Browse Items · Pediatric Palliative Care Library

Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities

Self-injurious behavior (SIB) is a serious and moderately prevalent problem behavior among developmentally disabled persons, and it frequently leads to treatment with psychotropic medication. The empirical literature relating to the efficacy of…

Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't

Children with cancer talk about their own death with their families

In this study we looked at children dying from progressive malignant diseases and their families, to see whether they discussed the child's impending death together. We also looked at what factors might influence this. We questioned staff in the…

Recognizing suffering

Implies that the profession of medicine must pursue the relief of suffering. Definition of suffering; Wholeness, person, and self-identity; Purpose; Knowing the suffering of others; Knowledge of others as individuals; Aesthetics.

Tags: 1991, Backlog, Cassell EJ, Disease/psychology, Esthetics, Humans, Journal Article, Patients/psychology, Personhood, Professional Patient Relationship, Psychological, Social Values, Stress, The Hastings Center Report, Virtues

The sorcerer's broom: medicine's rampant technology

Discusses the impact of technology on the practice of medicine. Effect of technology to medical inflation; Influence of technology on the attempt to reform the health care system and on the redirection of the goals of health care system; Problems…

Re-examining perceived ease of use and usefulness: a confirmatory factor analysis

Adams et al. (1992) presented the results of 2 studies designed to replicate previous work by Davis (1989) regarding perceived usefulness, ease of use, and their influence on the usage of information technology. To measure the influence of usefulness…

Tags: 1993, Backlog, Evaluation Studies, Grover V, Journal Article, Management Information Systems Quarterly, Models, Segars A, Statistics, Theoretical

PARENTAL BEREAVEMENT OVER THE LIFE-COURSE - A THEORETICAL INTERSECTION AND EMPIRICAL REVIEW

This article reviews the literature on parental bereavement over the family life course drawing attention to the meaning of the loss. The conceptual framework for this article arises from the intersection of Klass and Marwit's {[}1] theory of…

Tags: 1994, Backlog, Bereavement, Bereavement Leave Policy Paper, de Vries B, FALCK VT, Journal Article, Omega, RD LANA

Palliative care for children.

The International Work Group on Death, Dying, and Bereavement recognizes the wide variation of attitudes, beliefs, and behaviours pertaining to childhood death, dying, and bereavement. The purpose of this statement is, therefore, to identify a set of…

Tags: 1993, Backlog, Bereavement, Child, Children, Committee on Bioethics and Committee on Hospital Care, Death, Death studies, Dying, Guidelines, International Work Group on Death Dying, Journal Article, Palliative Care, Position Statement, Statement, Terminal Illness

Positive and negative life changes following bereavement and their relations to adjustment

1993

Tags: 1993, Backlog, Bereavement, Bluck S, Davis CG, DeLongis A, Ellard JH, Grief, Journal Article, Journal Of Social And Clinical Psychology, Lehman DR, Life Change Events, Mandel DR, Social Adjustment, Wortman CB

Seizures in children with congenital hydrocephalus: long-term outcome

We documented seizures in 33 of 68 (48.5%) children with congenital hydrocephalus not associated with myelomeningocele. Mental retardation (MR) and CNS malformations correlated with seizure occurrence; age at shunt insertion and number of shunt…

Tags: 1992, Analysis of Variance, Backlog, Blake JN, Child, Epilepsy/etiology/physiopathology, Follow-up Studies, Humans, Hydrocephalus/complications/physiopathology, Infant, Journal Article, Neurology, Noetzel MJ, Preschool, Prognosis, Q3 Scoping Review Results, Recurrence, Regression Analysis

Analysis of proopiomelanocortin (POMC) messenger ribonucleic acid and POMC-derived peptides in human peripheral blood mononuclear cells: no evidence for a lymphocyte-derived POMC system

A number of recent studies suggest that cells of the immune system, e.g. peripheral blood mononuclear cells (PBMC), can synthesize and process POMC and secrete POMC-derived peptides, such as ACTH and endorphins, upon immune and hormonal challenges.…

What do we know about the expression of proopiomelanocortin transcripts and related peptides in lymphoid tissue?

1993

Tags: 1993, Animals, Backlog, Biomarkers of Pain, Endocrinology, Humans, Journal Article, Linner K, Lymphoid Tissue/metabolism, Messenger/metabolism, Pro-Opiomelanocortin/genetics, RNA, Sharp B

Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.

The purpose of this paper was to identify the needs of parents of children with medically complex needs from their own perception. In order to provide in-depth information, the focus group interview technique was used. Several strong recurrent themes…

Empowerment through photo novella: portraits of participation

Photo novella does not entrust cameras to health specialists, policymakers, or professional photographers, but puts them in the hands of children, rural women, grassroots workers, and other constituents with little access to those who make decisions…

Family assessment and its relation to hospice care

1992

Tags: 1992, American Journal of Hospice & Palliative Medicine, Backlog, Family, Gulla JP, Journal Article

Utilization review of hospice: an interdisciplinary team approach

1991

Tags: 1991, American Journal of Hospice & Palliative Medicine, Backlog, Gill MA, Hospices, Interdisciplinary Communication, Interprofessional Relations, Journal Article, Nursing, Patient Care Team, Progressive Patient Care, Team, Utilization Review

Fathers of children with cancer: A descriptive study of their stressors and coping strategies

1994

Tags: 1994, Backlog, Cayse LN, Coping, Fathers, Journal Article, Journal Of Pediatric Oncology Nursing

Hospice care for children: past, present, and future

Of the 100,000 children who die each year in the United States, close to 15,000 children could benefit from hospice/home care services. This article describes the concept of pediatric hospice care, reviews the Martinson study that was conducted in…

Tags: 1993, administration/statistics &, Adolescent, Backlog, Child, Child Health Services/organization &, Forecasting, Health Services Research, Home Care Services/organization &, Hospices/organization &, Humans, Infant, Journal Article, Journal Of Pediatric Oncology Nursing, Martinson IM, Mortality, numerical data/trends, Preschool

Sources of stress for family caregivers of institutionalized dementia patients

Although many caregivers place their relative in a nursing home in an attempt to reduce their own burden, caregiving stress often continues after institutionalization. This research examined sources of stress for 66 caregivers who cared for their…

Test-retest reliabilities of two treatment-preference instruments in measuring utilities

The authors assessed the test-retest reliabilities of two treatment-preference instruments recently applied to the measurement of the utilities of health states after different treatment modalities for cancer. The first instrument measures the…

Tube feeding in palliative care: benefits and problems

Percutaneous endoscopic gastrostomy techniques are becoming more widely available and will be considered increasingly for patients with head and neck or upper gastrointestinal malignancies, and for neurological dysphagia, as occurs in motor neurone…

Tags: 1994, Aged, Backlog, Beeken L, Boyd KJ, Energy Intake/physiology, Enteral Nutrition/methods, Female, Gastrostomy, Humans, Journal Article, Laryngeal Neoplasms/physiopathology/radiotherapy, Nutrition Assessment, Nutritional Requirements, Palliative Care/methods, Palliative Medicine, Terminal Care/methods, Weight Loss/physiology

Survivor focus groups: a quality assurance technique

The use of a total quality management frame work by the palliative care team (PCT) at the Chedoke-McMaster hospitals has led to a standardized method of obtaining feedback from some of the hospitals' customers. Every three months, a focus group is…

Tags: 1993, Backlog, Journal Article, King B, Palliative Medicine, Woodward CA

Things that help and hinder adolescent sibling bereavement

A taxonomy of the things that help and hinder adolescents' sibling bereavement was developed from the responses of 140 bereaved adolescents to the questions What helped you cope with your sibling's death? and What made it harder to cope with your…

WeeFIM: Normative sample of an instrument for tracking functional independence in children.

A cross-sectional community sample of 417 children, ages 6 months to 8 years without developmental delays or in developmental programs, was seen. The Functional Independence Measure for Children (WeeFIM) was used to assess independence in self-care,…

The Functional Independence Measure for Children (WeeFIM). Conceptual basis and pilot use in children with developmental disabilities.

Few tools are available to pediatricians for tracking and monitoring disability status in children. We describe the conceptual basis and pilot use of the Functional Independence Measure for Children (WeeFIM). Our pilot use of this instrument in…

Nasogastric or gastrostomy feedings in children with neurologic disabilities

Although pediatricians are increasingly aware of the problem of undernutrition in children with neurologic disabilities, many of these children remain poorly nourished despite prolonged attempts at oral feedings. We studied the effects of tube…

Tags: 1994, Backlog, Child, Christoffel KK, Clinical Pediatrics, Enteral Nutrition, Female, Humans, Infant, Journal Article, Male, Naureckas SM, Nervous System Diseases/complications/therapy, Nutrition Disorders/etiology/prevention & control, Preschool

Perinatal loss. A critique of current hospital practices

Dramatic improvements in the hospital management of perinatal loss have taken place in the past 20 years. However, there has been no critical examination of current approaches. Four possible hazards of current hospital practice are described: 1)…

Chronic hypoxia selectively augments rat pulmonary artery Ca2+ and K+ channel-mediated relaxation.

The initiating event in hypoxic pulmonary hypertension is felt to be sustained hypoxic vasoconstriction, ultimately leading to vascular remodeling and fixed pulmonary hypertension. During the initial vasospastic phase endogenous vasodilatory pathways…

Contractile mechanisms of action of gastroprokinetic agents: cisapride, metoclopramide, and domperidone

We investigated the contractile mechanisms of action of three putative gastroprokinetic agents (cisapride, metoclopramide, and domperidone) on the linear phase of gastroduodenal emptying of solid meals in six healthy conscious dogs. The spatial and…

Mitochondrial encephalomyopathy: variable clinical expression within a single kindred

The clinical manifestations of mitochondrial encephalomyopathy are described in four generations of a single kindred. The age of onset of major neurological disturbance varied from 3-70 years. In some patients, deafness was the only manifestation; in…

Gastric antral dysrhythmias in children with chronic idiopathic intestinal pseudoobstruction

Chronic idiopathic intestinal pseudoobstruction is a serious disorder of intestinal neuromuscular function resulting in recurrent episodes of intestinal obstruction, and is caused by primary disease of the enteric nerves or enteric smooth muscle.…

Optimal pain relief in infants and children

1993

Tags: 1993, Analgesia/methods, Anesthesia/methods, Anesthetics/therapeutic use, Backlog, Berde CB, Bmj (clinical Research Ed.), Burrows FA, Humans, Infant, Journal Article, Morphine/therapeutic Use, Newborn, Pain Measurement, Pain/drug Therapy

Continuity of care: influence of general practitioners' knowledge about their patients on use of resources in consultations.

OBJECTIVE--To examine the relation between general practitioners' knowledge about their patients and the use of resources in consultations. DESIGN--A cross sectional evaluation of consultations. SETTING AND SUBJECTS--A representative sample of 133…

Controlled trials in single subjects. 2. Limitations of use

1991

Tags: 1991, Backlog, Bmj (clinical Research Ed.), Drug Evaluation, Humans, Journal Article, Lewis JA, Placebo Effect, Randomized Controlled Trials as Topic/methods/statistics & numerical data

Your child is dead

OBJECTIVE--To determine parent's views on how death of their children should have been handled. DESIGN--Retrospective questionnaire survey of parents who had experienced death of their child. SETTING--Charitable organisation of bereaved parents.…

Natural history of trisomy 13

The poor prognosis of patients with trisomy 13 has long been accepted and has been ascribed to brain and heart malformations. It has been suggested, however, that the long term survival is better than was previously thought and that cardiac surgery…

Morbidity and mortality in medium chain acyl coenzyme A dehydrogenase deficiency

Medium chain acyl coenzyme A dehydrogenase (MCAD) deficiency presents with episodic fasting, hypoketotic hypoglycaemia, and coma. It is known to be potentially lethal, but the outlook for survivors is thought to be good. We reassessed all patients…

Physiological changes, plasma beta-endorphin and cortisol responses to tracheal intubation in neonates

Physiological, plasma beta-endorphin and cortisol responses to nasotracheal intubation were studied in 20 distressed infants of median age 0.3 days (range 0.1-23 days) randomized into groups given pethidine 1 mg/kg (n = 10) or alfentanil 20…

Reduced life expectancy in 40 cases of early onset cerebellar ataxia with retained tendon reflexes: a population-based study

A survival analysis of 40 cases of early onset cerebellar ataxia (EOCA) with retained tendon reflexes was performed. They represent all cases of EOCA diagnosed between 1945 and 1990 among residents of a defined area of Northwestern Italy, followed up…

Ethical issues in observational family research

1994

Tags: 1994, Backlog, Bussell Danielle A, Family, Family Process, Journal Article, Research

Infantile systemic hyalinosis in a black infant

A black girl was born with flexion contractures and experienced pain on movement by 1 week of age. She subsequently developed perioral papules, gingival hyperplasia, perianal nodules, torticollis, diarrhea, rectal prolapse, and inability to open her…

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