of illness in Canada

1998

Tags: 1998, Agency of Canada Public Health, Backlog, Journal Article

Epidural analgesia for postoperative pain control in children

Ninety-eight continuous postoperative epidurals were administered to 87 children. The patients were divided into two groups: group I included 63 cases in which a 0.0625-0.25% solution of bupivacaine was continuously administered; group II included 35…

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

Experimental evidence for stages of health behavior change: the precaution adoption process model applied to home radon testing

Hypotheses generated by the precaution adoption process model, a stage model of health behavior, were tested in the context of home radon testing. The specific idea tested was that the barriers impeding progress toward protective action change from…

Explaining geographies of health care: a critique

This paper considers the ways in which geographers have sought to explain the spatial organisation of health care services. It does so at three interlocking scales: the global/international, the national, and the local. It considers the substantive…

Tags: 1998, Backlog, Delivery of Health Care/statistics & numerical data, Geography, Health & Place, Health Services Accessibility/statistics & numerical data, Humans, Journal Article, Mohan JF

Families' recommendations for improving services for children with chronic conditions

Background: Little research has been done on services and programs for children with chronic conditions and their families from the perspective of family caregivers from diverse cultural backgrounds. Objective: To identify recommendations that urban…

Tags: 1998, Archives Of Pediatrics & Adolescent Medicine, Backlog, Blume RW, Garwick AW, Journal Article, Kohrman C, Wolman C

Fatigue in rheumatoid arthritis: the role of self-efficacy and problematic social support.

OBJECTIVE: To examine the relationship of fatigue in people with rheumatoid arthritis (RA) with self-efficacy, positive and problematic aspects of social support, and demographic and disease-related variables. METHOD: Out-patients with at least 5 yr…

Tags: 1998, Backlog, Griep EN, Journal Article, Rasker JJ, Rheumatology, Riemsma RP, Social Support and Chronic Pain, Taal E, Wiegman O, Wouters JM

Genetic classification of primary neurodegenerative disease

Review During the past 10 years (the "decade of the brain"), some of the genetic causes of many of the primary neurodegenerative diseases, which include Alzheimer's disease, Parkinson's disease, Huntington's disease, amyotrophic lateral sclerosis,…

Tags: 1998, Alzheimer Disease, Backlog, Brain, Dominant, Genes, Gwinn-Hardy K, Hardy J, Humans, Journal Article, Mutation, Nerve Tissue Proteins, Neurodegenerative Diseases, Parkinson Disease, Peptides, Science, Synucleins, tau Proteins, Trinucleotide Repeats

Health counseling in adolescent preventive visits: effectiveness, current practices, and quality measurement

Most morbidity and mortality among adolescents results from their participation in health-compromising behaviors. Recent guidelines for clinical adolescent preventive services recommend that primary care clinicians routinely screen for and counsel…

Hospice care using home-based telemedicine systems

A pilot study of telenursing for terminally ill patients at home was launched as a collaborative effort between KUMC and the Kendallwood Hospice. The service used the public telephone network. Interactive video equipment was installed in the homes of…

Tags: 1998, Backlog, Clemens C, Doolittle GC, Feasibility Studies, Hospice Care/methods, Human, Journal Article, Journal of Telemedicine & Telecare, Missouri, Otto F, Telemedicine/methods, Yaezel A

Identifying potential need for cancer palliation in Nova Scotia

OBJECTIVE: To assess the degree to which Nova Scotia cancer patients who may need palliative care are being referred to the comprehensive Halifax-based Palliative Care Program (PCP). METHODS: The authors conducted a retrospective, population-based…

Illness as a problem of meaning: Moving culture from the classroom to the clinic

1998

Tags: 1998, Advances in Nursing Science, Backlog, Journal Article, McGrath BB, Meaning

Impact of survival probability, life expectancy, quality of life and patient preferences on do-not-attempt-resuscitation orders in a hospital

Consensus exists that a do-not-attempt-resuscitation order (DNAR) is appropriate if a resuscitation attempt is futile. Less agreement exists when this point is reached. We investigated the influence of three major considerations for in-hospital DNAR…

Tags: 1998, Backlog, Cardiopulmonary Resuscitation, de Haan RJ, de Vos R, Decision Making, DNAR Outcomes, Journal Article, Koster RW, Prognosis, Quality Of Life, Resuscitation, Survival

Implementation and evaluation of a quality improvement process to improve pain management in a hospice setting

The purpose of this article is to describe the implementation and evaluation of a quality improvement process to improve pain management in a hospice setting. A retrospective chart audit of 702 patient visits pre- and 536 patient visits…

Tags: 1998, Administration, Alden C, American Journal of Hospice & Palliative Medicine, Backlog, Duggleby W, Hospice Care/standards, Human, Journal Article, Non-U.S. Gov't, Nursing Audit, Outcome and Process Assessment (Health Care)/organization &, Pain/nursing, Program Development, Program Evaluation, Retrospective Studies, Support, Total Quality Management/organization & administration

Browse Items (80 total)