Browse Items · Pediatric Palliative Care Library

Prospective study of spinal muscular atrophy before age 6 years. DCN/SMA Group

Spinal muscular atrophy (SMA) is a common neuromuscular disorder of childhood, associated with a high mortality rate during the first 2 years of life. Most practitioners expect patients with SMA to follow a progressive course with loss of muscle…

Melatonin, cortisol and body temperature rhythms in Lennox-Gastaut patients with or without circadian rhythm sleep disorders

The daily rhythms of melatonin, cortisol and body temperature were studied in 16 institutionalized subjects with the Lennox-Gastaut syndrome. The results of 9 subjects with normal daily rhythms of sleep and wakefulness (group 1) were compared with…

Tags: 1993, Alila A, characteristics, congenital hydrocephalus, Hätönen T, Heiskala H, Journal Of Neurology, Laakso M L, Leinonen L, Lennox-Gastaut syndrome, LGS, sleep disturbance/disorders, Trajectory, West syndrome

Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities

Self-injurious behavior (SIB) is a serious and moderately prevalent problem behavior among developmentally disabled persons, and it frequently leads to treatment with psychotropic medication. The empirical literature relating to the efficacy of…

Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't

Standards of Hospice Care for Children

1993

Tags: 1993, Anonymous, Backlog, Children, Hospices, Hospitals, Journal Article, NET Grey Lit, Quality Of Health Care, Special

Hospice care for children

Tags: 1993, Armstrong-Dailey A, Book/Book Section, Goltzer S

Toxicity of local anesthetics in infants and children

Local anesthetics are extremely useful for providing anesthesia and analgesia for infants and children of all ages. Despite the toxicity issues raised here, the overall safety record of local anesthetic use in pediatrics has been very good, and local…

Tags: 1993, Absorption, Anesthetics, Backlog, Berde CB, Child, Humans, Infant, Journal Article, Local/administration & dosage/adverse effects/blood/pharmacokinetics/pharmacology, Risk Factors, The Journal Of Pediatrics

Optimal pain relief in infants and children

1993

Tags: 1993, Analgesia/methods, Anesthesia/methods, Anesthetics/therapeutic use, Backlog, Berde CB, Bmj (clinical Research Ed.), Burrows FA, Humans, Infant, Journal Article, Morphine/therapeutic Use, Newborn, Pain Measurement, Pain/drug Therapy

The sorcerer's broom: medicine's rampant technology

Discusses the impact of technology on the practice of medicine. Effect of technology to medical inflation; Influence of technology on the attempt to reform the health care system and on the redirection of the goals of health care system; Problems…

Confidentiality in health care. A survey of knowledge, perceptions, and attitudes among high school students

OBJECTIVE--To assess adolescent knowledge, perceptions, and attitudes about health care confidentiality. DESIGN--Anonymous self-report survey with 64 items addressing confidentiality issues in health care. SETTING--Rural, suburban, and urban high…

Reduced life expectancy in 40 cases of early onset cerebellar ataxia with retained tendon reflexes: a population-based study

A survival analysis of 40 cases of early onset cerebellar ataxia (EOCA) with retained tendon reflexes was performed. They represent all cases of EOCA diagnosed between 1945 and 1990 among residents of a defined area of Northwestern Italy, followed up…

Exploring consumer views of care provided by the Macmillan nurse using the critical incident technique

This study focuses on descriptive accounts of one Macmillan nurse's work, as provided by key individuals coming into contact with this specialist professional service. Twenty respondents (eight patients, five carers, five district nurses and two…

Tags: 1993, Attitude Of Health Personnel, Backlog, Bergen A, Cox K, Human, Journal Article, Journal Of Advanced Nursing, London, Norman IJ, Nurse Clinicians/standards, Nursing Evaluation Research/methods/standards, Oncologic Nursing/methods/standards, Patient Satisfaction, Reproducibility of Results, Research Design/standards, Role

Clinical efficacy of methadone in patients refractory to other mu-opioid receptor agonist analgesics for management of terminal cancer pain. Case presentations and discussion of incomplete cross-tolerance among opioid agonist analgesics

BACKGROUND. Development of tolerance to opioid analgesics occurs often in patients with cancer-related pain. Cross-tolerance among opioid analgesics provides the physician with a major management problem. Incomplete cross-tolerance among opioid…

Mitochondrial encephalomyopathy: variable clinical expression within a single kindred

The clinical manifestations of mitochondrial encephalomyopathy are described in four generations of a single kindred. The age of onset of major neurological disturbance varied from 3-70 years. In some patients, deafness was the only manifestation; in…

Physiology of beta-endorphins. A close-up view and a review of the literature

When an endogenous morphine, beta-endorphin was discovered ten years ago, the fact that this morphine is present in the brain and many other tissues suggested to neurobiologists that these peptide opiates play a role which goes beyond that of a…

Tags: 1993, Backlog, Behavior/physiology, Bergal S, beta-Endorphin/physiology, Biomarkers of Pain, Biomarkers Reference List, Biomedicine & Pharmacotherapy, Dalayeun JF, Humans, Ion Channels/physiology, Journal Article, Neurotransmitter Agents, Nores JM, Pain/physiopathology

After a child dies: Helping the siblings.

Tags: 1993, Book/Book Section, Child, Davies B, Hospice Care For Children, Longitudinal Studies, Palliative Care, Siblings, Terminal Care

Sibling bereavement: research-based guidelines for nurses. [Review] [27 refs]

Despite the marked improvement in the treatment of childhood cancer in recent decades, there are children who die, leaving behind a legacy of grief for all who knew them, including their siblings. Nurses can play a significant role in facilitating…

Tags: 1993, Backlog, Davies B, IM, Journal Article, N, Seminars In Oncology Nursing, sibling bereavement

Bereavement and mourning in pediatric rehabilitation settings

Developmental changes in children's acquisition of death concepts and in their emotional reactions are reviewed. Moderating variables that may affect the nature of grieving processes after parental or sibling death are discussed, including…

Tags: 1993, Attitude To Death, Backlog, Bereavement, Brain Injuries, Child, Death studies, Donders J, Hospitalized, Humans, Journal Article, Male, Parents, Preschool, Rehabilitation Centers, sibling bereavement, Sibling Relations, United States

Patient-controlled analgesia with low dose background infusions after lower abdominal surgery in children

Forty-five children (aged 6-12 yr) undergoing appendicectomy received one of three analgesic regimens using patient-controlled analgesia (PCA) with morphine: no background infusion (BO); background infusion 4 micrograms kg-1 h-1 (B4); background…

The Delphi technique: a comparison of results obtained using two expert panels

The Delphi technique is a useful method of obtaining group consensus. However, "consensus" is not usually defined when this technique is used. This paper describes a study in which two panels of experts (registered nurses who were nurse managers or…

Tags: 1993, Attitudes, Backlog, Delphi Technique, Duffield C, Health Knowledge, Humans, International Journal Of Nursing Studies, Job Description, Journal Article, New South Wales, Nursing, Nursing Administration Research, Practice, Professional Competence/standards, Supervisory/standards

Recurrent metabolic decompensation in profound carnitine palmitoyltransferase II deficiency

A 3-year-old boy had recurrent episodes of lethargy, encephalopathy, and hepatomegaly accompanied by hypoglycemia, elevated liver aminotransferase and creatine kinase values, and nonketotic dicarboxylic aciduria; the serum carnitine level was…

Using high-dose morphine to relieve cancer pain

For cancer patients, the question of how much morphine is too much may be irrelevant-they need as much as it takes to relieve their pain. Discover the principles of administering high doses of morphine, including which routes to use, how to convert…

Tags: 1993, Adult, Backlog, Fulton JS, Humans, Infusions, Intravenous, Johnson GB, Journal Article, Male, Morphine/administration & dosage/adverse effects, Neoplasms/physiopathology, Nursing, Oncologic Nursing/methods, Pain/drug therapy/nursing

Children with cancer talk about their own death with their families

In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the…

Social and economic consequences of overweight in adolescence and young adulthood

BACKGROUND AND METHODS: Overweight in adolescents may have deleterious effects on their subsequent self-esteem, social and economic characteristics, and physical health. We studied the relation between overweight and subsequent educational…

An Unexpected Success Story: Transition to Adulthood in Youth With Chronic Physical Health Conditions.

We used data from the National Longitudinal Survey of Youth (NLSY; 1987) to examine the relationship between having a chronic physical health condition during youth (ages 14 to 21), and the subsequent transition to adulthood among a nationally…

Tags: 1993, Adolescent Transitions, ADULTHOOD, Backlog, Gortmaker SL, Homer CJ, Journal Article, Journal Of Research On Adolescence (lawrence Erlbaum), Multivariate Analysis, Perrin JM, Sobol Arthur M, TEENAGERS -- Health & hygiene, UNEMPLOYMENT, Weitzman M

Ventilatory effects of morphine, pethidine and methadone in children

The ventilatory effects of single i.v. doses of morphine 0.1 mg kg-1, pethidine 0.67 mg kg-1 and methadone 0.1 mg kg-1 were compared after ophthalmic surgery in an open, randomized study in 30 children aged 3-8 yr. Ventilatory changes after each drug…

Development, behaviour and seizures in 300 cases of tuberous sclerosis

Three hundred cases of tuberous sclerosis were surveyed by postal questionnaire, including 240 cases with learning difficulties. People who have tuberous sclerosis and severe learning disabilities also have a higher frequency of epileptic seizures…

Palliative care for children.

The International Work Group on Death, Dying, and Bereavement recognizes the wide variation of attitudes, beliefs, and behaviours pertaining to childhood death, dying, and bereavement. The purpose of this statement is, therefore, to identify a set of…

Tags: 1993, Backlog, Bereavement, Child, Children, Committee on Bioethics and Committee on Hospital Care, Death, Death studies, Dying, Guidelines, International Work Group on Death Dying, Journal Article, Palliative Care, Position Statement, Statement, Terminal Illness

Pharmacokinetics of continuous infusions of fentanyl in critically ill children

OBJECTIVE: To determine the pharmacokinetics of fentanyl when used as a long-term continuous infusion for sedation/analgesia in mechanically ventilated critically ill infants and children. DESIGN: Prospective, case series. SETTING: A university…

Niemann-Pick disease type C: diagnosis and outcome in children, with particular reference to liver disease

The records of 52 children with Niemann-Pick disease type C were reviewed to establish whether the disease process and outcome varied with the initial clinical pattern; 34 children (65%) had cholestatic liver disease and hepatosplenomegaly in…

Test-retest reliabilities of two treatment-preference instruments in measuring utilities

The authors assessed the test-retest reliabilities of two treatment-preference instruments recently applied to the measurement of the utilities of health states after different treatment modalities for cancer. The first instrument measures the…

Mitochondrial encephalomyopathy, lactic acidosis, stroke-like episodes (MELAS): clinical, radiological, pathological, and genetic observations

We reviewed 10 patients (5 males, 5 females) with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes. The age of symptom onset ranged from 3 months to 12 years. All had lactic acidosis, multiple stroke-like events with…

Parental grief reactions and marital intimacy following infant death

1993

Tags: 1993, Backlog, Death, Death studies, Gottlieb LN, Grief, grief reaction, Infant, Infant Death, Journal Article, Lang A

Positive and negative life changes following bereavement and their relations to adjustment

1993

Tags: 1993, Backlog, Bereavement, Bluck S, Davis CG, DeLongis A, Ellard JH, Grief, Journal Article, Journal Of Social And Clinical Psychology, Lehman DR, Life Change Events, Mandel DR, Social Adjustment, Wortman CB

Beta-endorphin levels are reduced in peripheral blood mononuclear cells of cluster headache patients

Opioid system hypofunction has been postulated in cluster headache (CH) on the basis of reduced opioid levels found in the cerebrospinal fluid (CSF). In this study beta-endorphin levels were monitored in the peripheral blood mononuclear cells of 65…

Tags: 1993, Adult, Backlog, beta-Endorphin/blood, Bussone G, Cephalalgia, Cluster Headache/blood, D'Amico D, Female, Humans, Journal Article, Leone M, Male, Monocytes/metabolism, Panerai AE, Reference Values, Sacerdote P

Disorders of movement in Leigh syndrome

Leigh syndrome (LS) is the clinical prototype of a genetically-determined mitochondrial encephalopathy. Twenty-two of 34 patients with LS had evidence of a movement disorder (MD). Dystonia, the most common MD, was present in 19 cases, rigidity in 4,…

Hospice care for children: past, present, and future

Of the 100,000 children who die each year in the United States, close to 15,000 children could benefit from hospice/home care services. This article describes the concept of pediatric hospice care, reviews the Martinson study that was conducted in…

Tags: 1993, administration/statistics &, Adolescent, Backlog, Child, Child Health Services/organization &, Forecasting, Health Services Research, Home Care Services/organization &, Hospices/organization &, Humans, Infant, Journal Article, Journal Of Pediatric Oncology Nursing, Martinson IM, Mortality, numerical data/trends, Preschool

Pituitary-adrenal function and hypothalamic beta-endorphin release in vitro following food deprivation

Basal and dexamethasone-suppressed adrenal glucocorticoid secretion and hypothalamic beta-endorphin (BE) release in vitro were investigated in rats deprived of food for 24, 48, 72, and 96 h. Fasting for up to 48 h neither caused significant changes…

Work, knowledge and argument in specialist consultations: incorporating tacit knowledge into system design and development

To understand how video telephone technology could support consultations between pathologists and surgeons, this study looked at what constitutes 'work' in clinical consultations. Using several methods (participant observation, video and interviews),…

Tags: 1993, Backlog, Clinical, Communication, Hospital, Humans, Interprofessional Relations, Journal Article, Medical & Biological Engineering & Computing, Medical Staff, Non-U.S. Gov't, Nyce JM, Pathology, Research Support, Surgery, Timpka T

Advice seeking and appropriate use of a pediatric emergency department

OBJECTIVES: To determine whether seeking advice prior to an unscheduled visit to a pediatric emergency department (PED) influences appropriate use of this setting for minor illnesses. DESIGN: Cross-sectional questionnaire survey. SETTING: The medical…

Brain and gut neuropeptides in peripheral blood mononuclear cells

Neuropeptides, initially thought to be common features of gut and brain, are only synthesized in immune cells and modulate immune functions. The presence and possible functions of these peptides in immune cells in both physiological or pathological…

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