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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1097/MNH.0000000000000839" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1097/MNH.0000000000000839</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Enabling flourishing: novel approaches in palliative medicine for children with advanced kidney disease
Publisher
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Current Opinion in Nephrology & Hypertension
Date
A point or period of time associated with an event in the lifecycle of the resource
2023
Subject
The topic of the resource
Child; Diagnosis; Human; Kidney Diseases; Nephrology; Palliative Care; Therapy Kidney Diseases; Methods
Creator
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House TR; Wightman A
Description
An account of the resource
Purpose Of Review: Paediatric kidney disease results in considerable burden on children and their families. Paediatric palliative care is a holistic, family-centred care approach intended to enable flourishing and address the many impediments to life participation which advanced kidney disease can impose. To date, palliative care resources have been underutilized in paediatric nephrology. This review will highlight recent literature targeting the engagement and life participation of children with advanced kidney disease through implementation of novel palliative care approaches and propose directions for future research.Recent Findings: Children with advanced kidney disease and their families highly value incorporation of their perspectives, particularly on life participation, within care plan development; but what it means to participate in life can be variable, and clinicians need improved tools to ascertain and incorporate these perspectives. Novel palliative care interventions developed for application in comparable disease states offer potential opportunities for paediatric nephrologists to support this goal.Summary: Children with advanced kidney disease and their families will benefit from incorporation of their perspectives and values, facilitated by palliative interventions.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1097/MNH.0000000000000839" target="_blank" rel="noreferrer noopener">10.1097/MNH.0000000000000839</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Human
Palliative Care
2023
Current Opinion in Nephrology & Hypertension
Diagnosis
House TR
January List 2023
Kidney Diseases
Methods
Nephrology
Therapy Kidney Diseases
Wightman A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1080/09503153.2022.2051468" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1080/09503153.2022.2051468</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Learning to Hold a Paradox': A Narrative Review of How Ambiguous Loss and Disenfranchised Grief Affects Children in Care
Publisher
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Practice (09503153)
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Assessment; Care Needs; Child; Child Behavior Support; Child Care; Coping; Foster Home; Grief; Human; Infancy and Childhood; Interpersonal Relations; Personal Loss; Practice; Psychosocial Life; Purpose; Social Work; Systemic Review; Thematic Analysis
Creator
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Leitch J
Description
An account of the resource
Separation and loss characterise a child's experience in care, yet losses in the care-experienced population have rarely been studied as a possible source of trauma or as events that may justify a grief response. A literature search of five databases yielded 592 publications. 41 full text articles were reviewed, 16 publications were included. Thematic analysis revealed: children in care are affected by two broad type of ambiguous loss, relationship losses and psychosocial losses; behaviours labelled as 'problem' behaviours may in fact be indicators of the manifestations of ambiguous loss and disenfranchised grief; manifold ambiguous losses associated with multiple placement moves has a cumulative effect that can generate long-term negative consequences; the effects of ambiguous loss can be offset by supporting children in care to understand that their losses may not be resolvable, to build tolerance to this ambiguity, to rebuild their identity through forging permanent connections, and to make meaning of their situations. Social workers have a key role in supporting those in care to understand, process and cope with their ambiguous losses but diminishing the burden of loss must also be a systemic focus if meaningful change is to be realised for this community of vulnerable young people.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1080/09503153.2022.2051468" target="_blank" rel="noreferrer noopener">10.1080/09503153.2022.2051468</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Grief
Human
Thematic Analysis
2022
Assessment
Care Needs
Child Behavior Support
Child Care
Coping
Foster Home
Infancy and Childhood
Interpersonal Relations
January List 2023
Leitch J
Personal Loss
Practice
Practice (09503153)
Psychosocial Life
Purpose
Social Work
Systemic Review
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1055/s-0042-1757146" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1055/s-0042-1757146</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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A Spiritual Prescription to Bereaved Parents of Children Died Due to Coronavirus Disease 2019
Publisher
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Journal of Child Science
Date
A point or period of time associated with an event in the lifecycle of the resource
2022
Subject
The topic of the resource
Bereavement; Coronavirus Disease 2019; Spiritual Care; Bereavement; Coronavirus 19; Parent; Child; Child Death; Dying; Editorial; Financial Management; Grief; Healing; Health Care Personnel; Hopelessness; Human; Life History; Medical Care; Palliative Therapy; Psychosocial Care; Religion; Sudden Cardiac Death
Creator
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Çaksen H
Identifier
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<a href="http://doi.org/10.1055/s-0042-1757146" target="_blank" rel="noreferrer noopener">10.1055/s-0042-1757146</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Bereavement
Child
Grief
Human
2022
Çaksen H
Child Death
Coronavirus 19
coronavirus disease 2019
Dying
Editorial
financial management
Healing
Health Care Personnel
hopelessness
January List 2023
Journal of Child Science
Life History
Medical Care
Palliative Therapy
Parent
psychosocial care
Religion
Spiritual Care
Sudden Cardiac Death
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Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1192/j.eurpsy.2021.1075" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1192/j.eurpsy.2021.1075</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Dying child and nurses' mourning
Publisher
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European Psychiatry
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Mourning; Nurse; Child; Death; Nurse; Nurse Care; Death; Child; Anger; Care; Child; Conference Abstract; Curriculum; Demography; Dying; Education; Guilt; Hospitalized Child; Human; Pediatric Hospital; Pediatric Nurse; Questionnaire; Sadness; Theoretical Study
Creator
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Zartaloudi A; Lekas C; Koutelekos I; Evangelou E; Kyritsi E
Description
An account of the resource
Introduction: One of the most complex and emotional aspects of nursing is the interaction between the nurse and the dying child. The attitudes of nurses towards death, affect the quality of care. Objective(s): To investigate pediatric nurses' attitudes towards death. Method(s): Methodology: 170 nurses, working in pediatric hospital departments completed a questionnaire which included sociodemographic characteristics and information related to their previous training and clinical experience regarding death issues in general and dying children's care in particular. Result(s): 68.6% reported that the death of a child affects them very much, while 44.7% of the participants didn't feel well prepared to manage death issues. Pediatric nurses were greatly affected by children's death, expressing mainly feelings of sadness (44%), compassion (22%), guilt (22%) and anger (22%). 73% of the sample wished the hospitalized child, died when they were not present. 53.5% had been trained regarding the care of dying patients and the management of death and mourning as part of their curriculum and 21.2% had attended a relative seminar / lecture. The importance of proper and adequate education becomes particularly apparent considering that the majority of our sample either did not feel sufficiently prepared in order to deal with death and mourning, even though more than 70% of our participants had been relatively educated. Conclusion(s): The incorporation of the notions of death and care at end of life in the theoretical and practical fields of nursing will improve the quality of services offered at the end of life for patients and their families.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://doi.org/10.1192/j.eurpsy.2021.1075" target="_blank" rel="noreferrer noopener">10.1192/j.eurpsy.2021.1075</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Death
Human
Nurse
2021
Anger
CARE
Child
conference abstract
Curriculum
Death
Demography
Dying
Education
European Psychiatry
Evangelou E
Guilt
Hospitalized Child
January List 2023
Koutelekos I
Kyritsi E
Lekas C
mourning
Nurse Care
Pediatric Hospital
pediatric nurse
Questionnaire
Sadness
theoretical study
Zartaloudi A
-
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
January 2023 List
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
January List 2023
URL Address
<a href="http://doi.org/10.1136/bmjspcare-2021-003087" target="_blank" rel="noreferrer noopener"> http://doi.org/10.1136/bmjspcare-2021-003087</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Designing the physical environment for inpatient palliative care: A narrative review
Publisher
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BMJ Supportive and Palliative Care
Date
A point or period of time associated with an event in the lifecycle of the resource
2021
Subject
The topic of the resource
Hospice Care; Hospital Care; Hospital Patient; Narrative; Nursing Home; Palliative Therapy; Cinahl; Family Management; Hospice Care; Hospital Care; Medline; PsycINFO; Adult; Built Environment; Child; Comfort; Conception; Data Extraction; Data Synthesis; Emergency Ward; Family Interaction; Family Management; Hospice Care; Hospital Care; Nursing Home Care; Female; Furniture; Human; Human Dignity; Male; Nursing Home; Privacy; Review; Systematic Review; Thematic Analysis
Creator
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Wong K; McLaughlan R; Collins A; Philip J
Description
An account of the resource
Background: It is essential that the physical environments in which inpatient palliative care is provided support the needs of patients and the facilitate the multidimensional delivery of palliative care. This review aims to identify the features and characteristics of inpatient palliative care environments that enhance or detract from the patient experience; and identify opportunities for progress within this field. Method(s): Three databases were searched: MEDLINE (1946-2020), PsycINFO (1806-2020) and CINAHL (1937-2020). Articles were screened by title and abstract with included studies read in full for data extraction. Data synthesis involved thematic analysis informed by the findings of the included literature. Inclusion criteria were studies with empirical methodology examining adult palliative care in the hospital, hospice or nursing home environment. Studies that examined palliative care delivered within the emergency department, ICU or within the home were excluded, as were those related to paediatric palliative care. Result(s): Four main themes were identified: the provision of privacy, facilitating interactions with family, facilitating comfort through homeliness and connections to nature. Conclusion(s): The board acceptance of single rooms as the preeminent design solution for supporting privacy, dignity and family interaction, alongside current conceptions of homeliness that typically focus on matters of interior design, are limiting possibilities for further design innovation within palliative care settings. Research that investigates a broader set of design strategies through which the built environment can support care, alongside enhanced interdisciplinary collaboration, could positively contribute to patient and family experiences of inpatient palliative care.Copyright © Author(s) (or their employer(s)) 2021. No commercial re-use. See rights and permissions. Published by BMJ.
Identifier
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<a href="http://doi.org/10.1136/bmjspcare-2021-003087" target="_blank" rel="noreferrer noopener">10.1136/bmjspcare-2021-003087</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Child
Hospice Care
Hospital Care
Human
Thematic Analysis
2021
Adult
BMJ Supportive and Palliative Care
Built Environment
Cinahl
Collins A
Comfort
Conception
data extraction
Data Synthesis
Emergency Ward
Family Interaction
Family Management
Female
Furniture
Hospice Care
Hospital care
Hospital Patient
Human Dignity
January List 2023
Male
McLaughlan R
Medline
Narrative
nursing home
Nursing Home Care
Palliative Therapy
Philip J
Privacy
Psycinfo
Review
Systematic Review
Wong K