Browse Items · Pediatric Palliative Care Library

Acceptability Of Family-centered Advanced Care Planning For Adolescents With Hiv

BACKGROUND AND OBJECTIVE: Small pilot studies support the appropriateness of engaging adolescents with chronic or life-limiting illnesses in pediatric advance care planning (pACP). We do not yet know if pACP is acceptable, feasible, and worthwhile,…

Bringing Home To The Hospital: Development Of The Reflection Room And Provider Perspectives

Background: Alternative locations for children near end of life (EOL) are lacking in the United States with deaths largely occurring within intensive care units (ICUs). The reflection room (RR) was implemented as a relevant space for providing this…

Children With Intellectual Disability And Hospice Utilization

Over 42,000 children die each year in the United States, including those with intellectual disability (ID). Survival is often reduced when children with intellectual disability also suffer from significant motor dysfunction, progressive congenital…

Tags: 2017, Child, Colman MB, Comorbidity, Disclose., Hospice Care, Hospice Enrollment, Hospice Length Of Stay, Hospices, Intellectual Disability, Journal of Hospice and Palliative Nursing, Length Of Stay, Lindley LC, May 2017 List, Meadows JTJr, Medicaid, Only Child, Pediatric Hospice Utilization, United States

End- Of- Life Decisions And Minors: Do Minors Have The Right To Refuse Life Preserving Medical Treatment? A Comparative Study

The principles of the right to informed consent and informed refusal are quite clear for competent adult patients. The right of a competent adult patient to give his informed consent before medical treatment can be started, is a patients' right that…

Tags: 2009, Adolescent, Canada, Child, Decision Making, Europe, Humans, Informed Consent/lj [legislation & Jurisprudence], Lemmens C, May 2017 List, Medicine & Law, Minors/lj [legislation & Jurisprudence], Terminally Ill/lj [legislation & Jurisprudence], Treatment Refusal, Treatment Refusal/lj [legislation & Jurisprudence], United States

End-of-life And Bereavement Care In Pediatric Intensive Care Units

Most childhood deaths in the United States occur in hospitals. Pediatric intensive care clinicians must anticipate and effectively treat dying children's pain and suffering and support the psychosocial and spiritual needs of families. These actions…

End-of-life Practices Among Tertiary Care Picus In The United States: A Multicenter Study

OBJECTIVE: To describe variability in end-of-life practices among tertiary care PICUs in the United States. DESIGN: Secondary analysis of data prospectively collected from a random sample of patients (n = 10,078) admitted to PICUs affiliated with the…

Multiple Complex Chronic Conditions And Pediatric Hospice Utilization Among California Medicaid Beneficiaries, 2007-2010

Background: Over 42,000 children die each year in the United States, including many with multiple complex chronic conditions (MCCCs), but little is known about whether the presence of MCCCs influences families to utilize pediatric hospice care.…

Tags: 2017, California, Child, Hospice Care, Hospices, Human, Incidence, Journal of Palliative Medicine, Length Of Stay, Lindley LC, Logistic Regression Analysis, Major Clinical Study, May 2017 List, Medicaid, Model, Only Child, United States

Neonatal Death In The Emergency Department: When End-of-life Care Is Needed At The Beginning Of Life

The death of a neonate is devastating for all involved. Each year, critically ill neonates present to emergency departments across the United States. These infants require acute medical interventions with a goal of stabilization. Despite these…

Tags: 2016, Bereavement, Clinical Pediatric Emergency Medicine, Doctor Patient Relation, Emergency Ward, Family, Fry JT, Henner N, Human, Infant, January 2017 List, Newborn, Newborn Death, Terminal Care, United States

Parent Perspectives of Neonatal Intensive Care at the End-of-Life

This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. "Life and death in the NICU environment" emerged as the…

Reframing US Maternity Care: Lessons Learned From End-of-Life Care

Repeal of the affordable care act will negatively impact children at end of life

Tags: 2017, Child, Child Health Care, Health Care Cost, Health Care Policy, Hospice Care, Human, Keim-Malpass J, Lindley LC, Medicaid, November 2017 List, Pediatrics, Priority Journal, Quality Of Life, Review, United States

The Impact of Mortality on Total Costs Within the ICU

OBJECTIVES: The high cost of critical care has engendered research into identifying influential factors. However, existing studies have not considered patient vital status at ICU discharge. This study sought to determine the effect of mortality upon…

The Relationship Between The Nursing Environment And Delivering Culturally Sensitive Perinatal Hospice Care

BACKGROUND: Wide variations exist among perinatal hospices, and barriers to perinatal palliative care exist at the healthcare level. Research in the area of culturally sensitive perinatal palliative care has been scarce, a gap which this study…

Trisomy 18: A survey of opinions, attitudes, and practices of neonatologists

We conducted a survey-based study of the opinions, attitudes, and management practices of neonatologists across the United States regarding prenatally diagnosed Trisomy 18. The survey was designed based on previously validated surveys of severe fetal…

Tags: 2016, Adult, American Journal of Medical Genetics Part A, Article, Attitude Of Health Personnel, Attitude To Abortion, Biggio JR, Caucasian, Christian, Chromosomes Human Pair 18, Clinical Practice, Correlation Analysis, December 2017 List, Demography, Disease Management, Disease Severity, Edwards RK, Family, Female, Fetus Malformation, Health Care Surveys, Human, Humans, Intellectual Impairment, Jacobs AP, Male, Marriage, Medical Decision Making, Medical Society, Neonatologist, Neonatologists/px [psychology], Newborn Care, Normal Human, Outcome Assessment (health Care), Palliative Care, Palliative Therapy, Parental Attitude, Philips JB 3rd, Physician Attitude, Practice Patterns Physicians', Prenatal Diagnosis, Priority Journal, Race Difference, Resuscitation, Robin NH, Subramaniam A, Survival Rate, Tang Y, Trisomy 18, Trisomy/di [diagnosis], United States

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