1
40
10
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/children-with-lifeshortening-conditions-are-denied-the-support-they-need-says-charity-ncyp.28.7.7.s6" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/children-with-lifeshortening-conditions-are-denied-the-support-they-need-says-charity-ncyp.28.7.7.s6</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Children with life-shortening conditions are denied the support they need, says charity
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Healthcare Financing; Palliative Care; Respite Care; Adolescent; Charities; Child; Child Preschool; England; Hospice And Palliative Care Nursing; Humans; Infant; Infant Newborn; State Medicine; Young Adult
Creator
An entity primarily responsible for making the resource
[No authors listed]
Description
An account of the resource
Children who require palliative care are being 'short changed or ignored', according to a survey of services in England by the charity Together for Short Lives.
Identifier
An unambiguous reference to the resource within a given context
<span><span></span><span><a href="https://doi.org/10.7748/ncyp.28.7.7.s6">10.7748/ncyp.28.7.7.s6</a></span></span><span><span><br /></span></span>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
[No authors listed]
2016
Adolescent
August 2017 List
Charities
Child
Child Preschool
England
Healthcare Financing
Hospice And Palliative Care Nursing
Humans
Infant
Infant Newborn
Nursing Children and Young People
Palliative Care
Respite Care
State Medicine
Young Adult
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/enhancing-quality-of-life-in-children-with-cystic-fibrosis-through-holistic-nursing-aop-ncyp.2016.e753</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
How holistic nursing can enhance the quality of life of children with cystic fibrosis
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Child Health; Cystic Fibrosis; Cystic Fibrosis/ Nursing/psychology; Family/psychology; Female; Holistic Nursing/ Methods; Humans; Life-limiting Illness; Paediatrics; Quality Of Life; Respiratory System; Siblings/psychology; Well-being
Creator
An entity primarily responsible for making the resource
Tointon K; Hunt J
Description
An account of the resource
Cystic fibrosis (CF) is one of the most common life-limiting genetic conditions. Ellen Bolton (not her real name) is a teenager with one of the rarer presentations of CF. This case study explores the experiences of Ellen and her family. It discusses the effects of CF on the patient and her family, and how it affects their quality of life (QoL) and well-being.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://dx.doi.org/10.7748/ncyp.2016.e753" target="_blank" rel="noreferrer"><span>http://dx.doi.org/</span><span>10.7748</span><span>/</span><span>ncyp</span><span>.</span><span>2016</span><span>.</span><span>e753</span></a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
August 2017 List
Child Health
Cystic Fibrosis
Cystic Fibrosis/ Nursing/psychology
Family/psychology
Female
Holistic Nursing/ Methods
Humans
Hunt J
life-limiting illness
Nursing Children and Young People
Paediatrics
Quality Of Life
Respiratory System
Siblings/psychology
Tointon K
Well-being
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/consistency-in-end-of-life-care-ncyp.28.8.8.s8" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/consistency-in-end-of-life-care-ncyp.28.8.8.s8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Consistency in end of life care
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Adolescent; Child; Child Preschool; Communication; Decision Making; Hospice And Palliative Care Nursing/ Standards; Humans; Infant; Nurse-patient Relations; Patient Participation; Pediatric Nursing/ Standards; Practice Guidelines As Topic
Creator
An entity primarily responsible for making the resource
Allen D
Description
An account of the resource
Draft guidelines address regional variations, but there are worries over terminology, the needs of family members and implementation. The death of a child is a comparatively rare event in the UK. Even so, more than 3,000 infant and 2,000 children and young people age 1-19 years died in England and Wales in 2012.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://journals.rcni.com/doi/full/10.7748/ncyp.28.8.8.s8" target="_blank" rel="noreferrer">10.7748/ncyp.28.8.8.s8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Adolescent
Allen D
August 2017 List
Child
Child Preschool
Communication
Decision Making
Hospice And Palliative Care Nursing/ Standards
Humans
Infant
Nurse-patient Relations
Nursing Children and Young People
Patient Participation
Pediatric Nursing/ Standards
Practice Guidelines As Topic
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/doi/abs/10.7748/ncyp.28.8.5.s1" target="_blank" rel="noreferrer">https://journals.rcni.com/doi/abs/10.7748/ncyp.28.8.5.s1</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
We need to attract more students to palliative care
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Choice; Health Services Accessibility; Hospice And Palliative Care Nursing; Humans Personnel Selection; Students Nursing; Terminal Care/manpower
Creator
An entity primarily responsible for making the resource
Walker C
Description
An account of the resource
A good palliative care service is responsive, available to families where they want it, provided round the clock, and co-ordinated by a lead healthcare professional or team. This is the view of one hospice director of care in response to a draft good practice guideline on end of life care from the National Institute for Health and Care Excellence.
Identifier
An unambiguous reference to the resource within a given context
<a href="http://dx.doi.org/10.7748/ncyp.28.8.5.s1" target="_blank" rel="noreferrer">10.7748/ncyp.28.8.5.s1</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
August 2017 List
Choice
Health Services Accessibility
Hospice And Palliative Care Nursing
Humans Personnel Selection
Nursing Children and Young People
Students Nursing
Terminal Care/manpower
Walker C
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/many-people-still-fear-child-illness-ncyp.29.5.7.s4" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/many-people-still-fear-child-illness-ncyp.29.5.7.s4</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Many people still fear child illness
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
An entity primarily responsible for making the resource
[No authors listed]
Description
An account of the resource
One in four people show a 'worrying' lack of understanding about children's hospices and palliative care, a survey shows.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.7748/ncyp.29.5.7.s4">10.7748/ncyp.29.5.7.s4</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
[No authors listed]
2017
August 2017 List
Nursing Children and Young People
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
August 2017 List
URL Address
<a href="https://journals.rcni.com/nursing-children-and-young-people/strategic-thinking-end-of-life-care-ncyp.29.1.8.s8" target="_blank" rel="noreferrer">https://journals.rcni.com/nursing-children-and-young-people/strategic-thinking-end-of-life-care-ncyp.29.1.8.s8</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
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Strategic thinking: end of life care
Publisher
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Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Creator
An entity primarily responsible for making the resource
Evans N
Description
An account of the resource
Major announcements were made in all four parts of the UK at the end of last year. All have the potential to improve the way seriously ill children are looked after.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.7748/ncyp.29.1.8.s8" target="_blank" rel="noreferrer">10.7748/ncyp.29.1.8.s8</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
August 2017 List
Evans N
Nursing Children and Young People
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
July 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Respite Services For Children With Life-limiting Conditions And Their Families In Ireland
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Creator
An entity primarily responsible for making the resource
Katie H
Description
An account of the resource
Appropriate respite care for children with life-limiting conditions (LLC) and their families is the cornerstone of high quality paediatric care. The effect of caring for children with LLC on families, including parental needs, cannot be underestimated and respite can give families support while caring for their children. There are many different types of respite care available in Ireland, including specialist respite, inhome respite or out-of-home respite; the wishes of the family should be sought when arranging care. Comparisons between Ireland and the UK have drawn similarities in the benefits and limitations of respite care. Although there are many positive attributes associated with respite care, there are inconsistencies between best practice recommendations and reality. Worldwide issues remain with a lack of funding for respite care. Such care should become an area which attracts funding for future research to improve the quality of life for these children.
Identifier
An unambiguous reference to the resource within a given context
10.7748/ncyp.2016.e658
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
July 2017 List
Katie H
Nursing Children and Young People
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
June 2017 List
URL Address
<a href="http://www.ncbi.nlm.nih.gov/pubmed/28395609" target="_blank" rel="noreferrer">http://www.ncbi.nlm.nih.gov/pubmed/28395609</a>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
The Spiritual Needs Of Seriously Ill Children And Their Families
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Description
An account of the resource
Background Studies have documented the experiences of families with seriously ill children, but few have focused on the spiritual needs of families confronted with a child's imminent death.
Identifier
An unambiguous reference to the resource within a given context
<a href="https://doi.org/10.7748/ncyp.29.3.27.s25" target="_blank" rel="noreferrer">10.7748/ncyp.29.3.27.s25</a>
Rights
Information about rights held in and over the resource
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Subject
The topic of the resource
Child Child; Preschool Critical Illness/nursing; Critical Illness/psychology; Humans Infant Parents/psychology; Pediatrics/methods Spirituality
2017
June 2017 List
Nursing Children and Young People
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Notes
<p>Evans, Nick</p>
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Updated Perinatal Palliative Standards Emphasise Choice And Bereavement Support
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2017
Subject
The topic of the resource
Bereavement; Palliative Care/st [standards]; Perinatal Death; Female; Humans; Infant Newborn; Neonatal Nursing; Palliative Care/ma [manpower]; Practice Guidelines As Topic; Pregnancy; United Kingdom
Creator
An entity primarily responsible for making the resource
Evans N
Description
An account of the resource
Ana Todorovic's baby, Nadia, died just before birth. Ana says she received excellent care and was told when 37 weeks pregnant that Nadia was not going to survive for long.
Identifier
An unambiguous reference to the resource within a given context
10.7748/ncyp.29.5.8.s8
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2017
Bereavement
Evans N
Female
Humans
Infant Newborn
Neonatal Nursing
Nursing Children and Young People
Palliative Care/ma [manpower]
Palliative Care/st [standards]
Perinatal Death
Practice Guidelines As Topic
Pregnancy
September 2017 List
United Kingdom
-
Text
A resource consisting primarily of words for reading. Examples include books, letters, dissertations, poems, newspapers, articles, archives of mailing lists. Note that facsimiles or images of texts are still of the genre Text.
Citation List Month
September 2017 List
Dublin Core
The Dublin Core metadata element set is common to all Omeka records, including items, files, and collections. For more information see, http://dublincore.org/documents/dces/.
Title
A name given to the resource
Improvements In Communication And Relationship Building Are Essential
Publisher
An entity responsible for making the resource available
Nursing Children And Young People
Date
A point or period of time associated with an event in the lifecycle of the resource
2016
Subject
The topic of the resource
Communication; Nurse-patient Relations; Palliative Care/st [standards]; Pediatric Nursing/mt [methods]; Pediatric Nursing/st [standards]; Humans
Creator
An entity primarily responsible for making the resource
Anonymous
Description
An account of the resource
Understanding research priorities in children's palliative care is important for nurses, following the phasing out of the Liverpool Care Pathway, which has led to a change in palliative and end of life care ( Department of Health (DH) 2014 ). Advances in technology that can keep children alive for a long time is another area over which there is much debate ( Longden and Mayer 2007 ).
Identifier
An unambiguous reference to the resource within a given context
10.7748/ncyp.28.4.13.s17
Rights
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Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
2016
Anonymous
Communication
Humans
Nurse-patient Relations
Nursing Children and Young People
Palliative Care/st [standards]
Pediatric Nursing/mt [methods]
Pediatric Nursing/st [standards]
September 2017 List