Browse Items · Pediatric Palliative Care Library

Advice seeking and appropriate use of a pediatric emergency department

OBJECTIVES: To determine whether seeking advice prior to an unscheduled visit to a pediatric emergency department (PED) influences appropriate use of this setting for minor illnesses. DESIGN: Cross-sectional questionnaire survey. SETTING: The medical…

After a child dies: Helping the siblings.

Tags: 1993, Book/Book Section, Child, Davies B, Hospice Care For Children, Longitudinal Studies, Palliative Care, Siblings, Terminal Care

An Unexpected Success Story: Transition to Adulthood in Youth With Chronic Physical Health Conditions.

We used data from the National Longitudinal Survey of Youth (NLSY; 1987) to examine the relationship between having a chronic physical health condition during youth (ages 14 to 21), and the subsequent transition to adulthood among a nationally…

Tags: 1993, Adolescent Transitions, ADULTHOOD, Backlog, Gortmaker SL, Homer CJ, Journal Article, Journal Of Research On Adolescence (lawrence Erlbaum), Multivariate Analysis, Perrin JM, Sobol Arthur M, TEENAGERS -- Health & hygiene, UNEMPLOYMENT, Weitzman M

Analysis of proopiomelanocortin (POMC) messenger ribonucleic acid and POMC-derived peptides in human peripheral blood mononuclear cells: no evidence for a lymphocyte-derived POMC system

A number of recent studies suggest that cells of the immune system, e.g. peripheral blood mononuclear cells (PBMC), can synthesize and process POMC and secrete POMC-derived peptides, such as ACTH and endorphins, upon immune and hormonal challenges.…

Assessing the clinical importance of symptomatic improvements. An illustration in rheumatology

OBJECTIVE: To estimate when a difference in disability symptoms is sufficiently large to be important to individual patients. DESIGN: Cross-sectional analysis of two groups: derivation set (n = 46) and validation set (n = 57). SETTING: The Arthritis…

Bereavement and mourning in pediatric rehabilitation settings

Developmental changes in children's acquisition of death concepts and in their emotional reactions are reviewed. Moderating variables that may affect the nature of grieving processes after parental or sibling death are discussed, including…

Tags: 1993, Attitude To Death, Backlog, Bereavement, Brain Injuries, Child, Death studies, Donders J, Hospitalized, Humans, Journal Article, Male, Parents, Preschool, Rehabilitation Centers, sibling bereavement, Sibling Relations, United States

Bereavement care - the role of the paediatrician

1993

Tags: 1993, Backlog, Bereavement, Current Paediatrics, Journal Article, Role, Wilson R

Beta-endorphin levels are reduced in peripheral blood mononuclear cells of cluster headache patients

Opioid system hypofunction has been postulated in cluster headache (CH) on the basis of reduced opioid levels found in the cerebrospinal fluid (CSF). In this study beta-endorphin levels were monitored in the peripheral blood mononuclear cells of 65…

Tags: 1993, Adult, Backlog, beta-Endorphin/blood, Bussone G, Cephalalgia, Cluster Headache/blood, D'Amico D, Female, Humans, Journal Article, Leone M, Male, Monocytes/metabolism, Panerai AE, Reference Values, Sacerdote P

Brain and gut neuropeptides in peripheral blood mononuclear cells

Neuropeptides, initially thought to be common features of gut and brain, are only synthesized in immune cells and modulate immune functions. The presence and possible functions of these peptides in immune cells in both physiological or pathological…

Breathing abnormalities in sleep in achondroplasia

Overnight sleep studies were performed in 20 subjects with achondroplasia to document further the respiratory abnormalities present in this group. Somatosensory evoked potentials (SEPs) were recorded in 19 of the subjects to screen for the presence…

Tags: 1993, achondroplasia, Archives in Disease in Childhood, breathing difficulties, characteristics, Everett F, Fagan E, Sillence D, Sullivan C E, Trajectory, upper airways obstruction, Waters K A

Children with cancer talk about their own death with their families

In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the…

Clinical efficacy of methadone in patients refractory to other mu-opioid receptor agonist analgesics for management of terminal cancer pain. Case presentations and discussion of incomplete cross-tolerance among opioid agonist analgesics

BACKGROUND. Development of tolerance to opioid analgesics occurs often in patients with cancer-related pain. Cross-tolerance among opioid analgesics provides the physician with a major management problem. Incomplete cross-tolerance among opioid…

Communication between physician, patient, and family in the pediatric intensive care unit

Confidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school students

OBJECTIVE--To assess adolescent knowledge, perceptions, and attitudes about health care confidentiality. DESIGN--Anonymous self-report survey with 64 items addressing confidentiality issues in health care. SETTING--Rural, suburban, and urban high…

Development, behaviour and seizures in 300 cases of tuberous sclerosis

Three hundred cases of tuberous sclerosis were surveyed by postal questionnaire, including 240 cases with learning difficulties. People who have tuberous sclerosis and severe learning disabilities also have a higher frequency of epileptic seizures…

Disorders of movement in Leigh syndrome

Leigh syndrome (LS) is the clinical prototype of a genetically-determined mitochondrial encephalopathy. Twenty-two of 34 patients with LS had evidence of a movement disorder (MD). Dystonia, the most common MD, was present in 19 cases, rigidity in 4,…

Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities

Self-injurious behavior (SIB) is a serious and moderately prevalent problem behavior among developmentally disabled persons, and it frequently leads to treatment with psychotropic medication. The empirical literature relating to the efficacy of…

Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't

Exploring consumer views of care provided by the Macmillan nurse using the critical incident technique

This study focuses on descriptive accounts of one Macmillan nurse's work, as provided by key individuals coming into contact with this specialist professional service. Twenty respondents (eight patients, five carers, five district nurses and two…

Tags: 1993, Attitude Of Health Personnel, Backlog, Bergen A, Cox K, Human, Journal Article, Journal Of Advanced Nursing, London, Norman IJ, Nurse Clinicians/standards, Nursing Evaluation Research/methods/standards, Oncologic Nursing/methods/standards, Patient Satisfaction, Reproducibility of Results, Research Design/standards, Role

Frequent school-based clinic utilization: a comparative profile of problems and service needs

The purpose of this study is to compare frequent users of school-based clinic services with students who have an average rate of utilization. SAMPLE: Of the 1413 students enrolled in a Denver school-based clinic (DSBC) during the 1989-1990 school…

Hospice care for children

Tags: 1993, Armstrong-Dailey A, Book/Book Section, Goltzer S

Hospice care for children: past, present, and future

Of the 100,000 children who die each year in the United States, close to 15,000 children could benefit from hospice/home care services. This article describes the concept of pediatric hospice care, reviews the Martinson study that was conducted in…

Tags: 1993, administration/statistics &, Adolescent, Backlog, Child, Child Health Services/organization &, Forecasting, Health Services Research, Home Care Services/organization &, Hospices/organization &, Humans, Infant, Journal Article, Journal Of Pediatric Oncology Nursing, Martinson IM, Mortality, numerical data/trends, Preschool

Local analgesic effect of endogenous opioid peptides

Opioids produce analgesia by interacting with local opioid receptors in peripheral inflamed tissue. This study investigated whether endogenous ligands of these receptors are present in synovia and whether such opioid peptides can inhibit pain by…

Melatonin, cortisol and body temperature rhythms in Lennox-Gastaut patients with or without circadian rhythm sleep disorders

The daily rhythms of melatonin, cortisol and body temperature were studied in 16 institutionalized subjects with the Lennox-Gastaut syndrome. The results of 9 subjects with normal daily rhythms of sleep and wakefulness (group 1) were compared with…

Tags: 1993, Alila A, characteristics, congenital hydrocephalus, Hätönen T, Heiskala H, Journal Of Neurology, Laakso M L, Leinonen L, Lennox-Gastaut syndrome, LGS, sleep disturbance/disorders, Trajectory, West syndrome

Mitochondrial encephalomyopathy, lactic acidosis, stroke-like episodes (MELAS): clinical, radiological, pathological, and genetic observations

We reviewed 10 patients (5 males, 5 females) with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes. The age of symptom onset ranged from 3 months to 12 years. All had lactic acidosis, multiple stroke-like events with…

Mitochondrial encephalomyopathy: variable clinical expression within a single kindred

The clinical manifestations of mitochondrial encephalomyopathy are described in four generations of a single kindred. The age of onset of major neurological disturbance varied from 3-70 years. In some patients, deafness was the only manifestation; in…

Niemann-Pick disease type C: diagnosis and outcome in children, with particular reference to liver disease

The records of 52 children with Niemann-Pick disease type C were reviewed to establish whether the disease process and outcome varied with the initial clinical pattern; 34 children (65%) had cholestatic liver disease and hepatosplenomegaly in…

Nutrition-related growth failure of children with quadriplegic cerebral palsy

Growth failure and nutritional status were evaluated in 142 children with quadriplegic cerebral palsy, aged between two and 18 years. Linear growth was assessed by upper-arm and lower-leg lengths: both means were significantly reduced. Mean…

Occurrence of the Sandifer complex in the Brachmann-de Lange syndrome

Gastroesophageal reflux is a common occurrence in infancy. The most severe complications of reflux include torticollis, opisthotonus, and paroxysmal dystonic posture (known as the Sandifer complex). We examined 17 patients now ranging in age from 9…

Tags: 1993, Adolescent, Adult, American Journal Of Medical Genetics, Backlog, Child, De Lange Syndrome/complications, Esophagitis/complications/prevention & control, Gastroesophageal Reflux/complications, Humans, Infant, Journal Article, Posture, Sommer A, Spasm/complications, Torticollis/complications

Occurrence of the Sandifer complex in the Brachmann-de Lange syndrome

Gastroesophageal reflux is a common occurrence in infancy. The most severe complications of reflux include torticollis, opisthotonus, and paroxysmal dystonic posture (known as the Sandifer complex). We examined 17 patients now ranging in age from 9…

Optimal pain relief in infants and children

1993

Tags: 1993, Analgesia/methods, Anesthesia/methods, Anesthetics/therapeutic use, Backlog, Berde CB, Bmj (clinical Research Ed.), Burrows FA, Humans, Infant, Journal Article, Morphine/therapeutic Use, Newborn, Pain Measurement, Pain/drug Therapy

Palliative care for children.

The International Work Group on Death, Dying, and Bereavement recognizes the wide variation of attitudes, beliefs, and behaviours pertaining to childhood death, dying, and bereavement. The purpose of this statement is, therefore, to identify a set of…

Tags: 1993, Backlog, Bereavement, Child, Children, Committee on Bioethics and Committee on Hospital Care, Death, Death studies, Dying, Guidelines, International Work Group on Death Dying, Journal Article, Palliative Care, Position Statement, Statement, Terminal Illness

Parental grief reactions and marital intimacy following infant death

1993

Tags: 1993, Backlog, Death, Death studies, Gottlieb LN, Grief, grief reaction, Infant, Infant Death, Journal Article, Lang A

Patient-controlled analgesia with low dose background infusions after lower abdominal surgery in children

Forty-five children (aged 6-12 yr) undergoing appendicectomy received one of three analgesic regimens using patient-controlled analgesia (PCA) with morphine: no background infusion (BO); background infusion 4 micrograms kg-1 h-1 (B4); background…

Pharmacokinetics of continuous infusions of fentanyl in critically ill children

OBJECTIVE: To determine the pharmacokinetics of fentanyl when used as a long-term continuous infusion for sedation/analgesia in mechanically ventilated critically ill infants and children. DESIGN: Prospective, case series. SETTING: A university…

Physician uncertainty and the art of persuasion

Incomplete information is a chronic feature of medica markets. Much attention has focused on information asymmetries between physicians and their patients. In contrast, physician uncertainty has received far less attention. This is a significant…

Tags: 1993, Backlog, Clinical Competence, Decision Making, Decision Support Techniques, Humans, Journal Article, Persuasive Communication, Physicians/psychology, Rizzo JA, Social science & medicine

Physiology of beta-endorphins. A close-up view and a review of the literature

When an endogenous morphine, beta-endorphin was discovered ten years ago, the fact that this morphine is present in the brain and many other tissues suggested to neurobiologists that these peptide opiates play a role which goes beyond that of a…

Tags: 1993, Backlog, Behavior/physiology, Bergal S, beta-Endorphin/physiology, Biomarkers of Pain, Biomarkers Reference List, Biomedicine & Pharmacotherapy, Dalayeun JF, Humans, Ion Channels/physiology, Journal Article, Neurotransmitter Agents, Nores JM, Pain/physiopathology

Pituitary-adrenal function and hypothalamic beta-endorphin release in vitro following food deprivation

Basal and dexamethasone-suppressed adrenal glucocorticoid secretion and hypothalamic beta-endorphin (BE) release in vitro were investigated in rats deprived of food for 24, 48, 72, and 96 h. Fasting for up to 48 h neither caused significant changes…

Positive and negative life changes following bereavement and their relations to adjustment

1993

Tags: 1993, Backlog, Bereavement, Bluck S, Davis CG, DeLongis A, Ellard JH, Grief, Journal Article, Journal Of Social And Clinical Psychology, Lehman DR, Life Change Events, Mandel DR, Social Adjustment, Wortman CB

Prospective study of spinal muscular atrophy before age 6 years. DCN/SMA Group

Spinal muscular atrophy (SMA) is a common neuromuscular disorder of childhood, associated with a high mortality rate during the first 2 years of life. Most practitioners expect patients with SMA to follow a progressive course with loss of muscle…

Re-examining perceived ease of use and usefulness: a confirmatory factor analysis

Adams et al. (1992) presented the results of 2 studies designed to replicate previous work by Davis (1989) regarding perceived usefulness, ease of use, and their influence on the usage of information technology. To measure the influence of usefulness…

Tags: 1993, Backlog, Evaluation Studies, Grover V, Journal Article, Management Information Systems Quarterly, Models, Segars A, Statistics, Theoretical

Browse Items (61 total)