Browse Items · Pediatric Palliative Care Library

A report of four cases of acute, severe pulmonary hemorrhage in infancy and support with extracorporeal membrane oxygenation

Introduction
Pulmonary hemorrhage is an uncommon event in infants. It has been described most commonly in the sick premature neonate, older child, or adolescent with chronic cardiopulmonary disease. Acute idiopathic pulmonary hemorrhage in…

Tags: 1994, Acute Disease, Artificial, Backlog, Extracorporeal Membrane Oxygenation, Female, Hemorrhage/complications/therapy, Humans, Infant, Journal Article, Lung Diseases/complications/therapy, Male, Moler FW, Pediatric Pulmonology, Respiration, Respiratory Insufficiency/etiology/therapy, Sanders GM, Severity Of Illness Index, Siden HB

Shared life space and sibling bereavement responses.

1988-12

Tags: 1988, Backlog, Bereavement, Cancer Nursing, Davies B, IM, Journal Article, N, sibling bereavement

The empty space phenomenon: The process of grief in the bereaved family

1987

Tags: 1987, Backlog, Davies B, Death studies, Journal Article, Kulenkamp E, Martinson I, May A, McClowry S, SSHRC CURA

The family environment in bereaved families and its relationship to surviving sibling behavior

1988

Tags: 1988, Backlog, Child Health Care, Davies B, Family, Journal Article

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Addressing spirituality in pediatric hospice and palliative care

Hospice and palliative care principles mandate clinicIans to provide "total" care to patients and their families. Such care incorporates not only physical, emotional, and psychosocial care, but spiritual care as well. Even though considerable…

Building on Values: The Future of Health Care in Canada. Chapter 7

2002

Tags: 2002, Backlog, Journal Article, PPC Book Chapter 2011 (Kim Widger), Romanow R, Widger K

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

Experiences of families in which a child has a prolonged terminal illness: modifying factors.

A significant proportion of children requiring palliative care have neurodegenerative life-threatening illnesses (NLTIs). While most of their care is provided at home by their families over many years, there is a paucity of research examining…

Tags: 2002, Backlog, Child, Communication, Family, Female, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Male, Neurodegenerative Diseases/nursing, Non-U.S. Gov't, Parents/psychology, Research Support, Steele R, Terminal Care/psychology

The wisdom of children

2002

Tags: 2002, Attitude To Death, Backlog, Child, Child Psychology, Davies B, Humans, International Journal of Palliative Nursing, Journal Article

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Trauma and growth in Canadian carers

The phenomenon of post-traumatic growth has been explored within the context of HIV disease in only a limited fashion. One hundred and seventy-six bereaved HIV/AIDS carers located all over Canada responded to a questionnaire about their experiences;…

A typology of fatigue in children with cancer

Fatigue in adults with cancer has received considerable attention as a troublesome symptom that requires nursing intervention. Fatigue in children with cancer, however, has received considerably less focus. The first phase of the present study used…

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

High dose opioids in pediatric palliative care.

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Ensuring pain relief for children at the end of life

2006

Tags: 2006, Adolescent, Analgesia/methods, Backlog, Child, Female, Frager G, Grégoire MC, Humans, Infant, Journal Article, Male, Pain Measurement/methods, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Pain/etiology/psychology/therapy, Palliative Care/methods, Preschool, Terminal Care/methods

Psychological Correlates of Depression in Children with Recurrent Abdominal Pain

Objective To examine the associations between coping style, social support, self-efficacy, locus of control, maternal adjustment, and depressive symptoms in children with recurrent abdominal pain (RAP) of childhood. Methods Fifty children with RAP…

Tags: 2006, Backlog, Dewey D, Journal Article, Journal of Pediatric Psychology, Kaminsky L, PedPal Lit, Robertson M

Sibling bereavement and continuing bonds.

Historically, from a Freudian and medical model perspective, emotional disengagement from the deceased was seen as essential to the successful adaptation of bereavement. A major shift in the bereavement literature has occurred and it is now generally…

Do we have the power to create our own future as oncology nurses?

2005

Tags: 2005, Backlog, Canadian Oncology Nursing Journal, Female, Humans, Journal Article, Leadership, Male, Nurse's Role, Nursing, Nursing/psychology, Oncologic Nursing, Power (psychology), Sex Factors, Societies, Steele R, Students

Nutritional failure and cachexia in a pediatric palliative care population.

2006

Tags: 2006, Backlog, Cox K, Journal Article, Journal Of Investigative Medicine, Longitudinal Studies, NET CV, Siden H, Soon G, Straatman L

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Impact on parents when a child has a progressive, life-threatening illness.

Children with neurodegenerative, life-threatening illnesses (NLTIs) account for a significant proportion of children requiring palliative care, yet there is a lack of of research that examines families' experiences. This grounded theory study…

Tags: 2006, Backlog, Child, Davies B, Disease Progression, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Palliative Care, Parent-child Relations, Pediatrics, Steele R

Posttraumatic growth and HIV bereavement: Where does it start and when does it end?

There is growing interest in researching posttraumatic growth and understanding how to enhance positive outcomes in trauma survivors. This study undertook a systematic exploration of the posttraumatic growth in bereaved caregivers of people with…

Tags: 2006, Backlog, Bereavement, Cadell S, Grief, HIV bereavement, iatrogenic effects of research interventions, Journal Article, Longitudinal Studies, Mixed methods, Post-traumatic, Posttraumatic Growth, Stress Disorders, Sullivan R, Trauma and recovery, Traumatology

Mindfulness in hospice care: Practicing meditation in action

2005

Tags: 2005, Backlog, Bruce A, Davies B, Journal Article, Qualitative Health Research

Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV

2006

Tags: 2006, AIDS care, Alimenti A, Backlog, Cadell S, Chapman GE, Fielden SJ, Forbes JC, Frankish JC, Journal Article, Scheckter L, Sheps S

The emerging issue of euthanasia

2005

Tags: 2005, Adolescent, Archives Of Pediatrics & Adolescent Medicine, Backlog, Child, Decision Making, Euthanasia, Humans, Infant, Journal Article, Longitudinal Studies, Netherlands, Newborn, Pediatrics/statistics & numerical data, Preschool, Siden HB, Terminal Care

An overview of contemporary social work practice in palliative care.

Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With Cancer

This qualitative study explored bereaved parents’ and siblings’ reports of legacies created by children with advanced cancer. Participants included 40 families of children who died from cancer, with 36 mothers, 27 fathers, and 40 siblings (ages 8-18…

Supportive care needs of women with lung cancer

The main purpose of this exploratory study was to identify the supportive care needs of women with lung cancer who attend an ambulatory regional cancer centre. Lung cancer has more than a physical impact on those who are diagnosed with the disease,…

Tags: 2008, Backlog, Canadian Oncology Nursing Journal, Caregivers, Fitch MI, Journal Article, Lung Cancer, Lung Neoplasms, Questionnaires, Steele R, Support, Women

"Doctor, I think my baby is in pain": the assessment of infants' pain by health professionals

2008

Tags: 2008, Backlog, Finley GA, Grégoire MC, Jornal De Pediatria, Journal Article

The relationship between grief adjustment and continuing bonds for parents who have lost a child

This article presents findings from a study on the impact of a child's death on parents. We explored the prominence and adaptiveness of parents' continuing bonds expressions, psychological adjustment, and grief reactions. A qualitative case study…

Power, pathalogical worldviews and the strengths perspective in social work

2009

Tags: 2009, Backlog, Cadell S, Families In Society, Grant J, Journal Article

Culturally-sensitive information-sharing in pediatric palliative care

OBJECTIVES: This study aimed to learn about experiences of Mexican American and Chinese American families who require pediatric palliative care. This article describes parents' perceptions of information-sharing by health care providers during their…

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Larson J, Pediatrics, Widger K

Barriers to palliative care for children: Perceptions of pediatric health care providers

OBJECTIVE. The goal was to explore barriers to palliative care experienced by pediatric health care providers caring for seriously ill children. METHODS. This study explored pediatric provider perceptions of end-of-life care in an academic children's…

Tags: 2008, Amidi-Nouri A, Backlog, Cooper BA, Davies B, Hughes A, Journal Article, Kramer RF, Longitudinal Studies, Partridge JC, Pediatrics, Philp JC, Sehring SA

Timing is everything: The experience of parental cancer for young adult daughters-a pilot study

2008

Tags: 2008, Backlog, Cadell S, Journal Article, Journal Of Psychological Oncology, Puterman J

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada.…

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Everyday struggling to survive: Experiences of the urban poor living with advanced cancer.

2007

Tags: 2007, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Oncology Nursing Forum, ONS Excellence in Cancer Nursing Research Award

The boy who refused an IV: a case report of subcutaneous clodronate for bone pain in a child with Ewing Sarcoma

ABSTRACT: BACKGROUND: Bone pain in malignancy can be challenging to treat. Bisphosphonates have been found to be useful in adults with bone pain, but there are no reports of their use in children for this indication. In pediatric palliative medicine…

Tags: 2007, Backlog, Journal Article, Journal Of Medical Case Reports, Longitudinal Studies, Siden H

Browse Items (109 total)