Browse Items · Pediatric Palliative Care Library

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Paediatric palliative care research in Canada: Development and progress of a new emerging team

Paediatric palliative care is a field distinct from adult palliative care, although there are many overlaps in language, approach and philosophy. Several features, however, distinguish paediatric palliative care. The illnesses that affect children…

Tags: 2008, Cadell S, Davies B, Paediatrics & Child Health, Siden H, Steele R, Straatman L

Optimising the process for conducting scoping reviews

Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting a scoping review is resource intensive and, as a result, it can be…

Tags: 2021, BMJ Evidence-Based Medicine, Brown HL, Dewan T, Evidence-based Medicine, Grégoire MC, Hermansen AM, Humans, information science, Pawliuk C, Publications, Q3 Scoping Review, Research Design, Siden H, Steele R, Widger K

Nutritional failure and cachexia in a pediatric palliative care population.

2006

Tags: 2006, Backlog, Cox K, Journal Article, Journal Of Investigative Medicine, Longitudinal Studies, NET CV, Siden H, Soon G, Straatman L

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Mindfulness in hospice care: Practicing meditation in action

2005

Tags: 2005, Backlog, Bruce A, Davies B, Journal Article, Qualitative Health Research

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey of authors from Vancouver, BC

Objectives
Systematic reviews (SRs) are considered the gold standard of evidence, but many published SRs are of poor quality. This study identifies how librarian involvement in SRs is associated with quality-reported methods and examines the lack of…

Impact on parents when a child has a progressive, life-threatening illness.

Children with neurodegenerative, life-threatening illnesses (NLTIs) account for a significant proportion of children requiring palliative care, yet there is a lack of of research that examines families' experiences. This grounded theory study…

Tags: 2006, Backlog, Child, Davies B, Disease Progression, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Palliative Care, Parent-child Relations, Pediatrics, Steele R

HIV/AIDS

Tags: 2005, Acquired Immunodeficiency Syndrome, Book/Book Section, Cadell S, Hiv, The Canadian Encyclopedia Of Social Work

High dose opioids in pediatric palliative care.

Haloperidol as a palliative anti-emetic in a toddler: an evidence base challenge

2008

Tags: 2008, Antiemetics, Backlog, Evidence-based Medicine, Fatal Outcome, Haloperidol, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Male, Nausea, Palliative Care, Precursor Cell Lymphoblastic Leukemia-Lymphoma, Siden H

Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV

2006

Tags: 2006, AIDS care, Alimenti A, Backlog, Cadell S, Chapman GE, Fielden SJ, Forbes JC, Frankish JC, Journal Article, Scheckter L, Sheps S

Grief and bereavement in pediatric palliative care

Tags: 2010, Book/Book Section, Davies B, Jin J, Limbo R, Oxford Textbook Of Palliative Nursing

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

Family functioning: Impact on siblings.

Tags: 1999, Attitude to death -- In infancy & childhood, Bereavement -- in infancy & childhood, Bereavement In Children, Book/Book Section, Brothers and sisters -- Death -- Psychological aspects, Children and death, Davies B, Grief in children, Longitudinal Studies, Shadows In The Sun: The Experiences Of Sibling Bereavement In Childhood., Sibling Relations -- in infancy & childhood

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada.…

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Tags: 2008, Cadell S, Canada, Child, Davies B, Derman S, Health Planning, Health Services Needs And Demand, Hospices/organization & administration, Humans, International Journal of Palliative Nursing, Palliative Care, Pediatrics, Pilot Projects, Siden H, Steele R, Straatman L

Fading away: The experience of transition for families with terminal illness

Tags: 1995, Book/Book Section, Brown P, Davies B, Family, Martens N, Reimer JC

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

Facilitating day-to-day decision making in palliative care

As part of a larger grounded theory study investigating the process by which palliative care patients make everyday choices, a secondary analysis of data was conducted to investigate the ways nurses support or restrict patients' participation in…

Exploring the Supportive Care Model as a framework for pediatric palliative care

2009

Tags: 2009, Backlog, Davies B, Journal Article, Journal Of Hospice & Palliative Nursing, Oberle K, Steele R, Widger K

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

Experiences of families in which a child has a prolonged terminal illness: modifying factors.

A significant proportion of children requiring palliative care have neurodegenerative life-threatening illnesses (NLTIs). While most of their care is provided at home by their families over many years, there is a paucity of research examining…

Tags: 2002, Backlog, Child, Communication, Family, Female, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Male, Neurodegenerative Diseases/nursing, Non-U.S. Gov't, Parents/psychology, Research Support, Steele R, Terminal Care/psychology

Everyday struggling to survive: Experiences of the urban poor living with advanced cancer.

2007

Tags: 2007, Backlog, Davies B, Gudmundsdottir M, Hughes A, Journal Article, Oncology Nursing Forum, ONS Excellence in Cancer Nursing Research Award

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BACKGROUND: Pain is the most common symptom reported by caregivers of children with severe neurological impairment (SNI), a descriptive term for children with disorders affecting the neurological system across multiple domains. In SNI, cognition,…

Evaluating treatment outcome in an interdisciplinary pediatric pain service

OBJECTIVE: To provide descriptive data evaluating outcome and treatment satisfaction among former pediatric patients and their parents seen in an interdisciplinary treatment program for complex pain syndromes. DESIGN: Retrospective telephone…

Tags: 2000, Backlog, Bellows D, Bennett S, Chambers C, Children, Court C, Huntsman E, Journal Article, Montgomery C, Oberlander T, Pain, Pain Research And Management, Sheriff M, Siden H, Therapeutics, Treatment Outcome

Ensuring pain relief for children at the end of life

2006

Tags: 2006, Adolescent, Analgesia/methods, Backlog, Child, Female, Frager G, Grégoire MC, Humans, Infant, Journal Article, Male, Pain Measurement/methods, Pain Research & Management : The Journal Of The Canadian Pain Society = Journal De La Societe Canadienne Pour Le Traitement De La Douleur, Pain/etiology/psychology/therapy, Palliative Care/methods, Preschool, Terminal Care/methods

End of life in pediatric oncology: how clinical practice leads to research

In pediatric oncology nursing, and across practice disciplines in general, clinical research serves as the cornerstone for improving patient care. Historically, advances made in the care and cure of childhood cancer have stemmed directly from…

Tags: 2002, Biomedical Research, Child, Davies B, Evidence-based Medicine, Humans, Journal Of Pediatric Oncology Nursing, Oncology 2017 List, Oncology Nursing/td [trends], Pediatrics/td [trends], Pritchard M, Research Design

Efficacy and safety of paediatric medicinal cannabis use: A scoping review

INTRODUCTION: The use of medicinal cannabis in the paediatric age group is increasing despite the lack of evidence for its efficacy or safety. OBJECTIVE: To map the available evidence on the efficacy and safety of medicinal cannabis in children and…

Tags: 2021, Cannabidiol, Cannabis, Chau B, Drug-resistant epilepsy, McKellar T, Medicinal Cannabis, Medicinal marijuana, Paediatrics And Child Health, Pawliuk C, Rassekh SR, Scoping review, Siden H, Tetrahydrocannabinoid

Do we have the power to create our own future as oncology nurses?

2005

Tags: 2005, Backlog, Canadian Oncology Nursing Journal, Female, Humans, Journal Article, Leadership, Male, Nurse's Role, Nursing, Nursing/psychology, Oncologic Nursing, Power (psychology), Sex Factors, Societies, Steele R, Students

Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory

BACKGROUND: Children with progressive metabolic, neurological, or chromosomal conditions and their families anticipate an unknown lifespan, endure unstable and often painful symptoms, and cope with erratic emotional and spiritual crises as the…

Culturally-sensitive information-sharing in pediatric palliative care

OBJECTIVES: This study aimed to learn about experiences of Mexican American and Chinese American families who require pediatric palliative care. This article describes parents' perceptions of information-sharing by health care providers during their…

Tags: 2010, Backlog, Contro N, Davies B, Journal Article, Larson J, Pediatrics, Widger K

Creating social work competencies for practice in hospice palliative care

Social workers play an important role in the delivery of Hospice Palliative Care in many diverse settings. The profession brings a unique perspective to end-of-life care that reflects and supports the holistic philosophy of Hospice Palliative Care.…

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