Browse Items · Pediatric Palliative Care Library

Experiences of mothers in five countries whose child died of cancer

Although increasing attention is being focused on the emotional aspects of caring for dying children and their families, few research reports concentrate on the experiences of mothers, particularly in different countries. This article describes the…

Exploring the Supportive Care Model as a framework for pediatric palliative care

2009

Tags: 2009, Backlog, Davies B, Journal Article, Journal Of Hospice & Palliative Nursing, Oberle K, Steele R, Widger K

Facilitating day-to-day decision making in palliative care

As part of a larger grounded theory study investigating the process by which palliative care patients make everyday choices, a secondary analysis of data was conducted to investigate the ways nurses support or restrict patients' participation in…

Factors contributing to post-traumatic growth: a proposed structural equation model

With the current shift to include positive outcomes of trauma, this research was designed to explore factors that allow growth to occur. Structural equation modeling was used to test a model for understanding posttraumatic growth. A sample (N = 174)…

Fading away: The experience of transition for families with terminal illness

Tags: 1995, Book/Book Section, Brown P, Davies B, Family, Martens N, Reimer JC

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Tags: 2008, Cadell S, Canada, Child, Davies B, Derman S, Health Planning, Health Services Needs And Demand, Hospices/organization & administration, Humans, International Journal of Palliative Nursing, Palliative Care, Pediatrics, Pilot Projects, Siden H, Steele R, Straatman L

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study

This article describes the rationale for planning and conducting a qualitative pilot study about families' transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate…

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study

The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada.…

Family functioning: Impact on siblings.

Tags: 1999, Attitude to death -- In infancy & childhood, Bereavement -- in infancy & childhood, Bereavement In Children, Book/Book Section, Brothers and sisters -- Death -- Psychological aspects, Children and death, Davies B, Grief in children, Longitudinal Studies, Shadows In The Sun: The Experiences Of Sibling Bereavement In Childhood., Sibling Relations -- in infancy & childhood

From death notification through the funeral: bereaved parents' experiences and their advice to professionals

Parents who experience the sudden death of a child will interact with many professionals in the period immediately following the death notification through to the funeral. The way these professionals respond to the parents during this critical period…

Tags: 2003, Attitude To Death, Backlog, Bereavement, Cadell S, Child, Death, Fatal Outcome, Funeral Rites, Grief, Janzen L, Journal Article, Omega, Parents, Sudden, Westhues A

Gender imbalance in pediatric palliative care research samples

We assessed the sampling performance of research on parental perspectives in pediatric palliative care and examined if and how gender imbalance was treated. We undertook a systematic review of parental perspectives research in pediatric palliative…

Tags: 2010, Affleck W, Backlog, Cadell S, Chilibeck G, Journal Article, Macdonald ME, NET CV, Palliative Medicine

Grief and bereavement in pediatric palliative care

Tags: 2010, Book/Book Section, Davies B, Jin J, Limbo R, Oxford Textbook Of Palliative Nursing

Growing up: Perspectives of children, families, and service providers regarding the needs of older children with perinatally-acquired HIV

2006

Tags: 2006, AIDS care, Alimenti A, Backlog, Cadell S, Chapman GE, Fielden SJ, Forbes JC, Frankish JC, Journal Article, Scheckter L, Sheps S

Haloperidol as a palliative anti-emetic in a toddler: an evidence base challenge

2008

Tags: 2008, Antiemetics, Backlog, Evidence-based Medicine, Fatal Outcome, Haloperidol, Humans, Infant, Journal Article, Journal of Pain and Symptom Management, Male, Nausea, Palliative Care, Precursor Cell Lymphoblastic Leukemia-Lymphoma, Siden H

High dose opioids in pediatric palliative care.

HIV/AIDS

Tags: 2005, Acquired Immunodeficiency Syndrome, Book/Book Section, Cadell S, Hiv, The Canadian Encyclopedia Of Social Work

Impact on parents when a child has a progressive, life-threatening illness.

Children with neurodegenerative, life-threatening illnesses (NLTIs) account for a significant proportion of children requiring palliative care, yet there is a lack of of research that examines families' experiences. This grounded theory study…

Tags: 2006, Backlog, Child, Davies B, Disease Progression, Humans, International Journal of Palliative Nursing, Journal Article, Longitudinal Studies, Palliative Care, Parent-child Relations, Pediatrics, Steele R

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey of authors from Vancouver, BC

Objectives
Systematic reviews (SRs) are considered the gold standard of evidence, but many published SRs are of poor quality. This study identifies how librarian involvement in SRs is associated with quality-reported methods and examines the lack of…

Living in the dragon's shadow': Fathers' experiences of a child's life-limiting illness

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every…

Tags: 2004, Backlog, Brenner Paul, child's terminal illness, Davies B, Death, Death and Dying, Death studies, father experience, Fathers, Gudmundsdottir M, Hospice, Journal Article, Orloff S, SSHRC CURA, Sumner L, Worden B

Long-Term Outcomes of Adolescent Sibling Bereavement

The experience of sibling bereavement is relatively unexamined in the literature; the long-term effects of such an experience have received even less attention. In this study, grounded theory techniques for the analysis of qualitative data were used…

Tags: 1991, Backlog, Bereavement, Davies B, Journal Article, Journal Of Adolescent Research, sibling bereavement

Manifestations of levels of functioning in grieving families

1986

Tags: 1986, Backlog, Davies B, Family, Journal Article, Journal Of Family Issues, Kulenkamp E, Martinson I, McClowry S, Spinetta J

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

BACKGROUND: Autism spectrum disorder (ASD) is a neurodevelopmental condition estimated to affect 1 in 66 children in Canada and 1 in 270 individuals worldwide. As effective therapies for the management of ASD core and associated symptoms are limited,…

Mindfulness in hospice care: Practicing meditation in action

2005

Tags: 2005, Backlog, Bruce A, Davies B, Journal Article, Qualitative Health Research

Mourning and meaning

Viewed in an expanded frame, the phenomena of grief and bereavement call for analysis in sociological, psychological, and psychiatric terms. In this article, the authors argue that a common theme in these accounts is that of the meaning of loss as…

Tags: 2002, American Behavioral Scientist, Backlog, Bereavement, Davies B, Grief, Journal Article, mourning, Neimeyer RA, Prigerson HG

Nutritional failure and cachexia in a pediatric palliative care population.

2006

Tags: 2006, Backlog, Cox K, Journal Article, Journal Of Investigative Medicine, Longitudinal Studies, NET CV, Siden H, Soon G, Straatman L

Optimising the process for conducting scoping reviews

Knowledge synthesis constitutes a key part of evidence-based medicine and a scoping review is a type of knowledge synthesis that maps the breadth of literature on a topic. Conducting a scoping review is resource intensive and, as a result, it can be…

Tags: 2021, BMJ Evidence-Based Medicine, Brown HL, Dewan T, Evidence-based Medicine, Grégoire MC, Hermansen AM, Humans, information science, Pawliuk C, Publications, Q3 Scoping Review, Research Design, Siden H, Steele R, Widger K

Paediatric palliative care research in Canada: Development and progress of a new emerging team

Paediatric palliative care is a field distinct from adult palliative care, although there are many overlaps in language, approach and philosophy. Several features, however, distinguish paediatric palliative care. The illnesses that affect children…

Tags: 2008, Cadell S, Davies B, Paediatrics & Child Health, Siden H, Steele R, Straatman L

Paediatric palliative care: Challenges and emerging ideas.

Paediatric palliative care is an emerging subspecialty that focuses on achieving the best possible quality of life for children with life-threatening conditions and their families. To achieve this goal, the individuals working in this field need to:…

Tags: 2007, Backlog, Journal Article, Lancet, Liben S, Longitudinal Studies, Papadatou D, Wolfe J

Paediatric palliative care: Challenges and emerging ideas.

2007

Tags: 2007, Backlog, Journal Article, Liben S, Papadatou D, The Lancet, Wolfe J

PaedPalLit: The International Journal of Paediatric Palliative Care

Tags: 2007, Book/Book Section, Hunt A, Jassal S, McCulloch R, Siden H, Thompson A

Pain management for children with a developmental disability in a primary care setting

Tags: 2008, Book/Book Section, Oberlander T, Pain In Children: A Practical Guide For Primary Care, RDF Project, Siden H

Parental depression following the death of a child

1991

Tags: 1991, Backlog, Child, Davies B, Death, Death studies, Depression, Journal Article, Martinson I, McClowry S

Parental perspectives on hospital staff members' acts of kindness and commemoration after a child's death

OBJECTIVES: Acts of kindness and commemoration by staff members often follow the death of a patient. Acts include attending funerals, sending sympathy cards, sending cards on birthdays/anniversaries, telephoning/visiting family homes, and attending…

Patterns of grief in young children following the death of a sibling

Abstract Specific grief behaviors observed in children ages 4-16 years in the 2 years after the death of a sibling are reported. Using the Child Behavior Checklist (CBCL), the parents of 90 boys and girls rated the occurrence of behavior problems in…

Tags: 1995, Backlog, Davies B, Death, Death studies, Grief, Journal Article, McCown DE, sibling bereavement

Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?

Tags: 2009, Child, Child Preschool, Cox K, Derman S, Enteral Nutrition/ Adverse Effects, Female, Hartnett C, Humans, Infant, Journal Of Palliative Care, Male, Pediatric Enteral Feeding Intolerance: A New Prognosticator For Children With Life-limiting Illness?, Prognosis, Siden H, Soon GS, Straatman L, Terminal Care/ Methods, Tucker T

Tags: 2006, Backlog, Bereavement, Cadell S, Grief, HIV bereavement, iatrogenic effects of research interventions, Journal Article, Longitudinal Studies, Mixed methods, Post-traumatic, Posttraumatic Growth, Stress Disorders, Sullivan R, Trauma and recovery, Traumatology

Browse Items (109 total)